Thread 11: To feel disappointed after reading this in The Observer about the author and her husband from The Salt Path book and film?

[DisappointedReader]

The Observer The real Salt Path: how a blockbuster book and film were ...
2nd Observer https://observer.co.uk/news/national/article/the-salt-path-whats-in-the-book-and-what-the-observer-has-found
3rd Observer https://observer.co.uk/news/national/article/the-salt-path-the-truth-behind-the-blockbuster-book-video
4th Observer ‘I felt I was being gaslit’ – the landlord who helped Ray...
Raynor Winn/Sally Walker's statement Raynor Winn
Thread One www.mumsnet.com/talk/amibeingunreasonable/5368194-to-feel-disappointed-after-reading-this-in-the-observer-about-the-author-and-her-husband-from-the-salt-path-book-and-film?
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husband-from-the-salt-path-book-and-film?
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Thread 8 www.mumsnet.com/talk/amibeingunreasonable/5375023-thread-8-to-feel-disappointed-after-reading-this-in-the-observer-about-the-author-and-her-husband-from-the-salt-path-book-and-film?
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Thread 10 https://www.mumsnet.com/talk/amibeingunreasonable/5378984-thread-10-to-feel-disappointed-after-reading-this-in-the-observer-about-the-author-and-her-husband-from-the-salt-path-book-and-film?

New posters welcome. It would be helpful to read at least the four Observer items above before posting. There are currently 10 items on The Observer website The real Salt Path | The Observer

To all - Please be extremely cautious when it comes to naming or implicating people and addresses not in the public eye or with no direct connection to the story, and around the understandable health speculations, especially where details are unclear or still emerging. Please do not engage with visitors who seem to have their own agenda and seek to derail. Avoid @'ing and quoting them as - from experience - this will only encourage them back to the threads. We have done amazingly well together for ten very interesting, very serious and very silly threads so far. I can't be here as much as I'd like so all help with keeping our discussion walking along in a healthy and civil fashion is very welcome.

No saltiness. Keep to the path.

Does stolen fudge taste better?

Not necessarily typical but certainly possible for a judge to order the defendant to give vacant possession of the property in 7 days. Once the possession order has been made, if the defendant(s) fail to comply than the claimant (i.e. the person with the charge over the property entitled to possession) can apply for a warrant of possession to enforce the order- once the claimant has got the warrant, it is enforced by the bailiffs going in.

Thanks notwaving - someone already shared an archive link, so I’m just reposting it: archive.ph/XN1RH

Still there I think

Instagram

That is very fast, seems like there might have been at most one attempt to talk to the Walkers, possibly not even that.

Ah yes, apologies! I don't know why I couldn't see that before!

Very interesting - thanks. I remember a poster flagging that video but couldn’t remember who it was. I think it was @AldoGordo who mentioned that deleted Instagram photos or videos aren’t entirely deleted, so that clip might well be salvageable?

One other thing I want to say about Timoth's physical appearance.

I know you shouldn't judge whether someone is ill or not purely from the way they look. But the one thing that strikes me is that there doesn't look to be any visible evidence of muscle wasting.

After so many, many years of a serious movement disorder, you would expect a person's physical form to have changed. Even if the leg muscles were kept stronger through physical exercise, you can't hide muscle wasting elsewhere, such as in the face and the hands. Healthy looking muscle form is one of the things we almost unconsciously clock when we say that someone is looking well. And if anyone can point to any pictures that suggest any such wasting -- well, I'll apologise and take that back!

I'd asked if we could save it in case it got deleted 🤔 and then someone, I think @AldoGordo , said they'd done it. So 🤞 it can be accessed even if SW has taken it down.

Gosh, that's quite a listen. Thanks, @Hyenana for posting it. It's so strange listening to it post-Obs expose. The number of times that JI says what lovely honest people Raymoth are - I can only imagine he must be feeling similar to SW's agent when the real story came out. Interesting he too described SW as 'guarded' but put it down to her having been 'let down by people she trusted'.

Btw whoever earlier flagged the newspaper articles from the 70s, also thank you - yes, agreed how little SW has changed!

It is still there, in the reels section.

When they are gone they are gone.

This came out today:

A million little salt paths: how much can you trust a memoir? | British GQ

He's a brilliant artist but he makes Francis Bacon or Lucian Freud look like Alan Bennett.

For all the kind people who have commented and enquired (and it has been much appreciated) I'm home. I thought about a small detour around the SWCP for its curative benefits but was a bit worried about the Zimmer I'm currently reliant on being a bit wide for the path. The friend who bravely took me on a white knuckle wheelchair ride through the car park has snaffled a SA so busy spreading the appreciation.

I've also been issued with my very own bottle of Oxycodone which I never thought they'd send me out with so hoping for a decent night.

@AlertCat

How common is it for someone to fake a neurological condition? How difficult are they normally to come up with a differential diagnosis?

No idea whether it's common to try and fake a neurological condition - but as I understand it, the rare Parkinsonism neurodegenerative diseases (there are several including CBD) are diagnosed through a process of elimination. A patient will present initially with what appears to be Parkinson's symptoms, and if they don't respond to treatment, or deteriorate rapidly in motor function, capability etc, more, different, tests are done and ultimately a diagnosis delivered, even if couched as "you probably have X".

It might be possible to fake the early symptoms, if one were so inclined. It would be impossible to fake what happens when these diseases accelerate, or to fake the way in which a patient deteriorates ( steady state perhaps for a few months and then a rapid permanent loss of some function(s), steady state at this level for a while then further rapid deterioration.)

I've read up widely about one of the Parkinsonism rare diseases and have never heard of someone with a confirmed diagnosis either living for years at mild-impairment level, or experiencing a reversal of symptoms. For people with neurodegenerative diseases, "Walking Back to Happiness" is just a song. If a patient has got to 12 years and counting after a "diagnosis" and is still living a full life, a reputable Consultant (who will/should see them regularly) would have retested and rediagnosed. Or, as another poster pointed out, have been working closely (daily) with said patient, salivating at the thought of making their name and medical history by demonstrating how neurodegenerative syndromes can be "cured".

And no letter of diagnosis from 2013 has been produced by the Walkers.

The 2025 neurologist's letter mentions an annual follow up. Would this have been the norm from an original diagnosis in 2013 or 2015?

Oh, it has sold. I was just going to put in an offer so that we could have annual Non-Salty Pathies' Residentials involving fudge, cider, civil discourse and Simon Armitage.

Thanks @SuffolkSun . very interesting. Troubling too.

Wellbeing and Arvon writing courses by distinguished non fiction locally based authors all included I hope

Absolutely. We know Arvon well. We could also have a rota so that whichever Pathie had Simon Armitage for the day would lead the Miraculous Wellness Walks.

@SuffolkSun @mauvishagain
Would a new doctor they go to see in 2025 have access to the full prior diagnostic papertrail or just the letters issued by the same hospital plus any they want him/her to see?

just looked again at the end of TSP and there is definite mention of it only being three weeks until Moth starts his degree. So there is a year missing somewhere as that was 2014 and in “real” life his degree started 2015.

@Catwith69lives

Consultant follow-ups, more frequent than once a year, were the norm in 1999/2000/2001 - plus a raft of other appointments with specialist staff - for people with a confirmed/very probable diagnosis. Plus the involvement with the GP. All documented in regular lwtters. And, in the case I lived through, the Consultant gave us his direct number if we ever needed it. So I imagine it was also the norm in 2013 and 2015.

It's pretty common for medical letters to state the key issues at the top for any recipients who might be taking over a patient's care and not know the history (or not have time to read a bulging medical record in its entirety). I'm surprised the TW letters don't do this.

@Hyenana

I assume that now (when a lot of records are online) a new hospital would be able to get hold of the prior paperwork easily.

Regardless, if you've been under treatment for a rare, serious disease in place X and then move to place Y, you would make sure place X knows this - and you arrive at the first meeting with the new Consultant at place Y with your bulging hospital folder, containing all the letters and test results you've ever received. Surely?

The other thing that just struck me is how disjointed Moth’s medical care and follow-ups must have been with their constant moving from place to place from 2013 onwards. I’m fairly sure that you need a fixed home address to be registered with a GP, and it doesn’t seem like they had a fixed address since the house in Wales was repossessed in 2013. Surely a big thing on your mind when managing a chronic condition (whether terminal or not) is easy access to a GP and hospital?