In a&e just told I have a brain tumour

[Wells37]

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

Just popping in to say Hi this morning. I hope your day goes as well as it possibly can. I'm glad you had a real friend to talk to last night & hopefully another to visit this afternoon.

hospitals are dreadful for getting any sleep. I can't use ear plus or anything so there was no blocking the noise out & one poor elderly woman kept calling out 'help' over & over. Then the staff kept letting the hallway door & metal bin lid slam shut, plus chatting about their personal lives next to the beds.

But hopefully go can go home, at the very least for the weekend. Xx

I second the advice from others that lorazepam 1mg will really help with the immediate panic that you will be feeling. Obviously if you feel too woozy then ensure husband / friend/ parents are with you for all medical meetings and also in case you are unsteady when walking around.
Sending hugs and hope the next few days bring more clarity. The worst time is now,all the waiting , reporting and planning treatment. 🌻🌷🌻

It’s always the same on these kinds of threads - idiots who don’t realise that their words have an impact on someone already feeling just about as vulnerable as it gets.

Wrong thread, sorry 🫢

I'm a doctor, it's not unusual in the slightest. A very common place for breast tumours to spread is the brain. Please stop talking such crap. OP has enough to get stressed about.

OP i'm so sorry for your situation. Thinking of you. Hope you get some answers soon. Look after yourself x x x

I think the posters advocating to wait for the biopsy and scan results are very sensible OP. I know it’s hard. They may suspect cancer, as they mentioned it to you, but they won’t actually know if it is, what type it is, or what treatment it responds to until they have the biopsy results - that’s the gold standard. It’s a scary process and one that doesn’t feel real to begin with - we always think cancer is something that happens to other people. But whenever you feel panic try to remember that you’re in the hands of experts who know exactly what they’re doing. You weren’t safe before, but you are now, they’ve got you, and whether the tumour is benign or not, they will know how to help you.

Sending you all the good vibes possible for the best outcome OP.

A friend had one which was benign so I hope yours is similar.

This. Awful comment and designed to raise stress levels even more - not to mention being insulting to the doctor concerned.

Hi OP. sorry to hear your news, but thought some practical advice might be helpful. Whilst you are there, start to compile a list of questions, that you would like the answer to and ask them at any meetings or interactions that you go to. Next, make sure someone is with you at appointments... when you are there, you will latch on to the bad stuff but the other person will hear all the stuff you screen out and together you can create a more balanced picture of what you are being told.

Brain tumours are much more common than you realise but until they have done a biopsy, you will not know the actual diagnosis, as difficult as it is try not to think about the extremes, you cannot change it and worrying will make no difference. I applaud you on waiting until this morning to tell your parents, much more sensible to share news in the morning so people get a decent night's sleep to deal with stuff in the morning.

Hi @Wells37 I just wanted to send my love. I have been in a similar (but different) situation where I was told in a&e I had a mass showing on a Ct and they were sure it was cancer (it wasn’t, in my case). But I remember that feeling. So I just wanted to say I’m thinking of you and here if you want to talk xx

Just saw this and wanted to send my love to you. I hope you have some good support.

Praying for you @Wells37

Fingers crossed for today that you will get a bit more clarity on the situation, and of course hoping for some positive news. It's understandable you're panicking, hopefully you the meds can help you relax a little. I hate that people have to go through this. It's so unfair.

Thank you for sharing this lovely post.
Sending you hope and strength OP

I know that waiting is excruciating, but in the mean time please try to be reassured that there are so many different types of tumour, and what kind, position etc all make a huge difference, and there is every possibility that yours is fixable and benign.

Really hope you get some answers soon

Sending hugs

If/when YOU choose to widen the circle of who knows, a previous poster had the very wise suggestion of starting a WhatsApp group to update concerned friends/family but, crucially, with the no comments option.

Will mean you're less overwhelmed at such a vulnerable time.

What a shock.

Wishing you good luck for your MRI.

I think this is a really good idea @ZuzuMyLittleGingersnap. I had a breast cancer diagnosis earlier this year and as I went through the various scans and testing friends and family were naturally concerned and wanting updates. But it was overwhelming to have to keep repeating the same information, and to be honest, the reactions of some people were depressing too - I had tears and ‘head tilts’ from people who very obviously thought the diagnosis was a death sentence no matter how many times I told them that nothing could be further from the truth. Not good for your mental health at all, and a WhatsApp group avoids all that drama.

Thank you for everyone's nice messages. I'm exhausted.
I've had ct chest and abdomen and mri head this morning. No results yet. The said I can hopefully go home with steroids and anti seizure meds.
Dh is going to go home home to make sure he's home when ds get home from school then tell them both.

Sending huge love and hugs xxxx hope you get some answers soon xxx

OP it sounds as if you are being thoroughly investigated and cared for brilliantly Sending you more virtual hugs .. you can do this 💪 Xx

So glad to hear you can go home and rest.

Wishing you well @Wells37 . I wonder if you are near me (the username suggests you may be). If so and you wanted a friendly face at any point, please just shout (am mostly friendly post coffee). Sending much love.