In a&e just told I have a brain tumour

[Wells37]

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

@Wells37 I have pm you 💐

The dr has just prescribed lorazepam if I need it as I keep panicking

No harm in taking a lorazepam or maybe even a half dose just to take the edge off of the panic. Hope you can get some answers today and that all the tests go smoothly. And that hubby arrives soon.

Babe, take the meds to take the edge off. Panic is a logical response. Nobody is going to know what you’re dealing with until all the results come in so there is no harm in delaying your response until you have the facts. I hope you get some rest. I’m thinking of you. Btw, I’m a nurse and I’m in Aus, so if you need someone when everyone’s asleep, I’m here for you. X

This. Please phone your parents. If you have a good relationship they’d be heartbroken to think of you struggling emotionally with this on your own.
simialrly, your dh CAN leave the kids. He doesn’t need to say it’s a brain tumour at this stage, until you have a clear diagnosis and know what the course of action is. But right now you need his support and if kids can fend for themselves mostly let them do it. It sends clear message to them that mums need support too, and that you are neither a martyr or indestructible- seeing their mum or dad vulnerable is no bad thing from time to time.

people fear the unknown. You’re in that position just now as will any adult you ask for help form. So, makes sense to not inform kids of what is going on right now, they don’t need to be fearful and anxious. But they CAN know mum is unwell, in hospital, waiting for more tests, and a good partner is one that will be with the unwell person as a top priority.

Not sure what’s being insinuated here. A previously undiagnosed primary breast cancer could have spread to the spine and then to the brain. If they had found a mass in the breast it would have been more likely that the brain tumour was secondary to that - affecting the treatment options and likely the prognosis. So a very necessary examination and l would think part of the investigation protocols for someone presenting with OP’s symptoms and initial scan results.

Hopefully you can phone your parents this morning

Sorry to hear what you are going through. This is oddly the worst time when you don’t know what will happen and fear the worst. There is a lovely corner of Mumsnet where all with cancer scares are welcome:
https://www.mumsnet.com/talk/general_health/5143517-cancer-support-thread-95-no-googling-allowed?page=9&reply=138597343
Sending hugs

You should take it OP. I’ve been in a similar situation after a cancer diagnosis - the panic attacks were overwhelming and they won’t be helping your blood pressure. Lorazepam will help - even if you ask for just half a dose. I’ve got fingers crossed tightly for you for test results, and will be following for your updates. Stay positive - hard l know, but there is so much they can do these days. Sending a big virtual hug.💐❤️

Same as the poster who said about being told in a&e. I’ve no clue why people who don’t know what they are talking about post shit like that.

op, I’m so sorry you’re going through this, a close friend of mine has recently went through similar. It is going to take them some time to fully understand, but they have plenty of expertise , so you’re in good hands. 💐

Bless your heart ! I hope you can get more clarity on your diagnoses and that you get speedy non intrusive treatment and please let us know when you are feeling up to it how things are.
everything swirling around you it must be so hard to think straight atm .. thinking of you 🫶.. so many positive outcomes I have heard … a lady who I see walks her dogs she had one and is all good now … please hang on as much as you can to the positive outcomes being shown on here lovely lady.

I send you plenty of hugs. I really hope the hospital sorts the situation out for you. I also send hugs to your family. That is all I can say. I am sad for you. Love indeed .

Ah ok. Well as I say try not to panic (easier said than done, I know!) until you get the biopsy results. As others have said many brain tumors are pesky but benign. Take the drugs, take the support. When word gets out (I kept mine fairly quiet) set up a WhatsApp group where people can’t comment but you can keep them updated. I explained to everyone I was getting a bit overwhelmed with all the messages but appreciated they were all worried. Most people -other than the usual drama llamas-respected that and gave me space.

I advise you stay away from the brain tumour Facebook group for now. There's a lot of 'worst cases' there, which will probably freak you out.

I agree with this. Sometimes people (not usually patients) can word things really tactlessly too. There are good sources of support online but I've never been back on Facebook groups to be honest!!

Just sending a big hug. Hope all goes well today and you get some more answers. It's amazing what can be done these days. A good friend had a brain tumour and was operated on and removed. He's been left slightly deaf in one ear but apart from that is absolutely fine. 💐

So sorry you’re going through this. Step away from google as much as you can, lovely. I’m being treated for cancer and limit the internet sources - I’ve found the thread in general health mentioned above to be very helpful.

hopefully you’ll start getting some answers today. Meanwhile, I’m sure you’ve texted dh a list of things to gather from home but having recently been in myself, may I suggest a couple of things: changes of nightwear/undies, wash bag, hairbrush/ hairties), moisturiser/hand cream, lip salve (it can be drying in hospital), charger with long cable/ battery pack, eye mask if you have one to cut out the light, I find gel earplugs help cut out the noise (boots do them), headphones/ earbuds. Baby wipes are good if you don’t feel like a shower.

sending you lots of positive thoughts. 💐

Someone I know has had a brain tumour (secondary from liver) and it's been very successfully operated on and treated. He is living a very normal and very active life despite being elderly (still mucking out and riding horses) and you wouldn't know anything was ever wrong with him at all.

Sending you hugs. My old NDN had a huge brain tumor and is now healthy and living life again.

So sorry you are going through this, what a shock! I cannot believe a few idiots on here, are asking if you wouldn't mind giving your symptoms! I just wanted to share my experience. About 4 years ago I went to the GP, mentioned in passing I had terrible tinnitus and hearing loss in one ear,he went all somber, said it could be a brain tumour,acoustic neuroma,2 weeks cancer pathway,CT,all clear! After COVID it was ridiculous trying to get a GP appointment,it would be nurse phone consult 6 weeks down the line. I was in pain on and off for over a year, would give symptoms to the reception staff, told to bring MSU. They were always nad which I knew they would be. After 12 days agony, I presented at the local ed. Had full body CT. Lovely consultant came in, said a list of what was wrong with me,then everything that was clear,then,scooted his little stool over right next to me, said "however,we have found a tumour on your kidney, quite large,you need to prepare yourself for it being malignant", not it might be or could be. Various tests,repeat CT, turned out to be non malignant,no further treatment. I hope you get some help soon.

So sorry to hear this OP. I once was sent to A&E for a blood test primarily, and ended to being diagnosed with a serious health condition, there and then. It was so frightening but it meant that things moved really quickly, as opposed to going the GP and referral route. I ended up getting the best care I could have hoped for.

Nothing to add except a handhold. I hope today brings some answers and a clearer path forward for you.

Good grief OP, you poor darling.

Lorazepam is ideal for this type of panic. Take it and try to rest amongst the noise if you can. It might also stop your mind from spinning a bit.

Love from Oz, will be thinking of you

Good luck for the MRI. They can't really anything for sure yet. Hopefully it's not cancer

I second this and also about limiting internet sources. I had a breast cancer diagnosis earlier this year and temptation to Google proved too much. Frightened the life out of myself totally unnecessarily reading medical studies and statistics which are mostly irrelevant to the type of cancer I have. I just wanted to add that if you want to read up of stuff that’s relevant to your condition your clinicians are the best source. Mine gave me quite a few websites which are patient focused and allowed easy access in layman’s’ terms to relevant information.