Hello all
Thank you so much for your love and support - I posted my earlier post in the middle of a down dip on the emotion-coaster, and you made me blub. Thanks! 
Baby heartonsleeve is doing remarkably well. He's still in NICU, in the highest care room, but he's progressed well over the week. I was discharged on Thursday evening, and had my suture out on Saturday. I'm on a high dose of iron, so my guts are not happy, and I'm pretty wrung out emotionally, but otherwise fine.
Following his initial blood transfusions, he has had his ventilator removed (on Tues overnight) and is on Vapotherm, which keeps his lungs open but he's breathing well on his own.
He's beginning to tolerate my milk now - that's been a bit backwards and forwards this week, but he's had a good 24 hours and now they're talking about increasing the amount he gets. I'm expressing milk, and it's pretty tough getting up in the middle of the night without a screaming child as an incentive at home.
We had our first cuddles with him on Saturday, and also a longer cuddle yday. He reacts well to kangaroo care, and it's so lovely to hold him - I was convinced at first that he would break, but that's not happened yet...
I got to change his nappy yday, which was fun, and quite comforting as I hadn't seen evidence up until then that he is in fact a he!! 
So all in all, all is going well. The staff here are unbelievably wonderful; they're all so lovely and dedicated. But most of all I'm thanking God for hearing prayers, and looking after him.