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Cancer

Find advice & support if you or someone you know has been diagnosed with cancer

In a&e just told I have a brain tumour

930 replies

Wells37 · 26/09/2024 20:41

Just that really. It's 2cm ish on ct scan symptoms for 5 weeks. I can't stop crying. I just sent dh home as kids are at home.
Terrified

OP posts:
Ineffable23 · 26/09/2024 22:18

Phone your mum, if you have a good relationship with her. If I were your mum I would so much rather you phoned me than waited worrying on your own. In fact if I knew you really in any way at all I would rather you phoned me rather than waiting worrying on your own.

twohotwaterbottles · 26/09/2024 22:19

Just saw this and wanted to send you a big hug OP ❤️

teachermummyme · 26/09/2024 22:20

You poor thing. I was diagnosed with a brain tumour two years ago, so I know how you must be feeling. It's such a shock and utterly terrifying.
Until you've had an MRI and the images have been reviewed by radiologists and neurosurgeons, I'd not dwell too much on anything that's been told to you about the type or grade of the tumour. I found the first few weeks after my diagnosis were a whirlwind of different estimates as to what kind of tumour I might have and what my treatment plan and prognosis would look like. Only really once they've done an in-depth MRI will they know more what they're dealing with and sometimes even then it's not til a biopsy that there's any certainty. So try not to focus on whether it's cancerous or not. A very many brain tumours aren't cancerous and if it is, there's still surgery and treatments that you can have.
You're in the really scary stage right now where you've been delivered this horrifying news but have no real answers or clue about what is it and what will happen next. I can't lie and say the weeks ahead will be easy, but at least soon hopefully you'll have more clarity as to what the future holds for you, whether that's treatments, surgeries or a 'watch and wait' approach.
A diagnosis of a brain tumour is utterly terrifying but for the moment try to take things one day at a time. As people have said in this thread, you can recover from a brain tumour or, like me, live a relatively normal life with one.
Sending lots of strength.

nosleepforme · 26/09/2024 22:21

Best of luck op. Try not to think too much and let your brain think things up.

LovePoppy · 26/09/2024 22:21

If your parents would be supportive of what you need and not make it about them, call them.

if not call someone who will support you

Kitkat1523 · 26/09/2024 22:25

Thinking of you….will say a prayer 💐

LetsGoDoDoDo · 26/09/2024 22:25

Sending you positive vibes and love OP ❤️

OverthinkingOlive · 26/09/2024 22:28

Thinking of you OP and sending love ❤️

DotPotato · 26/09/2024 22:30

Thoughts are with you, take things one step at a time and try not to let your thoughts rush too far ahead.

johnson39 · 26/09/2024 22:31

Thinking of you and sending hugs 🤗 xx

llamali · 26/09/2024 22:31

Oh OP. What a shock you've had. Do take care x

PuttingOnMyPositivePants · 26/09/2024 22:32

Sending you love, we are all here ❤️

Toddlerteaplease · 26/09/2024 22:33

Sane thing happened to a friend. He had strokes to reduce the symptoms, sugary was planned immediately, but was delayed when he got Covid. He had radiotherapy and had been cancer free for over two years now.

Hillsmakeyoustrong · 26/09/2024 22:33

Thinking of you OP. Just take one step at a time.

BabyR · 26/09/2024 22:35

Stay positive.
We’ve just went through a similar scare with a family member and it had us all shaken.
This experience would sway me to not tell elderly parents right now. I would personally wait until at least tomorrow given their age as it’s a huge shock. Nothing will happen overnight so I’d let them rest up before telling them.

Wells37 · 26/09/2024 22:38

They have given me a sleeping table and I feeling calmer. It's so noisy a&e is cramped.
Will tell my mum and dad tomorrow and don't want them driving over in a panic late.
They have a bed for me now so hoping it we be a quieter

OP posts:
rainbowruthie · 26/09/2024 22:40

Sending kindest thoughts to you Flowers

rainbowstardrops · 26/09/2024 22:43

Sending love and positive wishes to you. Hopefully the sleeping tablet will kick in soon and you can sleep Flowers

BanksysSprayCan · 26/09/2024 22:43

Hopefully you can get some sleep and the medical team may be able to give you something to help with the swelling. Thinking of you 💐

Webbing · 26/09/2024 22:44

Op this is horrible news. I’d suggest you let it sit with you for a day or two and only tell more people once you have more info. My mum panicked when i told her I had a cancer diagnosis over the phone - partly I feel on reflection as I was very distressed myself. Give yourself some space. Could you go home and come back to hospital tomorrow?

DoTheRoary · 26/09/2024 22:45

Oh my, I'm so sorry for your news. Rest up tonight as best as you can. Hopefully the tests tomorrow will be better news. 💐

Icanflyhigh · 26/09/2024 22:46

I'm so sorry OP, this is dreadful news. Be kind to yourself x

Grazyna80 · 26/09/2024 22:46

Best wishes, hugs, and massive, gigantic loads of positive thoughts and energy for you sweetheart.

Dollychopsporkchops · 26/09/2024 22:50

So sorry op. Hoping everything works out. Praying for healing your way x

BellaVita · 26/09/2024 22:51

Hi OP, just wanted to send you a hug. You must feel so overwhelmed and bewildered.

My son (27) was diagnosed with a brain tumour just over 2 years ago.

Easy for me to say, but try not to worry. Many brain tumours are benign.

Happy to answer any questions if you want to dm me.

Stay positive xxx