Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be terrified about PIP?

1000 replies

BobbyBiscuits · 29/04/2024 15:10

I've tried to blank all this out for ages, but today it hit me when the government basically are saying I'm going to (they want me to) have my PIP cut off?
My main illnesses are severe depressive disorder, general anxiety disorder and severe anorexia. I've severe PTSD symptoms and also think I may have ADHD but have not been able to get diagnosed due to phobia of MH services since I got sectioned.
I now have physical symptoms also and severe osteperosis which I put on my last forms. But had no assessment for several years.
I'm praying this is BS from the Tories and they can't do it anyway as they'll be kicked out.
Or could labour still continue this assault against disabled people?
It would halve my already tiny income, other half is from ESA, and they could kick me off that too even though I can't do anything!?

What do people think?

OP posts:
Thread gallery
13
WiseKhakiGoose · 29/04/2024 23:18

Pin0cchio · 29/04/2024 21:52

https://www.google.com/url?sa=t&source=web&rct=j&opi=89978449&url=researchbriefings.files.parliament.uk/documents/CBP-7540/CBP-7540.pdf&ved=2ahUKEwjG1pCcpuiFAxVOgf0HHTWSBCIQFnoECA8QBg&usg=AOvVaw2dwh5I63hrDQ7QSEbLPUsM

I was asked to verify the stat about 25-30% of working age population and disability. Sorry i should have been clearer about the stats, i was wrong, its 24%, but rising all the time.

Over 10m adults in the uk from 16-64 report a disability. Its 24% of the working age population.

I know not all those people will be on pip and many will work but doesn't it strike anyone as a bit nuts that we classify 1 in 4 people as "disabled".

From what is written in the CBP-7540:

"10.21 million people of working age 16-64 who reported they were disabled." I will actually question here, why do they count 16-18 years old? They should do their A-levels, not working! Same with the 18-24 years old - they should study and not work full time! Some degrees, like doctors require to study longer than up to 24 years old.

"5.53 million working age people in employment who reported they were disabled" - what the government wants from them? These people already work, they pay taxes like everyone else!

At the end we are left with 4.68 million people who are disabled and unemployed.

Based on CBP-9366: researchbriefings.files.parliament.uk/documents/CBP-9366/CBP-9366.pdf

32.98 million of people age +16 should be in employment.

They counted separately, 32.98 million people working age + 10.21 million people disabled = 43.19 millions people in total of working age. If we'll count 4.68 million disabled people not working from 43.19 millions that will be 10.83%. Far away from 25-30%.

They write 24% of the working population is 10.21 million disabled people in CBP-7540. In CBP- 9366 they write that 100% of working age people are 32.98 million. That means they counted separately disabled people and separately working population.

43.19 million people of working age +16 = 100%
32.98 million people of working age +16 = 76%
10.21 million disabled people of working age + 16= 24%

5.53 million disabled people in employment = 12.80% from 43.19 million of people
4.68 million disabled people not working = 10.83% from 43.19 million of people

Also, don't forget that 4.68 million disabled people who are currently unemployed are kids between 16-20 years, people who worked but for health reasons can't work at the moment for up to a year or two. They will go back to work. Is far away from 25-30%.

Based on gov.uk only 2.6 million disabled people receive PIP = 6% of total 43.19 million people of working age +16. I'm not sure what's all the talk about if at the end only 6% of the population are disabled enough to qualify for PIP and rest of the disabled people 7.61 million don't qualify for it and most of them work?

www.gov.uk/government/news/disability-benefits-system-to-be-overhauled-as-consultation-launched-on-personal-independence-payment--2

ThisOldThang · 29/04/2024 23:19

XenoBitch · 29/04/2024 23:12

Being able bodied is a temporary state. I really hope you never get to feel the need to claim PIP. Maybe then, you will see what a depressing and dehumanising process it is.

But, like others, I remember you. You think people claim PIP for "writers cramp" and are living it up on taxpayers money.

BTW, the info I provided was my DP having ASD. If you think you can judge whether he would get PIP or not based on a brief statement, then you can fucking stroll on..

First you said you wanted him to apply for a pip, despite there being no financial impact.

Then you told another poster that it didn't matter that there was no financial impact.

Then you said he'd get it because you need to remind him to 'self care'.

Now you're saying I'm wrong for wrong for judging whether he'd get pip.

You're certainly making sense.

PS: people are receiving pip for writer's cramp. 30% of applications are approved.

ThisOldThang · 29/04/2024 23:22

Daydreamer44 · 29/04/2024 23:14

Honestly you have no idea what people with disabilities go through. Many people with disabilities can’t wipe their own arses to the point there’s toilets now that actually do it for you. Can’t think why such an appliance was invented??

Edited

The Japanese have had that since the 1980's. They weren't invented for disabled people.

I'm sure there are plenty of physically disabled people that require help wiping their arses, but I just don't accept that anybody is 'too depressed' to wipe their arse.

Beddgelert · 29/04/2024 23:23

@Fresh1ndia I'm not in the Government so will not be answering that question. I presume they maybe thinking of using something similar to the UC portal to upload proof of costs relating to the disability.

It’s all guess work til we see the Green Paper. I sense a big change and Rwanda is just the beginning of sweeping reforms across the board.

XenoBitch · 29/04/2024 23:26

ThisOldThang · 29/04/2024 23:19

First you said you wanted him to apply for a pip, despite there being no financial impact.

Then you told another poster that it didn't matter that there was no financial impact.

Then you said he'd get it because you need to remind him to 'self care'.

Now you're saying I'm wrong for wrong for judging whether he'd get pip.

You're certainly making sense.

PS: people are receiving pip for writer's cramp. 30% of applications are approved.

I wish he would. He really struggles and would benefit from PIP so he could have a cleaner at the very least. Pretty much all the people I know on PIP use it to employ a cleaner.

Again, PIP is based on need, not finances otherwise it would be means tested... which it is not. The premise of PIP is that people with disabilities are not out of pocket for them, and are on an even keel with people that are not disabled.

Have a look at the PIP descriptors... being prompted for self care gets points.

I am saying you are wrong for judging whether he gets PIP or not based on the fact that 1 - you are not a PIP assessor, and 2- you don't have his medical information.

ilovesooty · 29/04/2024 23:28

XenoBitch · 29/04/2024 23:26

I wish he would. He really struggles and would benefit from PIP so he could have a cleaner at the very least. Pretty much all the people I know on PIP use it to employ a cleaner.

Again, PIP is based on need, not finances otherwise it would be means tested... which it is not. The premise of PIP is that people with disabilities are not out of pocket for them, and are on an even keel with people that are not disabled.

Have a look at the PIP descriptors... being prompted for self care gets points.

I am saying you are wrong for judging whether he gets PIP or not based on the fact that 1 - you are not a PIP assessor, and 2- you don't have his medical information.

You don't have to justify yourself to people like that @XenoBitch .

XenoBitch · 29/04/2024 23:29

ThisOldThang · 29/04/2024 23:22

The Japanese have had that since the 1980's. They weren't invented for disabled people.

I'm sure there are plenty of physically disabled people that require help wiping their arses, but I just don't accept that anybody is 'too depressed' to wipe their arse.

Look up catatonic depression. I have known a friend that had it. She would basically shit and piss her own bed because she was too depressed to get up and go to the loo. She would not eat or drink, and ended up in ICU severely malnourished with a bad brain infection.

My DP's father also had catatonic depression. Spent years in a care home, and ultimately died there. He could not look after himself at all. He had tried all meds under the sun, and multiple rounds of ECT.

jareeni · 29/04/2024 23:29

I get PIP at the enhanced rate and my DS does too, so these proposals could hit us severely. But I'm not overly anxious about it, I know they're unlikely to get in at the next election although there could still be reforms under Labour. It will take time for proposals to go through and I'll keep following the news for updates and papers. We've been getting disability benefits since the DLA days, and I'm quite confident at applications and renewals now.

We do get other financial support of various types, for supporting our disabilities, which operate on an expenses-based system. It's honestly a struggle to keep up with the admin and I often run out of time to submit receipts by the deadlines. Problems with organisation are a trait of my disability, and dealing with more admin and deadlines on top of caring duties and the daily experience of being disabled is a huge burden.

XenoBitch · 29/04/2024 23:31

ilovesooty · 29/04/2024 23:28

You don't have to justify yourself to people like that @XenoBitch .

Thanks. That poster pissed me off on another thread on the same topic. They think PIP is easy to get, and you can get it for having an achy wrist after writing an essay.
I should not engage with them, but they spout so much ignorance....

MistressoftheDarkSide · 29/04/2024 23:32

ThisOldThang · 29/04/2024 23:19

First you said you wanted him to apply for a pip, despite there being no financial impact.

Then you told another poster that it didn't matter that there was no financial impact.

Then you said he'd get it because you need to remind him to 'self care'.

Now you're saying I'm wrong for wrong for judging whether he'd get pip.

You're certainly making sense.

PS: people are receiving pip for writer's cramp. 30% of applications are approved.

Oh Lord, you and your writers cramp. You really are a stuck record.

It was explained in detail by someone who I believe had been an assessor, that writer's cramp is a descriptor or symptom of other conditions and that in isolation it dies not qualify.

Try again sweetie.

ThisOldThang · 29/04/2024 23:32

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

XenoBitch · 29/04/2024 23:34

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

I think you are taking the piss now.

MistressoftheDarkSide · 29/04/2024 23:34

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Erm. Untrue. Have recent experience of this with an elderly parent with delirium.

ilovesooty · 29/04/2024 23:40

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

More goading and ableism.

ThisOldThang · 29/04/2024 23:42

MistressoftheDarkSide · 29/04/2024 23:32

Oh Lord, you and your writers cramp. You really are a stuck record.

It was explained in detail by someone who I believe had been an assessor, that writer's cramp is a descriptor or symptom of other conditions and that in isolation it dies not qualify.

Try again sweetie.

If you'd actually been paying attention, it was another poster who first spotted writer's cramp in the list of pip illnesses.

Your friend, the assessor, stated that it was the prominent condition that got listed, but then tried to change tac claiming that writer's cramp might indeed be listed, but the underlying condition was almost certainly something more severe such as nerve damage.

It was then pointed out that if it were nerve damage, it would be listed under neuropathy.

Please do try to keep up sweetie. The grown-ups can't keep stopping to explain everything to you.

MistressoftheDarkSide · 29/04/2024 23:46

ThisOldThang · 29/04/2024 23:42

If you'd actually been paying attention, it was another poster who first spotted writer's cramp in the list of pip illnesses.

Your friend, the assessor, stated that it was the prominent condition that got listed, but then tried to change tac claiming that writer's cramp might indeed be listed, but the underlying condition was almost certainly something more severe such as nerve damage.

It was then pointed out that if it were nerve damage, it would be listed under neuropathy.

Please do try to keep up sweetie. The grown-ups can't keep stopping to explain everything to you.

You're the one going at that particular issue like a rabid dog with a bone.

Your mindset is entrenched and your gleeful predictions that people will be stripped of the very benefit that helps keep a good number employed is frankly bizarre.

Tell me - did you never get over receiving Malibu Barbie when you wanted Ballerina Barbie for Christmas?

Daydreamer44 · 29/04/2024 23:48

ThisOldThang · 29/04/2024 23:22

The Japanese have had that since the 1980's. They weren't invented for disabled people.

I'm sure there are plenty of physically disabled people that require help wiping their arses, but I just don't accept that anybody is 'too depressed' to wipe their arse.

But the poster didn’t say she can’t wipe her own arse because of depression. She stated her MH was fine until she had to disclose she couldn’t. We don’t know why she can’t and it’s none of our business. It demoralising when you have a disability and have to fight and share the most private things about yourself to get a little extra help to make life just abit more easier.

Underhisi · 29/04/2024 23:50

"If you are capable to going to the toilet, you can also wipe your arse while you're there."

Goady or ignorant. I wonder which.

Rosscameasdoody · 29/04/2024 23:59

Overthebow · 29/04/2024 15:42

There are people that will need to work and will have Pip stopped but there are other, probably like yourself, who really can’t work and will keep it. I quite like one of the ideas that is being debated that pip could be replaced by grants and money back for paying for care needs, pip was never supposed to be a benefit instead of working, it’s for additional care needs.

PIP has absolutely nothing to do with the ability to work. It’s a benefit which contributes to the cost of living with a disability. And it covers many aspects of daily living and mobility, not care. Many disabled people who claim PIP work and use motability vehicles to get them to and from work.

And grants for care needs is not under discussion. They are looking at replacing ongoing cash payments for some people with low needs with one off costs for aids and adaptations, and replacing cash payments for others with various treatment options.

I think it should be remembered that most claimants with permanent severe conditions and disabilities will not be affected as their ongoing need for support will be obvious. And just as obvious is the fact that the government knows that PIP is only a contribution to ongoing costs, which can be high. So if they attempt to assess the true cost of disability they know they will end up paying a lot more. So the result will be more tinkering at the edges rather than the wholesale reform they’re unashamedly proposing to attract more interest from disaffected Tory voters.

Rosscameasdoody · 30/04/2024 00:09

ThisOldThang · 29/04/2024 23:19

First you said you wanted him to apply for a pip, despite there being no financial impact.

Then you told another poster that it didn't matter that there was no financial impact.

Then you said he'd get it because you need to remind him to 'self care'.

Now you're saying I'm wrong for wrong for judging whether he'd get pip.

You're certainly making sense.

PS: people are receiving pip for writer's cramp. 30% of applications are approved.

I remember you too. I also remember explaining to you very clearly what writers’ cramp actually means when it comes to a PIP claim, and it’s not what you think it is, so why are you still banging on about it ? And 30% of how many applications ? You don’t know, because the statistics you pulled up weren’t meant to be used in the way you applied them. They didn’t specify how many claimants were actually claiming for the different conditions, only the percentage rate of successful claims. If ten people applied with writers cramp and three were successful, that would be 30%. Unless you know the numbers it’s meaningless.

WiseKhakiGoose · 30/04/2024 00:27

Pin0cchio · 29/04/2024 22:08

Where do we draw the line?

If more, and more and more people require financial support (whether to pay for costs associated with disability or to fund them living without employment) and less and less people are working to provide it, the maths does not work, you have too few people providing, the support gets spread too thinly. It's what is happening now. A tiny population of workers can't produce enough to financially support a huge group of non working disabled people.

It's only 6% of the population on PIP!
To be honest I'm amazed how the government manages to brainwash 94% of the population by telling them that the country economic problem is because 6% of the population with disabilities doesn't work! 🤦‍♀️

Rosscameasdoody · 30/04/2024 00:28

MistressoftheDarkSide · 29/04/2024 23:46

You're the one going at that particular issue like a rabid dog with a bone.

Your mindset is entrenched and your gleeful predictions that people will be stripped of the very benefit that helps keep a good number employed is frankly bizarre.

Tell me - did you never get over receiving Malibu Barbie when you wanted Ballerina Barbie for Christmas?

She’s talking about me. And l’m not an assessor, l was a benefit adviser and disability support worker. I’m very familiar with the statistics on PIP which she posted. Unfortunately they’re meaningless because they’re taken from samples of primary and secondary conditions listed on claim forms and don’t give actual claimant numbers - either for those applying or those successful. They only give the percentages of successful claims, so don’t prove anything.

And for the benefit of other contributors (and lurkers) here, writers cramp in the form it would qualify for PIP, is applicable to several conditions ranging from focal hand dystonia which can affect hand, arm and shoulder, to muscular conditions which cause spasms and often require surgery which can result in neuropathy. It can also be an indication of more serious forms of disease such as Parkinson’s. And again, the condition is taken from samples of claimant forms so may be listed as one of multiple conditions.

MistressoftheDarkSide · 30/04/2024 00:32

Rosscameasdoody · 30/04/2024 00:28

She’s talking about me. And l’m not an assessor, l was a benefit adviser and disability support worker. I’m very familiar with the statistics on PIP which she posted. Unfortunately they’re meaningless because they’re taken from samples of primary and secondary conditions listed on claim forms and don’t give actual claimant numbers - either for those applying or those successful. They only give the percentages of successful claims, so don’t prove anything.

And for the benefit of other contributors (and lurkers) here, writers cramp in the form it would qualify for PIP, is applicable to several conditions ranging from focal hand dystonia which can affect hand, arm and shoulder, to muscular conditions which cause spasms and often require surgery which can result in neuropathy. It can also be an indication of more serious forms of disease such as Parkinson’s. And again, the condition is taken from samples of claimant forms so may be listed as one of multiple conditions.

Thank you so much for coming on and clarifying and apologies for getting your role wrong.

And thank you also for your sterling work explaining things on the previous thread.

The poster in question has been incredibly unpleasant.

I wish you well.

Rosscameasdoody · 30/04/2024 00:33

WiseKhakiGoose · 30/04/2024 00:27

It's only 6% of the population on PIP!
To be honest I'm amazed how the government manages to brainwash 94% of the population by telling them that the country economic problem is because 6% of the population with disabilities doesn't work! 🤦‍♀️

It’s to brainwash the public into thinking that disability benefits are the root cause of all our ills and must be cut, when in actual fact the rate of fraud is very low and the bar for successful claims is set very high with PIP. The cuts are ideological rather than necessary, but you don’t get the public on side by admitting that. I wonder what the responses here would be if the government were aiming the cuts at child benefit and child care costs.

WiseKhakiGoose · 30/04/2024 00:36

WiseKhakiGoose · 30/04/2024 00:27

It's only 6% of the population on PIP!
To be honest I'm amazed how the government manages to brainwash 94% of the population by telling them that the country economic problem is because 6% of the population with disabilities doesn't work! 🤦‍♀️

Also, from those 6% who receive PIP, some of them are still working. I'm not sure what's the %, but the point is, there's less than 6% people who actually receive PIP and don't work at all!

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is not accepting new messages.