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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Trying so hard with my twitching

283 replies

Terrifiedshakes · 01/08/2024 00:46

See my other threads. I'm at a loss

I'm trying so hard to sort out why I'm twitching. I'm taking Kalm tablets now and I'm trying hard with breathing techniques

Yet I still continue to twitch all over my body. Every few mins there is a twitch and it can be anywhere.

I'm bow trying to fall asleep but I keep getting woken up by a massive twitch that feels like it's coming from my head. I'm terrified it's a seizure that I can't go back to sleep.

I am so very anxious though about these twitxhes. It's a vicious cycle. If they are anxiety related how do I break the cycle and why are they coming from my head and waking me up with such a jolt..

Please be gentle with me with your advice as I'm so scared I've got MS or a brain tumour or MND I'm sat here trembling with fear and the trembling is fear , the twitches are muscle.

OP posts:
Terrifiedshakes · 07/08/2024 03:16

See you all think it don't you

I'm a state of panic I think I'm going to go a and e

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Terrifiedshakes · 07/08/2024 03:48

This can't be happening I'll have to go back to the doctors. We didn't talk much about my jwrking and twitching in my sleep at all yesterday

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Terrifiedshakes · 07/08/2024 03:57

How do I stay in hospital for a few days I can't stay at home anymore and do this

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KeirSpoutsTwaddle · 07/08/2024 07:07

Call 101 and tell them

Or ideally hang in there for a few more days and give the meds a chance.

Terrifiedshakes · 07/08/2024 07:59

I spoke to a neurologist on the phone in the end. I had to pay.

Fucking can't remember what she said as I couldn't hear her.

Something about a seizure wouldn't present this way.

I'm so tired.

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KeirSpoutsTwaddle · 07/08/2024 08:56

Right. You know that thing about when you hear hoofbeats don’t look for zebras? Walks like a duck, quacks like a duck… ?

Your pressing concern is not a neurological issue.

Your pressing concern is being treated. Give the treatment a chance to kick in.
Make a note on your calendar, maybe one week today, when you will assess how it’s going and in the meantime just stop. Stop. What do you do to stop? Read? Light a candle? Have a bath? Do that.

Starsnspikes · 07/08/2024 09:36

Look up Cherelle Thinks on Instagram and YouTube. She talks a lot about twitching (her account is about health anxiety, she talks about her experience with it and she now offers support to others suffering from it).

I went down the twitching rabbit hole a few years ago. Paid to see a neurologist privately, paid for an EMG, had an MRI scan. All fine. Spent hours on Google, in bed crying, obsessing over all the twitching. It either stopped, or I stopped noticing it. It's incredible what your brain does. I used to stare at my calves watching them and every twitch would send me into a deeper panic attack.

As someone with really severe health anxiety, reading your posts I honestly think you're fine and this is psychological. Seriously look up the YouTube and Insta account I recommended, her videos have saved me when I've been in a dark place.

Pterodacty1 · 07/08/2024 09:40

@Terrifiedshakes don't nap during the day today.

You had a daytime sleep yesterday. It will make going to sleep at night harder.

Also - remove your phone at night. Have a book and nothing else.

Balloonhearts · 07/08/2024 09:46

You do not have nocturnal epilepsy.

Symptoms of nocturnal seizure
During a nocturnal seizure, a person may:

cry out or make unusual noises, especially right before the muscles tense - No
suddenly appear very rigid - No
wet the bed - No
twitch or jerk - Yes
bite their tongue - No
fall out of the bed. - No
be difficult to wake after the seizure - No
be confused or display other unusual behaviors after a seizure - No
wake suddenly for no apparent reason - No

You see? Your only matching symptom is twitching. Epilepsy does not present like your symptoms.

Hypnogogic jerks

A hypnic jerk, hypnagogic jerk, sleep start, sleep twitch, myoclonic jerk, or night start is a brief and sudden involuntary contraction of the muscles of the body which occurs when a person is beginning to fall asleep, often causing the person to jump and awaken suddenly for a moment.

Exactly what you are experiencing.

Terrifiedshakes · 07/08/2024 10:01

I am listening and reading guys.

I'm going to continue taking the anti depressant but not the sleeping pill. It was horrible feeling so tired and drowsey whlst not being able to fall asleep, whilst having a panic attack and heaving into a Morrsioms carrier bag being sick at the thought of nocturnal epilepsy.

I've also been listening to this girl mentioned above on YouTube. She's fantastic and just gets health anxiety. But she's not talked about nocturnal epilepsy and walking up to your body shaking.

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Terrifiedshakes · 07/08/2024 10:01

I paid 35 pounds last night for a neurologist to phone me.

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Terrifiedshakes · 07/08/2024 10:06

On a site called Just answer. I've really made the neurologist earn her money last night. Trust me. I've grilled her.

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HÆLTHEPAIN · 07/08/2024 10:06

Zusammen · 01/08/2024 01:22

I don’t mind reassuring someone who’s struggling, which she clearly is. Twitching is scary, I have it myself and I go through times when I feel absolutely terrified. Your mind runs away with you and you need someone to talk you down with logic and facts.

NRTFT so this might have already been said but reassuring someone with anxiety (health or otherwise) can actually make the problem worse. Especially when it’s obvious this is an ongoing significant problem.

NeedthatFridayfeeling · 07/08/2024 10:11

I have anxiety and get random muscle twitches, worse in arms and back of legs, i try and fight the urge to twitch but always fail, the only time they were a lot better was when i was on Citalopram, i came off that when i got pregnant and as my other anxiety symptoms are still manageable i haven't gone back on it even 7 years later. The twitching does annoy me at times though.

Terrifiedshakes · 07/08/2024 19:19

I had tummy ache which I put down to the new pills. Just been now and my stools are nearly a yellow colour. Wtaf I've had enough. Is this normal bexuase of the medication I'm on? My liver level blood results went back to normal.

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Terrifiedshakes · 07/08/2024 19:21

I can't go back tondrs tomorrow about this. Iv3 been back today. This will mean I've been doctors three times this week and once last week.

I saw gp today and he prescribed me a higher dose of proprodamol

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KeirSpoutsTwaddle · 07/08/2024 19:24

It’s good you went back today. Stool changes colour according to what you eat. You may have had more fat than usual for example. Or the medication may have unsettled things.

You are jumping at shadows.

Terrifiedshakes · 07/08/2024 19:25

They are testing me for celiac but it's normally orangy brown, not yellowy brown!

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Terrifiedshakes · 07/08/2024 20:36

My stool is very light in colour. It could be liver disease. My bloods have eventually come back normal for my liver. The Dr said he wasn't worried last week. Oh no no why me. I am being tested for celiac disease but the waits 18 weeks average. Oh no. There is something wrong with my insides I'm back on the floor again rocking I can't keep doing this

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Zusammen · 07/08/2024 20:50

It’s stress. You’re giving yourself a tummy upset so stuff is going through you too quickly, hence the colour. Or yes it could also be coeliac, which really isn’t a big deal.

The doctor won’t be able to diagnose you unless you get your stress under control, because nobody knows which symptoms are genuine and which are stress induced.

Terrifiedshakes · 07/08/2024 20:56

Yes and the only thing I ate yesterday was an onion baji flat bread thing from COSTA and 2 pork belly.

I'm so stressed. Thank you everyone on here I've never had an episode like this so bad. Good news is I don't think I've got MS or MND.

Bad news, I'm on epilepsy and liver/pancreatic cancer worrys now. Don't get me started on breast, they need checking this month. I might actually have a month off. Can't cope with that too.

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Terrifiedshakes · 07/08/2024 21:03

My mums organised a back massage tomorrow but hiw can I go if ive maybe got liver disease or pancreatic cancer.

I cba being all fake nice tomorrow

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Zusammen · 07/08/2024 21:25

Ok well the things you’re worried about now aren’t terminal and can easily be diagnosed with tests. In fact the tests you’ve already had would rule them out.

You are going to cause yourself some damage if you don’t get your anxiety under control though. I’ve had some success with using the Headspace app, if that’s too expensive maybe try some meditations on YouTube.

Terrifiedshakes · 07/08/2024 21:31

I don't care how expensive the headspaxe app is. Its something I can try !
I've just read antihistamines can make stools paler, well I had one last night to help me sleep...

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EatMoreFibre · 07/08/2024 22:09

Terrifiedshakes · 07/08/2024 21:03

My mums organised a back massage tomorrow but hiw can I go if ive maybe got liver disease or pancreatic cancer.

I cba being all fake nice tomorrow

Cancer or not you can have a massage tomorrow. The good things in life are as real and as deserving of your mental space as the bad things.

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