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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

How did your friends, family or colleagues take your late diagnosis of ADHD/autism?

112 replies

whatisforteamum · 10/06/2025 16:39

So after a rough 18 months in a job I decided to get assessed for A D H D.
I was quite surprised to find out I do have Hyperactive Impulsive type and it was suggested I get assessed for autism as I have some traits.
I'm 58 so quite a thing to learn after all these decades.
I think it was informative for my adult dcs one of which I think has ADHD anyway.
My DH kind of implied he put up with me and now is trying to understand.
I told my newish work colleagues who I had mentioned I was in a long queue as they had family members who went private and when I told them the outcome a couple were nicer than before and a couple definitely will micromanage me more and became distant.
What has been you experience with others post diagnosis.?

OP posts:
SharpLily · 12/06/2025 11:49

AnonFeelingAngryTodaySorryInAdvance · 12/06/2025 11:22

Stimulants, caffeine etc.. calm me right down too! 🤷

Well obviously this will be hard for you but you may need to consider that your brain may need some help then. The clue is in the name: stimulants. If they don't, there's a problem.

AnonFeelingAngryTodaySorryInAdvance · 12/06/2025 12:48

SharpLily · 12/06/2025 11:48

Diagnostic criteria are not opinion though...

Yes, they very much are.

stickygotstuck · 12/06/2025 13:03

@Pinkyplat

Plus I feel like either you're autistic or you're not, and I find the no-man's-land of being undiagnosed really irritating (in myself and in others). I realise not everyone feels like this, and it's actually a very inappropriate attitude in a world where assessment can be so hard to access. Nevertheless I feel it very strongly. I can't help wondering where this black and white style of thinking might come from?!

I have the exact same attitude. Which I'd prefer no to have, but there it is. It's certainty or nothing.

To those who asked. Yes, of course you can have a negative private diagnosis. When you don't have it. I know several cases. They did however have other issues, which is why they sought assessment in the first place.

whatisforteamum · 12/06/2025 16:37

So why pursue a diagnosis at 58.?
Well I had real issues at work that became apparent
In hindsight I had had issues before that I put down to work ing with men.
The internet enlightened me to the symptoms when I looked up autism and neurodiversity to educate myself.
It isn't a label it's an explanation.Years and years of struggling with eating,panic attacks,never going far from home, arguments and misunderstandings.
I have zero friends tbh and I've spent much of my life at work keeping busy or punishing myself to the point of exhaustion.
So if I can spend my remaining time on meds or not then so be it.My life is worth something too.
.

OP posts:
Dontlletmedownbruce · 15/06/2025 11:35

@Confusedbylifeingeneral @Sleepynose

I've been thinking about your two opposite views on my post. This was in relation to saying how DH used to get defensive and angry and shout at me but since diagnosis is more likely to ask for help or admit he is bad at certain things. I wouldn't go so far to say he was abusive sleepynose but I did often feel like I was in a bad relationship. The only thing is it was predictable and somewhat manageable, the biggest issue was if something really stressful happened I had to keep him calm or 'manage' him, while also dealing with 2 ND DC, if I became stressed or upset everyone would get angry with me or start shouting at each other so I had to learn to keep my cool outwardly all the time. I became increasingly stressed with no outlet. Dh and DC1 would both switch back to happy as soon as the stressful situation was over and then complain that I was being moody or grumpy because I was silent and almost sick to my stomach with stress, most of these incidents happened when travelling or going somewhere unusual, outside routine. I have very negative memories of holidays and family occasions. It was only when I refused to do things that dh realised the impact it was having on me, that's when we had a big falling out and he finally went for professional help.

Despite what you say confusedbylife, I don't think his behaviour is excusable, the feelings rising within him were the disability but the outward behaviour was his to control. He isn't a toddler. We all learn to regulate, otherwise we'd be going around yelling at each other in supermarket queues or whatever.

I do sometimes get sick of the lot of them, I think its empathy fatigue. It's always 'but it's so hard for meee' and I feel like screaming, what about me??? Yes I'm NT but managing 3 ND people on a daily basis isn't easy, I'm masking 100% of the time and zero allowance made for the fact that I have quirks and a personality too. There are things I hate or make me anxious but I always have to suck it up.

Confusedbylifeingeneral · 15/06/2025 19:10

Hey. I totally sympathise and I wasn’t really trying to defend your DH - I haven’t come to a view on this myself yet, having experienced various people who are like this too. It’s not easy and I am provisionally of the view that if people are at the point where they are needing to explode we need to review lifestyles to see what can be changed. Because as you say, nobody should have to be subjected to that. And if that means certain activities have to be done separately, or differently, or not at all, then maybe that is what needs to happen. The image promoted by popular culture of the nuclear family happily skipping about as a group - usually facilitated by mummy - puts a lot of pressure on. Some people just function better one to one, or alone, or staying in familiar surroundings, say. But for that everyone needs some awareness that they may be ND in the first place, or that such behaviours are not normal. Which may be hard if you’re from an ND family and you’ve grown up with a parent who was and is probably still exactly the same….

NoKnickerElastic · 15/06/2025 19:18

DinoLil · 10/06/2025 17:08

I was diagnosed 2yrs ago at 51. Told a few friends, they weren't bothered. Told my DM and she said it was all rubbish, it's a made up thing, it doesn't exist. Not exactly supportive.

This would be my experience if I told my mother. I got diagnosed after my DD did (age 49). It explains so much about me but I couldn't tell my parents.

Confusedbylifeingeneral · 16/06/2025 09:15

NoKnickerElastic · 15/06/2025 19:18

This would be my experience if I told my mother. I got diagnosed after my DD did (age 49). It explains so much about me but I couldn't tell my parents.

I imagine this is common among that age group

SharpLily · 16/06/2025 09:27

Confusedbylifeingeneral · 16/06/2025 09:15

I imagine this is common among that age group

And yet the same people when talking or reminiscing are happy to tell you stories all about their weird old uncle or eccentric, spinster aunt, or the village weirdo who used to wander around talking to himself. While telling you these things didn't exist in their day...

ProudCat · 16/06/2025 09:52

I got diagnosed in my mid-50s.

My husband supported our daughter through the diagnostic process for our granddaughter and said that he thought I should investigate it. A couple of months after this, my eldest sister, who was supporting her own daughter through the process with one of her kids, phoned me up and told me this was definitely an issue I should look into further. So I did. Potentially, important to mention that my eldest sister is 20+ years older than me and I lived with her family part time while I was growing up, therefore, she definitely had quite a bit of insight. It was her who wrote the supporting letter to the psychiatrist.

Thing is, throughout my lifetime I had quite a lot of interaction with psychiatrists. I got diagnosed with childhood schizophrenia - which if you look at the history of autism, that's how autistic traits were typically diagnosed 50 years ago. I also got diagnosed with a range of psychosomatic presentations. Was on weekly depo injections throughout my teens. Lots of struggles with anxiety, depression and a couple of psychotic breaks in my adult life. As you might be able to tell from this description, autism for me wasn't something I could successfully mask.

Anyway, on to your question. Family have been apologetic. They feel I ended up going through a lot of stuff (with medical professionals) that harmed me. Obviously, they didn't know and weren't doing this on purpose, just following doctor's advices.

BUT, and this is a big but, one of my kids thinks it's all bullshit. She believes that somehow I'm a fantasist / narcissist / master manipulator and I've just managed to convince a load of people that 'it's not really my fault' I was a shitty mother. She sees it as an excuse. A way of avoiding accountability. I was a cold mother, prone to meltdowns that sometimes landed me in psychiatric care. My other two kids are fine. My husband is fine and tends to use autistic friendly strategies to communicate / recognise my needs.

Friends totally get it. I don't have many. All have been with me through thick and thin. Explains why I'm quite odd.

Colleagues, hmmm, most are understanding and are genuinely interested in things like what strengths I have, what barriers I encounter, etc. However, a couple have used it as a stick to beat me with, e.g. you're clearly not coping because you're autistic (nothing to do with the fact they're my shitty manager currently under performance review). I find that hard to deal with because I'm not actually asking for adjustments, instead I'd just like them to do their job properly so I can do mine. It's hard when someone picks on something you can't change to justify their bullying. Yes, I know it's covered under the Equality Act and I'm in the process of doing something about that.

In terms of the menopause, I do think it hits autistic women harder. This is purely anecdotal from people I've spoken to. Similarly, PMDD.

Finally, god, sorry about the essay, I struggle a bit with people saying 'everyone's a bit autistic', probably because I had to pay such a high price. I try and explain the spectrum isn't like a scale, i.e. 1-10, and instead it's like a graphic equaliser with some bits turned up louder and some bits turned down lower. I also feel a bit jealous of people who only realise later on in life, because I always knew something was fundamentally wrong and if it wasn't for my husband I'd be dead.

Confusedbylifeingeneral · 16/06/2025 11:49

Just wanted to thank you @ProudCat, for talking about your experiences so movingly. I can’t really say why as I’ve already put so much out in this site but your post is very helpful to me on a number of levels. I’m so sorry that you went through this and I’m glad that your husband played such a pivotal role in your life and that you found him.

Locutus2000 · 16/06/2025 12:45

LegoTherapy · 12/06/2025 11:41

Let’s not feed it.

This. Chomp chomp arf arf.

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