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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Trying so hard with my twitching

283 replies

Terrifiedshakes · 01/08/2024 00:46

See my other threads. I'm at a loss

I'm trying so hard to sort out why I'm twitching. I'm taking Kalm tablets now and I'm trying hard with breathing techniques

Yet I still continue to twitch all over my body. Every few mins there is a twitch and it can be anywhere.

I'm bow trying to fall asleep but I keep getting woken up by a massive twitch that feels like it's coming from my head. I'm terrified it's a seizure that I can't go back to sleep.

I am so very anxious though about these twitxhes. It's a vicious cycle. If they are anxiety related how do I break the cycle and why are they coming from my head and waking me up with such a jolt..

Please be gentle with me with your advice as I'm so scared I've got MS or a brain tumour or MND I'm sat here trembling with fear and the trembling is fear , the twitches are muscle.

OP posts:
Terrifiedshakes · 06/08/2024 09:24

I've written the GP a little letter with how I feel. I don't want my son hearing some of the shite I have to say. I've been clear at the end I've had suicidal thoughts but state of mind at present, is not suicidal, nor is anyone else in danger. I'm just not functioning and Im experincing insomnia. I am the closest I've ever been to a breakdown I think and I feel like I am neurologically malfunctioning. It's a very good letter if I do say so myself. It gets my points across anyhow in about 5 small clear paragraphs. I've got to get better and I've got to acknowledge I've got health anxiety but it's so difficult when my body feels like it's malfunctioning neurologically and it feels so physical. Google is also a nightmare. I'm thinking of getting a very basic phone without Google. Not yet though.

OP posts:
KeirSpoutsTwaddle · 06/08/2024 09:28

Well done. That alone is an excellent step forward

Re read the letter when you are tempted to google or starting to obsess.

Comtesse · 06/08/2024 09:56

Ask your husband to take your phone off you over night. No one needs to be reading about MS or whatever at 3am.

Coldhandswarmhearts · 06/08/2024 11:32

How did the appointment go?

Terrifiedshakes · 06/08/2024 11:55

Neurological exam normal.

Doesn't think its MS or ALS. He thinks the neurology wouldn't accept my referral.

He's prescribed me some tsbkets for anxiety but I can't remember the name. Not sertraline though.

Also a low dose of sleeping tablet that's linked to an antihistamine. Forgot the name . Ill find out the names when I collect them later.

So my plan,

Self refer for CBT
This evening go for one last run as if these new tablets are anything like the last, they are going to make me rough for the next week until I'm used to them.

Take the sleeping tablet.

Keep the fuck off Google.

Eat better. Excercise less.

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KeirSpoutsTwaddle · 06/08/2024 12:14

Good plan!

Persevere with the tablets and if the issues don’t resolve go back to try something different.

The ones I take took a while but I wouldn’t be without them now.

Terrifiedshakes · 06/08/2024 12:16

Phenergan for sleep

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Terrifiedshakes · 06/08/2024 12:18

Escitialopram for anxiety. Lowest dose.

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EatMoreFibre · 06/08/2024 16:04

This sounds very positive OP, I am pleased for you. Hoping the medication kicks in soon and that you will be in a better place physically and mentally ASAP.

Terrifiedshakes · 06/08/2024 16:23

I just had a sleep but as my mind came out if sleep and into being awake I didn't half jerk my body and I felt tiny twitches around my body

Is this a seizure or still the anxiety?

I'm taking the Escitalopram tomorrow morning as I want to run tonight, and sleep. If it causes side effects I want them in the day time.

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KeirSpoutsTwaddle · 06/08/2024 16:33

I’ve been hesitant to share my medical history for fear it influences you badly, but I get twitches and zaps as part of a chronic health condition that’s perfectly manageable. It’s just not a big deal. It gets worse the more you think about, so don’t!

Let the medication do its thing.

Terrifiedshakes · 06/08/2024 23:43

Ahhhh I can not sleep without these jerks. Either head jerks or shoulders. I've been woken up by my shoulder shaking, quivering. Its all to do with the transition status between sleep and awake

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Terrifiedshakes · 06/08/2024 23:44

I'm worried it's not tension and I'm having seizures or something

I'm panicking now omfg

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Terrifiedshakes · 06/08/2024 23:55

Or this could be Huntingsons disease

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Zusammen · 07/08/2024 00:07

OP there’s the suffering that life gives you and the suffering you create yourself. You can’t avoid the former but you can choose to avoid the latter.

You have some symptoms and you are doubling your suffering by worrying about those symptoms. I know it’s hard but you need to get hold of yourself.

If you had any of those things the doctors you’ve seen would have diagnosed you. They’ve examined you and done a neurological exam and diagnosed anxiety. You are not a doctor and speculating about things you haven’t been diagnosed with isn’t helpful.

Balloonhearts · 07/08/2024 00:08

You don't remember seizures I don't think.

I think you're suffering from something called hypnogogic jerks. They're triggered by stress, anxiety, caffeine and some medications. Very very irritating but harmless. Treatment is basically reduce stress, address anxiety, cut caffeine and consider if they coincided with starting a new med.

Terrifiedshakes · 07/08/2024 00:11

Hypergonic jerks are jerks. They are doing my head in. Litterally. I'm also feeling hot which is probably the side effect if this new anti depressant I've just taken about 2.5 hours ago.

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Zusammen · 07/08/2024 00:13

OP anti depressants take a few weeks to work. You don’t feel hot from taking one pill. It’s anxiety and the weather.

Terrifiedshakes · 07/08/2024 00:15

So if this anti depressant is going to hopefully settle the chemicals in my brain which are maybe causing the muscle twitching, then this could take up to 2, 3 weeks to see changes?

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Terrifiedshakes · 07/08/2024 00:18

I do admit, I am a bag of adrenaline and tension so I'm not surprised I'm twitching or neurogically malfunctioning.

It's not epilepsy, brain tumour, ALS, MS, Huntingsons disease. I've got to get past these things. I've just ran 10k in 57 minutes earlier on today. I was so strong and fast.

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Balloonhearts · 07/08/2024 00:28

Depends what the antidepressant is. Sertraline and Citalopram are usually settled inside of two weeks. Paroxetine and Mirtazepam I think both took longer. Amitriptyline was two weeks too although the dry mouth did persist but its worth it for the benefits. That might be a good one to try if you don't get on with your current one.

Makes you sleep and acts as a nerve block at low dosages, it's commonly used for nerve pain so may help with the twitches. It's not that common as an antidepressant anymore as it's not all that widely tolerated with side effects but anecdotally I've found that people who struggle with the newer ones do better on it. I can't cope with any SSRIs at all, had everything from dodgy belly to hallucinations (thank you paroxetine!) I literally tried to serve an imaginary customer.

GP gives me Amitriptyline with dire warnings of side effects. I got a dry mouth and like two dizzy spells over the first fortnight, then nothing. Not so much as a bout of gas.

I've tried a lot of them but as a general rule if you see no improvement or still feel shit in 6 weeks, try another one.

Zusammen · 07/08/2024 00:37

Terrifiedshakes · 07/08/2024 00:15

So if this anti depressant is going to hopefully settle the chemicals in my brain which are maybe causing the muscle twitching, then this could take up to 2, 3 weeks to see changes?

Everything is triggered by chemicals in the brain - all emotions and feelings. But the neural pathways in your brain are behaving abnormally and making you feel panicky and anxious when you don’t need to be.

Medication changes the balance of chemicals in the brain and damps down your reactions. You don’t feel as anxious or scared - equally you don’t feel as happy or excited. It takes a few weeks for the drugs to rewire your brain, and you have to come off them slowly for the same reason.

Balloonhearts · 07/08/2024 00:45

You'd be surprised what an excess of stress hormones can do to you. That's why you HAVE to address the anxiety, it's really bad for your body to be running in permanent overdrive.

Good job on the run, exercise is really good for releasing endorphins and will help with the feeling of always 'waiting for something to happen.'

Do you like horses by any chance? They're very therapeutic and help to no end with my anxiety. It's very hard to get into negative thought spirals when they're making eyes at you for treats and begging attention and cuddles.

You could try asking at local schools if they need any volunteers to do some grooming or leaders for lessons. I led for a 6 year olds first lesson today and she was so damn proud of herself when she was allowed off the lead rein, it was just a really nice feeling. Or heck, take a lesson yourself. It's amazing for your core and you get thighs of steel. Only form of exercise I actually enjoy.

Sarahzb · 07/08/2024 00:54

What's going on? This body movement is what doctors and scientists call a hypnic (or hypnagogic) or myoclonic jerk. It's also known as a "sleep start," and it can literally startle you out of falling asleep. This type of feeling is normal, and it can happen before people enter the deeper stages of sleep.

Terrifiedshakes · 07/08/2024 02:42

No no no no I've just read about nocturnal epilepsy. You are conscious and it happens when falling asleep or waking up. I'm having a seizure when I'm waking up I can feel it in one side of my body. Then when I wake up it's finished

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