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See all MNHQ comments on this thread

DS still asleep, what to do?

949 replies

ClutchingPearls · 02/01/2013 13:18

DS is 15 months, been generally a bit grumpy for a week. Last night he was especially grumpy so calpol'ed him at put him to bed, he had a slight temperature. He hasnt woken since.

Waiting for an "urgent" call from GP nurse which will be this afternoon or possibly this evening.

Nothing specific, slight temp, was occasionally pulling at ears, decreased appetite. But he's completely un rousable, changed nappy with DD1 and 2 in the room jumping about and he just slept. He obviously is responsive because I've got a few oz of water into him and nurophen in him. But I cant wake him any more than that. So he's been asleep for 17 hours looks poorly but not collapsed. Occasional small cry but by the time I've got to his door he's asleep again.

So MNers should I call the GPs again, NHS direct or am I just wittling about nothing and let him sleep it off. DD2 has complex medical needs and I'm always on the ball with her getting her seen as appropriate. But a normal "abit unwell and sleeping child" has completely thrown me.

OP posts:
RantyMcRantpants · 23/01/2013 09:13

Still keeping you all in my thoughts and prayers.

hellhasnofurylikeahungrywoman · 23/01/2013 09:16

Another one hoping all is improving for you.

ClutchingPearls · 23/01/2013 12:04

Hi me again! sorry for not coming back, because of the snow its made getting to and from the hospital alittle bit more difficult, DD2 eczema and asthma playing up because of the weather and my house has decided to turn into a mould factory because I'm not there enough. So everything is taking more time. I'm feeling really weak as well, so sorry if this is a bit confusing but I'm sure you'll get the gist of what I'm saying and if you can't then just know he's improving and I'm very grateful for everyone reading and supporting me. Thanks

Thanks for the little woolly hug, its wonderful and a great comfort and reminder of all the lovely people on here. Thank you all so much for thinking of us, I've spent my adult life thinking its me and DC against the world and you've shown me that actually there are far more people on my side, willing us on than just me and my little tribe.

I've settled into a little routine of spending the day at home organising DDs and hopefully being there for them and because DS is more awake at night I spend that at the hospital. It worked out better because DD2 nursery bill and before and after school club was eye watering and they had started to be affected by not seeing me. Then on the times DD2 normally goes to nursery I spend at the hospital. DD1 was very upset that her school was closed on monday and everyone got to play in the snow while she had to spend the day at my old bosses office. So today shes off school (HT knows) for a substitute snow day today.

DS is doing really well, still no voice but he's getting so strong. Play specialists have been fantastic, putting him in control and now he looks a lot less confused and fustrated. They have buttons for him to turn on and off the light projector above his cot and get him to turn pages on the books. I think its really helping him to keep calm. Physio put him in a support chair and he just smiled at her and them arched his back out of it and tried to sit on his own. he's very wobbly and cant stay up right but if you hold him steady he can do it. The physio is sure he'll try to push himself whatever she gives him to try and so far he's proving her right. We are on the normal childrens ward now in a side room, They tried on the ward bit but that upset him so he's back in his room for now. The hospital has been fantastic not just with the treatment but little things like DD2 has her nursery traveling teddy this week (Because I needed that Hmm) and so far he's visited quite a bit of the hospital with the doctors.

He would be starting to spend time at home by now but with the weather so bad they can't send him on mornings home incase he needs the hospital quickly and we're too far away. A lot of children were discharged before the snow came and I thought for a second he might be one of them but for the moment the hospital is the best place for him. At the end of the week if the snows gone they might start sending him home for a few hours to help him memory wise and to see if we can cope with feeding and things.

DC consultants have said with a 'brain injury' (still hard to think thats what he's had from bloody chicken pox) its a really long term waiting game, things that they could say 'oh his left sides too weak' may or may not be long term and things we think is ok at the moment may cause a problem later on, if he fails to progress after a while and gets left behind. so who knows what will happen but at least he's with us and smiling.

At the moment I really couldn't care less what problems he may have in the future, having him home is what we want and everything else, well, we got through this we can get through anything. I'll have him back any shape or form, I never thought chicken pox could be any worse than a load of spots, now I realise how lucky we are. DD1 and 2 have a few scars from thiers and DS has only a brain injury from his. I could have lost him or DDs, they could have all gone thanks to a little childhood illness that people moan about being so inconvenient. But thank god thats all that happened to him I'm so lucky. I'm 8kg lighter have aged 10 years but have DS thanks to you lot making me get DC help and keeping us in your thoughts. Thanks

Smile
OP posts:
strawberrypenguin · 23/01/2013 12:12

So glad he's improving clutching thanks for the update. I'm still shocked that chicken pox can be so devastating I can't begin to imagine how you must feel. Still thinking of you, DS and your DD's Flowers make sure you look after yourself too, I hope the snow goes and you get DS home soon

PickledApples · 23/01/2013 12:28

Great to hear from you clutching - and to hear DS is being strong and making progress. Have been thinking of you lots.
Bloody nursery giving you the class bear Hmm and boo to the snow making things more difficult - but it sounds like you are doing so well and being a pillar of strength for your little brood, so glad you have great hospital staff too - it makes such a difference.

I can't believe it was the day after new year's day that you first posted Shock have been checking back often (although keep nc'ing!) You could do with a bit of looking after yourself, too. I wish I could come round, de-mould your house, make you a cuppa and give you a box of tissues and sloppy film to watch with a take away or something. Sending virtual Brew 's for now :) Take care, do let me/us know if there is anything we can do btw. x

ClutchingPearls · 23/01/2013 12:42

thanks both, I can't believe how bloody long its been either I forgot its not Christmas anymore is it?!.

Do you think I can pass it off as an early Easter tree, if there is such a thing?!

OP posts:
MOSagain · 23/01/2013 12:49

((((hugs)))) good to read the update clutching have been thinking of you and your DS often. My DS and DD have just recovered from CP so very close to home for me.

Is there anything any of us can do practically to help you? Don't know where you are but I'm on Surrey/Sussex border. If can help with childcare or anything please PM me xxx

gussiegrips · 23/01/2013 13:03

Good to hear that things are improving with the mini-clutch.

I don't want you to think that you have to keep updating here, I know how busy life is with one kid in hospital and the others out. Sounds like you are all coping really well.

I'd be tempted to send the blardy bear back with fabric painted on spots though...the eejits.

Hang on in there, sounds like things are all improving.

Am away to think about Easter trees - smashing.

5madthings · 23/01/2013 13:12

Thank you for taking the time to update, lovely to hear he is smiling again :)

Thinking of you and sending love and strength xx

Sugarice · 23/01/2013 13:37

Good to hear that he is continuing to improve.

You'll feel so much better when you're all home together.

Thinking of you all Smile

Stixswhichtwizzle · 23/01/2013 13:43

Thank you for the update clutching I'm so glad he's doing better and that he'll be home soon.

Wincher · 23/01/2013 13:54

Thanks so much for the updater, I'm glad he's on the mend. Thinking of you all.

DollySisterMadeNoResolutions · 23/01/2013 13:54

Thank you for updating, Clutching. It's lovely to hear that your ds has come so far.

Am hoping his improvement continues steadily. Sending you and your family well-wishes and (((hugs)))

SocietyClowns · 23/01/2013 13:56

Followed your thread from the start and keeping my fingers crossed your ds makes a full recovery in time! My two year old had chickenpox quite severely and managed to get flu on top of it before Christmas and was very poorly. She also slept 19 hours a day which worried me and is the reason I clicked on your thread in the first place. I am also one of those who had no idea chickenpox could turn so nasty! Sending you Brew and Biscuit and Thanks. There are a lot of mn-ters willing your LO on!!

dontmixthecolours · 23/01/2013 14:05

Great that DS is improving clutching.

You're an inspiration. Take care of yourself

activatetherhythm · 23/01/2013 14:56

So glad to hear such a positive update, another namechanger who keeps checking back. Hugs to you and your amazing boy. Hope your dd has a wonderful snow day xx

BeebiesQueen · 23/01/2013 15:29

I read this thread on jan 2nd and you had so many other people telling you to go to hospital, I didnt post. I just saw this thread again and out of curiosity, to see what happened and wondering why it was still around clicked.

I've read in tears with my heart in my mouth and am so glad he is on the mend. I knew cp could be dangerous, but am shocked at just what its done to your little boy.

You may not feel like it right now, but you are such a strong person and are doing an amazing job. One day you may look back and realise that (especially if you keep the thread!)

Keep doing an amazing job and I really hope your ds makes a full recovery

MollyMurphy · 23/01/2013 16:13

So glad things are going well Clutching! Thank you for the update. You've been amazing have no doubt.

thegreylady · 23/01/2013 16:26

So glad he is improving at last x

Bicnod · 23/01/2013 16:29

Thank you for updating and so glad he's improving.

Thinking of you all x

magimedi · 23/01/2013 16:31

Thrilled to log on & hear good news!

EllenJaneisstillnotmyname · 23/01/2013 16:32

Really pleased to hear things are improving. Smile

Mumsnet will be here for the long haul, clutching. We have loads of posters that can help and offer advice on child health and have experience of brain injuries. Early days and your DS sounds like he's doing really well, but don't feel you have to do it all on your own.

homeaway · 23/01/2013 17:46

You must be exhausted with all that has happened, so much for you to take on board and deal with. I hope that things keep on improving for you and that you can start getting him home . Try and make sure that you are looking after yourself as well .

TimidLivid · 23/01/2013 18:50

so glad to read your update, happy your baby is still fighting and begininning the road home

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