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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think we’re returning to a time of institutional welfare?

193 replies

Clawdya · 25/09/2025 13:19

We can’t afford to pay poor pensioners to live alone in large council houses with a team of regular carers dropping in.

We can’t afford to pay two parents to care full-time for a disabled child, whilst also funding their entire household.

We can’t continue pushing children with complex needs who can’t function in mainstream schools into them, where they can’t learn and disrupt everyone else.

Surely the answer is large, state-run, state-funded institutions to meet these needs, with trained and skilled staff, regulated monitoring and the benefit of economies of scale?

OP posts:
flapjackfairy · 25/09/2025 20:38

Everlore · 25/09/2025 20:01

My last post was a little tongue-in-cheek, however, this one is absolutely serious. I am extremely alarmed and dismayed that MN has allowed a post that advocates for the wholesale segregation and detention of the sick and disabled, including children, into state-run institutions to stand this long. I know there are some appalling attitudes towards disabled people exhibited daily on this site, but I had hoped that the moderators would not allow such blatant and disgusting ableism to remain undeleted and am horrified to find that they do not seem to take even outright hatred towards disabled people seriously. There is nothing nuanced about this OP who wears their disdain and disregard for the lives, well-being and dignity for those of us with disabilities in utter contempt.

I know it is shocking and depressing in equal measure.

CoffeeCantata · 26/09/2025 06:35

Dolamroth · 25/09/2025 13:27

Do you mean the workhouse?

You obviously don’t know what a workhouse is.

Of course OP isn’t suggesting that. They’re suggesting centralised care for people with similar needs.

CoffeeCantata · 26/09/2025 06:37

Ketzele · 25/09/2025 20:03

I do think your suggestion of 'halls of residence' for young professionals has some value, particularly in big cities. I used to work in a large central London hospital that got rebuilt, and all the nurses quarters were razed and not replaced. I can't believe that wasn't detrimental to recruitment, particularly of the many foreign staff who were coming over for a few years only.

Good quality halls of residence with staffed receptions and ensuite rooms with kitchenettes would surely be a great option for young people starting out in big cities.

But most of your suggestions don't make financial sense. As someone who has raised an adopted child to young adulthood, and cared for someone who developed young onset Alzheimers for years, and received not a penny of state support, I can promise you I was the cheaper option!

I agree. I’ve always thought the Halls of Residence model would be nicer for young professionals in big, expensive cities where they could socialise and feel safe.

padso · 26/09/2025 07:07

Care in the home needs to include house value as the majority don't go into a care home.

Notonthestairs · 26/09/2025 07:24

Everlore · 25/09/2025 20:01

My last post was a little tongue-in-cheek, however, this one is absolutely serious. I am extremely alarmed and dismayed that MN has allowed a post that advocates for the wholesale segregation and detention of the sick and disabled, including children, into state-run institutions to stand this long. I know there are some appalling attitudes towards disabled people exhibited daily on this site, but I had hoped that the moderators would not allow such blatant and disgusting ableism to remain undeleted and am horrified to find that they do not seem to take even outright hatred towards disabled people seriously. There is nothing nuanced about this OP who wears their disdain and disregard for the lives, well-being and dignity for those of us with disabilities in utter contempt.

Well said.

Dungeonsanddraggingafternoons · 26/09/2025 07:26

I actually cannot believe your suggesting institutionalising my disabled child. What a horrific and evil thing. I pray there are enough decent people left to avoid this ever being even considered.

YelloDaisy · 26/09/2025 07:27

You can’t discuss these problems in the U.K. as everyone wants to be ‘kind’ and inclusive so we end up in a mess like we are where education is poor, health care is dangerous and immigrants flood in.
But we can smile nicely as we are caring.
I just read an article in the NYT -interviews with young people and they are all voting republican -they want their lives better so they can afford a house so they support Trump in what he’s doing , some concern about how immigrants are treated but not much. But over here we must be inclusive - stuff the young people. Things are going to get worse here (and companies are moving to manufacture in the US-not good for us but he is putting the US first - sadly Starmer isn’t doing that for of us).

Notonthestairs · 26/09/2025 07:43

Being kind and inclusive to disabled people isn’t the cause of this country’s woes.

Katiesaidthat · 26/09/2025 08:03

Sahara123 · 25/09/2025 15:49

I have a severely disabled daughter living at home , I don’t get that amount . I was being flippant, I’m actually quite upset at this post

Sorry, I thought you were just being nasty in your comment. I have heard comments like this before and they were being dead serious. It wasn´t clear to me you were being sarcastic. I am the daughter of someone disabled and I was upset by yours.

Ponoka7 · 26/09/2025 08:13

I'm in shared ownership, over 55 apartments. One side joined by a garden, is 'extra care', slightly off site is a mix of care, general social housing and extra care. These are the cheapest way of providing accommodation and care. IMO it's the way we should be heading. For adults, HMOs ran by care companies work well. We absolutely should fund parents to look after their disabled children. We should have SEN schools, once again.

AgnesX · 26/09/2025 08:13

Clawdya · 25/09/2025 14:37

Agree. Institutions don’t have to be dismal and could offer a better, fuller lifestyle than people get at home with their broke and shut in families caring for them. I suspect a lot more carers would be mentally and physically, not to mention financially, better off if in work instead of at home caring too.

I take it that you missed the most recent news report of elderly people being abused in a residential care setting and other recent ones where vulnerable young adults were also abused?

Is that what you want for yourself? I bet you're not in that position and neither is anyone in your family. People that come up with these retrograde ideas generally aren't.

IkeaJesusChrist · 26/09/2025 08:22

My disabled husband has worked full-time since he left education and he needs a small amount of support from me, I work four days a week.

Is that okay for you OP or should I drop him off at the nearest workhouse?

Everlore · 26/09/2025 08:31

AgnesX · 26/09/2025 08:13

I take it that you missed the most recent news report of elderly people being abused in a residential care setting and other recent ones where vulnerable young adults were also abused?

Is that what you want for yourself? I bet you're not in that position and neither is anyone in your family. People that come up with these retrograde ideas generally aren't.

I doubt the OP is in that position too. However, what is depressingly familiar about all the ableist posts on here is that the posters uniformly fail to acknowledge that they and their loved ones are just one illness or accident away from becoming permanently and severely disabled themselves and that, therefore, the life of deprivations and institutionalisation they are cheerfully suggesting is perfectly adequate for the needs of disabled people could be theirs tomorrow if they're unlucky.

Enterthewolves · 26/09/2025 08:38

Clawdya · 25/09/2025 13:47

If someone needs 1:1 care in a medical setting, they’re on a ward.

Which goes to show your level of knowledge on this issue - because no they are not. Hospitals are for acute care, care at home, and in nursing homes often includes elements of round the block medical care.

Everlore · 26/09/2025 08:47

Ponoka7 · 26/09/2025 08:13

I'm in shared ownership, over 55 apartments. One side joined by a garden, is 'extra care', slightly off site is a mix of care, general social housing and extra care. These are the cheapest way of providing accommodation and care. IMO it's the way we should be heading. For adults, HMOs ran by care companies work well. We absolutely should fund parents to look after their disabled children. We should have SEN schools, once again.

Do us disabled adults get any say in this or are you suggesting we be forcably removed from our homes and put into sheltered housing regardless of our wishes or needs? I own my own home, adapted to my specifications, where I live with my husband and baby. Unsurprisingly, I would rather live in it with my family than isolated in a state run facility, as I imagine most people, disabled or not, would, is self-determination a privilege you think only the currently non-disabled should be afforded?

Sahara123 · 26/09/2025 08:49

Katiesaidthat · 26/09/2025 08:03

Sorry, I thought you were just being nasty in your comment. I have heard comments like this before and they were being dead serious. It wasn´t clear to me you were being sarcastic. I am the daughter of someone disabled and I was upset by yours.

Edited

I am sorry, it was poorly worded. I can see now how it looks, it doesn’t suggest that I am in the same boat as you. It’s tough isn’t it. If only we did get that much !
Sending you love and solidarity.

Ponoka7 · 26/09/2025 09:00

Everlore · 26/09/2025 08:47

Do us disabled adults get any say in this or are you suggesting we be forcably removed from our homes and put into sheltered housing regardless of our wishes or needs? I own my own home, adapted to my specifications, where I live with my husband and baby. Unsurprisingly, I would rather live in it with my family than isolated in a state run facility, as I imagine most people, disabled or not, would, is self-determination a privilege you think only the currently non-disabled should be afforded?

We've chosen to sell our house and move in here. There's a waiting list because the scheme is surrounded by victorian two-up-two down money pits. Similar schemes in our county all have waiting lists. What I meant was that more councils should look at this model. It is a million miles away from what the OP is suggesting, but works for the people in need and balancing budgets. If you live with your baby you mustn't be at the, over 55 (or did you conveniently miss that bit) stage, or the elderly stage the OP discussed. Our health issues are exasperated by aging. Five years ago we wouldn't have considered this. But my DP was starting to struggle and as his carer, chief bottlewasher/cook/cleaner etc, on top of being my DD's childcare and a carer to other people, I was feeling my age, which seems to be the case as people are hitting 60. I've worked in, end of life/home/residential care and the extra care housing, new build apartment blocks work better than what I've witnessed.

ScholesPanda · 26/09/2025 09:04

Clawdya · 25/09/2025 13:44

I also think similar buildings for young professionals would be good, like student halls but for those aged 21-30ish who are building their careers.

I would have a preferred to rent a room in a well-maintained, monitored block with rentable shared facilities like dining rooms and spare bedrooms than the HMO hovels I had to live in.

This is already a thing in some big cities, called co-living.

Everlore · 26/09/2025 09:25

Ponoka7 · 26/09/2025 09:00

We've chosen to sell our house and move in here. There's a waiting list because the scheme is surrounded by victorian two-up-two down money pits. Similar schemes in our county all have waiting lists. What I meant was that more councils should look at this model. It is a million miles away from what the OP is suggesting, but works for the people in need and balancing budgets. If you live with your baby you mustn't be at the, over 55 (or did you conveniently miss that bit) stage, or the elderly stage the OP discussed. Our health issues are exasperated by aging. Five years ago we wouldn't have considered this. But my DP was starting to struggle and as his carer, chief bottlewasher/cook/cleaner etc, on top of being my DD's childcare and a carer to other people, I was feeling my age, which seems to be the case as people are hitting 60. I've worked in, end of life/home/residential care and the extra care housing, new build apartment blocks work better than what I've witnessed.

The OP was suggesting institutional care for all disabled people including children which seemed to be what you were responding too. I have been severely disabled since birth. At no point in my life have I ever wished I had been in sheltered accommodation or a state-run institution rather than at home with my loved ones. I am not over 55 but I feel pretty confident in asserting that most people in that demographic wouldn't be delighted by your scheme either. It's an excellent option for those who want and need it but suggesting it as a blanket solution to all social care needs is clearly inappropriate. It's all about individual needs, not a one-size fits all approach, which is one of the countless reasons why the OP's ludicrous and offensive suggestions are unworkable as well as inhumane.

Burntt · 26/09/2025 09:31

We need schools and day centres for the disabled and the elderly. If they are not fit to go to a setting then home carer visits.

my son is classed as disabled. He’s autistic with high needs however he doesn’t have intellectual disabilities diagnosed so can’t attend SEN schools and no mainstream will take him because they can’t keep him and others safe. So my whole family has to rely on benefits and I get the haters blaming me. My child is entitled to a fucking education and is being denied it. If he was in school I could work. I’m paying interest only on my mortgage and not paying into a pension so I will have to rely on the state when I’m too old to care for my son at home.

i actually tried to put him into care when I was unable to keep his siblings safe from him and after a very serious incident I told social services if they don’t take a child is going to die. They refused to take him.

providing my child a school place then a day centre if he grows to adulthood and cannot be independent would be cheeper than paying my UC and my pension credit etc etc my mother had an operation and needed carer to visit while she recovered. Same with my father while he was dying. I would have done half that stuff if I was able to leave my son during school hours. Not that I think women should have to take on caring responsibility for all their relatives but just my personal situation I know of a few parent carer who cannot help their elderly parents AT ALL because their kids are not in a school.

I wish the public actually knew how hard it is to get a school place for a SEND child and what the reality is for these kids and their families.

I’d happily do some form of national service working in a send school or day centre. However I don’t think you should be forced to do such a role if it’s not suited to you it should be one of the options you can choose

MorrisZapp · 26/09/2025 09:43

Residential care is always the most expensive option. The state can't afford it.

BlueandWhitePorcelain · 26/09/2025 09:49

AgnesX · 26/09/2025 08:13

I take it that you missed the most recent news report of elderly people being abused in a residential care setting and other recent ones where vulnerable young adults were also abused?

Is that what you want for yourself? I bet you're not in that position and neither is anyone in your family. People that come up with these retrograde ideas generally aren't.

There comes a point when the needs of people with dementia or other severe medical conditions are beyond the resources of a family and the NHS to care for. Care homes are needed for some.

My daughter has a severe medical condition. The NHS is too fragmented for her. My local hospital admitted they don’t have the expertise to look after her. We’d be regularly be spending 12 hours a time in A & E with her, where she’d receive poor care.

As it is, she lives in a care home, with onsite medical care 24/7. A nurse can pop over and see her at any time. In an emergency, I imagine they’d call their own doctors either to see her in the daytime, or for advice at night?

Everyone knows there is a risk of abuse from carers in their own home; or a care home - but sometimes that has to be balanced with the real suffering, that occurs in the NHS!

Notonthestairs · 26/09/2025 10:02

Yes, some people do need and benefit from care settings.

But the Op isn't suggesting care based on patient need. She's suggesting all disabled kids go into institutional care.

There is no point trying to make any financial sense of it because she clearly isnt interested in how much it will cost - save that she suggested that the overseers (private companies no doubt) will deal with economies of scale.

It is dehumanising and intended to be so.

Goldbar · 26/09/2025 10:02

Compassion aside and regardless of the level of need, care in the family is almost always the cheapest option because it leverages on the unpaid labour of family members.

Supporting people to the minimum possible level to allow them to care for the vulnerable in their families (with no minimum wage, no limit on hours, no time off, no pension contributions, no holiday or sick pay) is always going to be cheaper than paying others to provide that care.

Danikm151 · 26/09/2025 11:06

Another way of saying “let’s bring back the workhouses”
Also a the house up the hill for disabled children.

There is a reason why they disappeared. Having to prove you deserved to live outside them- abhorrent.

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