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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

In a&e just told I have a brain tumour

930 replies

Wells37 · 26/09/2024 20:41

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

OP posts:
FrancisSeaton · 26/09/2024 20:44

I'm so sorry to hear this
Do they have an idea whether it is benign/malignant or what stage it is?

BigSmallFigBall · 26/09/2024 20:45

I'm so sorry, OP. That must be such a shock and a million thoughts must be swirling around in your head.

LivelyGoldOrca · 26/09/2024 20:47

They told you in AE? Are you in a hospital with neuro beds? Can you have a friend come be with you or look after the kids?

HappierTimesAhead · 26/09/2024 20:47

I'm so sorry, this must be a huge shock. I will say I know 3 people who had brain tumors and they are all healthy and happy and tumor free.

Radionowhere · 26/09/2024 20:48

Do you have someone else that can sit in with the kids so DH can come back? Or someone else that can be with you?

okayhescereal · 26/09/2024 20:48

@HappierTimesAhead I was coming on to say the same thing!

Sending you good vibes OP xx

Lemonsandsunshine · 26/09/2024 20:49

I'm so sorry, sending you a hug. What an awful shock. A family member of mine had a brain tumour and it's a frightening diagnosis to get but you need to get full info from your doctors as there are so many different types and right now I imagine it's difficult to take much information in. When you are ready the brain tumour charity website can be helpful. Hoping the doctors have an effective treatment plan for you 🙏

TotteringonGently · 26/09/2024 20:49

I didn't want to read and run. Deep breaths. Do you know anything about it at all? Not all tumours are malignant, remember. You must feel absolutely numb and in shock, please do look after yourself. Huge hugs and a hand hold xx

theotherfossilsister · 26/09/2024 20:49

LivelyGoldOrca · 26/09/2024 20:47

They told you in AE? Are you in a hospital with neuro beds? Can you have a friend come be with you or look after the kids?

They told my brother after he presented at A and E so it is not an uncommon scenario.

I’m sorry op. That must be really scary for you. I hope you get some answers to all the questions running through your head soon x

Cable1905 · 26/09/2024 20:50

It’s hard to know what to say to you. You must be floored by this news. It’s the start of a long journey for you and your family. You are young and fit and there will hopefully be different treatment options available. I wish you well.

Justwingingit2005 · 26/09/2024 20:50

My mum was taken into A andE with symptoms pointing towards ovarian cancer. It was later diagnosed as cancer from scans and biopsy but the A and E Dr didn't mention potential cancer, and it was the oncologist together with a nurse specialist who gave mum a diagnosis.
I suspect A and E said there is a mass but they won't at this stage know anything further.
We know someone who was told same but was benign tumour. He is fine now.

Enigma52 · 26/09/2024 20:51

Very sorry OP, what a shock that must have been for you 🌻
Do you have any other info?

I hope you have good support around you tonight.

halava · 26/09/2024 20:52

So sorry, you must be in bits. That's a lot to process especially in A/E where they don't really have time to tell you a lot apart from the bare bones of things - for now.

Others will know more about the process and precise diagnosis/tests. What a shock for you but it could be benign remember? There's nothing more I can say to you to make it better right now. But I hope the diagnosis is not too bad. Good luck.

Wells37 · 26/09/2024 20:57

LivelyGoldOrca · 26/09/2024 20:47

They told you in AE? Are you in a hospital with neuro beds? Can you have a friend come be with you or look after the kids?

Yes they told me in a&e i would have posted it otherwise!
I've had a ct scan, I've asked lots of questions and they said it's most likely cancerous.
My kids are older so he could come back but I want to keep everything calm for them until I find out more.
Waiting for a bed, they said I will have mri scans tomorrow and know more then.
I can't decide whether to phone my mum and dad or not. Mums 30 mins away dads an hour both in 70s.

OP posts:
Wells37 · 26/09/2024 20:59

Apparently there's lots of swelling around it.

Not sure if it's a good idea to to phone anyone

OP posts:
Wells37 · 26/09/2024 21:00

He's just told the kids I'm having more tests tomorrow. I will tell them when I know what's going on

OP posts:
JaniceBattersby · 26/09/2024 21:01

I’m so sorry. What awful news for you. My nephew was diagnosed with a brain tumour after having a CT scan in A&E.

He had a long course of treatment and it was incredibly
difficult but he’s ok now. Honestly, don’t google. Everyone’s tumour is different and your treatment will be specific to you. Just listen to what your consultant tells you. Everything crossed for you x

Ratfinkstinkypink · 26/09/2024 21:02

I am so sorry, it's such a shock and a real smack in the teeth. Yes, if you have a good relationship with your mum then I would call her. I hope you get the best possible news from all the scans etc Flowers

BirthdayRainbow · 26/09/2024 21:03

What a shock for you all. I am so sorry.

Justsayit123 · 26/09/2024 21:04

shit. No words but thinking of you.

AgainandagainandagainSS · 26/09/2024 21:04

Wells37 · 26/09/2024 20:57

Yes they told me in a&e i would have posted it otherwise!
I've had a ct scan, I've asked lots of questions and they said it's most likely cancerous.
My kids are older so he could come back but I want to keep everything calm for them until I find out more.
Waiting for a bed, they said I will have mri scans tomorrow and know more then.
I can't decide whether to phone my mum and dad or not. Mums 30 mins away dads an hour both in 70s.

Please phone them. You need support.
So sorry OP

Bectoria2006 · 26/09/2024 21:05

I’m so sorry. It is shocking and devastating news and a lot to take in.

My DD was diagnosed by a CT scan after going to A&E with her nearly 6 years ago. She is just celebrating 5 years off treatment and no more scans. There is so much they can do now. Try not to panic (I know easier said than done).

Sending love to you xx

UpUpUpU · 26/09/2024 21:05

Oh OP I am so sorry.

Can I ask what your symptoms are that hook you to A&E?

Please call someone if it will help you.

Fartly · 26/09/2024 21:05

I'm so sorry you're going through this, please don't give up hope. The MRI tomorrow will give more answers, and the doctors will know how best to treat both the tumor and the swelling.

Try to take things one step at a time, if that's even possible. I cannot imagine how overwhelming this must be.

You don’t have to decide about calling anyone right now—focus on yourself first, and when you know more, you can take things from there. However if you want to call you parents because they can come and support you, please reach out to them. They will want to be there for you just as you would want to for your children, whatever age you or they are in life.

Stay strong, and know that there are options ahead.

Starlightstarbright3 · 26/09/2024 21:06

I also can tell you I also know 2 people who are recovered from brain tumour .

Your brain will be jumping to all sorts of conclusions at the moment . Try distract yourself . .. which is no doubt easier said than done