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Extremely hacked off by GP. Won’t prescribe Mounjaro

1000 replies

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

OP posts:
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11
Downbutnotout2 · 03/09/2025 05:44

Downbutnotout2 · 03/09/2025 05:34

Have you read it? It isn't just about USA, the author is British and he took research from all over the world.
Our food standards in the UK do not prevent most UPFs, and these companies have a lot of influence over policies, and the research they fund to fit their narrative that their food is fine, it's just that 'people are lazy and don't exercise enough.'
This simply isn't true. Exercise has very little effect on weight, if you exercise a lot your body compensates for that energy by reducing other less important functions. The energy used by the body of someone working in an office or a coal mine is the same...there have been countless studies done showing this.
Weight loss us achieved by eating less than your body requires, but things such as insulin resistance and other things, can affect how easy this is to do.

You just have to read this thread to see how pervasive and persuasive their narrative is that it's just that we are too sedentary nowadays, and nothing to do with their addictive foods.
There are also many food deserts and food swamps, where it can be difficult for people to avoid UPFs as that's all that is readily available.

Weepixie · 03/09/2025 06:10

loopyloolou · 02/09/2025 23:34

All I would say is the nhs is not prescribing enhertu to cancer victims to try and extend there lives, so I think mountjaro should only be available on the nhs is you have a life threatening condition.

So many cancers are linked to obesity, surely nipping it in the bud would be much cheaper than treating someone for cancer further down the line?

And posting as someone who has had cancer I googled the cost of Enhertu out of curiosity and according to google it costs 91,000 pounds per course at list price.

Can Mounjaro really be compared to it? Then there’s the bigger picture to take into consideration?

And just to make it clear - I don’t live in the UK but I am on Mounjaro that I’ve paid about 450
pounds a month for, for the last year. My post was not based on me wanting my mounjaro on the NHS anywhere.

If you would benefit from Enhertu and you’re not being prescribed it, I’m really sorry and I wish things were different for you.

AnnaQuayInTheUk · 03/09/2025 06:16

bridgetreilly · 02/09/2025 23:44

I don’t understand why you started on a private prescription if you thought you were eligible for NHS funded treatment.

Exactly. I asked this up thread but the OP isn't answering I have T2 diabetes and had very high blood sugar even though I wasn't obese. You need to have tried 2 different diabetes meds and have a BMI of over 27 to qualify. My GP was happy to prescribe as I met that criteria (my BMI was 27.5 I think).

My HBA1C reading has come right down now. I've also lost weight which is good, but wasn't my main goal.

I really don't understand why the OP didn't go to their GP in the first place. It didn't cross my mind to pay for a private prescription without speaking to my GP about my eligibility for a free NHS one.

Skodacool · 03/09/2025 06:32

SDTGisAnEvilWolefGenius · 02/09/2025 19:45

What about the cost to the NHS of all the obesity and diabetes related conditions, @Skodacool?

Obesity and, in many cases, type 2 diabetes are not inevitable.

Focusispower · 03/09/2025 06:54

@AnnaQuayInTheUk not all GPs are prescribing in line with the clinical guidelines. In fact I think most are not. You are lucky! I mentioned up thread that some areas have created higher limits e.g my mum’s GP is only prescribing MJ to those with a BMI of over 40 even though it’s over 30 or 27 with risk factors that is the clinical guideline. This is purely for cost control.

incognitomouse · 03/09/2025 06:59

@Alwaytired44 For a lot of people, it Is that simple but people don't want to admit it to themselves or put in the effort.

Not everyone who is overweight has a medical issue or a hormone imbalance or a thyroid problem...some people ARE just overweight because they don't move enough and they eat too much.

Hands up! I was one of them - I had nobody else to blame but myself.

Gettingbysomehow · 03/09/2025 06:59

You've done brilliantly and invested in your health well done.
All of us on MJ have to learn how to live without it at some stage. The GP surgery will be able to help you with diet and maybe you could start exercise.
I always found calorie counting the best.
Don't give up. You can do it.

AnnaQuayInTheUk · 03/09/2025 07:03

Focusispower · 03/09/2025 06:54

@AnnaQuayInTheUk not all GPs are prescribing in line with the clinical guidelines. In fact I think most are not. You are lucky! I mentioned up thread that some areas have created higher limits e.g my mum’s GP is only prescribing MJ to those with a BMI of over 40 even though it’s over 30 or 27 with risk factors that is the clinical guideline. This is purely for cost control.

I think it's appalling that GPs aren't following the clinical guidance, but the OP didn't even ask her GP in the first place, she just went straight to a private prescription.

oldclock · 03/09/2025 07:12

Those limits have been created by NHSE on the basis of what Wes Streeting will pay for. The GP didn't make them up! Look at the interim commissioning guidance @focusispower @annaquayintheuk Govt has stated they won't meet NICE recommendations for 12 years.

Skodacool · 03/09/2025 07:23

Catladyof7 · 02/09/2025 20:09

It hasnt

Just someone who thinks they know it all .

I wonder how they think they know better than medical professionals?

I bet these people all line up for the wonderful Covid jab …that is new and look how many people have died having that ‼️

Feeling sick, constipation, indigestion, diarrhoea are common side effects of Mounjaro. The Covid jab is a variation of the flu jab which has been around for many years.

Coffeeandcrochet · 03/09/2025 07:25

Focusispower · 03/09/2025 06:54

@AnnaQuayInTheUk not all GPs are prescribing in line with the clinical guidelines. In fact I think most are not. You are lucky! I mentioned up thread that some areas have created higher limits e.g my mum’s GP is only prescribing MJ to those with a BMI of over 40 even though it’s over 30 or 27 with risk factors that is the clinical guideline. This is purely for cost control.

It's not quite that simple. NICE have concluded that mounjaro should be provided for patients with a BMI over 35 (or 32.5 for certain ethnic backgrounds) and at least one weight related comorbidity. Normally that means NHS England should start providing to all eligible within 90 days of NICE's recommendation.

However, because of the sheer numbers eligible (estimated 3.4 million), it is simply not possible for the NHS to roll out to all eligible within 90 days due to both capacity and budget. Therefore NHS England have agreed with NICE that they will follow a country-wide interim commissioning policy with a phased roll out, starting with BMI 40 plus 4 weight related comorbidities. The phasing is based on clinical need and was devised in consultation with ICBs, patients, healthcare professionals, charities, the Royal Colleges etc.

So if your mum's GP isn't prescribing to those with a BMI under 40, that's because they ARE following the guidance.

LovelyLuluu · 03/09/2025 07:27

Weepixie · 03/09/2025 06:10

So many cancers are linked to obesity, surely nipping it in the bud would be much cheaper than treating someone for cancer further down the line?

And posting as someone who has had cancer I googled the cost of Enhertu out of curiosity and according to google it costs 91,000 pounds per course at list price.

Can Mounjaro really be compared to it? Then there’s the bigger picture to take into consideration?

And just to make it clear - I don’t live in the UK but I am on Mounjaro that I’ve paid about 450
pounds a month for, for the last year. My post was not based on me wanting my mounjaro on the NHS anywhere.

If you would benefit from Enhertu and you’re not being prescribed it, I’m really sorry and I wish things were different for you.

Edited

The problem though @Weepixie is that unless you use injections forever, your own lifestyle and food intake has to change.

Injections supress appetite, don't they?
So what happens when people stop?

The OP has nipped it in the bud quite well so far- down 5 stones.
But she seems unwilling to take some personal responsibility for what happens if she doesn't use injections.

If you're using injections, you can see what you're eating (less!) to lose weight.
So if you stop, you have to carry on with that rather than revert to your previous way of eating .

It takes willpower and choices, which all of us make every mealtime. It's personal responsibility.

YouSirAreAnIdiot · 03/09/2025 07:27

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LovelyLuluu · 03/09/2025 07:30

@Hakunatomato Your stats around your BMI are a bit odd unless you're very short.

I put in a height of 5 ft and weight of 16 stones.
This comes up with a BMI of 43

So you must be 4 11" or less to have a BMI of 46 which is what you posted.

Is that right?

DarkForces · 03/09/2025 07:37

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Evem if that is true, do you think I deserve to die early if it can be prevented? The NHS will pay for medication to treat any disease I develop but not the underlying cause. It makes no sense. There's presumably fatties in your life you'd prefer lived longer and healthier lives? If not can't you see the benefits at a population level?

värskekapsas · 03/09/2025 07:37

it is so upsetting how some people attack you with its your fault and stop putting food in your mouth. I am sorry you have to read that. Would you try wegovy? I know its not as good but still better than nothing? I am hoping in the next few years they should release tablets and apparently they should be cheaper. My mother is in another country and she has been prescribed semiglutide tablets for weight loss so it already exist in some countries and cost her about €100 a month so much cheaper than Munjaro

BeefAndHorseradishSandwich · 03/09/2025 07:39

Why should tax payers fund you losing weight? There’s people dying of cancer who deserve treatment and have to wait. You can go on a diet 🙄 Don’t be so self centred.

allusernamesaretakennow · 03/09/2025 07:41

The bottomless pit of NHS spending has to be paid for by taxpayers. Well done on losing weight. Its your health, take control.

DarkForces · 03/09/2025 07:42

I'll tell you what I'd rather be obese than have some of the bitterness of many people who have replied here. At least there's a jab for my condition

Cyclingmummy1 · 03/09/2025 07:52

Naunet · 02/09/2025 22:04

Just wanted to point out, that book is about the USA, we have very different food standards and regulations here. That's not to say it isn't still a factor to a point, but it's far better here than it is in the US.
Poorly regulated food is what happens when you have a private health service, there's a lot of money to be made.

Is it? I was intending to buy it as I really like the work he and his brother have done here. Disappointed if he's writing about the USA.

Weepixie · 03/09/2025 07:55

@LovelyLuluu its never been my plan to use Mounjaro any longer than the end of the year and from day 1 my approach has been to think about every day of the rest of my life and learn how to go it alone. I’ve basically spent the last year saying no, and I’m looking forward to the challenge of what the future brings. I’m a bit nervous but it’s a motivating nervous. I also think it’s valid that I adopted a whole person approach to being on Mounjaro and it included working on my heart and my head as well as my food intake. I’d always been an excerciser so that bit was already sorted.

Some people even if they did all of the above will never manage to be slim. And I’m sorry but it’s just not a case of eating less - in fact I’m surprised so many people still think it is. Anyway, perhaps the op knows she just doesn’t have what it takes to lose weight and keep it off on her own, just the same way I know I’ll forever be on 10mgs of an anti anxiety despite working my way down from a much larger dose.

Are me and the Op really that different?

TheSnootiestFox · 03/09/2025 07:56

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Oh God, you again. I'm assuming that is just a goady comment as I refuse to believe that someone in this day and age can be quite so ignorant. I am a fatty. Have fought with my weight all my life, going to my first slimming club at age 11. The people talking about willpower REALLY need to shut the fuck up, as I spent my entire teens and twenties either starving (I restricted myself to 500 calories a day from the age of 12 to about 15,) overexercising to the extreme and then when the hunger became too much I binged and purged, being treated for bulimia while still at school. If I have the willpower to be hungry for years and to stick a toothbrush handle down my throat on a daily basis, do you really think that I couldn't handle saying no to the cream cakes?

In my twenties I was diagnosed with PCOS and prescribed metformin to deal with the insulin resistance causing the weight gain and dark skin on my neck and under my boobs. Managed my weight by diet with varying degrees of success, never could just relax and eat what my slim friends did.

Fast forward into my 30s when I had to maintain a 1000 calorie deficit per day to stay the same weight, which meant literally an hour and a half in the gym every day plus running 5km 2 times a week. Then in my 40s I was diagnosed with lipoedema which had reached stage 3 by this point, because I had spent my entire life being gas lit by so called medical professionals telling me to eat less and move more. Exactly like my mum before me.

DO NOT talk to me, and people like me about making excuses. You cannot possibly understand what it is like to fight your body every day. Then to find out that you have not one but two metabolic diseases and have been shamed and blamed for a lifetime when actually you were never going to be a normal weight without a drug like Mounjaro.

I am not greedy, I do not eat too much. Quite the reverse, and I can be helped by the new injections which do what my metformin stopped doing after 20 years plus a whole lot more.

You, in the other hand, are always going to be stupid, narrow minded and ill educated. I'd rather be fat than a blatant idiot myself, but each to their own!

YouSirAreAnIdiot · 03/09/2025 07:59

DarkForces · 03/09/2025 07:37

Evem if that is true, do you think I deserve to die early if it can be prevented? The NHS will pay for medication to treat any disease I develop but not the underlying cause. It makes no sense. There's presumably fatties in your life you'd prefer lived longer and healthier lives? If not can't you see the benefits at a population level?

well take some responsibility for yourself and diet

Velmy · 03/09/2025 08:00

Hakunatomato · 02/09/2025 10:25

Thank you. I am expecting a hundred comments from people who know nothing about the mechanics of diabetes and telling me to eat less and be more active. I can see that you understand. To make such comments is akin to saying to an alcoholic well you have managed 3 weeks off booze, so we won’t help you until you become so unwell and have stage 4 liver disease.

No, it would be akin to an alcoholic who'd used Antabuse to stop drinking, then being told to stay off the drink instead of taking Antabuse for the rest of their life.

I'm glad that NHS GPs aren't handing this stuff out like candy to people who won't even try to take responsibility for their own diet/exercise without it.

usernamealreadytaken · 03/09/2025 08:13

RubySquid · 02/09/2025 20:48

Has the OP actually been offered any support?

Addicts often have to find and develop their own support networks - AA is excellent and you don't have to be referred by a medic. I understand theres a similar group for overeaters.

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