Not all disabled people get any benefits
As a homeowner and struggling to pay for it.
PIP high rate care is £108.55 per week
You may also get the motability element but lots nees to use it for an adapted vehicle, but ok say you use the money thats £75.75
If you are on a legacy benefit of contributions based ESA you get max £138.20, if you weren't on it before and are now assessed by UC and your partner earns over the threshold you get a reduced amount or none at all
As always its explained here repeatedly being disabled is expensive.
I have a disabled child and I'm a disabled parent.
In an assessment for carers I can have them come and give assistance to me, but they cannot touch my child. My needs mean I would get food prepared ie heated up meals, but only for me.
The carers can also come in for my child but they cannot touch me. This wouldn't work for him. His needs mean he doesn't need feeding.
We live too close to the school for school transport.
The system in place here doesn't do joined up thinking.
He did have funded childcare when he was younger as I couldn't safely look after him (I became disabled after he was born) but I also couldn't get care that would get both of us ready to get him to the childcare, so DH had to cut his hours to get DS ready reducing our household income even more.