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Extremely hacked off by GP. Won’t prescribe Mounjaro

1000 replies

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

OP posts:
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LassitersLegend · 02/09/2025 20:23

Hakunatomato · 02/09/2025 09:57

I have been self funding Mounjaro for the past year, and have a debt on credit card because of it. As a result, my HBa1c has gone from 19 to 5.5. I have lost almost 5 stones, now down to 16 .stones so effectively I have put my diabetes into remission as a result. I can no longer afford it because of the price rises and have asked my GP to start prescribing it. Their response is that because my blood sugar is now nearly normal they won’t do it, despite me having a bmi of 46. When I finish the course I have I now have to watch my good work go in to reverse and watch my health decline. All for the sake of the £30 a week is would cost my GP at wholesale NHS cost. If I put the weight back on again and wait while my blood sugar levels rise and I will have to apply again. I am so pissed off.. The relatively small cost as opposed to what the bills will be when my Diabetes returns doesn’t make sense.

I was diagnosed with type 2 in December with very high levels of 120. I have now nearly completed the remission program and I'm in remission. I think your GP would put put you on the program, it's shakes and savoury meals all under 120 calories for 12 weeks and then you reintroduce food, slowly. Also the hbac1 doesn't add up, the figures sound like the finger prick test. The remission programme is worth doing, harder than taking a jab as you have around 800 calories a day, but worth it

guiltridden25 · 02/09/2025 20:24

I hear you @Hakunatomato
ive tried every single t2 medication out there, mounjaro is the only one that’s worked.

I’ve tried every single diet out there (including fasting, low carb etc) and actually eat very little, in recent years have not been able to lose weight at all. On mounjaro I’ve lost 10kg.

both these things are because I have huge insulin resistance (& also inflammation if recent studies are right) and mounjaro has been the only thing that has helped reduce this (including metformin).

i get mounjaro on prescription as it was originally prescribed by my diabetes consultant. Can you ask for a referral to a hospital consultant to see if they can help?

MargoLivebetter · 02/09/2025 20:24

BrainlessBoiledFrog · 02/09/2025 20:10

But you don’t recoup savings straight away. The savings might come in say 20-30 years. And I say might because it’s modelled data and no one knows for sure what the long term safety or effectiveness of Monjaro on weight loss, nor how that translates into actual real world drops in cardiovascular disease (cvd) in later life. We have data over a few years - side effects and things like actual sustained reductions in cvd take decades to really see. In the meantime we’d have to stop whole services like cancer, fertility, maternity etc etc.
So no not everyone can have Monjaro! Not everyone can have all sorts of life extending cancer therapies, dementia drugs, round the clock nursing care etc etc. These things would be effective but not cost-effective and certainly not affordable in our tax based NHS model. The NHS has a fixed budget and has to try allocate best value for money for people across a whole range of conditions.

I think otherwise. Have a look at the WLI threads and read through the improvement in symptoms that people see in such a short period of time. I have 3 types of arthritis, all greatly improved by being 3 stone lighter. The OP has dramatically improved her diabetes profile in the fairly brief time she’s been on it. There are endless examples of huge health benefits in months not years. Those would represent huge savings for the NHS.

Gigglydancybox · 02/09/2025 20:25

Well I lost 6 stone with diet and exercise and apart from when I was pregnant I pretty much kept it off until I hit my 50’s. No injections years ago. I am still nowhere near the weight I was but felt my weight was creeping up so I am being careful about what I eat, exercising more and guess what, my weight is slowly going down. It’s harder at my age but it’s doable.

BrainlessBoiledFrog · 02/09/2025 20:25

MargoLivebetter · 02/09/2025 20:24

I think otherwise. Have a look at the WLI threads and read through the improvement in symptoms that people see in such a short period of time. I have 3 types of arthritis, all greatly improved by being 3 stone lighter. The OP has dramatically improved her diabetes profile in the fairly brief time she’s been on it. There are endless examples of huge health benefits in months not years. Those would represent huge savings for the NHS.

Anecdote does not equal evidence….

SDTGisAnEvilWolefGenius · 02/09/2025 20:26

It is offensive because it is reducing a really complex problem to a sound bite, @zov. I posted earlier today about the complex issues that combined to make me over weight - the simple sound bite does absolutely nothing to tackle the majority of these problems.

I was hoping to show people like you what my life is really like, in the hopes of making you all a bit more sympathetic. Clearly I failed.

LyraSilvertongue · 02/09/2025 20:27

Why do you feel you have to revert to unhealthy eating habits without the drug? Diet and exercise can surely take it from here after you’ve come this far. There’s no reason that it should be inevitable that you pile the weight back on.

Cucy · 02/09/2025 20:27

Your health improvements are incredible and I understand your frustration.

However, people who reverse their diabetes do not continue to be given insulin and so this is a similar situation.

Lots of people decided this was going to be a long term drug without actually thinking how that’s going to be possible.

This is a short term drug that is meant to be used for obese people to get a grip on their weight.
It is not a magic wand.

I’m sorry you’ve not got down to your goal weight but coming off the drug was always going to happen and so now it’s about maintaining and continuing to make healthy choices.

Umbilicat · 02/09/2025 20:27

Catladyof7 · 02/09/2025 20:09

It hasnt

Just someone who thinks they know it all .

I wonder how they think they know better than medical professionals?

I bet these people all line up for the wonderful Covid jab …that is new and look how many people have died having that ‼️

So people died of the Covid jab, but no one will be harmed by weight loss jabs. It seems your logic suits you.

BrainlessBoiledFrog · 02/09/2025 20:30

LyraSilvertongue · 02/09/2025 20:27

Why do you feel you have to revert to unhealthy eating habits without the drug? Diet and exercise can surely take it from here after you’ve come this far. There’s no reason that it should be inevitable that you pile the weight back on.

People take drugs to help with a number of addictions. They then come off them with support and have to find ways to manage addictions now that the crisis part of the addiction is over. As lots of people have said drug, alcohol and tobacco addiction is not treated with lifetime medication. And a lot of those drugs are an awful lot cheaper than Monjaro for the NHS!

ByQuaintAzureWasp · 02/09/2025 20:31

You've convinced yourself that you are going to put weight on. You can do this without the drugs now ... you know what you have to do.

SarBe · 02/09/2025 20:31

I mean, your good work doesn't have to go to waste!!! Have you heard of eating healthy and moving more???

Zov · 02/09/2025 20:33

Gigglydancybox · 02/09/2025 20:25

Well I lost 6 stone with diet and exercise and apart from when I was pregnant I pretty much kept it off until I hit my 50’s. No injections years ago. I am still nowhere near the weight I was but felt my weight was creeping up so I am being careful about what I eat, exercising more and guess what, my weight is slowly going down. It’s harder at my age but it’s doable.

Well done! 👏Smile

It can be done, and having this defeatest attitude (that the OP and a few others on here have,) and getting angry because things aren't quite going their way, is helping no-one, least of all the person with that attitude. The WLI becoming so widely available was a terrible idea, as so many people (women mostly) have got so used to getting it now, and not losing weight the traditional way (like you have) and now they can't cope now the price has gone through the roof, and they can't get it anymore.

WLI were only ever intended for people to lose weight, and get to their target weight. Once they reached target weight then they should be stopped anyway. Then it's up to the person who has lost the weight to keep it off with healthy eating and a decent amount of exercise. They were never meant to be on for life FGS!

MargoLivebetter · 02/09/2025 20:33

BrainlessBoiledFrog · 02/09/2025 20:25

Anecdote does not equal evidence….

i didn’t say it was. I disagreed with your assertion, that was also unevidenced. However, there are plenty of anecdotal experiences on the WLI threads should you care to look at them . I have no doubt it won’t take long for it to be scientifically evidenced by the WLI providers too. Indeed I believe there is some already which I can find if you want me to?

lljkk · 02/09/2025 20:33

I went to Overeaters Anonymous for 2 years. It's a good programme for many. Free. Online meetings.

Umidontknow · 02/09/2025 20:33

Sorry but this is why the NHS is on its knees. You've self funded it to this point, but now you don't want to because it's gone up you suddenly demand someone else pays. After a year you should be in a far better position to regulate your diet alone as well as continue exercising. This drug is relatively new, people managed to lose weight before it. I'd love to have it but I can't afford it and I don't qualify so it's ts- that's life 🤷‍♀️. Sounds like you plan on getting yourself to a point where you will qualify rather than using this as an opportunity to continue eating healthily and exercising.

Droplet789 · 02/09/2025 20:34

MJ just suppresses your appetite, so keep up doing what you’re doing and maybe consider a smaller dose while self funding. I wouldn’t put the weight back on to get it in the NHS as they might remove it once you get it back down to this level.
But congratulations on the weight loss and hopefully it stays off.

lovelydayss · 02/09/2025 20:34

Take some responsibility for yourself, the NHS is already on its knees

ForeverDelayedEpiphany · 02/09/2025 20:34

SlippySausage · 02/09/2025 20:23

I’m sorry but this is absolute bollocks, dangerous and super offensive. I also had gestational diabetes. I did everything right and was religious about low carbing. But I ended up on insulin for the duration because - guess what - our bodies are all different and my pancreas was failing to keep up under the strain of pregnancy. My mum - who was seven stone ALL of her life had type 2 and needed metformin. Stop judging and spouting crap that could endanger women with gestational babies and their unborn babies.

I'm not judging you or anyone else.

I agree everyone is different as you've already correctly said, but it's my personal experience that I managed my diabetes through sensible eating.

I did not say people should ignore medical professionals or advice, or not take prescribed medication. You're twisting my words

And what I said wasn't even that offensive. Only to you. 😑

BabyCatFace · 02/09/2025 20:35

Pricelessadvice · 02/09/2025 19:39

Yes they are. They are cured of their obesity, but they may not be cured of their cravings/difficulties around food.

I’m sorry OP, but you need to continue with your eating patterns that MJ helped you achieve. Contrary to popular belief, maintaining a healthy weight is hard work and a lot of us feel hungry to stay slim. Even those of us who people assume “have it easy” because we are not overweight. MJ has maybe given you an idea of how little many people eat to stay at a slim weight.

No, they are not. Obesity causes damage to the body that persists after fat is lost. That's why people regain weight so easily - it's not an 'education' issue.
Obesity causes changes to hormonal regulation and insulin resistance, and damages fat cells potentially permanently, leading to greater rates of fat regain.

BabyCatFace · 02/09/2025 20:36

Zov · 02/09/2025 20:33

Well done! 👏Smile

It can be done, and having this defeatest attitude (that the OP and a few others on here have,) and getting angry because things aren't quite going their way, is helping no-one, least of all the person with that attitude. The WLI becoming so widely available was a terrible idea, as so many people (women mostly) have got so used to getting it now, and not losing weight the traditional way (like you have) and now they can't cope now the price has gone through the roof, and they can't get it anymore.

WLI were only ever intended for people to lose weight, and get to their target weight. Once they reached target weight then they should be stopped anyway. Then it's up to the person who has lost the weight to keep it off with healthy eating and a decent amount of exercise. They were never meant to be on for life FGS!

Edited

WLI were only ever intended for people to lose weight, and get to their target weight. Once they reached target weight then they should be stopped anyway. Then it's up to the person who has lost the weight to keep it off with healthy eating and a decent amount of exercise. They were never meant to be on for life FGS!

Says who?

BrainlessBoiledFrog · 02/09/2025 20:37

MargoLivebetter · 02/09/2025 20:33

i didn’t say it was. I disagreed with your assertion, that was also unevidenced. However, there are plenty of anecdotal experiences on the WLI threads should you care to look at them . I have no doubt it won’t take long for it to be scientifically evidenced by the WLI providers too. Indeed I believe there is some already which I can find if you want me to?

If you can jump in your Time Machine and find me data on obesity rates and CVD rates in 30 years time in the future when we know the long term effects of Monjaro I will be most impressed.
I shall await your return.

BabyCatFace · 02/09/2025 20:38

Zov · 02/09/2025 20:16

But it's not an illness, it's a lack of willpower.

No, it's a disease. Obesity may be self inflicted but once you have it, it's extremely difficult to get rid of it, no matter how much willpower you have.

TequilaNights · 02/09/2025 20:39

Op i get the frustration, I really do, but you decided to self fund, just because the price has increased, it is very unfair that you are blaming the NHS for you not fitting the guidelines now.

My advice would be to speak to your provider about switching to wegovy.

Best of luck

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