@Stellashere I was expecting it, I feel I am declining even though I have not been relapsing. And yes all my bloods have been fine on the Tecfidera, usually around 1.4 on lymphocyte count, so we’ll within range.
I did have some bad side effects in the first weekend of taking it, sickness, very bad flushing etc, I still get occasional flushing, nasal drip.
I have had quite a few friends have to come off Tec due to low lymphocyte counts, strangely enough they had always seemed to be people that made the switch to tec without any side effects whatsoever.
The letter made quite depressing reading, detailing the examination etc, all things you know of course but written up in the medical terms reminded me of the early days in 2012, when I had an acute bout of Transverse Myelitis and was googling every term, and scaring myself silly!
I am coping well. DH is a tower of strength and DS’s are brilliant too.
We have recently relocated, so I don’t have any friends here, but I am very pleased we have downsized, I was really struggling in our old house, now we are in a bungalow things are much easier for me. I am the sort of person who takes things as they come, I live from day to day and try not to look too far ahead. I am still touch with friends, most days from where we lived before, so that’s nice. I think there is quite an active MS community & centre where we live, but obviously with COVID not much happening.