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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

‘Game the system’ disability benefits

1000 replies

Tomatochocolate · 05/03/2025 11:30

WTF
just read a bbc article about welfare reforms

Apparently ministers think that it’s an incentive to claim disability benefits as the incentive is no work commitments on UC. That claimants ‘game the system’

It’s a long process and really hard to get awarded dla or pip. It’s not just ticking a box that says ‘I’m too sick to work’.

AIBU to think this is just horrific

OP posts:
Thread gallery
9
Perzival · 06/03/2025 20:49

verysmellyjelly · 06/03/2025 20:25

@@Perzival If your overall income is low enough, you don't have to contribute to LA care costs. This is my situation, actually! I used to have to pay a substantial sum towards my council provided care (when I was still receiving ESA), but now that I'm no longer eligible due to getting married, my overall income is so low that I receive council funded care without having to pay for it myself. This is an unusual situation simply because most people are not on such a low income.

I'd be really interested in the information about this if you could pm please, if you wouldn't mind. We've just started the transition to adult services and have been advised of the above by the LA (I checked it with mencap too). Ds has no savings etc but lives with us. The LA are leaving him with a minimal amount and would leave him with less if/ when he goes into residential care. I do know it's different if you get continuing health care via NHS.
https://www.mencap.org.uk/advice-and-support/social-care/adult-social-care/care-and-support-planning/paying-support

PandoraSox · 06/03/2025 20:50

verysmellyjelly · 06/03/2025 20:46

@PandoraSox It is very stressful to go through but can make a big difference. As much as we've disagreed on this thread, I am more than happy to talk about it further with you from a "real life" (not info booklet) perspective. It has hugely helped me. If they restore PMs soon as promised, do feel free to message me, I truly am happy to chat about it. I don't think disagreement on one aspect of life means it's impossible to talk about something else. I truly appreciate the difference carers have made for me and I want others to be able to access it when the moment feels right.

Thank you. That is really generous of you.

verysmellyjelly · 06/03/2025 20:53

@Perzival I am screenshotting the thread so I have your username and also Pandorasox. Currently Pms are disabled on the site but I will message you as soon as they restore them, Perzival. I am not on continuing health care funding currently though a switch has been discussed for the future, but still on regular LA funding as of now. Very happy to discuss.

verysmellyjelly · 06/03/2025 20:54

Also, apologies to anyone with whom I've been snappy or abrupt on this thread. I think we do all basically want the same thing which is for those in need to have access to support, albeit with different ideas about how it should be delivered. No one wants others to suffer. And it's a tough topic for everyone Flowers

Perzival · 06/03/2025 20:57

verysmellyjelly · 06/03/2025 20:53

@Perzival I am screenshotting the thread so I have your username and also Pandorasox. Currently Pms are disabled on the site but I will message you as soon as they restore them, Perzival. I am not on continuing health care funding currently though a switch has been discussed for the future, but still on regular LA funding as of now. Very happy to discuss.

I'd really appreciate that thank you. May I ask please, if it's 'only' autism that you recieve social care for please as I know that there was a case where a parent was refused chc for her child with autism and she lost at appeal.

RedHot2025 · 06/03/2025 21:05

verysmellyjelly · 06/03/2025 20:25

@@Perzival If your overall income is low enough, you don't have to contribute to LA care costs. This is my situation, actually! I used to have to pay a substantial sum towards my council provided care (when I was still receiving ESA), but now that I'm no longer eligible due to getting married, my overall income is so low that I receive council funded care without having to pay for it myself. This is an unusual situation simply because most people are not on such a low income.

If you get married do they then allow more income so you don't pay towards care or is it because your benefit income went diwn due to being married, or something else?

verysmellyjelly · 06/03/2025 21:06

@Perzival Hi, no mine is not for autism at all. It's actually not even mentioned in my claim, which is purely for physical health conditions. It's a long story which I am happy to explain more in PMs, but for various reasons I chose to claim exclusively based on physical health despite also having MH conditions and autism.

verysmellyjelly · 06/03/2025 21:07

@RedHot2025 my benefit income went down due to being married. Our overall income as a couple is very low for a variety of reasons (not, I hope, forever!).

PandoraSox · 06/03/2025 21:08

verysmellyjelly · 06/03/2025 20:54

Also, apologies to anyone with whom I've been snappy or abrupt on this thread. I think we do all basically want the same thing which is for those in need to have access to support, albeit with different ideas about how it should be delivered. No one wants others to suffer. And it's a tough topic for everyone Flowers

Apologies from me too if I have been a bit abrasive.

Perzival · 06/03/2025 21:09

@verysmellyjelly thank you. I think it's difficult to get chc where there isn't a physical element. That said you've just prompted me to look at it again and I think it maybe worth looking at for my ds.

RedHot2025 · 06/03/2025 21:11

verysmellyjelly · 06/03/2025 21:07

@RedHot2025 my benefit income went down due to being married. Our overall income as a couple is very low for a variety of reasons (not, I hope, forever!).

Thanks for replying, j just wondered. My mother has care and pays all of her care from her pension, assessed as needing to pay everything. She only has a pension and attendance allowance but pays £146 per week for her care and local authority nothing. She's on a pension, not a private one and doesn't own her home. Yet other friend's parent doesn't pay and owns hone but is second time married, he doesn't co own home, strange that her assessment was to pay nothing.

verysmellyjelly · 06/03/2025 21:19

@RedHot2025 That does sound incredibly unfair, I'm so sorry. Tbh I don't really know anything about pensions, but it sounds like your mum has an incredibly raw deal. It shouldn't be like that.

x2boys · 06/03/2025 21:23

Perzival · 06/03/2025 20:12

My ds has severe autism with no learning disability diagnosis. He is onthe learning disability register now at the GP butyou could have a mild ld and be on that and it does not need to be diagnosed.

He is incredibly vulnerable in every way, requires constant supervision when awake, 2:1 when in the community, will never have a job and will never be able to live independently. By your definition he wouldn't qualify yet is assessed as hrm/hrc for dla from three years old with no tribunal required (clear cut), has carers provided by the la one 2:1 basis and isn't capable of doing the basic self care tasks. He'll likely get eery point on a pip assessment. My friend has a child with ds the same age who is miles more capable and will be able to have some independence but they would be entitled?

Autism itself is very complex my son has severe autism and learning disabilities but I have a close group of friends all of our children have a diagnosis of autism even those who don't have an additional diagnosis of learning disabilities have very complex needs
One of my friends son is academically able and doing a level 3 course but can't take himself to college and back and needs support in every aspect of daily living
Another ones son went to mainstream school and achieved GCSE,s but has ko friends never goes out or if he does needs full support it's so nuanced.

Perzival · 06/03/2025 21:32

x2boys · 06/03/2025 21:23

Autism itself is very complex my son has severe autism and learning disabilities but I have a close group of friends all of our children have a diagnosis of autism even those who don't have an additional diagnosis of learning disabilities have very complex needs
One of my friends son is academically able and doing a level 3 course but can't take himself to college and back and needs support in every aspect of daily living
Another ones son went to mainstream school and achieved GCSE,s but has ko friends never goes out or if he does needs full support it's so nuanced.

Mypost was in reply to a post saying that they would only give benefits to those with autism who have ld but would ring fence benefits for people with ds and some other conditions. I was pointing out that if this occurred there would be people with autism with more needs than those who would have benefits ring fenced. I'm fully aware of how different presentations of autism can be.

XenoBitch · 06/03/2025 21:33

Wow, this thread took a turn. I am honestly glad some of you are not in charge of the welfare system.

x2boys · 06/03/2025 21:35

Perzival · 06/03/2025 21:32

Mypost was in reply to a post saying that they would only give benefits to those with autism who have ld but would ring fence benefits for people with ds and some other conditions. I was pointing out that if this occurred there would be people with autism with more needs than those who would have benefits ring fenced. I'm fully aware of how different presentations of autism can be.

Edited

Sorry I was agreeing with you I was just giving examples

x2boys · 06/03/2025 21:37

Perzival · 06/03/2025 21:32

Mypost was in reply to a post saying that they would only give benefits to those with autism who have ld but would ring fence benefits for people with ds and some other conditions. I was pointing out that if this occurred there would be people with autism with more needs than those who would have benefits ring fenced. I'm fully aware of how different presentations of autism can be.

Edited

I agree with you on most threads we are on together I waa agreeing with you just badly worded apologies .

curliegirlie · 06/03/2025 21:40

DaveyTheCavy · 06/03/2025 20:29

@Wildflowers99 @verysmellyjelly So someone who has had severe OCD which limits their life significantly and needs therapy and time to build up their confidence won't get benefit s but someone who has had schizophrenia or bipolar and is stable on their medications should be entitled? The person with OCD is arguably more disabled than they are because of how it affects them. Often there is a trauma background alongside OCD, it's not a chemical imbalance for most people..

Yes psychosis is severe when someone with it is actually having a crisis, but it isn't necessarily more severe than an anxiety disorder on a daily basis. It can be, and sometimes the medication side effects can be severe, but not always.

Someone with Down Syndrome might have cardiovascular issues or muscle tone issues which considerably affects their ability to work, others with DS might be able bodied but suffer with an intellectual impairment which could impact on the kind of work they could do, but they might be able to do something?

Also MS is very variable in how it presents itself. Some are incapacitated by it, others less so.

I think we should keep the criteria to symptoms and affects not diagnoses. Unless we are talking terminal cancer.

On a bit of a tangent....The trouble with all of this is - especially when you're talking about people with learning disabilities - it that you also need to have employers willing to give them a chance. The people themselves wanting to work is sadly only part of the equation....

Perzival · 06/03/2025 21:50

x2boys · 06/03/2025 21:37

I agree with you on most threads we are on together I waa agreeing with you just badly worded apologies .

Sorry, I'd misunderstood. I know I recognise your name. No need to apologise. I worded my reply badly too.

Labraradabrador · 06/03/2025 21:59

On balance I think we spend far too much supporting those not able to cope with normal life demands, and far less than we should enabling them to cope - either via therapy, early interventions, etc. or via programs supporting the transition to work, work placements, etc.

i fully appreciate that many with autism will struggle to live independently, but I also know a large number of parents who feel like their children would have a real shot at independence if they had received appropriate support along the way. I imagine the same is true of many mh conditions.

dawngreen · 06/03/2025 22:17

Work placements don't last long, and firms are happy to take the cash for being in the scheme. But soon as the flow of cash stops, they go back to not being able to employ ppl.

Labraradabrador · 06/03/2025 22:24

dawngreen · 06/03/2025 22:17

Work placements don't last long, and firms are happy to take the cash for being in the scheme. But soon as the flow of cash stops, they go back to not being able to employ ppl.

What a defeatist attitude. Even if that is all true, it is the experience of working that is the aim of funding, not indefinite positions. I know many who have used a work placement as a springboard to other work.

dawngreen · 06/03/2025 22:42

I did a yr long community programme as a catering assistant at a community center when I was 19. Did not lead to other work.

Did 2 years volunteering at a Barnardo's shop. If I started at the time they wanted me there. I had to pay for the full bus fare. The person in charge went on a lot of holidays then came back to show us the pictures.

I did my nvq in retail there.

I left after yet more holiday pictures deciding to do house work at home if spending more to be there.

If going for interviews that require being on your feet you get told it may be too much being disabled. So go for call centre jobs to be told it may be too much because of all the sitting.

Defeatist do's not exist in my world!!

dawngreen · 06/03/2025 22:52

And half of places never reply after interviews. I always got the talk after the interviews. That was a lovely interview, BUT we felt the standing/sitting will be too much for you. When you have fit ppl applying too they always take the fit one.

dawngreen · 06/03/2025 22:56

Universal basic income: Plans drawn up for £1,600 a month trial in England

Want a fair option?? If all got the above, and did not have to work. Would you be happy then?

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