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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be surprised and shocked that PIP is rewarded without official diagnosis?

139 replies

Borntrippy · 03/05/2024 14:06

Thanks to all the recent threads on the DLA/PIP controversy I’m now aware that you don’t need an official diagnosis for conditions such as anxiety, ADHD etc to receive PIP. Although you apparently have to show other evidence in your claim is anyone else surprised by this information?

OP posts:
peakygold · 03/05/2024 17:18

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K0OLA1D · 03/05/2024 17:18

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Fucking wow.

K0OLA1D · 03/05/2024 17:20

You know what. I hope some of the cretins on this thread bashing, actually one day need to claim DLA or PIP and they get turned down. Again and again. I really fucking do

x2boys · 03/05/2024 17:20

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Give it a go then you won't get anywhere 🙄

DickJagger · 03/05/2024 17:21

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You should be ashamed of yourself. This is an absolutely abhorrent comment.

LeopardsRockingham · 03/05/2024 17:30

It's disgusting here, I don't know why I keep reading the threads but i am pulled to them...amazed I suppose that there is still this level of hatred being poured upon a section of society and we are meant to sit back and take it as "the disableds" because we get free shit from Penny and Frank's hard earned tax money.....they went to university you know and have 3 'normal' children.

Penny hasn't had a devastating stroke yet....imagine they can happen to high flyers too, even those who are in their early 40s.
And then Frank had a breakdown because his beautiful wife wasn't the same woman. Pity as they looked down on him after that in the law firm.
Turned out DS1 wasn't just a wee bit highly strung and had ADHD which made his teen years hell
DD1 broke her leg really badly on a bouncy castle and it had to be amputated above the knee
DS2 was grand until he was 27 and he ended up having a seizure from nowhere and now has uncontrolled epilepsy.

But right now "Penny" tell me how much of a scumbag layabout I am.

* All of the above are true just luckily not the same unfortunate family

I got PIP before a diagnosis due to many many multiple hospital admissions, letters from consultants in many departments. I was finally diagnosed after 32 years (it's progressive so I wasn't always as disabled) with a rare disease 2 years ago but have been on benefits for longer.

I do have aids to make things possible ie a bath hoist but unfortunately this just gives you more points on your form as it proves how little you can do without help, not wow we've fixed the problem so off you fuck you're all better now you benefit scum.

It's repulsive on MN and it's still allowed by HQ

ArcticOwl · 03/05/2024 17:39

Borntrippy · 03/05/2024 14:38

I’m genuinely curious here. What type of evidence can you provide to show you can’t bathe? Wouldn’t that be very difficult to show unless you had a clear and visible physical disability?

It's not that you cannot bathe, what you have to evidence, and they do accept explanation, is how much help you need so you CAN bathe.

My DS (asd/adhd/dyspraxia) needs supervision while in the shower. he doesn't bath because he is terrified of water deeper than a few inches, thinks he'll drown. So he showers, but he has to be supervised, needs me on hand to help him in/out of the shower (in the bath, so has to step over the side) because he has awful balance, because of how he is about water, if his face gets wet, he panics, so i need to be there to hand him a towel, he forgets which is hot and cold, so i have to explain/remind when he adjusts the temp.
We have accessible bottles, his own shelf so he knows what is his stuff, grips so he can hold them...

When they ask for 'evidence' on those forms, its pages and pages of explaining why you can't do stuff, how your disability impacts your ability to do it, and what help you require from things or people... and that is for EVERY little thing. On the form i have to go into detail how each of this 3 conditions affect him during bathing/showering, the overall affect, and how i help him in each case.

Boomer55 · 03/05/2024 17:43

I worked for the DWP, I then did benefits advocacy, and I am disabled (physically).

I have never heard of a DLA/PIP/AA award without medical evidence.

Is this yet another disability wind up thread?🙄

AgnesXNitt · 03/05/2024 17:46

Borntrippy · 03/05/2024 14:34

As someone who has suffered from mental illness (ED and OCD) myself and has many family members who have serious illnesses and disabilities (BPD, Diabetes, Cancer, Arthritis etc) I car very much and think those in need absolutely need to be helped. Where I think it’s more of a grey area is ASD, ADHD, Anxiety etc although from what people are saying these milder disorders are unlikely to have enough evidence to pass a claim.

You do understand that people who consider Autism to be a "mild" disorder are typically the same people who think ED can be cured by just eating more, OCD can be cured by just not washing your hands so much, BPD doesn't really exist, Diabetes is caused by laziness and Arthritis is aches and pains? Strange how you consider the illnesses and disabilities which have affected you and your family to be serious and the ones affecting other people and their families to be mild.

For what it's worth my child is Autistic and had more than enough evidence to qualify for top rate DLA. The evidence was secured because of years and years and years of medical appointments, meetings with school, meetings with other professionals. The DLA is curently used to fund his many therapies and will be used in the future so that I can secure life long care for him.

HTH.

ArcticOwl · 03/05/2024 17:49

Borntrippy · 03/05/2024 14:46

Milder relative to other disabilities not mild in themselves necessarily. For example to be on the high functioning end Autism Spectrum (for example the old Aspergers) is certainly milder than someone struggling with non-verbal severe autism. So yes someone who has anxiety most likely is suffering from a milder condition than someone suffering from sever bipolar disorder or psychosis.

again, you have no idea.

As i said, my 17yo DS has ASD/ADHD/Dyspraxia, were you to sit in our house and listen to him talk to me about something interesting, you'd probably consider his conversation somewhat normal, he can laugh, talk about intelligent things, joke with me, and be a typical teenager.. however...

He doesn't talk to strangers, he goes mute. He can't prep his own food, he can't be left unsupervised outside the house because noise, crowds, unfamiliar places trigger meltdowns. he needs help to bath, to dress, to put his shoes on (can't tie laces)
He has to be reminded to eat, to take his ADHD meds, to go to the bathroom, he doesn't sleep, his room is a sensory haven of music and lights. He rarely leaves the house unless its for school/college (Special needs education)

This is not 'milder' autism just because he is verbal, it affects EVERY aspect of his daily life and he will NEVER be independent.
'milder' is how it impacts the people around him who interact with him, it isn't anything to do with how it impacts him, which is profoundly.

DickJagger · 03/05/2024 17:49

LeopardsRockingham · 03/05/2024 17:30

It's disgusting here, I don't know why I keep reading the threads but i am pulled to them...amazed I suppose that there is still this level of hatred being poured upon a section of society and we are meant to sit back and take it as "the disableds" because we get free shit from Penny and Frank's hard earned tax money.....they went to university you know and have 3 'normal' children.

Penny hasn't had a devastating stroke yet....imagine they can happen to high flyers too, even those who are in their early 40s.
And then Frank had a breakdown because his beautiful wife wasn't the same woman. Pity as they looked down on him after that in the law firm.
Turned out DS1 wasn't just a wee bit highly strung and had ADHD which made his teen years hell
DD1 broke her leg really badly on a bouncy castle and it had to be amputated above the knee
DS2 was grand until he was 27 and he ended up having a seizure from nowhere and now has uncontrolled epilepsy.

But right now "Penny" tell me how much of a scumbag layabout I am.

* All of the above are true just luckily not the same unfortunate family

I got PIP before a diagnosis due to many many multiple hospital admissions, letters from consultants in many departments. I was finally diagnosed after 32 years (it's progressive so I wasn't always as disabled) with a rare disease 2 years ago but have been on benefits for longer.

I do have aids to make things possible ie a bath hoist but unfortunately this just gives you more points on your form as it proves how little you can do without help, not wow we've fixed the problem so off you fuck you're all better now you benefit scum.

It's repulsive on MN and it's still allowed by HQ

I don't usually quote but this is worth quoting. Absolutely bang on.

All these smug idiots wanging on about their hard earned tax have NO clue what is around the next corner.

AgnesXNitt · 03/05/2024 17:52

Borntrippy · 03/05/2024 14:22

I’m a Labour voter and a Socialist so not in my case.

Course you are...🤣

Boomer55 · 03/05/2024 18:00

Borntrippy · 03/05/2024 15:01

Of course in any decent society such people should be helped. However determining that they are indeed to sick to ever have worked or will never be able to work again should be a thorough and rigorous process to ensure that those who are able to work do so. And many disabled people want to work but are not given adequate support to do so, this is another area that needs a lot of attention.

For about the the 50th time this week…..PIP is NOT an out of work benefit.

PIP is paid for the extra costs of disability, working or not.🙄

XenoBitch · 03/05/2024 18:05

YABVU
You clearly know nothing about PIP, but feel the need to start a thread about it that is little more than a dog whistle for all the benefit bashers and ableism.

I wont bother trying to explain it to you, as so many other posters already have so eloquently done, along with sharing their own very private and personal disabilities and stories.

SerendipityJane · 03/05/2024 18:08

Funny how people forget the state pension is a benefit on threads like this, isn't it ?

Boomer55 · 03/05/2024 18:13

SerendipityJane · 03/05/2024 18:08

Funny how people forget the state pension is a benefit on threads like this, isn't it ?

No, they get into pensioner bashing fairly swiftly lol

No one is safe lol 😉

K0OLA1D · 03/05/2024 18:16

@MNHQ why do you keep allowing this shit and these threads?

funinthesun19 · 03/05/2024 18:18

Needs can be there without diagnosis. People can be misdiagnosed as no diagnosis. Diagnosis isn’t the final deciding factor when deciding whether a person needs support.

If my 5 year old DD doesn’t get her diagnosis in these next coming weeks and gets a no diagnosis (been waiting a long time), her needs won’t magically POOF away. She will still need the support she currently gets, including financially.

XenoBitch · 03/05/2024 18:22

funinthesun19 · 03/05/2024 18:18

Needs can be there without diagnosis. People can be misdiagnosed as no diagnosis. Diagnosis isn’t the final deciding factor when deciding whether a person needs support.

If my 5 year old DD doesn’t get her diagnosis in these next coming weeks and gets a no diagnosis (been waiting a long time), her needs won’t magically POOF away. She will still need the support she currently gets, including financially.

Edited

Exactly!

I know a few people with FND, and it took years for all of them to get a diagnosis. They still suffered with the symptoms in the mean time, many of which are very disabling.

VerasChips · 03/05/2024 18:23

K0OLA1D · 03/05/2024 18:16

@MNHQ why do you keep allowing this shit and these threads?

I’ve been thinking that too- it’s SO clearly a campaign ahead of an expected election- there is a function to reporting posters as ‘not genuine’, wtf is the point in that if they are going to allow millions of these threads to stand.

DickJagger · 03/05/2024 18:30

It is driving traffic to the site.

If you bite back to these posters you get deleted for personal attacks, yet the threads keep on piling up. Must be generating those clicks.

VerasChips · 03/05/2024 18:31

DickJagger · 03/05/2024 18:30

It is driving traffic to the site.

If you bite back to these posters you get deleted for personal attacks, yet the threads keep on piling up. Must be generating those clicks.

Apparently the op has now deregistered from the site!

J97King · 03/05/2024 18:41

Pip is calculated on your ability to do certain things. They publish the list - have a look if you like. You can't just say you can't do them. They want to see evidence. You don't need a diagnosis as such but you definitely need supporting evidence.

DeeCeeCherry · 03/05/2024 19:01

What is this ominous sounding 'thorough and rigorous process' these dog-whistlers keep yapping on about? None of them have explained what sort of process they favour and how it could work at all. Inverted snobs tend to be ignorant af so perhaps they dont have the capability

K0OLA1D · 03/05/2024 19:06

VerasChips · 03/05/2024 18:31

Apparently the op has now deregistered from the site!

If that's the case, this thread needs deleting

Swipe left for the next trending thread