my babies death - very morbid, but you may like to read!!

[Gorgeousxxx]

Hi

I had a gorgeous little girl 9w and 3d ago, she was fullterm 39weeks, 8 hours after giving birth she was having her first check and was taken to special care, she had trouble breathing, the nurses thought he had swallowed meconium and just needed abit of help, this didnt clear after two days so was taken to a intensive care unit where she was put on a ventilator, paralysed and they tried to see what this was her lungs were very haze on x-ray, she then was giving medications after medications to cure this infection, nothing was working. she was then transferred up to London to a huge lung disease intensive care unit, had again mega tests done and the answers were still negative, nothing showed that she had a condition, this is horrendous to go through let alone to tell.
again she was put on a ventilator and tests wre carried out - the specialists advised that there was nothing they could help her with and she was dying. They gave her 2 weeks to live, a further 4 weeks on she was still fighting but by this time she was detiriorating and all we could do was love my little girl, the most gorgeous thing in my life.

The diagnosis then came back that this was a genetic disorder and she was suffering with a lethal incurable lung disorder called serfactant deficiency. She died monday 1st october 07, very peacefully. Please pray that our daughter is in safe hands now. God bless my angel and sleep tight.

If anyone has been through this then please mail back....

I'm so sorry to hear about your daughter.

XXXXXXXXX XXXXXXXXXXXX

gorgeous - i am so sorry to hear about your wee girl. I have a friend whose wee boy passed away a few weeks ago from another genetic condition. It is so hard to lose them so soon. xoxoox

Gorgeous,

My heart really goes out to you honey, I lost a little girl in 2000.
All I can say is time is a great healer, right now you will feel like the bottom has dropped out of your world and it will never feel better again. I know everywhere you look there will be a constant reminder of your daughter and the pain is horrendous but as time goes on it WILL get better. You will never forget her but the pain wont be as intense as it is now. Your post really made me feel so sad for you, my sons birthday is October 1st, he was born 4 years after I lost my little girl and reading your story stirred up memories. Have you read the "forget me not" poem? It was wrote by the sister of a woman who lost her baby and it is such a lovely, moving poem. Im sure I still have a copy of it somewhere if you would like me to post it.
I hope you have a good network of family and friends to help you get through this awful time for you and I send you my love and prayers for your darling daughter x

i havnt been through this but i truely beleive some little angels are far too good for this harsh world of ours and are ment for higher things my thoughts are with you

I feel guilty reading this thread and not saying anything, but I don't know what to say. I feel so sorry for your loss, and hope you remember you will always be her Mummy, and she will always be your child xxx

gorgeous, your baby girl must have touched our life in the most special way. you are still talking of her, still loving her, keeping her memory and her life worthwhile.
It is these things that will help guide you through these dark days and her the light her life shone on you. the memories, important memories of your wonderful brave girl will give you strength.

Thinking of you so much. I feel SO terribly sad for your loss sweetheart. devastating news. I'm sending you so much love.

Gorgeous, my heart goes out to you and your family {{{{{{{{{{{{{{}}}}}}}}}}}}}}}}
I am so sorry for your loss

I'm so so sorry for your loss.

I am so sorry for your loss. My DD1 had respiratory distress syndrome, caused by surfactant deficiency. She was in NICU for 2 weeks, part of it on a ventilator, she recovered eventually. I got pregnant again and was given betamethasone injections close to the delivery date to help with DD2's lung maturation. With both i had gestational diabetes and one theory is that this interferes with surfactant production. I had a stillborn baby in Oct 2003. I am very sorry for your loss and like others on here have said, however difficult it is to think about the future now, things will get better. I also found SANDS v helpful and the babyloss board.

I'm so sorry

bless her soull
So sorry

im soooo sorry for your loss. may she rest in peace

I'm so sorry.

id like to repeat the kind words and thoughts of everyone on mn, i hope that u can harness the strength u have shown in posting this to get u thru the tough times ahead. i cant imagine what ur thinking or feeling it is every parents worst nightmare and really should make everyone be appreciative for what they have.

i hope u can find some comfort

Thankyou all for your support and nice words.

I am glad i am not alone, but very sad for veryone who has experienced this.

My babies funeral is this thursday and its going to be horrendous but I am making sure my princess will never forget me and daddy but will live in everyones hearts forever.

So long my baby girl until we meet again i bless your heart and many others out there!!

xx

so sorry for your loss

what did you name her?

(((((((Gorgeous)))))))
I am so sorry for your loss.
Thinking of you all!

NAB, I think I know what you are implying...but look here before going any further wiht this please.....

i'm so sorry for your loss. i can't imagine how terrible it has been for you.if you're new to mumsnet i'm sure you'll find lots of support here.

3andnogore Nothing there.

Love the name btw.

oh how odd...basically I linked to a a search of all of gorgeousxxx messages, so, think this person is possibly genuine,so, it oculd be very hurtful to imply otehrwise, iykwim.
The name is cortesy (sp?) of another mn'er a lovely Halloween version of my usual one

Okay. I didn't mean any harm by it. TBH it had niggled me from the OP.

Nab, thing is, we have always got to remember that everyone deals with situations differently. Whilst some people may never imagine to grieve publicly others feel it helps them, etc...!