Joe vs. The Cancer

[TrazzleMISTLEtoes]

My 3 year old DS, Joseph was diagnosed with the cancer Neuroblastoma in October.

Survival rates are approximately 1 in 3.

He's coming to the end of chemo and so far, chemo is kicking cancer's butt. 3 cheers.

Brilliant Christmas news! Hooray!

Still not risking uncrossing my gingers, but that looks VERY good for the year ahead

What fab news for Christmas
Merry Christmas to you all!

Sorry Buffy, I've only just seen your Christmas Eve post! Hope you, DH and DD had a lovely Christmas.

Not everyone got Christmas cards this year - I've just found a pile without stamps on... Ooops! It passed the time in hospital tbh.

DH and I are fine again. I honestly do not think he would go for counselling. He's too much of a tough northern man (in his head!). We are fine, honestly, I just find it easier to get it all out of my system on here. He's having a lie in today so I'm. Calling shotgun on the afternoon nap .

Hurrah for the news and a very happy (slightly belated) Christnas to all the trazzle household.

Sorry for my absence trazzle but I want you to know that I think of you and joe (and your DH & DD) every day xx

Merry Christmas to you ! And what a lovely doctor being excited to reveal test results to you early. Brilliant news

Been away from MN over Christmas, but it's so wonderful to come back and hear the dr's news . That's the best Xmas present you could have had.

Lovely lovely news re the test results!

I think you and dh are probably doing brilliantly, given the circumstances. Dh and I argue about who is most tired/ stressed etc and we just have young kids, not big fuck off awful bastard horrible cancer threatening one of our babies to deal with...

X

Very merry Christmas to the trazzles. Such great news about the treatment results. You must be very pleased.

Just dropping in from across the channel to with you and your family a belated Happy Christmas Trazzles

Great to hear such positive news too x

Trazzle so pleased about the test results.

Joe's genetic make up of Tough Northern Man and superTrazzle are serving him well.

Lights aburning for you and yours in Bath.

Despite all this we are still nervous for the results tomorrow! Thanks so much for all your support.

I know I haven't posted thanks for our Christmas gifts but I'm still waiting for Joe! He had the most enormous pile of presents and is averaging opening about 3 a day so far!!!

He is still being a chirpy, cheeky little guy - every day he is more like himself. I'd forgotten how tiring an energetic 3 year old can be!

He and DH had an impromptu trip to hospital this morning after he pulled out his NG tube in his sleep, and it turns out he needs another blood transfusion tomorrow too.

I have been suffering with terrible mouth ulcers since Christmas Eve and thought I must have been more run down than I realised. Today, I can't speak and the spots appearing in specific places lead me to the conclusion of hand foot and mouth. it hurts!!!!!!

Trazzle, delighted that Joe is having a nice Christmas. I'm sure tomorrow will go well, although they will give you lots of caveats too.

I imagine you've got the infection in part because you are run down. What do they say about you being near Joe?

Thinking positive vibes to you.

Splodging from the peak district.

No! Hope it buggers off soon. Please take things easy and don't burn yourself out.

Wishing you all the luck in the world for tomorrow.

Will be thinking of you tomorrow Trazzle xxx

Oh no, hope that goes away!

All the best for tomorrow.

Good luck tomorrow. So sorry you are ill (hardly surprising considering what you are going through). I hope you get better soon.

Thanks all. Apparently not a problem to be near Joe. In the long run its a fairly harmless disease for almost everyone.

Apparently there is even no problem with me going to the hospital tomorrow for the results I think I'll stay in the car until DH has made absolutely certain!

Ill let you know the results when I can.

All gingers are crossed for today.
Thinking of you all x

I'll be thinking of you today (as usually) x

Thinking of you today, gingers firmly crossed!

Hand, foot and mouth is awful. Dd had it in Oct for the first time and went on nursing strike for 6 days as it was so painful. I feel for you. She's just had a 2nd bout but very mild this time, it it wasn't for the blisters I'd have thought it just a cold. Hope you're better soon.

We had a lovely Xmas thanks. Dd was spoilt rotten

Come on Joe, I want it official that you are kicking cancer's butt!

Splodging away in the homeland x

Hey, another good day in Trazzleworld. The Drs don't have any additional results, but clarified that the scan still showed the main tumour, which was to be expected, and then a tiny bit of cancer in Joe's left femur. That is all. So all the stuff in his right femur, both humerus', his spine, his skull and behind his eyes is no longer active although we don't know to what extent the tumours are still physically there.

The results from his bone marrow aren't back yet but the results were good last time so hoping they will be good again.

The consultant was very smiley and said that they were very happy so we are happy. He doesn't smile much usually .

He made it clear that just because Joe has done well so far has no bearing on the rest of the treatment and it was very ominous to hear him say that "almost all" the children come through the high dose chemo. Almost all is still terrifying. We are still so scared.

So good news and cause for a little celebration as Joe gets over another hurdle, but we are aware of the mountains approaching.

So glad, I hope you all have many, many more good days together. We will all be with you through the mountains xx