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Extremely hacked off by GP. Won’t prescribe Mounjaro

1000 replies

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

OP posts:
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loopyloolou · 02/09/2025 23:34

All I would say is the nhs is not prescribing enhertu to cancer victims to try and extend there lives, so I think mountjaro should only be available on the nhs is you have a life threatening condition.

Miriabelle · 02/09/2025 23:40

samarrange · 02/09/2025 23:05

One of the curious consequences of a publicly-funded medical system is that obese people actually represent a saving for the system. Not as much as smokers, who are huge net contributors to the NHS, but obese people have lower lifetime healthcare costs than normal-weight people. This study (free to read in its entirety) was an eye-opener for me.

The point is that while treating an obese person's cardiovascular issues (or a smoker's lung cancer, etc) can be very expensive for a year or two, those people tend to die quite young. And what actually costs the system more over time is repeated hospitalisations of people in their 80s and 90s, with frequent TIAs, falls, etc.

Note that the study doesn't consider the costs of social care or pension payments*. That would further tilt the balance "in favour of" 😳 smokers and the obese, as if you live 20 years less you collect 20 years less pension and you probably don't spend any time in a care home. (Next time you're near a care home, have a look how many of the residents are overweight. Not many, I'm guessing. There's a reason we talk about "little old ladies" more than "big fat old men".)

So if I was a conspiracy theorist I might be thinking that the government is actually happy for people to smoke or be obese because it staves off higher taxes to care for the non-smoking, normal-weight elderly. (That's a joke... for now.)

*To be fair, it doesn't consider the financial cost of time off work due to obesity-related disability either.

If you have spent any time recently in or around a care home or an NHS hospital you’ll have seen that the vast majority of patients/care home clients are actually significantly overweight. People in care homes are not all thin and frail. They often have been fatter in their lives, and have developed associated mobility issues. Care home diets are very poor. Diabetes is common and often not well controlled. Alzheimer’s and many types of dementia are increasingly being thought of as part of a continuum with diabetes, and poor diet and obesity contributes to this.

Dervel · 02/09/2025 23:43

It’s not so simple as the NHS have an unlimited supply at a £30 price. They will have a limited supply that will have worked out £30 per fill. They have to target the limited supply to where it can make the biggest impact.

I get that losing access to it may mean you lose some ground (and the attendant costs to the NHS for your future health issues), but from their point of view they are gonna have to shoulder those costs from whomever they choose not to give it to if they give it to you.

Still bloody well done coming so far! I hope you find a way to continue treatment or find other solutions to help you going forward.

bridgetreilly · 02/09/2025 23:44

I don’t understand why you started on a private prescription if you thought you were eligible for NHS funded treatment.

Lincolnlemons · 02/09/2025 23:46

It isn’t MJ that’s reversed all those health conditions, it’s losing weight. Very entitled to think the NHS owes you a prescription, can’t you exercise some willpower? Weight loss is simple. Eat less and burn more calories.

Lockdownmama31 · 02/09/2025 23:47

it does not cost £30 a week for NHS. It’s between £92-122 per injection.

RagzRebooted · 02/09/2025 23:52

TSHconfusion · 02/09/2025 10:25

Can I ask do people on MJ intend to stay on it forever? I had assumed the idea was that the drug helped you changed your lifestyle to make healthier habits and choices and then come off it and be able to sustain that. Just trying to understand as it seems crazy to be on it forever

The same as with any method of weight loss. Stop going to slimming world, regain the weight. Stop the low carb diet, regain the weight. Stop fasting, regain the weight. Stop calorie counting, regain the weight. Even bariatric surgery isn't always a lifelong cure.
Countless research studies show that most people who lose large amounts of weight, then regain it (and often more). Why would weight loss medication be any different?

Obviously, the answer is to then change to a sensible maintenance approach with a healthy diet and exercise, but if it were as easy as it sounds then slimming clubs, fad diets and weight loss drugs wouldn't exist in the first place.

I have lost 6 stone myself on MJ and am currently weaning off it as I don't want to stay on forever, partly due to cost but also side effects. I don't know how this will work for me long term, because like many people I've lost weight before. I got down to this weight 7 years ago with low carb, but I regained it all and more. I've been overweight on and off since I was a young teenager (none of my 4 sisters were) and I know MJ isn't a cure (unless I stay on it!). It hasn't magically given me new eating habits and a love of exercise, unfortunately. It just made me slim.

RagzRebooted · 02/09/2025 23:53

Lockdownmama31 · 02/09/2025 23:47

it does not cost £30 a week for NHS. It’s between £92-122 per injection.

So, £25-30 a week. Each injection is 4 weeks worth.

Crispynoodle · 02/09/2025 23:54

This happened to my daughter who has PCOS and needed to lose 7st to get IVF she was given a diabetic med despite not being diabetic but was inevitably taken from her. Luckily I was able to help out and pay for MJ have you anyone that can help? A credit card? Overdraft? Savings?

ScorchingEgg · 02/09/2025 23:55

KoalaKoKo · 02/09/2025 23:25

This depends on if it it metabolic or leptin related - if weight gain is caused by over eating (ie an issue with leptin) then wegovy would work well - but if the issue is more to do with how your body burns fuel then wegovy might not work. Not all of us are fat for the same reasons!

Hence why I asked if she has looked into it. I don’t know her personal circumstances.

Weepixie · 02/09/2025 23:57

@KoalaKoKo that's a very interesting post. Thank you.

Catladyof7 · 02/09/2025 23:59

LovelyLuluu · 02/09/2025 22:26

I agree.

Most people who are very overweight have an addiction, like booze or fags.
They need help with all aspects of it- education on what to eat, what is 'normal' in terms of portions, the emotions behind binge eating, the way they reach for food as a comfort.

It annoys me, as a slim person, when other people say to me' Oh, you don't need to worry' [as in my not having a piece of cake etc]- well, I'm only slim because I resist when I could eat the whole bloody cake.

Not saying it's easy but we all choose what goes into out mouths.

Edited

So how come i have a 85 year old sister , never been more than a size 8 .
Eats man sized meals and i am talking big meals , dessert as well after dinner.
Breakfast , danish pastries , coffee, toast .
Lunch, sandwiches .
Mid afternoon ..cake / biscuits and more coffee.
Also drinks alcohol and has some chocolate and nuts and crisps …still a size 8 today
Loves cheese and eats the odd cream cake / doughnut

Luckily i hate cream, and doughnuts
.
How does that work ?
I dont eat that amount in two weeks .

Metabolism ‼️?
We are all different

DarkForces · 03/09/2025 00:00

loopyloolou · 02/09/2025 23:34

All I would say is the nhs is not prescribing enhertu to cancer victims to try and extend there lives, so I think mountjaro should only be available on the nhs is you have a life threatening condition.

What other medication would you cut based on your version of life threatening? The dramatic increase in risk when you're obese means it is life shortening by any measure

Inyournewdress · 03/09/2025 00:10

The GPs hands are tied, they can’t as far as I know prescribe unless in accordance with the guidelines. So it’s more NHS policy and I agree with you OP that it needs to catch up fast. They finally have a drug here that is changing lives, saving lives and putting conditions which place crippling demands on the NHS into remission. They need to use it.

I haven’t had time to RTFT yet but been shocked by the ignorance in some of what I have read. Some people still think it’s just about ‘willpower’. Firstly willpower itself can be a misleading concept here, we all know people who naturally eat as if on Mounjaro…they don’t need willpower to do it though. Most people do try incredibly hard, but there are also complex metabolic and neurological factors that affect not only how we eat but how our body responds. Not to mention that MJ seems to be treating other conditions independently of any effect on appetite.

Crucially as well, the NHS needs to work out how it will take into account medical history, metabolic history and past weight/co morbidities. That’s huge in deciding who needs the drug, possibly for life.

ohrodneyyouresuchplonker · 03/09/2025 00:10

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JFDIYOLO · 03/09/2025 00:11

What does Mounjaro actually DO?

Inyournewdress · 03/09/2025 00:13

Sorry for double post but I do think if, IF, mounjaro and similar drugs function as well as some expect in terms of dramatically reducing heart disease, joint problems, diabetes,dementia, stroke etc and keeping more people economically active, then they will potentially free up immense amounts of money for other conditions to be treated better.

ohrodneyyouresuchplonker · 03/09/2025 00:29

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KoalaKoKo · 03/09/2025 01:05

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There are countless studies now on how the chemicals in food are changing how our bodies work. Emulsifiers, binders, sweetners are in most things we buy! Even when we think we are being healthy look closely and they are there! Both my grannies put cream in their coffees, butter in cooking, chocolate when they fancied and both were skinny as a rake - my mum
a I look at food and gain - our metabolism have changed because corporations have laced our food with chemicals that have altered our bodies and made us fat. People haven’t gotten greedier but our bodies no longer recognise when they are full up or burn fuel in the same way because of the crap we consume or that our parents consumed (because that stuff is passed on). Our hormones have been affected too! Will power has nothing to do with it - my issue is metabolic rather than over eating but those that do over eat have leptin disorders where their bodies literally don’t register they are full - you can’t say you would have willpower in this situation as you have not been in it!

Be careful to judge as you could wake up fat someday wondering why you can’t lose it! Honestly I used to judge fat people and then I became fat and I have an abundance of self control. Why is obesity no different from diabetes, autoimmune disorders, high cholesterol - it is a health issue - over weight people will cost the nhs more if they have heart attacks, get cancer, become in need of carers etc… so from that perspective a skinny jab is more cost effective. Especially when you read about the affects it has on pcos, endo, inflammation, arthritis, ibd etc… skinny jabs lower sugars, inflammation, ths and so on - many conditions linked to being overweight are alleviated by these injections so in the long run it save the tax payers money.

BooneyBeautiful · 03/09/2025 01:19

Silverbirchleaf · 02/09/2025 10:17

Congratulations on your weight loss.

Can you join slimming world or join weight watchers to carry on the good work?

I use the WW app and it suits me really well. I have lost two stone so far. Am hoping to lose at least another two stone, if not three. My friend started using the WW app five years ago and has kept the weight off. No foods are banned, so you never feel deprived.

user1492757084 · 03/09/2025 01:25

Save money by limiting what food you buy - eating just fresh salad and canned fish, vegetables and oats, fruit.
Never buy fast food,
Take a walk every day in nature.

BooneyBeautiful · 03/09/2025 01:30

Womblingmerrily · 02/09/2025 10:31

The disdain for someone who has achieved a really good weight loss, along with improved health markers is sad to see, although fully expected.

Obesity is still seen as a moral failing it seems, meaning that people feel free to insult and punish 'stop eating crap, why would the weight go back on?, join a slimming club'

If it was that easy we would not have a global obesity problem. Dieting does not work and exercise definitely does not work long term to manage weight for most people.

This problem that has largely been caused by the food industry making lots and lots of money. If the government is serious about prevention of ill health then they will have to do some harsh regulation on food companies - but they won't because it makes money for our economy and we can't afford to piss them off.

Edited

I agree. I have a very fatty liver and my hepatologist says the main thing to avoid is UPFs. It's just such a shame that the food manufacturing industry isn't at all interested in supporting the medics!

Alwaytired44 · 03/09/2025 03:24

Overthebow · 02/09/2025 10:13

Could you carry on eating an exercising as you have been when taking it? You should be able to maintain with diet and exercise.

If it were that easy, nobody would ever be overweight!

Downbutnotout2 · 03/09/2025 05:34

Naunet · 02/09/2025 22:04

Just wanted to point out, that book is about the USA, we have very different food standards and regulations here. That's not to say it isn't still a factor to a point, but it's far better here than it is in the US.
Poorly regulated food is what happens when you have a private health service, there's a lot of money to be made.

Have you read it? It isn't just about USA, the author is British and he took research from all over the world.
Our food standards in the UK do not prevent most UPFs, and these companies have a lot of influence over policies, and the research they fund to fit their narrative that their food is fine, it's just that 'people are lazy and don't exercise enough.'
This simply isn't true. Exercise has very little effect on weight, if you exercise a lot your body compensates for that energy by reducing other less important functions. The energy used by the body of someone working in an office or a coal mine is the same...there have been countless studies done showing this.
Weight loss us achieved by eating less than your body requires, but things such as insulin resistance and other things, can affect how easy this is to do.

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