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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

In a&e just told I have a brain tumour

930 replies

Wells37 · 26/09/2024 20:41

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

OP posts:
GoldenSunflowers · 26/09/2024 21:45

I’m so sorry, OP. What awful news for you and your family. I hope the MRI brings some clarity and hope. Many such tumours can be treated nowadays. Thinking of you.

ZuzuMyLittleGingersnap · 26/09/2024 21:46

Wells37 · 26/09/2024 21:35

Just had a lovely fr give mr a hug

Sounds like you're in compassionate hands. Hopefully that's reassuring you.

OnlyFoolsnMothers · 26/09/2024 21:46

So sorry OP fingers x for the best outcome

notafanofmarmite · 26/09/2024 21:46

Sending you love and light.

Hummusanddipdip · 26/09/2024 21:47

This was my mum this time last last year. Also told in A&E. Its stage 4 but the tumour has been successfully removed and hasn't started growing back yet, the type of cancer it is means it will, could be months, could be years. We're hoping years.
I hope your tumour is benign and easily removed if needed.

LilyJessie · 26/09/2024 21:48

I'm just so sorry for this very scary news.
You're in the right place, let's see what tomorrow brings.

Mercury2702 · 26/09/2024 21:50

I’m so sorry lovely. I’m a staff nurse and we see lots and lots of incidental findings that are horrible. I really feel for you

As a previous poster said they’ll put you on steroids to help reduce any inflammation, please don’t panic about cancer until you get more answers. I know a&e doesn’t seem appropriate to tell you, but clinicians would much rather tell you about any findings as soon as possible so that you’re not kept in the dark. Sending lots of love ❤️ If you feel up to it, there is usually specialist psychological services in trusts that may help you unpack how you’re feeling if it’s too much to speak to family about it at the moment

WalkingaroundJardine · 26/09/2024 21:51

I am so sorry, how stressful, especially when you have a family to worry about and you don’t know what’s going to happen. Definitely start putting together your team of supporters.

Cattyisbatty · 26/09/2024 21:53

So sorry, wishing you all the best. X

ThatsNotMyTeen · 26/09/2024 21:55

I’m so sorry. What a terrible shock. Xxx

Dontjudgeme101 · 26/09/2024 21:56

K0OLA1D · 26/09/2024 21:39

Thinking of you op and sending positive thoughts x

This op 100%. 💐💐💐💐

doner638 · 26/09/2024 21:56

CakeFlowers with a huge hug .

AutumnTimeForCosy24 · 26/09/2024 21:56

I'm sorry xxx

A&E must be a very scary way to hear this news. Best wishes for the tests tomorrow xx

if it were ME with my Mum, there's no way I'd tell her at this point or at this time of night. She'd be beyond herself and I'd worry about her driving ( but she's 81) & is a real worrier any way. I'd much rather have a better grip on the situation myself before telling her.

but you know your situation with your Mum.

if I wanted to have someone with me & they'd be allowed in, I'd call my best friend, she'd come straight away (if I wanted her to) & be wonderful.

all of our thoughts are with you 💕

ChishiyaBat · 26/09/2024 21:57

I'm so sorry, I hope the mri will give more clarity, I hope they manage to get you a bed soon and you manage to get some rest💐.

VariantHela · 26/09/2024 21:58

Sending strength and support x

DCINightingale · 26/09/2024 21:59

Nothing useful to add but echoing all the PPs sending you hugs and positive thoughts Flowers

ArabellaScott · 26/09/2024 22:01

Oh, sweetheart. That must be such a shock. I hope you can rest a bit. It may well be treatable, you don't know much yet, take heart. Flowers

AMRP · 26/09/2024 22:03

Bless you, I’m so sorry to hear this. What a huge shock. Sending you all the love and well wishes possible ❤️

TwigTheWonderKid · 26/09/2024 22:11

@Wells37 you won't believe it but this is probably the worst bit of the whole journey. You've had an awful, awful shock which you need to process and at the moment you have so many more questions than answers.

Once you have had your scan tomorrow your team will have a much better idea of what is going on and will make a plan. There are so many different types of brain tumour with different treatment regimes.

I'm on my second cancer journey so have enough experience to know everyone is different
and it might help some people but you don't have to listen to the very well - meaning comments you will get from people telling you their auntie Doris had a brain tumour and is now an elite marathon runner or that if you eat enough pesto it will shrink the tumour. People mean well but it's often not helpful when they are projecting their own emotions on to you. Talk to your parents if you think it will help but be wary of ending up supporting them as they will be in shock too.

butterfly0404 · 26/09/2024 22:12

Oh sweetheart, sending you a big bunch of love, we've got your back xxx

CautiousLurker · 26/09/2024 22:12

Am so sorry to hear this, but can only advise you to try to take a breath and wait for the clinician’s feedback. My stepmum had a tumour 20 years and was in Atkinson Morley Hosp when it was discovered. Had had severe pain and a total personality change as it grew. It was the size of a golf ball at the base of her brain stem… but was removed and she is still alive and living a full life with my half brother now.

Try not to despair. Medical techniques are incredible now and the tumour may be benign (80% are). Focus on controlling what you can control and not what you can’t. Am sending a hug and keeping fingers crossed for you.

SockFluffInTheBath · 26/09/2024 22:12

What awful news OP, I’m so sorry. I hope it’s something treatable and you’re well again before too long.

MigGril · 26/09/2024 22:13

Big hugs @Wells37, this must be a really big shock. There are more people with brain tumours then you know the link already posted is really good and there is a Facebook group as well.

They won't be able to tell to much until you have the MRI, even then it's not completely definitive until its biopsied or removed. Hopefully they will refer you to a good neurosurgeon and they will go through everything with you. I agree with everyone else don't do to much googling at lest not until you have some I idea of what it actually is.

mumofthemonsters808 · 26/09/2024 22:13

What a terrible shock for you, thinking of you and your family.

merryandbrightdelight · 26/09/2024 22:15

Huge hugs and strength and love to you op Flowers