Glue Ear has messed up my son completely

[JennyLeevesmilkandcookiesforSa]

my 7 year old's grommet have fallen out after 9 months and the glue ear has come back, he is very very deaf and is dazed and confused, he could not even enjoy kickboxing which I stupidly thought he might be able to go to as the man who runs it shouts all the time, but he was lost, disruptive and confused and due to a cold he has had, looked like he was going to pass out and die from all the running, only good thing is I was withdrawing him from school anyway, just as well as then he truly would be screwed. Obviously people have kids with worse problems, but this is just like a disability and I wonder if anyone else has had glue ear symptoms that affected behaviour so much and the well being of your child?
Will be getting an otovent tomorrow or the next day - do they work well?
And of course the gp thinks he will need the grommets again, any thoughts? do you think i should just tell people he is deaf so they will make allowances even after i explained to kickboxing guy he was nice but obviously thought i should not have taken my son, I understand why though but it sucks

dd2 was seen at edinburgh sick kids ENT and they kept regular appointments with us all the way through a few years of treatment. Are they not seeing you quickly enough, jenny?

I can recomend swim moulds, You get them at audiology and they are made to fit the ear, they cost about £25 but we found them better than earbandits. DS wears hearing aids anyway so he is used to having moulds done. For the NDCS just search, once you get the home page you want parent place then glue ear

pointydog they see us but last time they saw him in the summer everything was fine, our next appointment was march middle of march but I got it brought forward to the 1rst of Feb which is not the end of the world but that is just the outpatients appointment, where the docotor looks at the grommets for about 2 minutes, and he will probabyl refer ds then but I was told that it will be at least a month after that to get anything done and my ds has been in such a state I feel that I am not being seen quickly enough, trying to get help for this new deafness since the 28th of December

Otovent has performed a miracle, today he woke up as deaf as ever and we used it and he popped his ears as usual and said....'I can hear'. I was jumping for joy, not screaming with joy though...he cannot stand loud noises just like after the grommets operation, he thinks we are shouting and we can't talk behind his back anymore, so after his worst couple of days ever...some respite from consistantly crap things happening to us.

I hope it continues and thank you to everyone for their advice, I just wish it could happen like this for the other children affected by glue ear.

my dd1 had some glue ear - ent desperate to give her grommets - I wanted to try other things btu alas nothing seemed to work. I finally managed to get them to agree she had large tonsils - HUGEST ones I have ever seen - touching each other..... and to also check and remove her adenoids if possible.

Since then - her gunkiness of head has cleared up. She lost one grommet by the time we went for the 6 week checkup and we are due for another checkup next week. The difference was amazing - her hearing was incredible and the continual stuffy rattly head/throat cleared up immediately she had fewer colds than she had ever had.

Swimming - she goes swimming every week - we got pro plugs - fitted by audiology dept - come in a variety of sizes and specially fitted... and a swimming cap - she would not wear the ear bands and to get her to wear the swim cap took a while.

The other thing that happened for us was her speech just exploded and her pronunciation improved out of sight. ( my daughter has down syndrome)

she was 3 1/2 and when had the surgery. It is amazing the difference in her - the sleep apnoea stopped, the behaviour improved and she grew more than 8 cms in a year - unheard of in her short life before.

Definitely point out to ppl that he has difficulty hearing - then they can adjust accordingly.

Eisvold thanks for the reply, i am glad your child has got happier and is feeling better, and speech has improved, it is such a relief when something works!

the otovent is not the cure though it comes back and goes away on a weekly and sometimes daily basis and the ent consultant said that it is not a long term solution, and that he should have grommets to drain the fluid as soon as possible...so here we go again I guess it is the only thing they suggest