Please hold my hand - cancer.

[Trazzletoes]

Currently in hospital since last night with DS who is 3. Scans show masses on his brain. Drs believe them to be tumours, likely to have come from his abdomen.

Waiting for more scans/tests etc. staff are being overly nice to us which is worrying me more (though they did refer us to social services last night as they thought DH or I had fractured DS' skull.

Feel incredibly sick. He is 3 years old. Please hold my hand.

What minerals are those then, Thewhistler? Apart from sodium and phosphorus?

DD used to get prescribed an anti-emetic called Ondansetron for chemo induced nausea. Worked really well. She also loved strong tastes to block out the odd taste in the mouth from the chemo, lime doritoes, pickled onions, olives, curries and chow mein. Hope he's having a good night and you are able to get some sleep.

Trazzle I am so sorry you and DS are going through this. I'll be praying for him every day ((hugs))

Hi Trazzle. The chemo does horrible things to their tastebuds and appetite. I am fortunate that my 16 year old is able to verbalise things and I am not left guessing. For the last 11 months we spend an awful lot of time talking about food, planning meals and then my son is only able to eat a mouthful or two. He loves the talk but it is difficult to see him not able to enjoy. It may be your son is able to eat throughout his treatment butbe aware that he may not be able to. My son was fitted with a feeding tube and to be honest it has taken the oressure off him and us of getting him to eat. This will be removed when treatment ends.

I am glad that you have so much family support and do not feel guilty for resting - your body and mind are in shock and need rest to carry on.

He's only 3. He's not yet addicted to fizzy pop and has never liked the taste. At least he likes water and is drinking it a bit more again now. Hates straws...

Curry? That would be good. We've been told to avoid giving him anything remotely tasty spicy so as not to irritate his digestive system. Sigh. This is all such a new and unwanted minefield. Guess we'll work our way through it, eh.

You will Trazzle - you're doing an amazing job & are an inspiration to the rest of us (although I know you'd much rather not be obviously).

There will be times when he is ravenous between treatments. Then you can get as many calories down him as possible :)

It's all so new. You will be an expert soon. I know you don't want to be though x

Thumb, the sugars help too.

But if he doesn't like fizzy pop, good.

I see minmooch has mentioned the NG tube already.
It really does take the pressure of and can be an enormous relief if food becomes a battleground.
Most parents resist because it is so visible and medical.
But it is worth consideration if your DS's eating doesn't pick up.

Lots of love to you and your boy too minmooch

Thinking of you trazzle and sending lots of love to all your family. I am so sorry you are all going through this. Jelly might be a good thing to try (home made not the tubs as it is nicer)

Trazzle - you sound so positive and pro-active in your posts. It amazes me.

How old is DD? How is she coping?

Love to you and your family

Food he may like

Jelly, try the little individual pots
Ice Cream
Frozen Yogurt
Fruit Juices frozen into cubes
Mild Korma curries made with single cream, with whole rice
Soup- home made, add as many dark green veggies as you can.

So sorry you are going through this. xx

Lots of love being sent this morning from Kent

Trazzle, have PMd you :)

Sending love and prayers to your family x

Thinking of you and your DS this morning Trazzle

Another splodge of light and a hand for you to hold here in Warwickshire. X

Another splodge of light in Somerset, where you can bring your son when he's better for a donkey ride and of course your lovely daughter. Hand holding for you and your lovely family at all times xx

Morning, did you get any sleep last night? How's DD now?

It's a lot for a little body to go through isn't it :( When you post the actual details of his treatment etc it makes it so much more 'real', I'm sitting here in tears - wishing I could do some of his treatment for him, I'm sure others would too if they could.

Cancer is a bastard (you definitely need the Snail!!)... but we will be with you all every step of the way. It sounds like you have some good support from your family - but we are your bigger family too and will do anything & everything we can to help you through this.

Lots & lots of love & hugs
x

Morning, hope you all managed to get some sleep.

Morning trazzle, splodge of light still shining here. Hoping you all had a good night's sleep.

Read this thread through tears at 3am... I just want to wish you super strength and belief to get you through the tough times ahead. You sound like an amazing person and you and your gorgeous boy will get through this..

Hope he is home today and he finds something he wants to enjoy eating.

Thinking of you all from down south (bucks)

A splodge of light from the highlands of Scotland for you.
Have lit a candle for your boy, one called 'Christmas eve' in the hope that he is responding to treatment and home by then.

I'll keep him in my thoughts and my 'version' of prayers.

You are Amazing Trazzle; I hope you have him home now.

Another splodge of light in Bristol. I hope you're having a lovely time with everyone.