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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think more people do have autism nowadays?

214 replies

malificent7 · 07/10/2024 05:46

Everyone says it's because more people are being diagosed which is true BUT I am waiiting for my assessment , my sdd ( not genetically related) has it and 2 of my close school friends have children with it severely enough so that they can't attend mainstream.
Obviously several members of my family have it as it is genetic but it does seem odd that my 2 close school friends ( who dont have asd) have children with it.

OP posts:
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Goody2ShoesAndTheFilthyBeast · 07/10/2024 05:48

I think that only severe autism used to be recognised so it seems like there's more people with it now but really it's that awareness has increased

romdowa · 07/10/2024 05:48

Neurodivergant people are often drawn to each other . So that would explain why your two friends maybe nd as well.

romdowa · 07/10/2024 05:49

romdowa · 07/10/2024 05:48

Neurodivergant people are often drawn to each other . So that would explain why your two friends maybe nd as well.

Or that there maybe nd in their families.

NeverDropYourMooncup · 07/10/2024 05:51

People with severely disabled children would have been ashamed and not said anything, so you wouldn't have necessarily known. And others would have been 'a bit different' but wouldn't have received any diagnosis.

ekalf · 07/10/2024 05:58

Of the ten good friends I have, two have autistic children who'll need lifelong 24/7 care and four have autistic children who are in mainstream either extra support, three of which are struggling. All children were born in the last 13 years. None of the parents have been diagnosed as far as I know, not yet anyway.

malificent7 · 07/10/2024 06:02

Ekalf....that is a fairly high percentage...60%
Part of me wonders if I am drawn to people who are on the spectrum but my school friends are neuro typical.

OP posts:
Sendwineandchocolate · 07/10/2024 06:03

2 DC in my house out of 3 have autism and they have not a single biological parent in common. 3rd DC is related to both but too young to know yet.

sorrynotathome · 07/10/2024 06:04

Yes, linked to people having children much later in life (mothers & fathers). You can look it up.

Devilsmommy · 07/10/2024 06:13

sorrynotathome · 07/10/2024 06:04

Yes, linked to people having children much later in life (mothers & fathers). You can look it up.

Is that really true? Have you got a link to the research proving that?

Bedbugdilemma · 07/10/2024 06:24

I know it is due to more awareness, and only the high needs autism being diagnosed in the past. So presumably it makes sense that the proportion is much higher than previously thought, also that many people in 30s/40s are now realising its why they are struggling..

But yes I've also wondered as in one of my friendship groups they always thought me and my duaghter as being the "quirky" ones but now all 4 of us have at least one kid that's autistic...

Pinenuts91 · 07/10/2024 06:26

Well there are a few now known gene mutations that cause it. (CACNA) this is a fairly recent mutation which is dominant and 50% chance of being inherited. So as time goes on the number of individuals with it will increase.

But it is also more recognised. My great auntie was known as crazy madge and my great uncle never left the house, didn't speak and when my dad would visit he would silently play chess. These days they would probably be diagnosed with something but back then they were just avoided.

autienotnaughty · 07/10/2024 06:29

I grew up in a small community, I can think of two children in my class who were probably autistic (not including me who definitely went under the radar) there were probably a couple more who just hid it well enough. I wouldn't have seen any children not in mainstream.

Now as an adult I have access to a bigger community of people so as well as me, my son , the other two diagnosed children in sons class. I'm aware through friends, through my job, on support groups that there are lots more asd people than I realised.

I think it's partly due to better diagnosis/awareness and partly due to being more enmeshed in the autistic community . I also feel there's something around the world we live in being more demanding and full on which means children who would have coped in earlier generations are not coping in ours and also there's children who would have been beaten for meltdowns etc so had to find coping mechanisms.

Noidea2024 · 07/10/2024 06:34

I always think it's a mix of factors; more commonly diagnosed, life expectations have changed meaning neu diverse people are more likely to struggle than in the past, bringing symptoms to light, and a likely increase in prevalence.

FWIW though, my child is awaiting diagnosis. I was diagnosed in my 20s having gone through childhood as a slightly anxious, sensitive kid (would definitely be diagnosed as a child now). My older brother was 'slow' and a bit 'awkward'. He doesn't have a diagnosis and would vehemently disagree, but he is definitely autistic. My dad was considered a 'difficult' person, but based on current autistic diagnostic criteria, was almost certainly so. I even wonder about my mum, who 'lived on her nerves', and spent her life avoiding new things, doing household chores in the same day and being incredibly rigid about mealtimes. My point is, everyone was just accepted as a 'a bit' something or other. My parents grew up in small communities, had predictable lives and mixed with relative small pools of people. They weren't challenged in the same way as children now, which meant their 'differences' were perhaps less obvious and less "problematic" to them.

Nosleepforthismum · 07/10/2024 06:34

I really don’t know OP. I know that it’s genetic in the vast majority of cases. My DS is delayed in his speech and communication and there has been a question mark for a while over whether we should pursue an autism diagnosis. I know that he will be absolutely fine (with the right support) regardless of a diagnosis and he would definitely have been a child that was just “quirky/delayed/just a typical late talking boy” 30 years ago.

However, I’ve joined a couple of support groups and what’s interesting is that in America, they are much more on the ball with early interventions and diagnose extremely young in a lot of cases (like 18 months) and when falling down a Google rabbit hole, I came across an article that claimed something like 70% of autistic kids in the US had “recovered” from their autism by the time they were adults. Obviously it’s a load of rubbish as autism is not something that can be cured but it does make me wonder if there are more cases of misdiagnosis especially when looking at very young children.

Gobacktotheworld · 07/10/2024 06:38

This reply has been withdrawn

This has been withdrawn by MNHQ.

zeitweilig · 07/10/2024 06:39

Looking back I can see quite a few folk who appear to have/have had quite a few 'characteristics' that may well fall/have fallen into the criteria for being autistic - whether they all are/would have been I'm not 100% sure but less folk were both diagnosed and willing to speak about it than currently. The same goes for ADHD. I think autism has always been thought to be more associated with males but more females are also being diagnosed these days. I wish anyone well who is on the diagnosis journey or who is trying to figure out what a diagnosis means.

Startinganew32 · 07/10/2024 06:39

sorrynotathome · 07/10/2024 06:04

Yes, linked to people having children much later in life (mothers & fathers). You can look it up.

Ive heard this with fathers but not mothers and I’m not sure the link has been proven. Anecdotally though none of the parents of autistic children I know were particularly old when they were born. And before fully reliable contraceptives, it was actually really common to have children late in life. Not your first child, granted, but subsequent ones.

NightIbble · 07/10/2024 06:42

Nosleepforthismum · 07/10/2024 06:34

I really don’t know OP. I know that it’s genetic in the vast majority of cases. My DS is delayed in his speech and communication and there has been a question mark for a while over whether we should pursue an autism diagnosis. I know that he will be absolutely fine (with the right support) regardless of a diagnosis and he would definitely have been a child that was just “quirky/delayed/just a typical late talking boy” 30 years ago.

However, I’ve joined a couple of support groups and what’s interesting is that in America, they are much more on the ball with early interventions and diagnose extremely young in a lot of cases (like 18 months) and when falling down a Google rabbit hole, I came across an article that claimed something like 70% of autistic kids in the US had “recovered” from their autism by the time they were adults. Obviously it’s a load of rubbish as autism is not something that can be cured but it does make me wonder if there are more cases of misdiagnosis especially when looking at very young children.

I think it's partly because in small children autistic behaviours overlap with toddler behaviour so it can be hard to tell if they're autistic or just being a toddler.

stepintohannakey · 07/10/2024 06:43

I think it's increased. Why? Because my son she profound autism, non verbal. He goes to a special school -

There are far more children now in need of special schools than even 15 years ago, and early years/reception classes have reported a sharp increase within the last 5 years

stepintohannakey · 07/10/2024 06:44

*has profound autism

HappiestSleeping · 07/10/2024 06:46

sorrynotathome · 07/10/2024 06:04

Yes, linked to people having children much later in life (mothers & fathers). You can look it up.

This 👆

Also, along with increased occurrences per capita, the population is increasing, and the recognition of such conditions is happening more regularly.

Warmroomed · 07/10/2024 06:47

I think it's increased and awareness is better, so a combination of the two.

I can recognise it almost instantly in someone. I see it in a lot of people.

Highly suspect I'm autistic too.

Musiclover234 · 07/10/2024 06:48

I have worked with children for 30 years back then i barely worked with anyone with adhd or autism diagnosis . However now armed with many years of working with neurodivergent children i could identify many that would be recognised ASD/ADHD.

Lots of really complex and children with learning disabilities/difficulties were also hidden away from the world where as many parents now rightly give them as much of a ‘normal’ life so are seen out and about much more.

We seem to be hyper aware nowadays and people see through masking, or previously ‘odd’ or a ‘bit different’ behaviour.
I’ve met babies with possible ‘signs’ but would not encourage too early diagnosis bvecause we alll develop so differently.

Sethera · 07/10/2024 06:48

There's more awareness now. I wasn't diagnosed until my 40s but it's a lifelong condition. Looking back at the way I was as a child, I'd be diagnosed in infancy nowadays, but back in the 70s ordinary working people like my parents had never heard of autism.

Tumbleweed101 · 07/10/2024 06:49

We are seeing more children with it at the nursery I work at.