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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

New view on mental health

353 replies

Finallylostit · 06/04/2025 17:40

Read this today. This Doctor is refreshingly honest and a thought provoking perspective on the explosion in the mental health industry

www.dailymail.co.uk/health/article-14576559/REAL-cause-explosion-autism-depression-psychiatrist-DR-ALISTAIR-SANTHOUSE.html

OP posts:
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7
soupyspoon · 07/04/2025 20:44

Riaanna · 07/04/2025 20:35

Not of PDA. There is no diagnostic criteria. It’s not a thing, officially.

You dont know what you're talking about. These children have formal clinical diagnoses of PDA and have done for many years, not recently, given at the same time as their ASD diagnoses.

Riaanna · 07/04/2025 20:46

soupyspoon · 07/04/2025 20:44

You dont know what you're talking about. These children have formal clinical diagnoses of PDA and have done for many years, not recently, given at the same time as their ASD diagnoses.

Can you source the diagnostic criteria used? Because PDA has never been defined or listed in any diagnostic manual. I’m happy to be proven wrong if you can source that but I would be gomsmacked given my processional knowledge of ICD 10, 11, the DSM and NICE guidance. I don’t see how anyone can possibly diagnose.

soupyspoon · 07/04/2025 20:49

Riaanna · 07/04/2025 20:46

Can you source the diagnostic criteria used? Because PDA has never been defined or listed in any diagnostic manual. I’m happy to be proven wrong if you can source that but I would be gomsmacked given my processional knowledge of ICD 10, 11, the DSM and NICE guidance. I don’t see how anyone can possibly diagnose.

You're happy to be proven wrong that children that I work with, as being part of their corporate parent, have formal diagnoses of PDA profile. What you think Im going to sit here talking about children I work with to prove something to some random on a forum!!!

You're arguing with me that children who have a diagnosis, do not have that diagnosis. They do, its part of their assessment outcomes and formal diagnosis.

Tell that to the numerous psychiatrists who diagnose this then.

Riaanna · 07/04/2025 20:54

soupyspoon · 07/04/2025 20:49

You're happy to be proven wrong that children that I work with, as being part of their corporate parent, have formal diagnoses of PDA profile. What you think Im going to sit here talking about children I work with to prove something to some random on a forum!!!

You're arguing with me that children who have a diagnosis, do not have that diagnosis. They do, its part of their assessment outcomes and formal diagnosis.

Tell that to the numerous psychiatrists who diagnose this then.

So you cannot source the diagnostic criteria? Because it’s in none of the sources I’ve referenced.

It can be included as a descriptor but it is not a diagnosis.

https://www.pdasociety.org.uk/i-am-a-parent-carer/resources/diagnosing-pda/

This has not changed. It has always been the case, adding the descriptor is actually progress not a backward step which it world clearly be if historically it was a diagnosis.

Please don’t tell me I don’t know what I’m talking about whilst making false statements. I absolutely do know what I’m talking about. Hence I’ve sourced relevant resources and you have not.

Diagnosing PDA

Diagnosing PDA in children Overview A PDA (Pathological Demand Avoidance) profile of autism is usually identified during an autism assessment. Because there is still academic/clinical debate about the terminology/classification of PDA, recognition of...

https://www.pdasociety.org.uk/i-am-a-parent-carer/resources/diagnosing-pda

lifeturnsonadime · 07/04/2025 21:00

Riaanna · 07/04/2025 19:05

Again not correct. There is no diagnostic criteria for PDA and an ed psych is definitely not qualified to diagnose ASD or related conditions. That is not the remit of their role.

Look at the profile of Dr Hilary Dyer that is who I am referring to.

She is the person I sought help from when trying to work out whether my son had a PDA profile.

https://www.drhilarydyer.co.uk/about/

She most definitely is an educational psychologist specialist in diagnosing PDA.

Dr Hilary Dyer – Writer and Psychologist

https://www.drhilarydyer.co.uk

soupyspoon · 07/04/2025 21:04

Riaanna · 07/04/2025 20:54

So you cannot source the diagnostic criteria? Because it’s in none of the sources I’ve referenced.

It can be included as a descriptor but it is not a diagnosis.

https://www.pdasociety.org.uk/i-am-a-parent-carer/resources/diagnosing-pda/

This has not changed. It has always been the case, adding the descriptor is actually progress not a backward step which it world clearly be if historically it was a diagnosis.

Please don’t tell me I don’t know what I’m talking about whilst making false statements. I absolutely do know what I’m talking about. Hence I’ve sourced relevant resources and you have not.

You're telling me that children I work with dont have a diagnosis. You're wrong. They do.

I dont need to look at diagnostic criteria, Im not diagnosing them.

Riaanna · 07/04/2025 21:08

lifeturnsonadime · 07/04/2025 21:00

Look at the profile of Dr Hilary Dyer that is who I am referring to.

She is the person I sought help from when trying to work out whether my son had a PDA profile.

https://www.drhilarydyer.co.uk/about/

She most definitely is an educational psychologist specialist in diagnosing PDA.

Edited

I am aware of Dr Hilary Dyer. That doesn’t make it a condition that can be diagnosed. She doesn’t diagnose. She will confirm a PDA profile, that is not the same as a diagnosis.

Riaanna · 07/04/2025 21:08

soupyspoon · 07/04/2025 21:04

You're telling me that children I work with dont have a diagnosis. You're wrong. They do.

I dont need to look at diagnostic criteria, Im not diagnosing them.

They may well have a diagnosis, I didn’t say they didn’t. I said they don’t have a diagnosis of PDA.

Sunnygreen · 07/04/2025 21:12

soupyspoon · 07/04/2025 21:04

You're telling me that children I work with dont have a diagnosis. You're wrong. They do.

I dont need to look at diagnostic criteria, Im not diagnosing them.

DS has a diagnosis of autism with PDA mentioned as a way of understanding certain behaviours. A ‘partial PDA profile’ was referenced as a way of understanding him.
The diagnosis is autism though, that was my understanding of it at least.

lifeturnsonadime · 07/04/2025 21:16

Riaanna · 07/04/2025 21:08

I am aware of Dr Hilary Dyer. That doesn’t make it a condition that can be diagnosed. She doesn’t diagnose. She will confirm a PDA profile, that is not the same as a diagnosis.

Oh good grief I dealt with that earlier.

It almost feels like you are deliberately gaslighting and I'm not sure what your intent is with this.

Riaanna · 07/04/2025 21:18

Sunnygreen · 07/04/2025 21:12

DS has a diagnosis of autism with PDA mentioned as a way of understanding certain behaviours. A ‘partial PDA profile’ was referenced as a way of understanding him.
The diagnosis is autism though, that was my understanding of it at least.

Exactly. A diagnosis of ASD with a PDA profile. The latter part is a descriptor of needs. It isn’t a diagnosis.

lifeturnsonadime · 07/04/2025 21:19

So to be crystal clear Dr Hilary Dwyer would not confirm that my son had a PDA profile because she was insistent that many autistic people have periods of extreme demand avoidance that is simply co-morbid with autism and anxiety and does not meet the definition of being 'pathological'.

That's why, at that time, people being described as having a pda profile was relatively rare.

Riaanna · 07/04/2025 21:19

lifeturnsonadime · 07/04/2025 21:16

Oh good grief I dealt with that earlier.

It almost feels like you are deliberately gaslighting and I'm not sure what your intent is with this.

Dealt with what? That PDA is not a formal diagnosis and is not included in any diagnostic manual anywhere ever?

lifeturnsonadime · 07/04/2025 21:20

Riaanna · 07/04/2025 21:19

Dealt with what? That PDA is not a formal diagnosis and is not included in any diagnostic manual anywhere ever?

I'm not going to refer back to my previous posts but I acknowledged this point upthread.

You keep coming back to it for reasons of your own.

lifeturnsonadime · 07/04/2025 21:23

So @Riaanna what word do you prefer for the process by which a psychologist determines whether a person meets the PDA profile alongside autism or not?

How do they go about determining that?

Riaanna · 07/04/2025 21:26

lifeturnsonadime · 07/04/2025 21:20

I'm not going to refer back to my previous posts but I acknowledged this point upthread.

You keep coming back to it for reasons of your own.

i was having a conservation with another poster who said that they knew people who had been diagnosed. If you are aware of this point I am not sure why you bothered to insert yourself in this discussion just to agree with me?

Riaanna · 07/04/2025 21:27

lifeturnsonadime · 07/04/2025 21:23

So @Riaanna what word do you prefer for the process by which a psychologist determines whether a person meets the PDA profile alongside autism or not?

How do they go about determining that?

Not diagnosis.

Nevertrustacop · 07/04/2025 21:32

soupyspoon · 07/04/2025 20:49

You're happy to be proven wrong that children that I work with, as being part of their corporate parent, have formal diagnoses of PDA profile. What you think Im going to sit here talking about children I work with to prove something to some random on a forum!!!

You're arguing with me that children who have a diagnosis, do not have that diagnosis. They do, its part of their assessment outcomes and formal diagnosis.

Tell that to the numerous psychiatrists who diagnose this then.

The point is the psychiatrists are not able to diagnose them, because there is no diagnostic criteria.

lifeturnsonadime · 07/04/2025 21:35

Riaanna · 07/04/2025 21:27

Not diagnosis.

Well in normal parlance it may well be that people use the word diagnosis. Local authorities certainly do.

Just because a condition does not have a separate diagnosis in the diagnostic manuals does not mean that a 'diagnosis' doesn't occur.

A person has to meet criteria in order to be determined as having a pda profile many people will use the word diagnosis for this process.

I am not sure why this upsets you so much but carry on making points that are entirely unhelpful.

I posted about PDA to deny the notion that you are also denying that lots of people are diagnosed/ labelled with PDA.

I don't think getting hung up with whether it is technically a diagnosis in line with diagnostic manuals is particularly helpful.

Edited to add- provisions are made on need not diagnosis- having a pda profile added to an autism diagnosis explains a need that people without that profile do not have.

Riaanna · 07/04/2025 21:38

lifeturnsonadime · 07/04/2025 21:35

Well in normal parlance it may well be that people use the word diagnosis. Local authorities certainly do.

Just because a condition does not have a separate diagnosis in the diagnostic manuals does not mean that a 'diagnosis' doesn't occur.

A person has to meet criteria in order to be determined as having a pda profile many people will use the word diagnosis for this process.

I am not sure why this upsets you so much but carry on making points that are entirely unhelpful.

I posted about PDA to deny the notion that you are also denying that lots of people are diagnosed/ labelled with PDA.

I don't think getting hung up with whether it is technically a diagnosis in line with diagnostic manuals is particularly helpful.

Edited to add- provisions are made on need not diagnosis- having a pda profile added to an autism diagnosis explains a need that people without that profile do not have.

Edited

See comment above. It cannot be diagnosed because there is no agreed diagnostic criteria.

Nevertrustacop · 07/04/2025 21:38

lifeturnsonadime · 07/04/2025 21:23

So @Riaanna what word do you prefer for the process by which a psychologist determines whether a person meets the PDA profile alongside autism or not?

How do they go about determining that?

You know this. The more money you spend, the more likely the child is to get a 'diagnosis' Which as I am sure you know, if why the NHS doesn't honour the findings. If money is not involved, it depends on the bolshieness of the parents or the likelihood they will try and litigate, the defence of which is time consuming and expensive.

lifeturnsonadime · 07/04/2025 21:39

I'll leave you to it Rhianna.

My child was not diagnosed with the pda profile. I don't care if you don't like that word.

I took him to the expert who said he didn't meet the criteria for the profile.

lifeturnsonadime · 07/04/2025 21:40

Nevertrustacop · 07/04/2025 21:38

You know this. The more money you spend, the more likely the child is to get a 'diagnosis' Which as I am sure you know, if why the NHS doesn't honour the findings. If money is not involved, it depends on the bolshieness of the parents or the likelihood they will try and litigate, the defence of which is time consuming and expensive.

That's funny because I paid privately and my child wasn't 'diagnosed' depsite displaying extreme demand avoidance.

JorgyPorgy · 07/04/2025 21:40

MuffinsOrCake · 06/04/2025 20:12

might be the daily fail but i hate overdiagnosing. And this is because one of my children had issues with sensitivities and the suggestions were like bonkers. I asked them: are you sure, what. My child does not have the problems you are suggesting. I am her mother and I am telling you what her symptoms are. You are telling me could be this but she does not have any of the issues you are telling me to assess for. Also we went for the exact specialist targetting her issues ONLY and with a single meeting or a page of advice, we resolved it. So overdiagnosis is a very real issue.

Agreed

pointythings · 07/04/2025 21:40

Riaanna · 07/04/2025 21:38

See comment above. It cannot be diagnosed because there is no agreed diagnostic criteria.

Your insistence on splitting hairs about this is not adding anything to this discussion.

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