Hi ladies. Hope you're all well and congrats on all scans. Not managed to catch up yet on all news for the last few weeks (you've been busy and just found this new group!). Also joining fb group but plan to straddle both.
Sorry this may be a long 'me' post but will try to condense my update on the last very tough 2 weeks.
Our 20 week scan did not go too well. Baby's limbs all very short and they found a blockage of blood in bowel. Had to be referred to specialist at the fetal medicine unit in Bristol as these can be indicators of quite a few problems and we were given a 50/50 chance that bean would pull through.
But long story short, He (yep, we're team blue!) is a resilient little fighter and it looks like we got to the bottom of my wacky beta hcg and low papp-A hormone levels. They do not believe it's a chromosomal disorder but rather they found damage/lump big black blob on my placenta which was bleeding. It seems poor bean had ingested this, but the blockage is clearer now. But placenta is effectively leaking hcg (hence my huge levels) and not functioning 100% (so low papp-A). So restricting Bean's growth a bit.
But he's grown well this last week and is now almost "acceptable" bone length for age (21 wks now).
Upshot is now we have to be monitorred (particularly his heart function and growth) super closely. Growth scans every couple of weeks and from 28 weeks I start on steroids to help develop lung function in case he's premature which is very likely. Also weekly appointments with mw from 28 weeks for Doppler and due to higher risk of preeclampsia. Thinking of getting the sleeping bag out and setting up camp in the hospital!
Unbelievably that's not everything, but I think the main points covered.
Despite his difficulties he's currently playing bongos on my bladder and apparently oblivious.
Sorry for the big me post. Will get back into the swing of the thread now and looking forward to catching up on all your news!