Please or to access all these features

Bereavement

Find bereavement help and support from other Mumsnetters. See also your choices after baby loss.

Our safe haven thread for bereaved mums and anyone who has been affected by the bereavement of a child - whatever age,

985 replies

shabbapinkfrog · 12/01/2010 10:53

The most supportive, loving, loyal thread on Mumsnet - I wouldn't know what to do without all of you x

OP posts:
ILikeToMoveItMoveIt · 01/03/2010 18:27

Hi Emma, welcome to our thread. Thank you so much for telling us about your darling Thomas.

We all have the 'what if's', they're the bloody devil aren't they? But I tell you what, I'll spin it for you. If you hadn't bf Thomas and passed on some of your immunities he may have got some horrid bugs that would have hit him hard. Close your eyes and feel and remember the weight of your darling boy in your arms and you can be proud to say 'I grew him, I nourished him, and I love him'.

That poem was beautiful Lunatic, just beautiful.

LunaticFringe · 01/03/2010 19:16

This reply has been deleted

Message withdrawn

shabbapinkfrog · 01/03/2010 19:34

I have used this poem several times before on our thread but I think it says 'it' all.

Taken from a Compassionate Friends newsletter

My Mum is a survivor

My Mum is a survivor, or so I've heard it said,
But I hear her crying at night when all others are in bed.
I watch her lay awake at night and go to hold her hand
She doesn't know I'm with her to help her understand.
But like the sands on the beach that never wash away...
I watch over my surviving mum, who thinks of me each day.
She wears a smile for others...a smile of disguise
But through heaven's door I see tears flowing from her eyes.

My surviving Mum tries to cope with death to keep my memory alive,
As I watch over my surviving Mum..through heavens open door
I try to tell her that angels protect me forever more...
But I know that doesn't help her or ease the burden that she bears.
So if you get the chance, go visit her...and show her that you care
For no matter what she says...no matter what she feels
My surviving Mum has a broken heart that time wont ever heal.

OP posts:
ZiggyMama · 01/03/2010 19:39

Hi Emma. Welcome. My DS2 was born with a v serious heart defect which we knew about before he was born - he's had lots of surgery. I was told I wouldn't be able to bf so was determined to prove them wrong & I did! I think it's wonderful that you managed to bf Thomas &, as ILike & LF say, it's your gift to him.

Lottie - I'm bfing but not worrying too much about the vino. Only a v small percentage gets thro. (I don't mean I'm blotto every night )

LF - poetry is anything we'd like it to be! Your poem's lovely.

shabbapinkfrog · 01/03/2010 22:51

I just managed to talk to my dear friend - her daughter, Vickys, funeral is tomorrow. We have both sobbed for the last hour. She told me that Vicky has had to have counselling for the last 18 years since my Matt was killed. She said she has never got over it and always wanted to be back with him. The post mortem has shown to be inconclusive and my friend says she thinks Vicky just gave up. She had Spina Bifida, one kidney, heart problems etc etc but none of them have been proved to be the cause of her death.

I am having to breathe deeply to ward off panic attacks - I take medication to prevent them. Oh this is a strange world we live in - bad people seem to go from strength to strength....whilst this Worlds good people struggle to survive.

I haven't cried like this for many years - I am dreading the funeral.

We both agreed that Vicky will have thrown away her wheelchair and her and Matt will be dancing the night away xx

OP posts:
shabbapinkfrog · 02/03/2010 06:59

Morning girls xx

OP posts:
travellingwilbury · 02/03/2010 07:23

Oh Shabs

For once I am lost for words . What time is Vickys funeral ? A candle will be lit here in Sussex for her .

How you doing this morning ?

hazygirl · 02/03/2010 07:48

shabs ,big hugs for you ,im so sorry i realy am,but vicky and matt will be together up there, if you need us were all here.
ive gott clean up today,dhs brother may be coming later ,havent seen him for ages,he didnt turn up for jaydens funeral,but he lived in perthshire,scotland so i suppose i have to let him off.
he has never seen my two younger granddaughters, only met the eldest at month old,and shes seven, but im gonna hold my breath ,bite my tongue and be nice.

shabbapinkfrog · 02/03/2010 08:43

Funeral is at 2pm....I look a right mess this morning!! Look like I have got hay fever - red eyes and snotty nose!

This is going to be a real case of 'one foot in front of the other and dont forget to breathe.' I think the hardest part is that all the kids who went to Matts funeral (they closed the school for the day) will be there - last time I saw many of them they were 7/8 years old and singing at the top of their voices at Matts funeral. Now they will all be 25/26 years old - many of them parents themselves.

Thank you for your support girls it means so much xx

OP posts:
peterpansmum · 02/03/2010 08:43

Shabs I'm glad you got a chance to talk to your friend before today. I know it must have been a very difficult conversation but it may make today a little easier. You know where we are if you need a chat. I too will be thinking of you, your friend and Vicki today.

Just don't know what to do on Thursday. DS1 definitely going to school as i don't want to take him out for his wee brother's birthday as i wouldn't have done that if Gregor was still alive. DH has taken day off but has to go to hospital for treatment in the afternoon. It's been on my mind all weekend and I can feel the tension building.

shabbapinkfrog · 02/03/2010 08:46

PPM I always find that 'the day' is easier than the horrible build up to it IYKWIM. I think you are right to try and keep things 'as normal' as possible. Time is a great healer - I hate those pissing words but they are true. As the years go by things seem to soften somehow around the edges. BUT it doesn't stop the longing to see them again.

OP posts:
peterpansmum · 02/03/2010 08:48

x'd posts Shabs, I've decided I'm going out for a walk at 2pm and will think of you all.

Am sure you won't be the only one today with red eyes and snotty nose it's a good look xx

shabbapinkfrog · 02/03/2010 08:55

ta love xxx

OP posts:
travellingwilbury · 02/03/2010 09:09

Shabs I will be thinking of you all this afternoon.

If I could stand side by side with you I would .

ppm , I agree with Shabs that the build up is so often much worse than the day itself .It is so hard to think of the best thing to do on the day isn't it ?

crumpette · 02/03/2010 09:18

Shabs, will be thinking of you and Vicky's family today.

Lunatic- no I didn't take it literally don't worry!!! I wasn't sober enough to post again hahaha. Actuay I wrote a longish drunken ramble post but DP came back and nicked the laptop. I am really pleased that you were able to articuate all the things about Daisy that you are glad about. It's so easy to overlook the positives with such a massive sad ending, but those positives were there and she experienced all of them, too. I find it so hard to remember all the times L was happy before she got ill, it's so hard to go back further than her illness and suffering, but she was happy beforehand and I have to keep reminding myself of the times that were good with her

emma we all probably have 100s of what ifs if you delve into it. They whir around and around in my head at night and every so often they are the only thing I can think about. what if I hadn't taken her to visit family at christmas, she may not have caught her viral illness, what if I had given her my liver instead of her first cadaveric transplant, it may not have failed and she might be alive now, what if I stayed with her overnight in the hospital instead of leaving every evening, I would have been there for her to make sure she wasnt alone and in pain, I would have been there if she vomited and it wouldnt have gone onto her lungs causing pneumonia, eventually causing a cardiac arrest leading to her being back on intensive care and leading to the withdrawal of life support, what if I hadn't consented to the biopsy, what if I had said no to the removal of life support, what if I hadn't breastfed her for so long she'd have been bigger (she was small for her age), what if I had breastfed her a bit longer and she may have been immune to the viral illness that caused her liver to fail in the beginning, what if I.....

it's human nature to try and rationalise the impossible event that is the death of your child. Your child is not supposed to die before you.. they're just not, and so I think your brain needs to process and process and process it. It's fine to tell us your what ifs. It's helpful to get them out, I think. If you don't let them out then you are stuck with them alone, so do tell us. But please don't think that you could have done anything differently and that you could have magically affected the outcome. You want to be able to have saved Thomas, that is your role as Thomas's mummy, but please don't torture yourself thinking that you could have saved Thomas by changing this or changing that. You did what was right at the time. And breastfeeding him is the best thing you could have done for him, you nurtured him and he had the closeness and the brilliant nutrition and antibodies that came from your milk. And you had to consent to the op when you did because it was best for him, you were doing it to save his life and make him well as soon as possible, so please don't believe you should have waited until he had got bigger. You can think it, and talk about it, because you feel it and your feelings are real, but please don't believe that you did anything but the very very best for your little Thomas. He knows that.

shabbapinkfrog · 02/03/2010 09:20

Thanks love - in between crying last night we both were screaming with laughter at so many incidents that happened between our children.

First day of nursery - Vicky arrives with this trendy red walking frame. Matt starred at her for a bit and then said (will try and do it like he spoke) 'Whats up wive your wegs' LOL - Vicky just turned round and said 'Nothing nosey parker!!' Then he got hold of her hand and near enough dragged her into nursery - she kept telling him she needed her frame but he was having none of it.

For a time Vicky managed to walk un-aided but it was very difficult for her and it took her ages. We would all walk home together but a 10 minute walk would take at least an hour. Matt used to keep shouting 'Huwwy up will you I want me dinner' then he would give her a piggy back and run whilst me and her mum would scream 'You are going to drop her - pack it in' LOL

There was lots of laughter as well as lots of tears last night xx

OP posts:
crumpette · 02/03/2010 09:21

PPM, huge hugs to you this week, I can't say anything helpful, but I dreaded L's birthday without her here but it passed by and I turned another page on the calendar and here we are. I believe your Gregor will be with you on his birthday in some way or another x

crumpette · 02/03/2010 09:27

Shabs, x-posted, sorry. Your story about the first day at nursery has made me cry! Gosh I cry so easily on here, what lovely lovely children so cruelly taken away, I hope he's giving her a piggyback right now xx

shabbapinkfrog · 02/03/2010 09:50

I have no doubt they are causing havoc!!

OP posts:
peterpansmum · 02/03/2010 09:54

Thanks guys. Am working from home today but just don't have the headspace for it today if i'm honest... just keep thinking back to last year and all the things we did on the run up to Gregor's birthday, all the fun we had, the cake i made for him the night before his birthday, i could go on and on. All the things I could have and should have been doing this week if only he had still been here. I miss him soo sooo much it's just so unfair.

LunaticFringe · 02/03/2010 10:03

This reply has been deleted

Message withdrawn

peterpansmum · 02/03/2010 10:11

Thanks LF, I had thought about it but DH thinks that's all a bit weird. Just don't know what to do. usually my instincts are pretty good but this just doesn't compute there's nothing right about having a birthday for a child who's no longer here to share it. crap crap crap A friend just called me and is now on her way over for a hug and a cuppa.

hazygirl · 02/03/2010 12:44

ppm thinking of you on thursday, its not easy but were all here to hold your hands.
shab ,reading about your matt,he was one in a million,they will be caUSING MAYHAM UP THERE I HOPE

shabbapinkfrog · 02/03/2010 13:01

Hazy

His report at the end of his reception year at primary said (they thought he was number and letter dyslexic)

Matthew will never be top of the class - he struggles with his lessons but always does his very best. He is, however, the sweetest little boy I have ever taught - he excels at Art and PE and is a friend to everybody - staff and pupils alike. I cannot tell him off because he looks at me with his beautiful eyes and melts my heart. He could win an Olympic gold medal for sulking though!!

I can remember every single word

OK girls getting ready to go now - stomach churning.

It is the most beautiful, mild, sunny day xx

OP posts:
peterpansmum · 02/03/2010 13:09

Awww Shabs, that's just THE most beautiful report and speaks volumes about Matt. Good luck, we're all with you - remember that xx

Thanks Hazy. x

Friend been round and duly delivered hugs!! Feel a bit better but the waves of emotion today are very raw and very near the surface.

Swipe left for the next trending thread