Joe vs. The Cancer

[TrazzleMISTLEtoes]

My 3 year old DS, Joseph was diagnosed with the cancer Neuroblastoma in October.

Survival rates are approximately 1 in 3.

He's coming to the end of chemo and so far, chemo is kicking cancer's butt. 3 cheers.

Oh Trazzle when it rains it pours.

I hope your cold clears up soon. Can you get Sinutab/Sudafed or another decongestant. I find it works wonders for emergencies.

Any news whether Joe can go home tomorrow (even if it is for one day)?

Thinking of you all.

Poor you Trazzle, that's rubbish.

Get that Potter's echinacea down you, I swear it shortens the length of a cold. Vit C + zinc tablets you put in water 3 x a day until cold is gone. I know it's overdosing but I find it helps.

Hot water, lemon, ginger and a splash of whiskey will unbung your nose.

Have a curry, lots of turmeric.

X

He has to stay until he has been fever free for 24 hours. Temp was over 39 degrees this morning sigh

Buff, I left it at home :(

- hope that it isn't so bad you have to leave him. Get well soon all the Trazzles

x-post. Hope it stays down today.

Is there a chemist/health shop near the hospital where you can get some stuff for yourself? It is so much harder to look after an ill child when you feel grotty yourself.

Very much hope Joe's fever comes down soon, it is hard, there are so many viruses around at this time of the year.

Gingers crossed!

If I go there's no one else to look after him so we've been moved to an isolation room.

Get everything Buffy said AND some vitamin D - my GP recommended it when DS was going down with another cough (helps with the immune system as well as vit C)

Glad they're not making you leave but I really hope that it goes away very soon. xx

Do you have a friend you can call to pop to the chemist and drop it over?

I'd do it for you if you weren't the other end of the country!

Wish you better soon x And hope that Joe's temp starts to come down soon too x

Hope you feel better soon Trazzles and that J's temp comes down speedily xx

What crappy news - hope you start to feel better soon & Joes temp stays down.

I've found you Trazzle. I'm sorry things are shit right now :( and I really hope that you feel better soon and Joe can meet Santa xx

I hope somebody has been able to get you some stuff and that it is making you feel a little better.

Hope Joe's temperature has come down.

Thinking of you.

Trazzle, so sorry things gave been awful but hope the transfusion does the biz.

Tell the staff about Santa if you don't get there. Something will be managed. They always do.

Sorry to hear joe is back in hospital.

I can't give blood anymore for various reasons including the fact that I've had a transfusion myself but I would if I could..

Thinking of you as always

How are you feeling trazzle?

Hi Trazzle

I'm sorry to hear things are not so good regarding a visit to Santa. This link might help a little bit. It takes a minute or two to set up but is worth it. Jo could play it over and over and you could make one for his cousin and little sister too.

www.portablenorthpole.com/home

Sorry- spelt Joe's name wrong. Sloppy!

How's Joe doing today? I hope you can't reply being too busy visiting Santa!

How are you feeling? Did you manage to get some medication? Hope it's a short lived thing x

Barefoot don't worry he can't spell it either!

We're still in hospital...

DB and DNeph arrived safely yesterday and popped in to say hi. Was absolutely wonderful. Yesterday was also the ward Christmas party. Joe obviously couldn't go, being in isolation, but he got a visit from Father Christmas and a quite hairy fairy . He was so excited. It's all he has talked about since. I might have had something in my eye.

I'm still full of cold so quite grumpy but feeling a little better.

Joe didn't have an infection (good news) but his white blood cells have not recovered sufficiently so they wouldn't discharge him.

He gets a poorly tummy from the antibiotics, which happened yesterday, and that always has to be sent off for testing. I was told this morning it was "likely positive" for c. Diff again it's being Re-tested and we're waiting for the results. It may come back negative, which would be great. If it comes back positive it may mean another 10 days of antibiotics and mega-diarrhoea for longer than that.

I'm trying to convince the Drs not to treat it as it seems to me that Joe doesn't have the infection - it causes terrible diarrhoea and his nappies are nearly normal (tmi - sorry!) and in my opinion it is counter-productive to keep nuking his gut when there isn't really a problem. I have IBS and I guess I'm worried about the long-term effects though that probably ought to be the least of my worries!

Anyway, the Drs generally know best so I'll wait and see what they come back with.

Saw DD, DB and DN again today. The cousins play together so nicely, it's wonderful. .

I'm looking forward to having a couple of hours away from this place tomorrow...

Lovely that Joe could meet his cousin.

Sorry to hear that he has to stay in isolation. Keep my fingers crossed that he doesn't have C Diff. Antibiotics are brilliant, but yes, they can have nasty side effects.

Very much hope you get rid off your cold soon.

Thinking of you and Joe.

That brought a tear to my eye thinking of joe, Santa & the hairy fairy

Ill try and post a pic sometime next year probably