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DLA Wait Times Part 9 (2023)

1000 replies

Lostatsea10 · 18/02/2023 12:16

Thought it was time for a new thread :)

OP posts:
Are your children’s vaccines up to date?
chuggins · 10/03/2023 15:19

@SleepingRedSnowBootsAndThePea

No don't be sorry at all! I'm so shocked that they wouldn't have people who have good knowledge of certain conditions given the job they do.
As if we don't have to fight enough for our kids with schools and appointments to get support, then we have to fight them too.
I really hope yours gets sorted soon.

SleepingRedSnowBootsAndThePea · 10/03/2023 15:21

Snickerdoodles19 · 10/03/2023 15:12

@SleepingRedSnowBootsAndThePea i know it’s hard going especially when the school or hospital goes against you and says something completely different that’s where the issues start, yea I agree you’d have thought that decision makers would have basic knowledge about most conditions and too looks for the triggers.

The thing is the professionals aren't going against me. The diagnosis is confirmed (funded privately of course though or we'd be waiting another 4 years!!). Psychologist confirming what I've said, and two Ofsted registered nannies. The DWP have reports from paediatricians and everyone else.

I really don't know what their fucking problem is and think I'm becoming peri-menopausal so just have no patience with this gaslighting crap anymore. I've told them today it's pathetic. Read what you've been sent and do your job and stop wasting my time. I have my own job to do: providing financially and emotionally for my children. You do yours. Same with school etc. I am so sick of it all, I can't do my job and theirs anymore and I've told them all in no uncertain terms (but without swearing 🤣🤣🤣) to get their fucking shit together and do their fucking jobs. I've had enough now.

SleepingRedSnowBootsAndThePea · 10/03/2023 15:25

chuggins · 10/03/2023 15:19

@SleepingRedSnowBootsAndThePea

No don't be sorry at all! I'm so shocked that they wouldn't have people who have good knowledge of certain conditions given the job they do.
As if we don't have to fight enough for our kids with schools and appointments to get support, then we have to fight them too.
I really hope yours gets sorted soon.

Man on the phone today said "the assessors have access to doctors to discuss conditions with if needed". I said "ok, so did they?". He said "I don't know." I said "I suggest the next one does. Write that down please." 🤣 It's like trying to micromanage a large team of incompetents but this is not my job. And unless they want to pay me to be their manager then they need to start doing their fucking job without my constant oversight. If I was actually having to manage these idiots then they would not last long in my team, being incapable of doing their job without constant prompting - more needy than an autistic 4 year old in many ways! 🤯🤯🤣

chuggins · 10/03/2023 15:31

@SleepingRedSnowBootsAndThePea

🤣🤦‍♀️
It's like having to drip feed people to make sure they do their jobs. Hope you're sorted soon keep us updated.

SleepingRedSnowBootsAndThePea · 10/03/2023 15:39

Thanks. I hope so. Sorry for dominating the thread with my rants, just had enough! I'm already trying to be two parents in terms of fulfilling their financial and emotional/ physical needs and I can't take on a third job of managing all of the public services who seem to be incapable of doing theirs even when it's something as basic as assessing reports against simple criteria. Aaaargh. 🤯🤯🤯

I honestly feel like my head will explode because every supposed "service" that is meant to help provides not even the pathetic amount of help they are meant to provide yet somehow creates ever more admin for me to do, meaning even less sleep than normal. Will have to make up later the hours spent dealing with this nonsense today. Totally unnecessary nonsense.

Really helped to find this thread and have somewhere to vent so thank you for listening and being supportive. And I hope everyone else waiting has better luck and has an assessor look at their claim who can at least read properly.

chuggins · 10/03/2023 16:09

@SleepingRedSnowBootsAndThePea
You're right in everything you've said

Minnie83 · 10/03/2023 17:03

@SleepingRedSnowBootsAndThePea you are completely right in what u have said, but my god I couldn't stop laughing at you ranting lol u sound like me haha x

Mumtodiabetic · 10/03/2023 17:30

I wouldn’t want to do the people making the decisions jobs tbh I suppose we all think our children should be entitled to high rate care.
may son isn’t autistic but is a type 1 diabetic insulin dependent! Anyone else on this thread claiming for a chronic illness alone and not autism?

Busymummmy84 · 10/03/2023 17:46

My 4 year daughter has just been awarded mrc for her epilepsy ❤️

SleepingRedSnowBootsAndThePea · 10/03/2023 17:48

Minnie83 · 10/03/2023 17:03

@SleepingRedSnowBootsAndThePea you are completely right in what u have said, but my god I couldn't stop laughing at you ranting lol u sound like me haha x

🤣 I usually keep it all inside but I'm now so sick of being nicey nicey calm and collected "let's find a way to co-operate, poor you, yes I know you are really busy 🎻" mummy with all of these people. You're not the only ones who are busy?! The audacity to keep saying that to a disabled lone parent to two disabled kids who also has a full time job, when it is literally their paid job to support us. 🫣😆 It really is mind boggling and you'd think they'd be embarrassed. How they have the nerve, it's astonishing. And I'm meant to be sympathetic to them. 🤔

SleepingRedSnowBootsAndThePea · 10/03/2023 17:53

Glad you had a positive outcome @Busymummmy84 😊

Minnie83 · 10/03/2023 17:53

@SleepingRedSnowBootsAndThePea creased here, the whole benefit system is a joke aswell as public services x

Mumtodiabetic · 10/03/2023 17:59

I’m pleased for u would u mind me asking what rate u receive? Did u have a long wait? X

SleepingRedSnowBootsAndThePea · 10/03/2023 18:07

I guess at least the cost of her private diagnosis that the NHS should have done might be recouped in a year and a half or so from their measly £25 per week. Guess I'll just suck up the £2k per month childcare cost for her then so that I can keep working to pay their salaries to sit there and not read the information they're sent. 🤣 All im favour of employing disabled people of course, but surely it should be obvious that those who can't read aren't a good fit for a job consisting of reading reports.

It has been good to find some solidarity here about the absurdity of it all.

Mommax3 · 10/03/2023 18:19

@SleepingRedSnowBootsAndThePea
It is the most frustrating experience having to deal with people, particularly when they have no clue about your child. I’ve just filled in the CAMHS form for my 6 yo today and feel the entire form is just completely negative! Same as the application for DLA. Nothing like having to point out the areas in which they struggle, taken an emotional toll on me today.
Good Luck with your MR, not that you should have to go down that route!! It’s insane. To those waiting for an outcome I’ll keep my 🤞🏻

SleepingRedSnowBootsAndThePea · 10/03/2023 18:32

Yes just soul destroying having to say all of these awful, negative things about your child. After filling in these DWP forms I went and wrote a list for myself of all of the ways that they are wonderful and funny and kind and clever (6 year old figured out the fermi paradox on his own the other day and is now worried where the aliens are! 🤣), to balance it out.

Soul destroying process. And I know we're lucky that I have a good job and have been able to fund some help myself with private care and nannies. I feel so much for people trying to fight all of this and desperately in need of that money right now, if then told "oh we didn't read it properly but hopefully now somebody will, in another 5-6 weeks". 😡😡

It's unacceptable. The constant fight for help for my kids for two years now is gradually destroying my health due to my own chronic health conditions, I can't keep doing everything with no support, and then what happens? If they push me over the edge so I can't work at all? Is this what they want? Because that's the only logical outcome if they continue this nonsense with every service we try to access. The state would lose our tax and have to fund all of our living costs, a totally false economy when they could just make some small contribution to make things sustainable while I continue to pay the mortgage and everything else. It's utter madness, all of it.

I really hope others on the thread have less of a battle to get it sorted than me. Maybe I am just very unlucky but we seem to have this sort of battle with every single possible service we apply to for anything. We finally seem to (third time lucky!) have a competent social worker so I'm hoping she'll help. Good luck everyone, and much patience (and probably wine).

AnxietyMumma · 10/03/2023 18:39

@SleepingRedSnowBootsAndThePea I feel like they haven't even looked ag your forms and been marked as rejected by mistake

SleepingRedSnowBootsAndThePea · 10/03/2023 18:45

AnxietyMumma · 10/03/2023 18:39

@SleepingRedSnowBootsAndThePea I feel like they haven't even looked ag your forms and been marked as rejected by mistake

No idea. The man on the phone read out to me the assessor's comments. He asked me if I want to submit any more information. I pointed out to him that the assessor's comments were factually wrong and directly contradicting multiple comments in the reports from professionals that they supposedly have already reviewed. So no, Mr call centre man, I do not need to send more evidence. You - or your colleagues, such as they are - need to read the evidence you were sent several months ago which already covers all of these points. Or explain to me what this "assessor"'s qualifications are that makes them qualified to overrule paediatricians and psychologists etc. 🙄🤣 I think they are just complete idiots tbh. To wait 4 months for someone to not read any of it, is just 🤯🤯🤯

It appears to be plain old incompetence. A running theme with social services and CAMHS and schools as well as DWP.

SleepingRedSnowBootsAndThePea · 10/03/2023 18:58

I'm glad my rants have made some people laugh at least. 😊 Solidarity to you all. 👊💪

MG811216 · 10/03/2023 19:51

**@Mumt@Mumtodiabetic@Mumtodiabetic@Mumtodiabetic@Mumtodiabetic@Mumtodiabetic@Mumtodiabetic@Mumtodiabetic

MG811216 · 10/03/2023 19:54

No idea what happened to my post. I was trying to reply to say that I am applying for a chronic illness. We were awarded mrc and lrm - my son is terminally ill, needs round the clock care and can barely walk. I did a mrc and got turned down! We had a lot of evidence from school and specialists. I'm part way through an appeal with more evidence - have no idea how long it will take - so frustrating!

SleepingRedSnowBootsAndThePea · 10/03/2023 19:56

Mumtodiabetic · 10/03/2023 17:30

I wouldn’t want to do the people making the decisions jobs tbh I suppose we all think our children should be entitled to high rate care.
may son isn’t autistic but is a type 1 diabetic insulin dependent! Anyone else on this thread claiming for a chronic illness alone and not autism?

I don't "think my children should be entitled to higher rate care". I don't know why you think all parents would think that. The DLA should be based on their documented needs, surely? Mine should get middle rate care and lower rate mobility because those are the criteria that match their particular medical reports.

Autism is a medical condition btw. As a parent who has my own "chronic medical conditions" and autism as well, I can tell you which has done more damage to my life and is harder to live with. Clue: it's not the first one.

SleepingRedSnowBootsAndThePea · 10/03/2023 19:58

MG811216 · 10/03/2023 19:54

No idea what happened to my post. I was trying to reply to say that I am applying for a chronic illness. We were awarded mrc and lrm - my son is terminally ill, needs round the clock care and can barely walk. I did a mrc and got turned down! We had a lot of evidence from school and specialists. I'm part way through an appeal with more evidence - have no idea how long it will take - so frustrating!

That's horrific. I am so sorry.

As I said before, these people should be so ashamed of themselves.

Neikz · 10/03/2023 20:49

@Snickerdoodles19 That lady I had no idea what she was talking about she didn't even ask me any questions etc I rang 30 mins later I spoke to a gentleman who said I was awarded yesterday lower rate my daughter only 6 months I will wait on the letter I didn't get any text msg should receive back payment by weds

Neikz · 10/03/2023 20:55

@Mumtodiabetic My little girl 6 months old with sickle cell anemia scan date 28/11 was awarded lower rate yesterday i know its really hard for babies

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