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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Are people just less tolerant of disability accessibility now ?

470 replies

Takemeback02 · 10/07/2024 15:46

I have been raising a disabled child 11 years now and the first 5 ish years I never really dealt with many issues regarding to the assistance she received or disability access.
the last 5 years has been a real struggle. Usually transport / theme parks etc

most recently 6 of us went on holiday abroad to a European destination, 2 disabled children who require a lot of extra care with very high medical needs and equipment. We always check the hotels first and we speak to before choosing one that works for us. We picked a hotel that offered reserved disabled Sun beds. We arrived and they offered us 6 ( same as whole party ) but we told them we only needed 3. We chose ones away from the kids sections and to the side of the main pool,
they were reserved everyday. They placed disabled badge stickers on the beds for the duration of our stay. I reckon there
was 3 days out of 10 where we didn’t have an issue with someone taking them. Most would move on once asked but have a little moan as they did it and a few who got obviously very upset.

one of the days was a nightmare, we were at the pool bar and physically saw a women tair off the disabled badge sticker and throw it on the ground. I put it back on before going to get the kids
changed and when I got back lady was on bed and had removed the sticker again and lobbed it on the floor.

I just feel the last few years there is an obvious difference in peopls
Tolerance for accessibility or has it always been this way ?

don’t get me wrong I know from the past actual accessibility had got far better but it just feels like it annoys people now.

OP posts:
Thread gallery
6
est1980 · 21/08/2024 23:09

CassandraWebb · 21/08/2024 23:04

My issue doesn't affect my gait though? I walk normally, I just get more unwell with every step I take, have not brilliant balance and if I stand for any time at all rapidly lose the ability to see /speak/swallow. Other people have things like POTs that make standing up dangerous.

I honestly think there just needs to be more awareness training about invisible disability and all the different ways it can manifest.

People need to stop thinking they can "see" how disabled someone is. My mum is 70 and still skis, runs, cycles, works part time (because she enjoys it). My grandmother skiied till she was 80 and gardened long past that. They both need/needed a chair far less than I do. I have to have a lie down after a two minute shower.

I often comment how much more mobile my 87 year old grandmother is than me, I'm 44...sometimes its funny, sometimes I just want to cry, but then i think about all the amazing 'perks' we get, like all the good parking spots and all is again right with the world 🫠🫠 never lose your sense of humour, that what I say

est1980 · 21/08/2024 23:11

CassandraWebb · 21/08/2024 23:08

Grin

Exactly.

who needs MRIs and CT scans and blood tests etc when you can just "tell" from looking at someone how ill they are.

I'm telling you mate, she's going to revolutionaries the NHS in a matter of months.

CassandraWebb · 21/08/2024 23:11

est1980 · 21/08/2024 23:09

I often comment how much more mobile my 87 year old grandmother is than me, I'm 44...sometimes its funny, sometimes I just want to cry, but then i think about all the amazing 'perks' we get, like all the good parking spots and all is again right with the world 🫠🫠 never lose your sense of humour, that what I say

I went to a classical music concert at a time I was mainly bedbound (and before I had saved up for my electric wheelchair). I had to go straight through and sit in my chair whereas nearly all the audience (almost all of whom were well past pension age) were having a lovely time standing around chatting in the bar.

CassandraWebb · 21/08/2024 23:13

est1980 · 21/08/2024 23:11

I'm telling you mate, she's going to revolutionaries the NHS in a matter of months.

I'll tell my neurologist he can discharge me now because some member of the public took a fleeting glance at how I walk and decided I wasnt ill Grin
On the plus side it will mean I can stop taking the hideous immune suppressants that are making my hair fall out

penelopelady · 21/08/2024 23:17

Omg! This is so embarrassing you wrote this

"I’m very aware of hidden disabilities, but when someone is striding along then jumps into an accessible seat, I wonder why?

Elderly people, and those anyone else with mobility issues will have bus passes. Perhaps there should be some awareness raising so that those seats should be for people holding those passes? As we age, it’s fairly likely our mobility and our balance will be affected."

It shows you have zero understanding of hidden disability's, my sons can stride up, run up, bounce up to a chair but once a train or bus starts up they need to be seated because they can't balance and one has to cover his ears even with ear defenders on because of the sound of the breaks and wheels which I barely notice.

Disability is not just someone's ability to walk...

est1980 · 21/08/2024 23:24

CassandraWebb · 21/08/2024 23:13

I'll tell my neurologist he can discharge me now because some member of the public took a fleeting glance at how I walk and decided I wasnt ill Grin
On the plus side it will mean I can stop taking the hideous immune suppressants that are making my hair fall out

My immune suppressants don't make my hair fall out, but they do make it look like I have some sort of drug problem due to my constantly dripping and sniffy nose, im wondering if she could take a quick look at my back, because after 3 years of every scan and test they can think of, they still not sure what's wrong-if should could just have a quick gander and tell me i look fine, I can be rid of the small mountain of opioids I have to swallow everyday, that give me cotton mouth and constipation and don't actually help that much with the pain-its gonna be a good rest of 2024 for me I can feel it.🤣🫠🤦🏽‍♀️

Seymour5 · 21/08/2024 23:30

Obviously none of us can tell by a brief observation. My niece is not noticeably disabled, but has a condition that exhausts her after even a short walk. She has a Blue Badge and a Disability bus pass. I have to show my Disabled Railcard in order to get reduced train fares, why not something similar for those of us who really need accessible seating on buses and trams? Does everyone else believe that only those who genuinely need them sit in them?

CassandraWebb · 21/08/2024 23:33

est1980 · 21/08/2024 23:24

My immune suppressants don't make my hair fall out, but they do make it look like I have some sort of drug problem due to my constantly dripping and sniffy nose, im wondering if she could take a quick look at my back, because after 3 years of every scan and test they can think of, they still not sure what's wrong-if should could just have a quick gander and tell me i look fine, I can be rid of the small mountain of opioids I have to swallow everyday, that give me cotton mouth and constipation and don't actually help that much with the pain-its gonna be a good rest of 2024 for me I can feel it.🤣🫠🤦🏽‍♀️

It's exciting times isn't it Grin

I was previously on steroids which made me very large rapidly so I am weirdly glad that these meds "just" make me lose my hair as at least people don't see bald patches as a moral failing

CherryBlo · 22/08/2024 00:03

Nice to see my proof on the bus front being acknowledged (not)

Nsky62 · 22/08/2024 00:18

It’s tough when your disability varies, I can be ok, for x number of hrs, then not tomorrow, mid stage Parkinson’s is degenerative, nasty!
Frequently told i look well ,often I don’t feel it

CassandraWebb · 22/08/2024 00:28

Nsky62 · 22/08/2024 00:18

It’s tough when your disability varies, I can be ok, for x number of hrs, then not tomorrow, mid stage Parkinson’s is degenerative, nasty!
Frequently told i look well ,often I don’t feel it

Yes people assume that somehow means you are "less ill" but actually they only see you at the times you are at your best. The really ill bits are often when you are stuck at home.

My grandfather had Parkinson's, I really feel for you. As a grandchild I didn't realise for years as obviously we got the best bits of his time

est1980 · 22/08/2024 00:33

CassandraWebb · 22/08/2024 00:28

Yes people assume that somehow means you are "less ill" but actually they only see you at the times you are at your best. The really ill bits are often when you are stuck at home.

My grandfather had Parkinson's, I really feel for you. As a grandchild I didn't realise for years as obviously we got the best bits of his time

Yh it sucks sometime-thanks for the understanding. Sorry about your grandad 😒

est1980 · 22/08/2024 00:40

CassandraWebb · 21/08/2024 23:33

It's exciting times isn't it Grin

I was previously on steroids which made me very large rapidly so I am weirdly glad that these meds "just" make me lose my hair as at least people don't see bald patches as a moral failing

I think I've got a good enough idea of your personality by now to be able to 😂at this and know you'll take it as it meant.

I've just come down from 13 1/2 stone to just over 11, due to steroids, now it's just about time to go back on them...but still rather be fat and comfortable than think but in agony -themselves the breaks...

est1980 · 22/08/2024 00:41

CherryBlo · 22/08/2024 00:03

Nice to see my proof on the bus front being acknowledged (not)

Had a scroll around and can't seem to figure what this was in relation to. Sorry🤷🏽‍♀️

Whatjemimadid · 22/08/2024 01:00

14 years of Tories saying ppl with disabilities are a problem. Anti lockdowners painting the vulnerable as a pain in TA who we "had to lockdiown for".

It's the same for the elderly. My parents have both had cancer recently and both been disrespectfully treated as disposable and a pain again and again and again. Mum died last month as a result of the neglect. Humiliated by cruel night staff who mocked her and told her to wet herself in her final days.

I have a child with a disability too and have had experiences similar to the ones mentioned above.

Nobody cares anymore.

It's heartbreaking

CassandraWebb · 22/08/2024 01:04

est1980 · 22/08/2024 00:40

I think I've got a good enough idea of your personality by now to be able to 😂at this and know you'll take it as it meant.

I've just come down from 13 1/2 stone to just over 11, due to steroids, now it's just about time to go back on them...but still rather be fat and comfortable than think but in agony -themselves the breaks...

Totally Grin

And yes, it's not even a dilemma when you need a medicine, even if it does come with a side order of unsolicited diet advice from people who don't realise.

est1980 · 22/08/2024 01:09

Whatjemimadid · 22/08/2024 01:00

14 years of Tories saying ppl with disabilities are a problem. Anti lockdowners painting the vulnerable as a pain in TA who we "had to lockdiown for".

It's the same for the elderly. My parents have both had cancer recently and both been disrespectfully treated as disposable and a pain again and again and again. Mum died last month as a result of the neglect. Humiliated by cruel night staff who mocked her and told her to wet herself in her final days.

I have a child with a disability too and have had experiences similar to the ones mentioned above.

Nobody cares anymore.

It's heartbreaking

Lord, I dont even know what to say here. Apart from I'm so sorry you and you family have been through such a horrific ordeal. Sending my sympathies and love and Hope things improve for you very soon x

est1980 · 22/08/2024 01:13

CassandraWebb · 22/08/2024 01:04

Totally Grin

And yes, it's not even a dilemma when you need a medicine, even if it does come with a side order of unsolicited diet advice from people who don't realise.

People really need to do a total 180 on when they should be ignoring you and minding their own business, and when they should not pretent like they don't see someone needs help and be all up in their business offering support-it seems people have got it all twisted 🤔

est1980 · 22/08/2024 01:13

Whatjemimadid · 22/08/2024 01:00

14 years of Tories saying ppl with disabilities are a problem. Anti lockdowners painting the vulnerable as a pain in TA who we "had to lockdiown for".

It's the same for the elderly. My parents have both had cancer recently and both been disrespectfully treated as disposable and a pain again and again and again. Mum died last month as a result of the neglect. Humiliated by cruel night staff who mocked her and told her to wet herself in her final days.

I have a child with a disability too and have had experiences similar to the ones mentioned above.

Nobody cares anymore.

It's heartbreaking

I care x

CassandraWebb · 22/08/2024 01:18

Whatjemimadid · 22/08/2024 01:00

14 years of Tories saying ppl with disabilities are a problem. Anti lockdowners painting the vulnerable as a pain in TA who we "had to lockdiown for".

It's the same for the elderly. My parents have both had cancer recently and both been disrespectfully treated as disposable and a pain again and again and again. Mum died last month as a result of the neglect. Humiliated by cruel night staff who mocked her and told her to wet herself in her final days.

I have a child with a disability too and have had experiences similar to the ones mentioned above.

Nobody cares anymore.

It's heartbreaking

Wow, this is devastating to read x

MyPeppyTaupeFox · 22/08/2024 01:30

Undoubtably so and I think it started with the pandemic.

The one that sticks in my head was when I was walking (very slowly as I have arthritis that was flaring badly at the time) across a zebra crossing in a Tesco car park. As I did so, a young couple tried to walk diagonally across the crossing and had to wait for me. The young man said, "if I walked that slowly I'd shoot myself."

I was so shocked I didn't say anything but that's the general kind of attitude many people have. As if disabled people are just getting in their way by existing.

Guavafish1 · 22/08/2024 01:38

Most people help those with physical and obvious disability. I would too.

est1980 · 22/08/2024 01:40

MyPeppyTaupeFox · 22/08/2024 01:30

Undoubtably so and I think it started with the pandemic.

The one that sticks in my head was when I was walking (very slowly as I have arthritis that was flaring badly at the time) across a zebra crossing in a Tesco car park. As I did so, a young couple tried to walk diagonally across the crossing and had to wait for me. The young man said, "if I walked that slowly I'd shoot myself."

I was so shocked I didn't say anything but that's the general kind of attitude many people have. As if disabled people are just getting in their way by existing.

In future the only acceptable response are

"do it any way just for shits n giggles"

"Or
it's a shame making me feel small doesnt make your dick appear bigger"

And continue about you day 😌

JohnTheRevelator · 22/08/2024 01:44

CassandraWebb · 21/08/2024 23:13

I'll tell my neurologist he can discharge me now because some member of the public took a fleeting glance at how I walk and decided I wasnt ill Grin
On the plus side it will mean I can stop taking the hideous immune suppressants that are making my hair fall out

When I first because disabled (at the age of 30) I was regularly told "But you're too young to be disabled'. OK. So no one is EVER born with a disability? Bloody hell. Some people's ignorance knows no bounds. Even now,at the age of 60,I still see people who get on the bus or train and see me sitting in a disabled priority seat,give me a quick once over,just to make sure that,you know, I'm entitled to sit there. Got to know my place among all these able bodied beings.

est1980 · 22/08/2024 01:50

JohnTheRevelator · 22/08/2024 01:44

When I first because disabled (at the age of 30) I was regularly told "But you're too young to be disabled'. OK. So no one is EVER born with a disability? Bloody hell. Some people's ignorance knows no bounds. Even now,at the age of 60,I still see people who get on the bus or train and see me sitting in a disabled priority seat,give me a quick once over,just to make sure that,you know, I'm entitled to sit there. Got to know my place among all these able bodied beings.

Edited

I still get comments from friends and family when they firsr find out I have a blue badge, or they are with me so will get the same accomodations like q jumps -as it obviously some things have to apply to your whole group-phrases like 'bloody hell, how did you swing that' 'jammy bugger' ' you'll have to show me how to get one' honestly, you couldn't make it up. So if even the people who know me don't think I'm 'really THAT disabled' I don't expect much from total strangers