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Original poster

Joe vs. The Cancer

999 replies

TrazzleMISTLEtoes · 08/12/2012 23:26

My 3 year old DS, Joseph was diagnosed with the cancer Neuroblastoma in October.

Survival rates are approximately 1 in 3.

He's coming to the end of chemo and so far, chemo is kicking cancer's butt. 3 cheers.

OP posts:
BuffyFairyTopsTheTree · 04/01/2013 10:59

Hey Trazzle, just checking in. Happy New Year to you all.

Splodging back in sw London now.

PollyLogos · 04/01/2013 16:03

Another invisible follower here. Trazzle I hope 2013 will continue to see your son doing well with his treatment. I wish you and your family all the very best for this new year.

ShiftyFades · 04/01/2013 16:08

Great to hear Joe is doing well, how are you?
Sending you all the luck in the world for 2013 Grin

SPBInDisguise · 04/01/2013 16:10

Just checking in and wishing you a happy new year. Glad things are seeming positive

Original poster
TrazzleMISTLEtoes · 04/01/2013 18:04

Hi! We're doing really well, thanks. I've not been on much because there's been no need.

Joe is still full of beans and running around like an idiot. It's hard when we know he is going to be so sick in a few weeks but at least he's having fun now and we can all enjoy him.

He's been in hospital today for a scheduled MRI scan to check on the size of the tumours that are left, and we are in tomorrow for chemo. Should be out again the same day and its a fairly low dose... Just enough to knock him back a bit to encourage stem cell production before the harvest.

He's been playing on the wii today, singing, dancing, enjoying all his Christmas toys. Thank you once again for your generosity. And from DH, DD and I. The shower stuff will come in so handy for the hospital. DH has been meaning to get Game of Thrones to read for ages as well. And I'm looking forward to reading my book too. Ill save it for the hospital I think. Something to take my mind off the treatment. And DD is, of course, delighted with her toys as well.

We watched Tangled the other day and now Joe's stock phrase is:
I love you
( reply: I love you more)
J: no mummy/daddy... I love you MOST.

He's also started announcing that life isn't fair :( not sure where he got that from!!! Probably because I wouldn't let him eat chocolate for breakfast or something!

Other good news is that he was weighed today and is back up to 17kg - the weight he was when this started. He will lose it all again but at least he isn't starting from skin and bone.

OP posts:
IwishIwasmoreorganised · 04/01/2013 19:44

Lovely update - Thanks Trazzle.

It's great to hear that Joe is so strong at the moment to continue his treatment. That puts him in a strong position to kick this in the butt.

narmada · 04/01/2013 20:48

Great to read your news, Trazzle. Give it what for, Joseph :)

dikkertjedap · 04/01/2013 20:56

Lovely to hear that you are all doing so well. I am so happy to hear that Joe is so full of energy and enjoying himself. Smile

Brilliant news about his weight as well. Smile

TeaMakesItAllPossible · 04/01/2013 21:19

Lovely to hear that he's doing what a small person should be doing ... asserting themselves, running around like blue balloon and making you laugh.

Hope tomorrow goes well and willing energy reserves to be built up for the next stage.

Fivemoreminutesmummy · 04/01/2013 21:30

Really happy for you all. I have a DS the same age and you capture the energy, spirit and cheekiness of that age perfectly. Good luck for everything to come.

onedev · 04/01/2013 21:53

So pleased to hear things are going well. All the best for tomorrow.

thewhistler · 05/01/2013 04:02

Trazzle, will think about you on and off today, great he is doing so well.

Splodging from central Asia.

toomuch2young · 05/01/2013 09:30

Lovely to hear he's doing so well.
Go Joe! Big splodges and everything crossed for the next round going as well as possible.

tholeon · 05/01/2013 15:55

Ah bless him, he sounds a lot like my little boy. Hope the chemo went as well as it could do xx

ShiftyFades · 05/01/2013 19:27

Fabulous update, sounds very positive Grin
So glad he is back to his fighting weight, he certainly is an amazing little man (I have one of my own just 10m months older than Joe).
Christmas must have been wonderful in the Trazzle house Grin

NorksAreMessy · 05/01/2013 22:17

Thanks fOr the update. :)

ToffeeWhirl · 05/01/2013 22:59

Hope the chemo went ok today. I'm so glad Joe is doing so well Smile.

blizy · 06/01/2013 02:26

Fantastic update trazzle! I am do pleased joe is doing well. I hope the chemo goes well.

shallweshop · 06/01/2013 21:42

Have been lurking and following Joe's progress. Just wanted to wish you all a very happy and healthy 2013 and hope Joe continues to do well.

drjohnsonscat · 06/01/2013 21:52

Good news trazzle. Nice work joe! Let's hope for more good new in 2013.

We love Tangled in our house.

KittieCat · 07/01/2013 11:48

Another lurker who has been following Joe's progress. Very glad it's a positive start to 2013, sending a happy new year to you all and a more public splodge than usual from London.

Praying4Beatrice · 09/01/2013 23:24

This reply has been deleted

Withdrawn at the user's request

Original poster
TrazzleMISTLEtoes · 10/01/2013 07:01

No extra results yet, Praying, but we haven't seen a Dr since last year ... Joe is going to be in for his stem cell harvest next week so we may get some more info then, but they wouldn't be proceeding with this next stage of treatment if the chemo hasn't worked well enough so we're holding on to that. The scan results we already have are the most important ones, anyway.

Gingers and splodges... Oh, this was never meant to be a clique! A couple of weeks ago I typed cross your gingers instead of cross your fingers...

Splodges... Right... Right at the start of all this people were popping up and saying they were thinking of Joe and praying for him from wherever and in my mind it was like those photos you get of cities at night-time with all the dots of light. They became splodges, really. Not naff for asking at all!

OP posts:
dikkertjedap · 10/01/2013 09:52

Fingers crossed for a good stem cell harvest and Joe getting the numbers he needs.

x

bobkate · 10/01/2013 09:54

I have been reading the updates on my phone, so happy to hear there's been such a positive reaction to the chemo so far. Will keep everything crossed that he continues to respond to his treatment in the same way. What a clever little boy! Wishing him and all the trazzles a bright, healthy and positive 2013 xx