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Extremely hacked off by GP. Won’t prescribe Mounjaro

1000 replies

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

OP posts:
Thread gallery
11
SuchiRolls · 02/09/2025 20:40

YABU to be mad at your GP or the NHS. That’s coming from someone that has also self funded mounjaro for a year. There are people that need it far more than you at this stage, and that’s just how it is, however unfair that may seem.

However having a food addiction or medical illness such as diabetes and controlling that has f all to do with ‘willpower’. People saying that need to stick to the facts of the post. Because it’s nothing to do with willpower when you’re at the stage of being morbidly obese. We’re WAY past willpower. However I do agree that at some point we have to start to take control again and make better choices, and that’s what I have used this past 12 months for. I can’t tell you the amount of times I have found myself with biscuits in my mouth and spat them in the bin. Too many. Taking back some control has really helped me. I’m not perfect, no one is, and I never will be. But I know one thing, and that’s that I’m never going to be that person again. It takes over your life. I have a complete sugar addiction. I was at the point that it was all I consumed. I am ND and have 3 ND children. I have always been overweight from the moment I hit puberty. I have PCOS and somehow I have never been even pre-diabetic. It’s an absolute miracle! I have lost 7 stones in just over a year. I cut out sugar before I started because I knew I was killing myself.

i am proud of you OP for taking control. Mounjaro isn’t a magic wand, it’s a tool for weight loss. It is still possible to over eat and not lose weight. It cuts food noise. That part of your brain that you don’t even feel in control of and can’t even recall the actual action of going to a cupboard and pulling snacks out to eat. I’m still learning to tap in to that and stop it! I would either switch to wegovy to reduce your costs and start to take control where you can, or dose down as I have done. I’m now on 5mg and have 2 stones to go. You will find a way 💪🏼

MargoLivebetter · 02/09/2025 20:42

BrainlessBoiledFrog · 02/09/2025 20:37

If you can jump in your Time Machine and find me data on obesity rates and CVD rates in 30 years time in the future when we know the long term effects of Monjaro I will be most impressed.
I shall await your return.

No Time Machine required. Here is an article from the British Heart Foundation:

“Researchers behind a new study published in the journal Nature Medicine in January 2025 looked at the impact of taking GLP-1 agonists on 175 different diseases using health information from over 2.4 million veterans with type 2 diabetes across the United States.
They compared around 215,000 people with diabetes prescribed weekly injections of GLP-1 agonists to just over 1.2 million people who continued to receive their usual non-GLP-1 medicines to reduce blood sugar.
After an average of 3.68 years, people taking GLP-1 agonists had a lower risk of developing 42 different diseases than those given their usual medicines.
This included a 22 per cent lower risk of a cardiac arrest, 11 per cent lower risk of heart failure, 9 per cent lower risk of a heart attack and 7 per cent lower risk of ischaemic stroke.
As well as heart and circulatory diseases, people taking GLP-1 agonists were 24 per cent less likely to have liver failure, 22 per cent less likely to have respiratory failure and 12 per cent less likely to develop Alzheimer’s disease.
GLP-1 agonists were also linked to a lower risk of some mental health issues, such as substance use disorders, suicidal ideation and schizophrenia.”

Harry12345 · 02/09/2025 20:45

Iamfree · 02/09/2025 10:25

Oh Lord. Find your willpower please! I get hungry too but I resist and I am still a size 8 despite menopause. And no I can’t get surgery I need on the nhs so I need to go private and my surgery is due to a chronic condition on which I have no choice. You have a CHOICE! I’m absolutely furious. Don’t buy chocolates and buy wegovy or ozempic instead that are cheaper

Imagine being a middle aged woman and boasting you’re a size 8 on a thread where someone has diabetes and eating addictions. There are many reasons why someone can’t maintain a size 8, diabetes, chronic illness and lipodema are a few!

buffytheslayer · 02/09/2025 20:47

GentleSquid · 02/09/2025 19:45

You seem to be under a misconception about costs: £120 per month IS expensive
it could, for example, fund over 120 people to take a statin. The sad truth is the NHS is not a bottomless pit. People also have to be responsible for their choices in life. You have done well and I get it is hard, but I think what has riles people here is the tone of your original post abdicates all responsibility and places blame on others.

Try and look at it positively, you have done well and woth right choices you can continue to do so.

Edited

I mean yes it is but the NHS funds more expensive meds for me for stuff that isn’t life threatening as such
One drug per month is £512 (for hives)
the other is £224 per month (for my white blood cells)

Zov · 02/09/2025 20:47

BabyCatFace · 02/09/2025 20:38

No, it's a disease. Obesity may be self inflicted but once you have it, it's extremely difficult to get rid of it, no matter how much willpower you have.

Getting obese, and not being able to lose weight through willpower is not a disease. It's no more of a 'disease' than starting smoking, and not being able to quit!

They are both a lack of willpower.

.

Destiny123 · 02/09/2025 20:47

Hakunatomato · 02/09/2025 10:27

That is the wholesale cost to the NHS. They are not charging them the exorbitant rates they now charge the general public.

Out of total curiosity I looked it up in our prescribing handbook...2.5mg =£92/injection to 15mg=£122/injection

Extremely hacked off by GP. Won’t prescribe Mounjaro
RubySquid · 02/09/2025 20:48

BrainlessBoiledFrog · 02/09/2025 20:30

People take drugs to help with a number of addictions. They then come off them with support and have to find ways to manage addictions now that the crisis part of the addiction is over. As lots of people have said drug, alcohol and tobacco addiction is not treated with lifetime medication. And a lot of those drugs are an awful lot cheaper than Monjaro for the NHS!

Has the OP actually been offered any support?

BrainlessBoiledFrog · 02/09/2025 20:48

MargoLivebetter · 02/09/2025 20:42

No Time Machine required. Here is an article from the British Heart Foundation:

“Researchers behind a new study published in the journal Nature Medicine in January 2025 looked at the impact of taking GLP-1 agonists on 175 different diseases using health information from over 2.4 million veterans with type 2 diabetes across the United States.
They compared around 215,000 people with diabetes prescribed weekly injections of GLP-1 agonists to just over 1.2 million people who continued to receive their usual non-GLP-1 medicines to reduce blood sugar.
After an average of 3.68 years, people taking GLP-1 agonists had a lower risk of developing 42 different diseases than those given their usual medicines.
This included a 22 per cent lower risk of a cardiac arrest, 11 per cent lower risk of heart failure, 9 per cent lower risk of a heart attack and 7 per cent lower risk of ischaemic stroke.
As well as heart and circulatory diseases, people taking GLP-1 agonists were 24 per cent less likely to have liver failure, 22 per cent less likely to have respiratory failure and 12 per cent less likely to develop Alzheimer’s disease.
GLP-1 agonists were also linked to a lower risk of some mental health issues, such as substance use disorders, suicidal ideation and schizophrenia.”

It’s at 3.68 years follow up. If at year 10 actually everyone becomes resistant to Monjaro and piles on the weight again the effects all
disappear. Likewise if any long term side effects become apparent things change.
It’s long term data that matter when trying to understand causal patterns like the risk of smoking and cancer, and the benefits of Monjaro on CVD related mortality, morbidity and costs

Jllllllll · 02/09/2025 20:49

It sounds like your mindset is already that as soon as you stop taking the drug you will return to old eating habits and put all the weight back on.

Zov · 02/09/2025 20:50

RubySquid · 02/09/2025 20:48

Has the OP actually been offered any support?

OP hasn't posted since half ten this morning, so we don't know anything more about her now than we did then! I wonder why she's not been back to the thread? 🤔

Scarlettpixie · 02/09/2025 20:50

In response to the poster who shared an article about pancreatitis, yes this is a known but rare side effect.

There is evidence of other health benefits though in addition to those resulting from weighloss.

You have to remember that obesity causes many life threatening health problems so we fatties have to weigh it up. I decided for me the benefits outweigh the risks. I am aware of what to look for in terms of side effects. Pros and cons and all that,

I have done a lot of research. I have been on MJ since October and lost 50lb. It had been life changing for me. I pay privately because while I do meet prescribing criteria I don't meet NHS criteria. I am ok with that. I hope in time that these drugs will be more freely available on the NHS but realise why they cannot roll it out to everyone in one go,

https://www.theguardian.com/society/2025/aug/31/weight-loss-drugs-can-halve-heart-patients-risk-of-early-death-study-finds?CMP=ShareiOSAppp_Other

Zov · 02/09/2025 20:52

Jllllllll · 02/09/2025 20:49

It sounds like your mindset is already that as soon as you stop taking the drug you will return to old eating habits and put all the weight back on.

This. As many posters have said, the OP has a very defeatest attitude. So do a few other posters. 😬

MargoLivebetter · 02/09/2025 20:54

BrainlessBoiledFrog · 02/09/2025 20:48

It’s at 3.68 years follow up. If at year 10 actually everyone becomes resistant to Monjaro and piles on the weight again the effects all
disappear. Likewise if any long term side effects become apparent things change.
It’s long term data that matter when trying to understand causal patterns like the risk of smoking and cancer, and the benefits of Monjaro on CVD related mortality, morbidity and costs

i can’t argue with a future that doesn’t exist, that’s true. However, I have provided very compelling evidence for significant existing health benefits in less that 4 years on WLI. Imagine the savings made on the healthcare already for those people alone.

whatsgoingon2024 · 02/09/2025 20:56

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

You can be hacked off but you need to direct it somewhere else. GP’s do not have the power that people assume they do. The criteria set out by the NHS has to be followed, GP’s don’t get to decide that. We were informed by our integrated care board that only a very small percentage qualified and that those who do will be offered special appointments and these won’t be offered at our surgery.

Starzinsky · 02/09/2025 20:57

A healthy lifestyle is always the best options. Good things don't come easy.

Terfarina · 02/09/2025 20:59

You've been on MJ for a while and lost weight, it is much easier NOT to pile the weight back on than it is to break habits and lose it.

Woman up and don't undo the good that you've done while on the drug. If you have to, move to wegovy as that is cheaper.

ThisFluentOtter · 02/09/2025 21:01

The astounding ignorance around disordered eating in this thread is really shocking. I thought we were better than this.
All the helpful people saying 'willpower' or 'exercise' are absolutely clueless.
I get up at 5am every single morning to go to the gym, so willpower, exercise and discipline are not always the issue and assuming they are is pure ignorance. I've tried every eating plan, I've had PTs, but there are disorders, such as those related to dopamine, which mean it's not quite as simple as 'just eat healthy'. It's akin to telling an alcohol dependent person to 'just don't drink, babes'....well, never thought of that, thanks.
OP, it's really shitty, maybe try Wegovy? It's not as effective but it might be enough to help you continue the weight loss until you're ready to reduce the dose down to a maintenance dose?
I get the fear and frustration, don't listen to the knobheads. It's shite. Hope you work something out.

ForUmberFinch · 02/09/2025 21:07

You cannot expect the NHS to keep funding this. Totally unreasonable. Diet, exercise, healthy eating and change in lifestyle habits. If you are desperate to keep using it, fund it yourself

Atina321 · 02/09/2025 21:08

Hakunatomato · 02/09/2025 10:18

I have reversed my hypertension, and my cholesterol levels as a result of taking this medication. I am staggered that a medical professional is condoning me becoming unhealthy again just so I can be prescribed the medication. I’m not asking for an expensive drug. I have tried every diet under the sun including the fasting. This worked for me. I am so pissed off that despite working my whole life, 40 years paying NI , that I am refused something that will now shorten my life and cause me complications. I hate this country. There is no reward for working and doing the right thing. Take the piss, and everything is handed to you on a plate.

Entitled much?

Pop your dummy back in and deal with it.

Coconutter24 · 02/09/2025 21:11

Hakunatomato · 02/09/2025 10:18

I have reversed my hypertension, and my cholesterol levels as a result of taking this medication. I am staggered that a medical professional is condoning me becoming unhealthy again just so I can be prescribed the medication. I’m not asking for an expensive drug. I have tried every diet under the sun including the fasting. This worked for me. I am so pissed off that despite working my whole life, 40 years paying NI , that I am refused something that will now shorten my life and cause me complications. I hate this country. There is no reward for working and doing the right thing. Take the piss, and everything is handed to you on a plate.

I have reversed my hypertension, and my cholesterol levels as a result of taking this medication.

Whilst that is great it’s now your turn to carry on keeping these things under control with diet and exercise

E11i0ttD · 02/09/2025 21:12

ThisFluentOtter · 02/09/2025 21:01

The astounding ignorance around disordered eating in this thread is really shocking. I thought we were better than this.
All the helpful people saying 'willpower' or 'exercise' are absolutely clueless.
I get up at 5am every single morning to go to the gym, so willpower, exercise and discipline are not always the issue and assuming they are is pure ignorance. I've tried every eating plan, I've had PTs, but there are disorders, such as those related to dopamine, which mean it's not quite as simple as 'just eat healthy'. It's akin to telling an alcohol dependent person to 'just don't drink, babes'....well, never thought of that, thanks.
OP, it's really shitty, maybe try Wegovy? It's not as effective but it might be enough to help you continue the weight loss until you're ready to reduce the dose down to a maintenance dose?
I get the fear and frustration, don't listen to the knobheads. It's shite. Hope you work something out.

The ignorance re the many many children and adults on long NHS waiting lists having to fund private treatment and meds. Why does the op get to stamp her feet and demand something on the NHS when others are struggling with far less? What makes her more worthy?

Periperi2025 · 02/09/2025 21:15

ThisFluentOtter · 02/09/2025 21:01

The astounding ignorance around disordered eating in this thread is really shocking. I thought we were better than this.
All the helpful people saying 'willpower' or 'exercise' are absolutely clueless.
I get up at 5am every single morning to go to the gym, so willpower, exercise and discipline are not always the issue and assuming they are is pure ignorance. I've tried every eating plan, I've had PTs, but there are disorders, such as those related to dopamine, which mean it's not quite as simple as 'just eat healthy'. It's akin to telling an alcohol dependent person to 'just don't drink, babes'....well, never thought of that, thanks.
OP, it's really shitty, maybe try Wegovy? It's not as effective but it might be enough to help you continue the weight loss until you're ready to reduce the dose down to a maintenance dose?
I get the fear and frustration, don't listen to the knobheads. It's shite. Hope you work something out.

It's not just ignorance around disordered eating it's ignorance around metabolic disorders too (which are often poorly understood, and under diagnosed).

I am in the process of being diagnosed with an extremely rare endocrine disorder that has suppressed my pituitary function causing amongst other things an early menopause and metabolic syndrome.

Prior to starting mounjaro i had tried intermittent fasting (a terrible idea in hindsight with messed up cortisol), C25k (a total failure due to having extremely poor recovery from exercise due to unmeasurably low testosterone levels), upf free, zero caffeine, literally anything i could think of the feel better, let alone control my weight.

But i still have to fund my own mounjaro (which i don't really mind too much i just wish the prices hadn't gone up) and i still get subjected to the same ignorance as everyone else trying to take positive action to manage their health. To most people I'm just viewed as someone who needs to eat less, move more, use more willpower.

I'd normally say that i wouldn't wish a pituitary disorder on anyone, but i can make exceptions!!

Downbutnotout2 · 02/09/2025 21:20

@Hakunatomato I think pps on here are being very unfair and acting morally superior, when it isnt that simple. 💐

I think every judgemental (just use willpower/just eat less) poster on here should read Ultra Processed People by Chris Van Tulleken. It is a fascinating and eye-opening read. In fact, I think everyone should read it, regardless.

The food we eat now is designed to bypass our inbuilt systems for regulating satiety, etc, so that we eat more and more, and these companies profits increase.
It is a deliberate tactic to addict us to certain foods, to keep us as returning customers, in a similar way to how someone may be addicted to drugs as these foods target the pleasure centres, etc, and these companies spend millions on research and advertising to make sure we stay addicted.
Our bodies were not designed to cope with these UPFs, and that means it isn't as easy as "just stop eating".

I used to be morbidly obese (48-50 BMI). I lost weight via WLS, which the NHS funded due to my significant comorbidities.
I had tried every diet under the sun, and in doing so I had destroyed my metabolism to such an extent that I still gained weight on 1200 cals a day.
Before I was accepted for the WLS, I had to see a dietician for 12 months, which I did. That involved recording everything I ate or drank, and following her suggestions, which I did to the letter.
My BM rate was calculated at around 2000cals a day to maintain weight (long time ago, so may be slightly out).
I was first put onto 1500/ day, which I followed religiously, but still gained, same at 1200.
I had to go under 1000 cals to lose anything and even at 800cals, weight loss was minimal and stalled quickly. At first she thought I was lying or not putting everything down, but I wasn't, which she came to realise.

She explained that she'd refer me for WLS, but that because I'd done so many fad and restrictive diets over the last 20yrs, I had ruined my metabolism, and now whenever I ate, my body stored it as fat in expectation of the next starvation phase, and that that would still be the case after the surgery.

She was hopeful, though, that I'd be so restricted in the first 2 yrs that I'd lose my XS weight then, and then I'd have to really watch my intake to prevent the weight returning.
Her exact words were that "I'd never be able to eat normally without gaining weight". By normal she meant a realistic intake that should've allowed me to maintain the weightloss.

She wasn't far wrong either. I was very ill for a long time after the surgery and altogether lost 124lbs+, within less than 2 years, which was pretty much 100% of my XS weight.

That was 15yrs ago, and I'm now a size 12, and weigh in at abt 68kgs atm, which is a current bmi of 27, so slightly over my goal. I've pretty much kept the weight off since the surgery although my weight has fluctuated with my health.
My lowest was 58kgs, but I looked gaunt. I was stable at 62kgs (bmi 24.7) for a long time, but have had health issues that has lead to some weight gain over the last 18 months (I did get up to 72kgs, but am going down again v.slowly as I recover).

Whilst I was so ill and barely ate, my tastes really changed and I no longer enjoyed food, especially things I'd been addicted to previously, like chocolate.
Luckily for me, that hasn't really changed, and I no longer crave food.

I have had periods over the years where I've eaten more chocolate or crisps, etc, and I notice that my cravings quickly return, and I eat without being aware of how much of these foods I consume.
Again, luckily for me, my stomach is pretty much non existent now, so whereas I may have been able to eat 5-6 bags of 25g crisps, before feeling bloated, now I'm bloated before I've eaten 2.

I manage to keep on top of these cravings by not keeping the items in the house as a standard thing, and by reminding myself of the consequences of gaining weight again, but it's not easy.
Sometimes, I'll have a bit of choc or some crisps, but luckily I've not eaten enough often enough to allow the cravings to take over again, and so I can keep it in check.

The dietician was right, though, although I eat a varied diet, all cooked from scratch, I still can't regularly eat normal amounts (1300+cals) without gaining, although that has increased as it used to be 1000, so maybe my body is repairing its systems in some way.

Even with the cost of the surgery, the NHS is quids in as I used to be on 25 pills a day to control all my issues, and I'm now only on 2.

Some conditions have completely disappeared, others have improved immensely. Some things are worse/same, but overall, my health and estimated lifespan have greatly improved, and I'm much less of a burden on the NHS than I was.

Edited for typos etc

mswales · 02/09/2025 21:21

Womblingmerrily · 02/09/2025 10:31

The disdain for someone who has achieved a really good weight loss, along with improved health markers is sad to see, although fully expected.

Obesity is still seen as a moral failing it seems, meaning that people feel free to insult and punish 'stop eating crap, why would the weight go back on?, join a slimming club'

If it was that easy we would not have a global obesity problem. Dieting does not work and exercise definitely does not work long term to manage weight for most people.

This problem that has largely been caused by the food industry making lots and lots of money. If the government is serious about prevention of ill health then they will have to do some harsh regulation on food companies - but they won't because it makes money for our economy and we can't afford to piss them off.

Edited

It's absolutely true that the obesity crisis is caused by the food industry who want us all to believe what we eat is down to individual choice and nothing more. The willpower of people globally hasn't changed over the last 50 years, our food environment has.

However it's also true that if the OP now continues a healthy low carb low UPF diet and does regular exercise she should be able to maintain her weight loss, surely? She may not be able to do it, but the answer can't be to be on the drugs forever. We wouldn't give alcoholics drugs to stop their cravings, we need to help addicts recover from their addictions.

NorthXNorthWest · 02/09/2025 21:22

I think pps on here are being very unfair and acting morally superior, when it isnt that simple.

There is not enough money. Choices have to be made. It really is that simple.

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