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Eris' thread for bereaved mummies

1000 replies

feedmenow · 16/04/2008 16:28

OK, so the thread begins! I tried to think og something better to call it, but all I have in my head (still) is Shabsters comment about how it would have been better if we'd all met on a thread called 'how to cope with excessive wind'!

Anyway, we have somewhere to come now. Somewhere 'proper' where we can chat and remember our precious lost children, whether they were stillborn like my angel, or whether they were with us for 2 hours, 2 weeks, 2 months, 2 years or 20 years. No matter how long they were here it is still so very wrong to lose a child.

I just wanted to tell you all about yesterday. It was such a very strange day. Dp and I were collected by the FD in the limo that Eris was in and we drove slowly down our road behind one of the FD men. I felt like a fraudster, like I was going to be caught out and asked what the hell we were doing 'playing' around.

Anyway, it turns out that the crem we went to is absolutely beautiful, really gogeous gardens. The service was lovely. The songs and music we chose were perfect, and both my mum and mil got up and said some really touching, beautiful words. The minister read a story I had chosen and also an extract from Winnie the Pooh that he suggested. I sat with my dd1 on one side and my ds the other, then dp next to him. We all had our arms around each other and I cried silently throughout. Then at the end the minister asked everyone else to leave so the 4 of us could say our final goodbyes, at which point I started weeping with a vengeance. It wasn't til we went outside to join everyone else that I saw all the people who had come to be with us.

We went back to my parents house for brunch, which went really well. I come from a family who crack open the wine and beer at the earliest opportunity, so the wine flowed along with the tea and coffee for the drivers. It was a beautiful day, the sun shining, so we went into the garden. The children and the men played football, the ladies chatted and did a bit of skipping (who would have ever known that I could still 'jump in'???. I had got some helium balloons printed with the words "Too beautiful for earth..." so everyone released one and 'raised a toast' to Eris. People gradually drifted off home, but a group of people stayed with us all afternoon and into the evening. We had takeaway and eventually got home about 10pm. It was a very special day. I talked about Eris lots and, very importantly, people had fun. A very important thing to do, IMO, when celebrating a life instead of mourning a death. As people left I asked them all to be sure to remember my little baby girl, to think of her often and not let her be forgotten.

Dp and I set up a fundraising page to raise money for SaNDS for people to make donations instead of brining flowers. When I checked earlier today, we have had donations of £1360! It makes me sad that we're in the position to have received those donations, but we smile when we realise how much people care.

Anyway, dp went to the FD this afternoon and picked up Eris' ashes, so we at least have now brought our daughter home. It raised a few laughs yesterday when we were asked what we planned to do with the ashes and I said we would bring her home and put her in the wardrobe with nanny (whose ashes have been in my wardrobe for 2 years now!). Some might find this odd, but others thought it touching and comforting that they would be in the wardrobe together.

Anyway, I have wittered on more than I intended. I am pleased to say that I do actually feel a sense of peace now that the funeral is over. Both dp and I had been scared of yesterday as we were both aware that a funeral brings about a finality and reality to what has happened. And somehow, facing that finality has helped me achieve a degree of acceptance.

So, in memory of my precious baby daughter, Eris, I would like to pronounce this thread for bereaved mummies "OPEN"!!

OP posts:
ILikeToMoveItMoveIt · 04/05/2008 20:37

Trips - when I was nursing my ds, I found that after a run of a few bad (and terrible!) days, there were always better days to follow. It took me a while to notice this pattern, but once I did, it made getting through the hard days a bit easier. Much love to all of your family.

Frasersmummy - I agree with you. This is the first thread I have really posted about Cole and I find the understanding (rather than the sympathy) a great comfort.

shabster · 05/05/2008 01:34

Just popping on to say Night Night my new friends. It is so late and I am so tired.
Speak in the morning. Night everyone xx

shabster · 05/05/2008 18:23

Hiya everybody - all present and correct??

lottiejenkins · 05/05/2008 18:37

Im present but probably not correct, not had a brilliant weekend with my ds. But am still hanging in there!!

frasersmummy · 05/05/2008 20:15

Evening everyone.. is it as glorious everywhere else as it is here in Sunny Glasgow?

my little one has had too much sun.. he was wearing his sunhat (though admittely not all the time) and his bob the builder sunglasses, he had loads of sunblock so no sunburn but he has sore head, very shivery and when I checked just now he is running a temp of 102. oops guess I should have found him some shade earlier in the day

feedmenow · 05/05/2008 20:51

I'm a bit late for the roll-call but I'm here! We've had quite a busy weekend what with one thing and another. ("And another" includes dp deciding on Saturday morning that we need a vegetable patch and cracking on and digging one!)

FM, I saw Dizzy's thread about Harry. I checked out the website she created for him - what a little sweetie! I saw that you'd invited her over when she is ready. What an incredibly brave family, ALL of them.

Lottie, bet you weren't happy about being dragged from your bath And at least you didn't actually have to cope with someone at your door in your mid-bath get up! I started a thread the other day about my ds too. Let me see if I can post a link.

testicles!

Trips, hope yesterday and today have been bettr for you and dh. I can understand a bit about trying to do too much too soon. I've had numerous surgeries (nothing too serious, but blimey, you should see my list! Ask me if I've ever had surgery and your there all day!) cos I always feel that because I feel well in my head then I should be well in my body too. I think it's only when you stop and think that actually you've had a bloke cut you open with an incredibly sharp implement, pull your internal organs around, cut a few bits off here and there, poke your organs back in to place and then sew each layer of you back together that you realise how hard it must be on your body.

LouiseAnn, sounds like you've been having a relaxing weekend if your question was anything to go by. What have you been up to?

OP posts:
LouiseAnn · 05/05/2008 21:29

Hello all,
I am doing my usual evening Mumsnet catch up. I am now happily settled on the "due in Sept 08" thread, the "40+ and pregnant" thread and this one. I feel I have deeper connections here. It's strange to think I hadn't heard of Mumsnet about 6 weeks ago.
It is good to talk about the everyday things us bereaved Mums go through with people who understand.
I like Bank Holidays. We had two busy days out and about, but still had today to potter around the house all doing a bit of tidying up and enjoying the weather. We were at my SILs on Saturday. She is very thoughtful. She has invited us over there next Sunday as it is James' birthday. It will be good to have time with family enjoying ourselves. We will pop into the cemetery first and remember James.
Love to all, LouiseAnn

feedmenow · 05/05/2008 21:45

LA, that is lovely of your SIL. I think all of us here have said about people remembering. Memory is all we have left of our LO's. I hate that I have a terrible memory though. I realised today, only 8 weeks after Eris was stillborn that already most of my memories are photos. In some ways I feel like those whole 2 days around her birth are ingrained in my memory so deeply, yet I already can't remember what she looked like without the photos I feel like I've made it through that really awful raw stage, but now I just feel heavy and empty. Life really won't ever be the same because I have experienced something so truly horrendous.
I also realised today that in the very beginning I had to believe in life after death because I couldn't handle the thought that pregnancy was all there ever was for her, but today I was more upset at the thought that she is in another place because that means that she is somehow so near yet nowhere I can reach her.

OP posts:
hazygirl · 06/05/2008 07:31

fmn my dh was the same never used to believe in afterlife yet when our grandson died of cot death dec 2006, so many unexplained things happened and he had to start believing,it sounds stupid but even the weather, we go to the cemetry all the time,the rain stops before we get there,i always say he knows were coming. thinking of you all.i know what you mean its the hardest thing out knowing that you wont see them again,jaydens face stares at me from photo frames,i go to the cemetry and sit and talk away to him ,but to just hold him one more time and blow on his little belly and hear his most lovely little giggle one more time would be heaven so usxx

shabster · 06/05/2008 07:50

Morning girls. Morning Hazey.

I agree with every word in your post Hazey. I know my boys are everywhere with me. I see Matt out of the corner of my eye very often. Honestly, I am not barking mad

He loved playing tricks on me and I sense him around me all the time. It is wonderful.

I better go, we have to be out of the house by 8.30 and Im not even dressed and Tommy is still asleep Bad mum?

It is a beautiful day here in Bolton, hope you all have sunshine as well - it makes me feel so much brighter

hazygirl · 06/05/2008 09:20

yes the sun is lovely here too ,the house is so quiet and im not working till tonight,plenty to do but why waste the sun ,love to you allxx

ILikeToMoveItMoveIt · 06/05/2008 09:46

Good morning everyone, another beautiful day here today.

FMN - I vividly remember the stage you are going through at the moment. I found it really hard to bear that my life had irreversably changed forever - and not for a good reason. I also found it very difficult to face the prospect of feeling utter grief for the rest of my life.

A few months on and I still miss Cole as much as ever, but the intensity of those emotions aren't quite as strong as they were. Maybe because each day I get a tiny bit closer to acceptance - although I don't feel I will fully accept what (and why) it happened.

I also believe that when dp and I pass away, we will all be together again. And in the meantime our beloved friends and relatives are keeping him company and caring for him. Within a day of Cole dying, I had a vision of him sitting on my Grandad's lap at a big kitchen table, with a big grin on his face.

hazygirl · 06/05/2008 10:03

when jayden died my dd went home with her dp family ,i stayed at hers till the police moved us out as classed as a crime scene ffs,so my son who was pissed out of his head,him his dp and all mates were nightclubbing in leeds ,my dh rang them to tell them to join his dad at hospital,three in morning ill never forget them all in their early twenties patting my back as i vomitted into my dd baking bowl, my 3 yr old grandaughter holding onto me saying bandma u cant b sick in my baking bowl,my son refused to let them take the girls outta bed but we were forced to go to my house,wrapping the girls in duvets they were 2 and 3 . my dd rang me a day later and said its ok mum,jayden is with vaughan and hes got a friend ,another baby boy with him, he belongs to great grandma at otley,hes a boy too,she begged me to ring my mum ,it was her stepmother who brought her up,i asked her did she ever had a baby boy,funny you should say that she said she had lost a son but we never believed her ,thought she was a bit mad,said my mum,but my could remember visiting her in hospital when she was small.it was agreat comfort to my dd that he was with someone she loved so muchxx

feedmenow · 06/05/2008 12:39

Afternoon ladies.

Hazy, what you said about blowing raspberries on bellies I LOVE my childrens little tummies and hate that I'll never squidge Eris's tummy, or play the drums on it or anything that I've done (and still do) with dd1 and ds.

It's nice to hear you all say that you believe they are still around. Sad, but nice IYSWIM.

It is a beautiful day down south too. Kids went to school all sun-creamed up, in summer uniforms, sun hats on!

Shabs, look at you, on MN when you should be doing motherly things and preparing for the dreaded school run

OP posts:
shabster · 06/05/2008 12:56

Afternoon ladies.

FMN - cheeky monkey

Its beautiful up here in Lancashire too - but so windy...

lottiejenkins · 06/05/2008 13:23

Hi all, my ds is still at home till 2.15 as it was BH yesterday, i still feel that jack is around specially when i see my Godson.... I remember his birthday last year when i put the radio on and Stay another Day by East 17 was playing that was jacks song as it was No1 when he was born.

hazygirl · 06/05/2008 13:36

i went for a walk this am and spotted my middlegranddaughter who is 3 at nursery and sneaked a kiss through the fence bless her.xthe sun is still shining here and my red haired grandaughter who is seven months old is not happy with itx

izzybiz · 06/05/2008 13:36

I'm not a bereaved mummy myself, but I am amyjades SIL, and haunted by watching Freya's mummy and daddy break before my eyes

Hope you don't mind if I add this.xx

I Do Believe
by Jennifer Janiszewski

There is nothing i can do,
to make her come back
There are no words I can say,
that can replace the words you long to hear

There are no answer's I can give,
that will satisfy your questions
There is not another soul I can introduce you to, that will ever replace hers
And, there is no love I can offer that will ever replace the love you shared

I can not promise your broken heart will ever be complete
I will not say it could have been worse
I will not deny it was a tragedy
I will not lie and tell you she will come back

She never really left

I do promise she hears you when you speak
I will say she loves you no matter the distance
I will not deny she is in a better place
And, I will not lie; she is waiting to greet you someday

She is every you step you take
She is in everything you do
She is the air you breathe
She is every beat of your heart

" She is like the wind. You can not see her...but you will always feel her"

feedmenow · 06/05/2008 18:40

Izzy, thats really beautiful.

Haven't "seen" amyjade for a while. How is she doing?

OP posts:
shabster · 06/05/2008 18:50

Izzy - thank you that is so beautiful.

The death of a child reaches right through a family, a school, a community - it seems as if hundreds grieve for the loss of a precious life.

Please give Amyjade and all the family my love

summersun06 · 06/05/2008 21:34

Hi everyone! I have just been linked to this thread by another MN Blu. My daughter Layla was born on the 3rd of september 2006 she was twin sister to Ella, Layla was diagnosed in my 20 week scan with a hole in her diapham causing her Bowels and liver to travel up to her chest they told me Layla would have 50% chance of survival if she was a full term baby (I had my first daughter 2 months early and because this was a twin pregnancy it was very unlikly that I would go anywhere near 40 weeks). I gave birth to Ella and Layla 8 week early and they were (Ella) 3lb 9oz and (Layla) 2lb 15oz after 2 months of her been critical and 2 mayor operations she was aloud home (only on oxygen) after 4 weeks of hell (she was really ill most the time she was at home) she was rush back to PICU ventilated again after tests and more operations she was aloud home again. After another 4 weeks of hell, blue episodes and a respiratory arrest she was admitted back to PICU. Layla had a Tracheostomy and this meant she was ventilated 24/7 through the tracheostomy. Her lungs were so small because of the Liver and bowels been in her chest when her lungs were forming it was clear no one knew what the out come would be..they told us a cold could kill her. Layla was a fighter and fought on for another 8 months (sadly we never got her home again) but from Jan-August she was in hospital and grow into a beauitful little girl who was strong, loving, affectionate, she wanted to please everyone, she had a smile that was truely infectious and when in PICU critically ill she had a smile for everyone. We decided because she keep catching bugs in hospital we wanted to bring her home asap we trained and worked hard to get our Layla home but because she was a ventilated baby it took alot of convincing the doctors. We were due to get Layla home on the Monday and she became ill on the Friday she got worse and the doctors advised us that it was inhuman to sent her back to PICU again and we agreed if she couldn't live outside a intensive care unit without pain and suffering we were been selfish to keep her alive we agreed and the doctors told us that they would give her morphine and turn off her ventilator so on the Monday morning we got a bed brought into her room and we lay in the bed with Layla the doctor turned off her ventilator and whilst I held her in my arms I sang "you are my sunshine my only sunshine", she feel asleep and went to play with the angels.

Although it was the worst time in my life I hoped and prayed that we had done the right thing for Layla.

Isn't it strange how someone can have such a big impact on you and the way you think, Layla was amazing I am sure I will never meet someone that is so brave and so happy (despite all her suffering) as my little star.

Nothing can ever take them memories away from me but I struggle to remember the good times and dwell on the sad times...I wish that I didn't do that but I guess its a self punishment thing..I dont know one day I might not such guilt but for yesterday, today and maybe tomorrow I will think that I wish I could have done more to make her time on earth better.

Layla passed on to heaven 3 weeks before her 1st birthday, we both celebrated for Ella and cried for Layla..every milestone Ella reaches makes me so happy for Ella and then I get a rush of sadness thinking Layla should be doing the same and knowing that she never will.

To all those other Mums that have lost there child my heart goes out to because I know that the loss and this feeling I have from morning to night is something you wish no one has to feel. I am thinking and praying for all of us to find strength and peace for our family and ourselves.

Thank you for starting this thread it has help me express some bottled up feelings I have a site for Layla if you want to have a look and you also see the magic smile that we saw hppt://layla.szafranski.muchloved.com thanks again for this wonderful site xxx

summersun06 · 06/05/2008 21:37

sorry I wrote the wrong site down its layla.szafranski.muchloved.com

ILikeToMoveItMoveIt · 06/05/2008 21:41

Just popping in to say goodnight to all you wonderful ladies.

Hi Summersun, I remember you and Layla from your first thread months ago. I'm glad you've found this thread as I am sure you will find it interesting and comforting.

Much love to everyone xx

summersun06 · 06/05/2008 21:45

Thank you ILikeToMoveIt sleep well xxx

shabster · 06/05/2008 21:46

Oh Summersun but I am so glad you found us - this is a place where we can cry, moan, remember, forget bad stuff, wonder what it is all about and most importantly for me - laugh right out loud

One of my twins, Gareth, lived for 7 months. He had two holes in his heart and a damaged pulmonary valve. Also the arteries in his lungs were not growing or developing. It is such a 'double edged sword' to have a surviving twin....joy and sadness both at the same time.

Stay with us sweetheart...we have been doing a fair bit of laughing over the last few weeks. Remembering our children and rejoicing in them.

Welcome to Eris' Gang

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