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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Assisted Dying

1000 replies

Nordione1 · 29/11/2024 18:05

I dont know what section to put this in. Im more upset about the vote for it than I thought I'd be. I feel like we have crossed a rubicon somehow.

OP posts:
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11
ismu · 29/11/2024 20:27

@VioletSpeedwell critical health care insurance is not the same as assisted dying. Many people are given six months and live pain free for years. Lots of examples of this can be found on the cancer boards. The problem is that people need to kill themselves while they have capacity so may lose years of active and relatively life.
@Vergus what I've said above- the individuals need to choose death while they are still capable. What state of mind would you need to be in to do this -and how do doctors reconcile this with their values?
Palliative care specialists can do absolutely amazing things to keep life tolerable for a very long time of that six months or however long it turns out to be. The bill will need to change to allow for a quicker, better death in extremis if it's to actually reflect what public opinion is asking for.
Once that happens we really will open the floodgates because we will need to ask medical professionals to make the call- this is a first step.

LuckySantangelo35 · 29/11/2024 20:28

Bignanna · 29/11/2024 19:18

That’s a rather sweeping statement! How do you know this, Why do you think that? Have you experience of this? Judging by interviews with such people when this topic has been in the media, it seems to me that many want to choose when they end their lives in those circumstances.

@CandyMaker

that is absolutely and categorically not true! Plenty of people do not! Are you normally so naive?

Dramatic · 29/11/2024 20:30

EricTheGardener · 29/11/2024 20:16

If you have watched a loved one endure a slow, torturous death it is so very hard to remember them without that horrific memory on the periphery. It clouds all my lovely memories of my dad, who so desperately wanted to die with dignity.

However, it was not to be. Now, to be clear, he also developed dementia so this would have precluded him from assisted dying in any case. But even without dementia, his concurrent Parkinson's and cancer stripped him of all dignity and I know for a fact he would have chosen a peaceful death had it been available.

As it was, his final year was spent in agony, unable to walk more than a few steps, go the toilet or use his arms. If he needed to urinate, I had to somehow hold him up from behind and stand there with a jug underneath his penis so he didn't wee all over the toilet and himself. He also became doubly incontinent. I had to feed him. I had to comfort him as he sat in a chair with tears rolling down his face saying 'This is so degrading, I want to die. I can't take any more'. I had to watch him writhe and thrash around in bed at night as he couldn't get relief. He never slept more than two hours a night for the last eight months of his life. Nor did I.

My dad, an eloquent, kind, rational and extremely clever engineer, died a hideous death in hospital. He developed terrible hallucinations and psychosis and thought his visiting granddaughter was on fire. He was grasping at her skin asking why no-one had called the fire brigade and screaming that her skin was melting. He got severe pneumonia and had to be suctioned several times a day. If you've witnessed this, you'll know the trauma. He died gasping for breath, his face screwed up in anguish. That's my final memory of him.

So while I can empathise with others' concerns – and I genuinely do understand these concerns – my passionate opinion is that we should work very hard to alleviate these concerns. NOT use them as a reason to withhold a peaceful, pain-free death for people like my dad.

I don't know how anyone could read this and still be opposed to the bill, I'm so sorry you and your poor dad had to go through this, it sounds like hell on earth. This is exactly who the bill would be for.

ForeverDelayedEpiphany · 29/11/2024 20:32

PreBlendOils · 29/11/2024 18:29

I can't imagine ever wanting to die, and the thought of this becoming law terrifies me.

But, I've never been in extreme pain. I haven't lost the use of my limbs, watched myself waste away and seen the pain and pity in my loved ones' eyes.

This bill has really freaked me out but I know that's just my own fear of death coming out. If someone genuinely wants this, and is able to make the decision, then of course they should not have to suffer.

I've had a neurological involuntary movement disorder called tardive dyskinesia (that was drug induced) for the past decade, and it's not life threatening nor degenerative but it is chronic and incurable. If it ever becomes so bad that I literally spend all day twitching my whole body/mouth/tongue, I'd have to seriously consider assisted dying.

I had rude health before my head injury (which was before my movement disorder) and i had similar views to you. Since having suffered from chronic illness, I've definitely had to reconsider my views.

k1233 · 29/11/2024 20:32

I hate that others get to decide that I have to exist in a state that, for me, is unacceptable. I should have the right to make an election, whilst I have capacity, to say if I require X level of care then I want to die. I believe in quality of life, not quantity. What I define as quality of life is different to someone else, but for some reason their choice overrides my autonomy over my life.

Errors · 29/11/2024 20:32

ismu · 29/11/2024 20:27

@VioletSpeedwell critical health care insurance is not the same as assisted dying. Many people are given six months and live pain free for years. Lots of examples of this can be found on the cancer boards. The problem is that people need to kill themselves while they have capacity so may lose years of active and relatively life.
@Vergus what I've said above- the individuals need to choose death while they are still capable. What state of mind would you need to be in to do this -and how do doctors reconcile this with their values?
Palliative care specialists can do absolutely amazing things to keep life tolerable for a very long time of that six months or however long it turns out to be. The bill will need to change to allow for a quicker, better death in extremis if it's to actually reflect what public opinion is asking for.
Once that happens we really will open the floodgates because we will need to ask medical professionals to make the call- this is a first step.

Many people are given six months and live pain free for years. Lots of examples of this can be found on the cancer boards. The problem is that people need to kill themselves while they have capacity so may lose years of active and relatively life

Why on earth would that be the case?
Let’s say someone was given 6 months to live. Let’s say they went through the process of requesting AD. That process alone will probably take some time… now let’s say they gain approval. Do you really think a doctor is going to force the patient to take the drugs immediately? I would imagine a note would be put on their medical record and the patient would choose when and where. So in the case that it’s say, 12 months later and the patient still has a good quality of life, they wouldn’t be forced to die would they?

Luminousalumnus · 29/11/2024 20:34

MrsPeregrine · 29/11/2024 20:08

I’ve already told you several times that although this bill only applies to the terminally ill - once introduced it could easily be expanded to include non-terminal conditions - such as depression. How many more times do I have to say it? It’s a legitimate concern - because it’s happened in other countries. I suffered badly with depression as a teen. I don’t want my son or daughter being offered it if they end up how I did as a teen.

Well campaign against the Bill being changed to include depression then. And butt out of the lives of people who are terminally ill and welcome the Bill.

godmum56 · 29/11/2024 20:35

ismu · 29/11/2024 20:27

@VioletSpeedwell critical health care insurance is not the same as assisted dying. Many people are given six months and live pain free for years. Lots of examples of this can be found on the cancer boards. The problem is that people need to kill themselves while they have capacity so may lose years of active and relatively life.
@Vergus what I've said above- the individuals need to choose death while they are still capable. What state of mind would you need to be in to do this -and how do doctors reconcile this with their values?
Palliative care specialists can do absolutely amazing things to keep life tolerable for a very long time of that six months or however long it turns out to be. The bill will need to change to allow for a quicker, better death in extremis if it's to actually reflect what public opinion is asking for.
Once that happens we really will open the floodgates because we will need to ask medical professionals to make the call- this is a first step.

no they won't. If its like Oregon, which has a similar law, once you have gone through the process and been given the prescription, you can take it at a time of your choosing or not take it at all. It was said on the BBC yesterday that 30% of people on Oregon who apply for and receive their prescription don't actually use it.

AyrshireTryer · 29/11/2024 20:36

very pleased here

Dramatic · 29/11/2024 20:38

Gingerlingerlonger · 29/11/2024 19:59

So many people who support it are saying something along the lines of, "I watched it and don't want to watch it again, so yipee". YOU are the pressure opponents are concerned about. Presuming you have made your feelings about watching mum, for example, die abundantly clear to mum, mum will feel pressured to not put you through that so will ask a disinterested NHS box tickers to tick the kill box.

This is going to be abused.

Another thing.
Who decides you have less than six months to live?
Your doctor, a specialist who knows you or a physicians associate or a bloke in an office somewhere in DWP central who decides he'd like a performance bonus for finding PIP claimants he can get rid of.
My guess is that's going to be the method of abusing the system.

People are talking about their relatives who were in such unimaginable pain that they were begging for someone to end their suffering. You sound very ignorant.

Errors · 29/11/2024 20:39

Luminousalumnus · 29/11/2024 20:34

Well campaign against the Bill being changed to include depression then. And butt out of the lives of people who are terminally ill and welcome the Bill.

This!
If they attempt to pass legislation in the future to include people with depression, we can debate that at the time. But that isn’t happening! And I would imagine most people would be totally against that in any case.

It’s like people genuinely think that assisted dying is forced dying.

Did the scope creep when abortion was legalised? Did we start saying if it’s ok now then it would be ok at 38 weeks, for example?

LuckySantangelo35 · 29/11/2024 20:41

WillowTit · 29/11/2024 19:21

i think for those with dementia it is just that one step too far

@WillowTit

why?

ismu · 29/11/2024 20:41

@Errors they need to have capacity to end their lives. People can become extremely panicked and distressed when they first get a prognosis. It would be easy to feel that AD was the only way when in fact this may not be the case and with the right support they capsules have a fulfilling life for longer.
The saddest thing is the tragic story of the very awful end of the poor man with Parkinson's. He may not have been judged as having capacity by the time things got bad for him. Similar with dementia.

This bill won't actually address what people are worried about- terrible pain or distress at end of life. It will need to be amended to do that- and as a society we will be nudged into a situation where AD is a way to save costs for finance management.

ILoveNigelTufnel · 29/11/2024 20:41

I am very, very pleased. My body my choice.

GranPepper · 29/11/2024 20:41

Atreus · 29/11/2024 20:26

I am massively relieved and also very emotional at the outcome of today's vote. 9 years ago (almost to the day), I accompanied my fiercely independent and incredibly brave, wonderful mum to Dignitas in Switzerland. She'd been diagnosed with MND 6 months earlier and it had rapidly progressed. She wanted to take back some control over this brutal disease that she knew would cause her death.

The process was thorough (as it should be) with numerous checks along the way to ensure her decision was her own with no chance of any coercion. Medical records were stringently checked and multiple doctors met with her to ensure she was of sound mind and fully cognisant of the decision she was about to make.

Her relief when she was given the 'go ahead', the incredibly special time we spent together the few days before she died, and the calm and peaceful nature of her death mean I have been an avid supporter of this Bill. The fact she had to travel outside the country, the amount it cost, her fears that her condition would progress so fast she may not be able to proceed and concern that I would be implicated in her death did place a huge amount of stress on her. So now the potential for this to be available to people within England and Wales in the future, comes as a huge relief.

Very sincere condolences for your loss. I can understand your emotion today. My DH's husband died of MND. He begged his wife to end his suffering. She couldn't so he died when he couldn't swallow his own saliva any more. I completely understand why people with the financial means (like an MP) or Esther Rantzen would choose Dignitas. I just want other people without the means to choose Dignitas to have the choice of death with dignity. Not people who lack capacity (unfortunately my dad with dementia), not people who are depressed (they will likely recover). People who are terminally ill and want to choose to die with dignity.

GranPepper · 29/11/2024 20:42

GranPepper · 29/11/2024 20:41

Very sincere condolences for your loss. I can understand your emotion today. My DH's husband died of MND. He begged his wife to end his suffering. She couldn't so he died when he couldn't swallow his own saliva any more. I completely understand why people with the financial means (like an MP) or Esther Rantzen would choose Dignitas. I just want other people without the means to choose Dignitas to have the choice of death with dignity. Not people who lack capacity (unfortunately my dad with dementia), not people who are depressed (they will likely recover). People who are terminally ill and want to choose to die with dignity.

* wrong word, sorry. My DH's uncle

MrDarlingtonsPie · 29/11/2024 20:42

MrsPeregrine · 29/11/2024 19:54

I would be in favour of AD - IF there’s was no chance of it being abused as it has been in other countries and it it was only available to people who have the mental capacity to make an informed choice, on the grounds of unbearable physical suffering.

But sadly I just don’t think it will be. And to those saying it is not going to be available to people suffering from mental illness and depression, just because it doesn’t now, doesn’t mean that the eligibility criteria won’t be widened later on. It’s happened elsewhere.

Edited

The mental health subject is difficult. But as things stand, people with mental health conditions who are able bodied are able to take their own lives if they decide to, often also in painful or violent ways or involving someone else or a family member for example having to be the one to find them and therefore other people also being traumatised by the death. We wouldn’t want to make it easier for people to just tap out of life due to a bad period which they could otherwise have recovered from and this is the terrible fear but I think if someone is resolute that they want to end their life, there could be a humane way to do this.

TheMiceOnTheMouseOrgan · 29/11/2024 20:43

Vergus · 29/11/2024 20:24

See I wonder how many people who are against the bill have actually witnessed a traumatic and long-drawn out death. I think I might be right in assuming that once you’ve witnessed this and lost a loved one this way, you see the humanity in such a bill being passed

I’ve witnessed a long drawn out passing and I also have a child with severe learning disabilities and other concerns.

I was traumatised by the first but the horror that could come from assisted dying for the vulnerable is another level.

Luminousalumnus · 29/11/2024 20:46

TheMiceOnTheMouseOrgan · 29/11/2024 20:43

I’ve witnessed a long drawn out passing and I also have a child with severe learning disabilities and other concerns.

I was traumatised by the first but the horror that could come from assisted dying for the vulnerable is another level.

This is nonsense. Your child will never be able to access assisted dying (rightly or wrongly) because they do not have capacity to ask and agree to it.

GranPepper · 29/11/2024 20:46

MrDarlingtonsPie · 29/11/2024 20:42

The mental health subject is difficult. But as things stand, people with mental health conditions who are able bodied are able to take their own lives if they decide to, often also in painful or violent ways or involving someone else or a family member for example having to be the one to find them and therefore other people also being traumatised by the death. We wouldn’t want to make it easier for people to just tap out of life due to a bad period which they could otherwise have recovered from and this is the terrible fear but I think if someone is resolute that they want to end their life, there could be a humane way to do this.

Tbh I would be against assisted dying in a mental health crisis. They may lack insight/capacity at the point they'd request.

SweetDreamsTonight · 29/11/2024 20:47

I know 2 relatives who had dementia and both begged for someone to kill them toward the end.
Seeing someone you care about walk around like a shambling zombie, Lash out at their children and no longer recognise anyone around them is awful.
If they had the option to end their lives peacefully before they lost their marbles I'm sure they would have.

ismu · 29/11/2024 20:48

@Errors abortion law originally required 2 doctors to sign off and had to be medically necessary for the health of the mother - her life needed to be saved, although a broad interpretation.
Now you can obtain pills from the chemist or at a walk in clinic.
I support abortion, but it's easy to see how things that are unthinkable at the time of legislation become commonplace.

GranPepper · 29/11/2024 20:48

TheMiceOnTheMouseOrgan · 29/11/2024 20:43

I’ve witnessed a long drawn out passing and I also have a child with severe learning disabilities and other concerns.

I was traumatised by the first but the horror that could come from assisted dying for the vulnerable is another level.

The learning difficulty person would unlikely be deemed to have capacity to choose AD

TheMiceOnTheMouseOrgan · 29/11/2024 20:49

Luminousalumnus · 29/11/2024 20:46

This is nonsense. Your child will never be able to access assisted dying (rightly or wrongly) because they do not have capacity to ask and agree to it.

And you can guarantee that?

TheMiceOnTheMouseOrgan · 29/11/2024 20:50

GranPepper · 29/11/2024 20:48

The learning difficulty person would unlikely be deemed to have capacity to choose AD

Have you ever had to fight for a disabled persons rights?

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