Mini-trazzle and his candles vs. neuroblastoma

[Trazzletoes]

Hi, continuity thread for my little DS (3) who was diagnosed with neuroblastoma last week. Much gratitude for all the support the Trazzles have received. You nasty nest of vipers, you

Trazzle - your beautiful Joseph is ADORABLE!

So glad Joseph is home, it was lovely to read your description of him - he sounds so scrummy. I hope you've had a wonderful day together. Thinking of you all x

Ah Trazzle thank you for sharing details of your precious boy. Joseph is a lovely name (nearly as good as MiniTrazzle) . I hope you managed to all enjoy the afternoon at home and get a good night sleep x

Hi Trazzle

I am so pleased you have told us Joseph's name and a little bit about his interests and personality. He sounds gorgeous - you are so lucky to have him as your wee man and we are all gunning for his full recovery. I am sure a lot of us would like to send Joseph a gift to keep him entertained. If there is an acceptable way for us to do this please say.

Do they have a room at your hospital for parents? Our local Ronald McDonald House has an additional facility at the hospital which provides a very nice bathroom ( fluffy towels etc), laundry facilities and best of all home baking and nice people to chat to. I found it invaluable when I was in hospital with my baby son a couple of years ago.

Love to Joseph and all the Trazzles.

Joseph sounds absolutely gorgeous. I can't imagine how it feels to watch your baby undergo such horrible treatment. My thoughts are with you.

I echo what others have said that Joseph does sound absolutely gorgeous and there is so much love in your words.

Joseph is a lovely name and I think it is very special that he has middle names from two strong, inspirational men.

I wish I had some words that might help but I don't. I am thinking of you all though and sending you positive thoughts and hugs.

Oh Trazzle, Joseph sounds wonderful and your love for him shines from every word you write.
Andrew and Brian are watching over Joseph, I'm sure xx

Hi Trazzles Sorry you are feeling so (understandably) low atm but lovely to know more details about Joseph (gorgeous name btw). He sounds utterly adorable! And aw at at him wanting to be a Knight when he grows up !

Sending strong, positive vibes your way. Wish could do something more concrete to help though.

Joseph sounds like a lovely, strong boy with amazing parents and a sweet baby sister. My heart breaks at the thought of all you will endure in the coming weeks/months. Of course you are feeling emotional and easily overwhelmed. Cry when you need to rest her than bottling it all up. Nobody should have to support their child through this. It is every parents worst fear. Being strong 24/7 is not a realistic goal. Be kind to yourself.

Thank you for making him more real to this South East Asian splodge of warm light. We chose our ds1's name exactly the same way! I hope that Joseph can draw strength from his late grandfathers and from his parents' love.

Thinking of you across the miles...

Just back from a weekend away, checking in.
I feel honoured that you shared your DS's name and personality with us. He sounds utterly lovely and I am so very sorry you have to see him going through this ordeal.
I've written and erased lots of words that sound trite and pointless. So I'm just sending a huge splodge of bright, dazzling light from down in Provence instead.

Just checking in trazzle and sending love from all the Norksies.
Have shared Joseph's story with my family and they are all holding your hands, asking about him every day, sending you love.

Am here too

Thinking of you all x

Delurking too.

I think about you and your boy every day and can't imagine what you are going through.

Life is really s**y sometimes; I really, really hope you are blessed with luck from now on.

Thanks all, I've spent a lot of time reading your posts today saying how adorable Joseph is because he's been a bloody nightmare today. I know he's feeling poorly from the chemo, but he's just been on and on and on and on and on. No idea how I would have coped without DM here.

An unscheduled trip to the hospital to have the ends of his wiggles changed after he managed to get them, and half the bathroom, covered in poo. .

DH is in a bad mood, which is totally understandable, but I feel like its my fault because the house is a tip. Between DD and DS' tantrums today I haven't had time to draw breath. I know it's the cancer he's pissed off at, I just can't convince myself of that.

Tomorrow I will kick myself up the bum and be more positive.

Joseph's temperature was creeping up at bedtime. We're taking it again at 9.30 and I hope to god it goes back down again. I'm not sure I can cope with little sleep myself and with him being exhausted too.

Big kiss for trazzleDM for being there to support you.

Right, you know all those RL friends who keep saying 'if I can do anything to help.....' or ' I wish. Could do something for you'

NOW is the time to get the bossiness and most organized friend to arrange a housework rota for your home. laundry, dishes etc all need doing, and they are the people to do it.
You can repay them all in other ways AFTER Joseph has finished his treatment. You need some help RIGHT NOW.

people love to be helpful and need to be wanted. Do them the favour of letting them help you

Just wish I lived nearer

Wishing you all a peaceful night. Hope the temp reduces enough to let you get some rest too.

Totally in agreement with Norks. If your friends feel like us, they will be grateful to have something to do to help. Please ask them.

Totally agree with Norks - let your friends help. Hope temp is ok & you all get some rest.

It's so filthy (again, even after the family intervention) there is not a chance I can let anyone in to see it.

Just wanted to say I'm thinking of you and your gorgeous Joseph (one of my favourite names by the way!). And I definitely would be desperate to do something practical to help if any friend of mine was going through what you are, so please please delegate some of that everyday stuff. Only you two can be your little boy's mummy and daddy but anyone can wash his clothes!

Silly trazzle get some help please.

What you say is "thank you so much for offering to help. I need to be there for Joseph and the house is a midden. Can you please try to bring it up to the level of a pigsty? It would mean so much to me. "

Please let people help you.
Ask your DM...what does she say?
Ask your bossiest friend

Friends don't care at all about things like that! You musnt spend a moment worrying about that! They will be glad to have something practical they can do to help, I know they will.
You are a brilliant mum managing an impossibly difficult situation.
We are all here for you and all your RL friends and family will be too.
Fingers crossed for a peaceful night for you all and a temperature reduction at 9.30 x

Sorry to hear today has been so tough.

Fingers crossed that Joseph's temperature settles and that you all get some good rest tonight.

As for the house - friends aren't going to be judging you on your housekeeping abilities so please do take advantage of offers of help; someone to run a Hoover around, clean the kitchen or bathroom or take a load of laundry would all help make inroads and then you'll all feel a little more able to relax at home.

Still thinking of you all and sending love.

Xxx

Evening Trazzle. I'm sorry you've been feeling low. You must be mentally and physically exhausted yet still going strong for Joseph and dd. You are amazing, truly you are. I know it's not much but I hope huge virtual hugs and hand squeezing are a teeny boost.

I'm glad you've shared Joseph on this thread so everyone can picture what a gorgeous and special boy he is.

I wish I lived closer. Anything I can do, tell me. If you need me up north to help out I can.

Splodge is back in London. Norwich has changed a lot but The Rose Tavern is much the same