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Am I doing everything wrong with DS?

43 replies

PinkPandaas · 28/08/2026 23:32

Sorry this is going to be long and probably all over the place because I'm shattered and my head is all over the place.

DS is 12 on Monday. He has ADHD and an EHCP. CAMHS have said for a while now they think he has ODD as well but they keep saying "oppositional traits" rather than actually diagnosing it. They say a diagnosis wouldn't change anything so there's no point chasing one. Maybe they're right but it feels like every professional just passes us onto someone else.

I honestly feel like I've messed him up somewhere along the line. People always say don't blame yourself but when it's your child how can you not? I carried him, I've brought him up on my own and now he's nearly 12 and completely out of control. I can't help thinking I must have got something badly wrong.

He's been like this for as long as I can remember.

As a baby he barely slept. He'd wake every couple of hours and just never seemed settled. By about 18 months he was climbing out of his cot every single night. I’d put him back in, five minutes later he'd be back out. I ended up taking the side off because I was terrified he'd crack his head open falling over it.

He climbed everything. Kitchen sides, tables, the back of the sofa, windowsills, bookshelves. He had absolutely no fear.

He'd run away from me constantly. I dreaded going anywhere because he'd just disappear. I remember crying in Tesco once because he'd vanished and I found him climbing into one of the fridges laughing his head off while I was in a complete panic.

His tantrums weren't like other toddlers either. They'd last forever. He'd throw things, bite me, kick me, scratch me, headbutt walls, scream until he made himself sick. Once he'd started there was absolutely no getting through to him.

People said boys are just boisterous. Then they said he'd grow out of it. Then they said school would give him routine. School just made everything worse.

Every year started with everyone saying "fresh start." Every year ended with meetings.

He's actually bright enough when he wants to be. Teachers have always said that. One said once "he's capable but only on his terms."

His dad was never involved. He left before DS was born and there was never any contact really. He died 3 years ago when DS was 9. Everyone expected that to explain everything but DS had already been like this for years. I don't think you can miss someone you've never really known. Maybe it affected him underneath but there wasn't suddenly a massive change because he'd always struggled.

Primary school was awful. He had five fixed term exclusions before they finally permanently excluded him.
One for punching another child because he thought they'd laughed at him.
One for throwing things round the classroom.
One for telling a teacher to fuck off and walking out.
One because he refused to leave a classroom so they ended up taking every other child out instead.

The final one was throwing a chair across the classroom and calling a member of staff "a fucking wanker."
He went to a PRU but Everyone agreed he should have another chance in mainstream for Year 7.

He's only been there since Tuesday.

Tuesday he refused to line up because he said lining up was for babies. Then decided he wasn't going into one lesson because he didn't like the teacher. He'd known him about five minutes.

Wednesday he argued about taking his hood down, refused to put his phone away, wandered off twice and swore when staff challenged him.

Thursday there were problems because children from primary are there. He says they're winding him up. Some probably are because they know exactly how to get a reaction out of him but I also know he sees things that aren't there. If people laugh he assumes it's about him. If someone glances at him he thinks they're staring.

Today he refused registration walked out of maths after ten minutes, refused most other lessons and sat on the corridor floor saying he wasn't moving and spent most of the day wandering round with staff instead of actually being in lessons.

He was supposed to have a 1:1 from the start but because of some miscommunication today was actually the first day he'd had that support. The member of staff seems lovely but DS just wasn't interested today. I'm hoping that'll come with time.

His Head of Year said when I collected him that most Year 7s are terrified of getting into trouble and spend weeks trying to stay under the radar.

She said DS has absolutely no fear of consequences. I already knew that really. He doesn't care about detentions. He doesn't care about losing things.
He doesn't seem to think beyond the next five seconds.

He's also hit puberty really early compared to a lot of his friends. He's got a really deep voice now, nearly as tall as me, eating constantly, getting spots, all the usual teenage stuff. I honestly think the hormones have made everything ten times worse.

Professionals don't seem much help if I'm honest. CAMHS appointments are every few months and mostly consist of asking how things are then saying keep doing what you're doing. CAMHS say avoid power struggles. The ADHD nurse says pick your battles. The parenting course said stay calm.

The educational psychologist wrote a report full of long words but nothing that actually helps when your child is screaming in your face because you've asked him to brush his teeth.

He's got an EHCP but having one doesn't magically make things better. It's just another folder full of paperwork.

Tonight has been another disaster. His older brother told him earlier in the week that if he'd been good he'd take him to the football tomorrow. It's pay on the gate. Well he hasn't been good. He's spent all evening begging me to tell his brother he's behaved.
“Please mum just tell him." "He won't know."
“I've tried."

I said no because if I lie then what's the point. Then he wanted Pepsi at nearly ten o'clock. I said no.

He called me a bitch, told me I ruin everything, slammed his bedroom door, came back out to swear some more then stomped back upstairs.

I know people will probably judge me. He has an Xbox. He has a phone because he walks to school. He drinks fizzy drinks.
I swear sometimes so obviously he's heard bad language growing up.

His bedtime routine isn't perfect because some nights by the time we've argued over everything else I honestly haven't got the energy left to argue for another hour over getting into bed.

Sometimes I give in over stupid little things because I'm exhausted and I know that's probably wrong. Sometimes I shout because after asking someone the same thing twenty times anyone would end up shouting.

Then I feel guilty because all the parenting advice says don't shout. I honestly feel like I've failed him.

I look at other 12 year olds worrying about what trainers they want or who they're sitting next to in maths and mine is refusing to even go into lessons four days into secondary school.

The thought that keeps going round my head is if this is him at nearly 12 what is he going to be like at 15 or 16. I hate even typing it but sometimes I genuinely worry he'll end up in prison one day because he just doesn't seem able to stop himself once he's angry.

Am I making excuses for him because of the ADHD? Am I not strict enough? Too strict? Should I still let his brother take him to the football tomorrow because it's a fresh start, or do I stick to what was agreed?
Please be honest. I can take it. I just don't know what else to do anymore.

OP posts:
CostcoFanofThree · 28/08/2026 23:38

well for starters is he medicated for his adhd?
it's hard to establish a routine at this point but does exercise help? specifically running or swimming?

BibbityBoppityTwo · 28/08/2026 23:47

You sound like an extremely conscientious parent who is dealing with a struggling child.
I don’t think this is about your parenting at all. They come out the way they come out, environment plays a part of course, but the environment you’ve provided has probably avoided things being much worse.

I would encourage all activity with his older brother and not use it as reward or punishment. He needs positive older male role models. This will be extra important to make sure he doesn’t fall in with the wrong crowd - that’s the sort of thing that could spell disaster for him.

As for the shouting, I feel the same guilt sometimes. It just gets overwhelming and no one can be expected to remain calm in the face of incessant shitty behaviour. Just keep doing your best.

Beyond that, your son clearly needs more support than these sporadic appointments. Is there any option for that?

Skatefordinner · 29/08/2026 00:00

You sound exhausted OP and as a single parent to 2 with ADHD I fully sympathise. It doesn’t surprise me that consequences don’t work as they generally don’t with ADHD children. I think that’s be because a lot of their behaviours are beyond their control.

Obviously some might say that that’s just an excuse for ‘bad’ behaviour but it’s true.

I think that one of the most difficult and exhausting things is trying to figure out what proportion of their behaviour is ADHD, what is hormonal, what is ‘normal pushing back behaviour’ and what is defiance… it’s not an exact science and you never really find out the answer.

It’s very hard doing all of this on your own and I fully relate to you just letting things go sometimes as you just don’t have the energy to go through one more argument or force every single issue. I also agree that an EHCP is not the magic bullet that they are sometimes claimed to be.

All I can say (sorry I know you have already heard this) is please do not blame yourself. You said yourself that the signs were there from when he was a baby. They were with mine too and I used to beat myself up incessantly for getting it wrong. I don’t think I was getting it wrong with hindsight. I think that some babies (ND as it later turns out) are harder than others.

If it brings you any comfort (probably not but I’ll say it anyway) … getting older and also finding the right ADHD medication made a huge difference with both of my DS. They became so much easier, happier. Much of the trouble at school (similar to yours) turned out to be a complete inability to focus which resulted in them feeling ashamed, feeling like they couldn’t do what a lot of their classmates could seemingly do easily, feeling ‘less than’ and just shit about themselves. They can’t articulate it at this age but it made so much more sense when they were older (sorry - here it was 15 ish) .

These behaviours as you know I’m sure are not bringing him any joy. What child genuinely wants to be constantly in trouble and being singled out like he is? They don’t as a rule.

I don’t know whAt your immediate solution is but if you haven’t explored ADHD meds or if you have but things aren’t improving then that would be my first thing.

Your post really resonated with me as so many people don’t understand it and will tell you that you are Doing x y z wrong and that there is no way he should go to the football tomorrow. This works on neurotypical children but not ND ones.

whippersnapper55 · 29/08/2026 00:24

Please don't think that you are to blame - nothing you have done has made him this way. Some kids just have significantly more challenges than others. ADHD and adolescence is a potent combination!

I have worked in a PRU with teenagers just like your son, and met with their exhausted parents many times, reassuring them that they are not to blame. On the contrary, they generally have fought for years for help and support for their kids while they struggled in mainstream. Unfortunately mainstream education just doesn't work for a lot of kids with additional needs. They need a lot more support than it's possible to give in mainstream.

Often the result of having such a hard time in mainstream schools is a young person who feels like a failure, thinks they're just bad, or thick and I've even had kids who've been told by teachers that they'll never amount to anything. They often arrive in the PRU with their self-esteem on the floor.

Working with young people with additional needs and emotional and behavioural difficulties is a marathon not a sprint. It's about building a relationship of trust, nurturing their self-esteem and confidence and meeting them where they are academically. A good PRU might be the most appropriate educational setting for your son.

At home, it sounds like you are doing everything you can. Of course it helps to have clear expectations and routine, to stay calm in the face of outbursts and to have consequences for bad behaviour. But you're human, you're doing it on your own and a bit of shouting is understandable! Try and build in time spent with him where the pressure is off and you can just hang out together and chat - tell him how much you enjoy his company and praise him for whatever you can (his sense of humour, his creativity, whatever he's good at - find something to praise!) It's ok to sometimes prioritise having a good relationship with him over always being right or him always doing as he's told. Use humour to cajole him as much as you can rather than being confrontational. He needs to know you understand that a lot of things are genuinely hard for him and that you're on his side. You sound like a great mum and he's lucky to have you 💐

PinkPandaas · 29/08/2026 00:26

He is medicated yes. Getting him to actually take it is a battle in itself though. I usually try and get him to have it as soon as he's just woken up, but that causes arguments about half the time. He'll say "I'll have it when I'm dressed" or "in a minute" and then keeps putting it off, or just flat out refuses. Some mornings it ends up being another stand off before we've even left the house.

When he does actually take it, if I'm honest I don't notice a huge difference. Maybe he's a tiny bit less fidgety but it certainly doesn't stop all the refusing, swearing and anger.

As for exercise, he's not interested in running or swimming at all. He used to play for a local football team and absolutely loved football, but he ended up being kicked off because of his behaviour. He the referee one week, then another week got into a fight with another boy because he was convinced he'd called him something (the coach wasn't even sure he had) and that was that, they decided he wasn’t a team player

He does ride his bike but nowhere near as much as most boys his age. I know people will probably think I'm overprotective but I just don't trust him out on his own, even if it's with the kids who live nearby. It always seems to end in some kind of bother. If he thinks someone's starting on him, even if they've just looked at him the wrong way, he'll react first and think later. We've had neighbours knocking before because he's had rows with other kids and a couple of fights over the last year. Half the time he'll come home convinced someone was picking on him and I honestly don't know whether they were or whether he's completely misread the situation.

It's got to the point where it's easier just knowing where he is than worrying I'm going to get a phone call saying he's hit someone or someone's hit him.

OP posts:
Thequeenofwishfulthinking · 29/08/2026 00:37

Dont let him go to the football OP. Regardless of ADHD he needs to realise there will always be consequences to his actions.
Take away devices and lock them away for a set period of time following any bad behavior.
Any time you give into him will result in a bigger reaction the next time you say no.
Let school deal with punishments etc at their end and focus on home life.
One of my Dds was under CAHMS for similar behaviour once she started puberty. She also has ADHD. There was no behaviour issues at school but everything else fits.
CAHMS helped me draw up a behaviour contract setting out my expectations pf her at home alongside consequences of actions, rewards and priviledges.
I am also a lone parent btw and DD has never.met her dad.
We had family therapy through CAHMS which helped.
Dd no longer behaves this way. She is in her 20s, went to university and is a responsible caring young lady. We have a great relationship now. Please lose all hope OP. During puberty things have escalated but your sons hormones will settle.
Could you contact CAHMS.and update them on the severity of things? If your Ds goes to sessions alone they likely wont have a true picture of things as they stand. Your son needs more intensive help than they are currently providing.
Also you could ask the school to refer you to the Children and Family Wellbeing Service who can provide you and son with some support.
You will get through this OP.
Sending strength and.love to you.

maudelovesharold · 29/08/2026 00:38

I’m sorry to hear that you’re having such a hard time, op. If this medication doesn’t seem to be working, maybe he could be prescribed something else? I think you should tell the doctor that you don’t see much difference in his behaviour. I can’t really rationalise it, but my gut is saying you should let him go to the football with his brother.

Darragon · 29/08/2026 04:52

My DS has just been diagnosed with adhd and autism after a years long fight to be taken seriously/get him support. You described what we saw in his baby days/toddlerhood/preschool years (we also had major developmental delays). I don’t know what the future holds. Sending you support and hope things get easier. What I will say as someone similarly afflicted with ADHD is that I was a very mutinous high schooler especially in Y7 but settled down as I got older and got new interests in video games and walking my dog. I think the long walks outdoors really changed things. But I did really want a dog. Hopefully he’ll find interests that suit him that help him settle.

HAPPILYMARRIEDSINCE2012 · 29/08/2026 05:15

maudelovesharold · 29/08/2026 00:38

I’m sorry to hear that you’re having such a hard time, op. If this medication doesn’t seem to be working, maybe he could be prescribed something else? I think you should tell the doctor that you don’t see much difference in his behaviour. I can’t really rationalise it, but my gut is saying you should let him go to the football with his brother.

This

Stepmumto3 · 29/08/2026 07:26

I've got 3 step-children (2 11 year olds with ADHD and 13 with autism, all at special needs schools).

I'm also have ADHD myself, diagnosed at 47, so I'm starting to learn more about what it is and what it means for me personally.

Try to reframe your thinking when it comes to your child. It's a neurological condition, which means that the majority of your child's behaviour is outside of their control, even if they want to act differently their brain will override that desire and go it's own way.

I'd let him go to the football - it's not a case of him being intentionally "naughty", his brain won't let him act an other way.

If he's not medicated already, I'd definitely suggest trying that to see if it helps.

Also like at the potential to switch to a special needs school - if his school environment is impacting him and he's becoming client there, then a smaller setting with specialised help would be better.

Makepumpseleven · 29/08/2026 07:33

I don’t think it’s your parenting in this case, it sounds like something’s been intrinsically out of whack since he was a baby.

How long ago were his meds prescribed and is it possible the dose needs upping if you’re not seeing much effect, especially if he’s gone through puberty early? Or is it worth a conversation with the GP about trying something else that might help his mood alongside the current meds?

PassTheCranberrySauce · 29/08/2026 07:40

Ask for a meds review - the right meds should be transformative.

1:1 TA isn’t going to happen at a mainstream comprehensive. I would get in touch with SENDIASS and the LA and start researching specialist schools near you suitable for children with your DS’s profile.

BusMumsHoliday · 29/08/2026 07:45

I don't think any of this is your fault. You've been engaging with services and trying to get him help.

I think you need to tell CAMHS that the ADHD meds aren't working and you'd like to try something else. From what you've described, it doesn't sound like they are helping his impulsivity or reactivity.

Exercise might help but I wouldn't be letting this child out alone either; he's an absolute magnet for trouble and the possibility of him or someone else getting hurt is high. And I think mainstream school is not the right place for him now. When is his EHCP annual review? You could argue then for a change of placement.

He also sounds incredibly anxious - as though he feels something will go wrong at any time. Would CAMHS consider medication that might stabilise his moods a bit? I know it's an extreme step for a 12 year old.

Heretohelp1111 · 29/08/2026 08:17

As a starting point I’d contact your local authority and ask them if you run any specialist parenting courses specifically around parenting a child with your child’s needs. I’d also try and find a peer support group of other parents facing similar difficulties, ideally in your area or if not online. Have you done any reading about parenting a child with odd?

Smartiepants79 · 29/08/2026 08:21

Firstly, you do sound like a loving parent who is trying their very best. There are clearly reasons why he is struggling so much and 98% are out of your control.
Secondly, does he want things to change? Does he want it to get better? This more me is the major sticking point. You don’t mention at all if he’s ever sorry or upset by the outcomes of his actions. As a child with adhd we can say that a lot of his behaviours are very difficult for him to control but we might expect him to be sad if he’s hurt you for example. I have taught a few children with adhd and the ones who we have seen make positive progress are the ones who wanted to make changes, who were remorseful and who engaged with the support on offer.

BlackeyedSusan · 29/08/2026 09:55

Secondary might be better.

As he likes Pepsi, let him have caffeinated Pepsi for breakfast. Might make him more amenable.

Do you still clean his teeth? You can do a really good clean once they are deeply asleep if you've got a deep sleeper. (He might not) Stop if they are waking up though, you might get punched.

Never do rewards that can't be earned back if lost. There's no point in trying to behave if it can't be earned back once lost. Reward only the achievable/realistic targets.

You are right to not let him out on his own much if he's not capable. Try to have exercise at home or in sympathetic clubs.

What is his currency? Reward with that.

They are bloody hard work.

inthequietofdawn · 29/08/2026 09:59

You need an early review of the EHCP. On their website, IPSEA has a model letter you can use.

From what you have written, mainstream secondary was never going to be successful. Who was it that advised mainstream?

However, despite what a pp said, if 1:1 is detailed, specified and quantified in F of the EHCP, it must be provided and can be enforced. The fact it is a state comprehensive is irrelevant to that. 1:1 can and is provided in state mainstream secondaries. The school’s ‘miscommunication’ is also irrelevant.

What support other than 1:1 is included in F?

Did DS have an enhanced transition? How did transition visits go?

Have you looked at PDA and tried some PDA strategies?

Be careful with SENDIASS. Some are good but too many repeat the LA’s unlawful policies.

Lovelyview · 29/08/2026 10:14

You've had some good advice op. If his brother is happy to take him off your hands for a bit could you lean in to that? You need a break and if it's something he looks forward to then that's a good thing. As he doesn't understand consequences there's no point in tying it to behaviour. Agree with others about medication review, possible specialist school, etc. You need to look after yourself too, so whatever that means to you - quiet walk or out with friends.

PinkPandaas · 29/08/2026 10:15

He only actually got his EHCP finalised this summer. Looking back I wish I'd pushed years ago but his primary school were pretty useless with SEN if I'm honest. They always made me think an EHCP was only really for children who couldn't access the work academically, and because he's actually capable when he wants to be they kept saying he didn't need one. It wasn't until the PRU started asking why he didn't have one that things finally got moving.

As part of the EHCP process the LA looked at specialist placements as well. Their view was that his needs aren't severe enough for an SEN school and that with the right support he should be able to manage in mainstream. The plan is for him to have a 1:1 with him for most of the day, especially if he's refusing to go into lessons, because they don't want him just wandering the school on his own or ending up disrupting other classes. Unfortunately he sees it as having a babysitter. Yesterday he was apparently shouting "I don't need a babysitter" and telling the member of staff to leave him alone.

.He had a medication review not that long ago because I'd wondered the same thing, especially now he's hit puberty. I did ask whether the dose needed increasing or whether he should try something different.

They did increase the dose slightly after the review but said they didn't really want to keep increasing it just because of his age/size if they weren't convinced it'd help the behaviours I'm describing. They felt a lot of what we're seeing now is beyond just ADHD. They also weren't keen on changing him to something else because he doesn't really get side effects on his current medication and they said it's clearly doing something even if it's not as obvious as I'd like. So at the moment they've left him on the higher dose and want to see how he gets on.

At the PRU behaviour-wise he was actually worse at times because he'd made friends with a couple of the other boys there and they used to wind each other up and be disruptive together. If one refused to work the others often followed. So it definitely wasn't a magic solution either.

OP posts:
ShitHoleDweller · 29/08/2026 10:18

Sounds like ADHD with an oppositional/defiance element. The school may suggest a managed move. Is there anywhere else locally that you think might be a better fit?

inthequietofdawn · 29/08/2026 10:24

When this summer was the EHCP finalised? Do you still have the right of appeal?

Forget what the LA say, what do you think? The LA is going to be in favour of MS because it is cheaper and easier. It doesn’t mean they are right.

What other support is in F?

HumberSquid · 29/08/2026 10:29

It's not that you're too lenient, it's that he's too disabled (made worse now by puberty) to cope with the demands that are being placed on him.

bumblingbovine49 · 29/08/2026 10:42

I haven't read it all op but please talk to sendiass and see how you can get him placed somewhere else. Mainstream will not help him

It may take ages and you may have to go to tribunal but start now. I never managed to get my very similar sounding DS out of mainstream as I was too exhausted in the end to fight an LA in a county that was recently given the worst ofsted rating for SEN provision in the whole of the country

DS ended up with several exclusions from secondary, then Covid etc
He is now 22 and his mental health is terrible and he has not succeeed at anything at all since leaving college where he scraped a couple of A levels with little support despite his EHCP, which frankly was almost worse than useless

I really wish I had found him somewhere else than the mainstream school he went to as it was all the LA would accept on his EHCP without us going to tribunal.

At the time I hoped he'd be ok and he himself absolutely did not want to go anywhere else, at the time so I gave it a go.

DS coped a bit better outwardly with secondary than your son seems to. Year 7 was OK ish with deterioration in year 8. But by the end of year 9 it was awful and that coincided with the beginning of covid which meant we just couldn't get the LA or anyone in fact to do anything for over a year by which time it was too late as he would have aged out before we could get him in anywhere

Although you might wish your son was coping a bit better, I wish my ds had not so we would have been forced to act earlier . Masking is not always a good thing

My DS has always refused his ADHD medication too

Find him a better place as soon as you can. A PRU if necessary

Bluebeast · 29/08/2026 10:56

You sound like a loving parent OP and you've done so well to push through with all the agencies.

I dont have a window into your lives, I cant see whether he has had enough consequences for bad behaviour when he was a toddler. I would say thats crucial to setting their course tbh.

I understand what you mean when you say you're always doubting yourself. You can already see a 50/50 mix between punishment and consequences vs letting him go and being understanding.

Frankly, I fall into the consequences camp. I think clear boundaries are best. My son is 12 also with ADHD and ASD, he doesnt respond to gentle parenting ie 'big emotional speeches where i plead for him to behave'. Trying to get him to be understand how others are feelings just doesn't work yet etc... He responds to having his PS taken away and his phone blocked. Clear consequences to clear actions

My advice:

1: Make the punishments manageable. Ie: 2 days at a time. If he feels like its never ending then he will feel like theres nothing to loose.
2: Make sure you have exceptional restrictions on his phone. He is already angry. Dont give him access to an online world of incel forums, suicide videos and nasty humans who will take advantage of him.
3: Someone once told me that ASD kids are on average 2 years behind mentally compared to kids their own age. So if hes 12, parent him like a 10 year old. It changed my view on my own DS and made me realise why he cant behave like some kids his own age.
4: Once you punish him with consequences, dont hold on to anger or show upset. Move on. Lay down consequences, leave him to stew and then carry on as normal.
5: Apologise when your behaviour is out of line. If you go over the top angry, tell him you're sorry. You need to model this behaviour for him.
6: Stick to your punishments. If you've said no. He's not going/having it/doing it etc... he needs the stability of this.

Clairescorner · 29/08/2026 11:11

It sounds very hard all round. He sounds like he has very high anxiety (thinking people are taking the mick, looking at him, along with high anxiety with being asked to do tasks) along with very low self esteem.

I would have a look at what strategies help children with a pda profile and see if any of them help.

Lean into things he's good at and enjoy. Can you find any opportunities for him to do positive things? Eg scouts, a sports club, games club, any hobbies he has etc.
You might find lots of help and advice on the SEN boards on here.
Good luck with it all.