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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

For thinking that a child who is different isn’t necessarily neurodiverse

129 replies

Cleggin · 21/04/2024 15:25

Hi just hoping for some perspective.

My DH has severe anxiety, specifically health anxiety, and a tendency to worry to the point of fixation about his own health and that of our kids. I can’t count on both hands how many things he’s diagnosed himself or our children with. The latest is an obsession that our DS is autistic or neurodiverse in some way. I couldn’t disagree more and think that while he has some funny little quirks, he’s essentially a happy and healthy 6 year old.

The facts:

DS is doing ok at school. He’s on track for most of the things academically. Bit behind with writing but not worryingly so

Happy and excited to do new things and go to new places. He isn’t upset by routine changes or transitions etc

Likes playing with friends, going to parties, going on holiday etc. Embraces new experiences

No sensory issues of note

Eats pretty much everything, not fussy

Kind and empathetic (most of the time)

Enjoys jokes and being the class clown

Doesn’t meltdown or tantrum to any major extent

Enjoys school

DH concerns;

He can be very excitable - doesn’t take much to fill his cup.

He has a habit of running and jumping about, sometimes waving his arms about and sometimes throwing himself on the couch. It’s sometimes accompanied by explosion noises etc. He does it a lot at home and I think he does it more when tired or overstimulated. DH thinks he’s stimming whereas I think he’s just expressing his enjoyment/happiness and it feels nice to do it. Possibly helping him to process whatever he’s thinking about at the time

Quite often chats away to himself, sometimes singing, sometimes reenacting something from his favourite show etc. Sometimes just repeating a new or interesting word. Sometimes just whispering nonsense

Likes to make up silly words and names

He has a few close friends and isn’t that interested in branching out or making new friends instead preferring to stick with those he already has. School have noted this independently of us. They haven’t said it’s a concern but they did say they might put them in different classes next year

Can sometimes be a bit withdrawn/unsociable with some kids, especially those who are a bit full on. He has a hearing loss so noisy kids can be a bit too much for him at times. Which makes me laugh as he is so noisy and excitable himself but doesn’t embrace it in other kids. But when he’s with his best friend, he’s the loudest and silliest of the lot. So I think it’s a confidence thing, particularly considering the hearing issue

Occasionally he appears not to want make eye contact when someone is up close. I don’t think he has a problem with eye contact at all and think it’s normal for a 6 year old who is being told off and told to look at the person telling him off not to want to do so. I’d say as a general rule he makes great eye contact, even with people he doesn’t know all that well and with adults and kids. Sometimes I think he feels a bit uncomfortable when someone is in his face and asking him questions and he sometimes zones out a bit but I think that’s totally normal. DH disagrees

Please can someone help. I feel like it’s destroying our marriage and it’s damaging his relationship with our DS. He seems unable to relax and enjoy spending time with him without analyzing every little thing he does and attributing it to a self diagnosis of autism. I can’t seem to get through to him. He wants us to push for some kind of referral whereas I feel that would set a hare running that is completely unnecessary and potentially damaging to the well being of our happy and healthy child.

im planning to share the answers from this thread with him in an effort to help him
see things more clearly and in the hope it might encourage him to seek help for his overwhelming anxiety.

Everything I’ve written has been seen and agreed by him (apart from obviously my slant on it).

OP posts:
skipit8103 · 21/04/2024 15:27

surely the pair of you arrange to have a chat with his teacher to get her thoughts

skipit8103 · 21/04/2024 15:28

is your DH receiving any treatment for his diagnosis?

Cleggin · 21/04/2024 15:30

skipit8103 · 21/04/2024 15:27

surely the pair of you arrange to have a chat with his teacher to get her thoughts

We spoke to her at parents evening and aside from noting that he isn’t branching out as much socially as some of the other kids, she has no concerns

OP posts:
Cleggin · 21/04/2024 15:30

skipit8103 · 21/04/2024 15:28

is your DH receiving any treatment for his diagnosis?

No. But I am constantly trying to support him with getting help but he doesn’t see there is a problem

OP posts:
PTSDBarbiegirl · 21/04/2024 15:32

Is your DH neurodiverse, otherwise sounds like hyper fixation and anxiety. Does he suspect he needs his own assessment. Tbh I think there are so many neurodiverse people that in reality it's really more rare to be NT.

skipit8103 · 21/04/2024 15:33

Cleggin · 21/04/2024 15:30

We spoke to her at parents evening and aside from noting that he isn’t branching out as much socially as some of the other kids, she has no concerns

gets specific meeting sorted to discuss when she doesn’t have a. queue of parents wanting her

skipit8103 · 21/04/2024 15:33

Cleggin · 21/04/2024 15:30

No. But I am constantly trying to support him with getting help but he doesn’t see there is a problem

so you have diagnosed him? he doesn’t think he has anxiety and a professional hasn’t seen him?

NewmummyJ · 21/04/2024 15:34

Your son sounds delightful and I think you've hit the nail on the head, difference doesnt need diagnosis! In a society that is obsessed with pathologising almost anything that deviates slightly fom the norm, there is nothing wrong with embracing your son for exactly who he is. Sounds like a family therapist for your husband to explore his projecting of anxiety onto your son and getting this under control would be beneficial for your marriage and also your son.

Cleggin · 21/04/2024 15:35

I haven’t diagnosed anyone with anything but it is clear that DH is not coping with his thoughts and emotions in a clear and rational way, and in fact, his behaviour is becoming damaging to the rest of the family

OP posts:
skipit8103 · 21/04/2024 15:36

Cleggin · 21/04/2024 15:35

I haven’t diagnosed anyone with anything but it is clear that DH is not coping with his thoughts and emotions in a clear and rational way, and in fact, his behaviour is becoming damaging to the rest of the family

re read your opening sentence

skipit8103 · 21/04/2024 15:37

so the issue then is much bigger than just your DS?

IcyLilacPoet · 21/04/2024 15:37

I think if your son has a handful of nice friends it would be very unkind of school to split them up next year.

Cleggin · 21/04/2024 15:38

skipit8103 · 21/04/2024 15:36

re read your opening sentence

If you haven’t got anything useful to say, please leave this thread. With respect, I live with him and am experiencing first hand how his behaviour is impacting our family.

OP posts:
Chewitzzz · 21/04/2024 15:38

He sounds very like my dd presented at the same age and she has been diagnosed with autism and adhd- the voices, repetition, over excitability etc. There is no need for your husband to freak out as it isn’t a death sentence. However personally I would get it checked out. Both my ND dc plummeted dreadfully in the teen years starting secondary not knowing why. When they struggle it’s better going in with a diagnosis rather than sitting on a long waiting list for a diagnosis you need to adjust and get support. If he isn’t you won’t get a diagnosis.Nothing lost.

GuineaPigPosie · 21/04/2024 15:40

I'm a SENCo and autistic myself. There's nothing here that rings huge bells for me, but it's hard because I don't know your DS. Could you speak to his teacher outside of parents evening to get her opinion? I do think your DH needs some therapy or some kind because whilst autism isn't a damming diagnosis, it's only a matter of time before he begins to work himself up about something like cancer.

Could this be linked to your son's hearing loss in some way? Is your DH worried about that having an impact on him?

Whateveer · 21/04/2024 15:41

Your DH could be right. But first of all I would suggest he gets himself some help. Second of all a good chat with the teachers. If the teachers are not picking up on anything then there's likely no issue as they generally see these things where a diagnosis is needed.

Chewitzzz · 21/04/2024 15:41

The painter that said more people are NT is very wrong. Only 0.8% have autism in the Uk.

skipit8103 · 21/04/2024 15:44

Cleggin · 21/04/2024 15:38

If you haven’t got anything useful to say, please leave this thread. With respect, I live with him and am experiencing first hand how his behaviour is impacting our family.

yes

so your thread is about your DH really

Chewitzzz · 21/04/2024 15:44

GuineaPigPosie · 21/04/2024 15:40

I'm a SENCo and autistic myself. There's nothing here that rings huge bells for me, but it's hard because I don't know your DS. Could you speak to his teacher outside of parents evening to get her opinion? I do think your DH needs some therapy or some kind because whilst autism isn't a damming diagnosis, it's only a matter of time before he begins to work himself up about something like cancer.

Could this be linked to your son's hearing loss in some way? Is your DH worried about that having an impact on him?

Edited

There is masses there that rings bells, is the same and was listed on my DD’s report.My DD’s SENCO completely missed her adhd, autism and adhd. The nhs professionals who diagnosed her were shocked it had been missed but said it’s common. I’ve lost count of how many threads I’ve read re SENCOs missing ND.

Cleggin · 21/04/2024 15:47

skipit8103 · 21/04/2024 15:44

yes

so your thread is about your DH really

Why are you trying to pick holes in everything I say? I’m asking for opinions so that I can help my DH and so we can get help for our DS if needed

OP posts:
Annndwhyshouldicare · 21/04/2024 15:48

Do school have any concerns about your DS? That could be a good middle ground to start on. You and DH have a chat with teachers and let them know what's going on, see if they agree or disagree. Ask them to keep an eye on things that could be concerning.

Honestly from what you've said I think it sounds possible that your DH is right. I've got 3 boys, all autistic. You've basically described my oldest.

Chewitzzz · 21/04/2024 15:50

You just sound a bit fixed re your husband being wrong and judgemental to the point of diagnosing him when you are criticising him diagnosing your ds.I wonder if your dh is ND.( anxiety, fixation) It is often hereditary. But both of you should calm down. It’s just a bunch of traits and learning more about it could be hugely helpful in the long run.

Psychologymam · 21/04/2024 15:50

Cleggin · 21/04/2024 15:25

Hi just hoping for some perspective.

My DH has severe anxiety, specifically health anxiety, and a tendency to worry to the point of fixation about his own health and that of our kids. I can’t count on both hands how many things he’s diagnosed himself or our children with. The latest is an obsession that our DS is autistic or neurodiverse in some way. I couldn’t disagree more and think that while he has some funny little quirks, he’s essentially a happy and healthy 6 year old.

The facts:

DS is doing ok at school. He’s on track for most of the things academically. Bit behind with writing but not worryingly so

Happy and excited to do new things and go to new places. He isn’t upset by routine changes or transitions etc

Likes playing with friends, going to parties, going on holiday etc. Embraces new experiences

No sensory issues of note

Eats pretty much everything, not fussy

Kind and empathetic (most of the time)

Enjoys jokes and being the class clown

Doesn’t meltdown or tantrum to any major extent

Enjoys school

DH concerns;

He can be very excitable - doesn’t take much to fill his cup.

He has a habit of running and jumping about, sometimes waving his arms about and sometimes throwing himself on the couch. It’s sometimes accompanied by explosion noises etc. He does it a lot at home and I think he does it more when tired or overstimulated. DH thinks he’s stimming whereas I think he’s just expressing his enjoyment/happiness and it feels nice to do it. Possibly helping him to process whatever he’s thinking about at the time

Quite often chats away to himself, sometimes singing, sometimes reenacting something from his favourite show etc. Sometimes just repeating a new or interesting word. Sometimes just whispering nonsense

Likes to make up silly words and names

He has a few close friends and isn’t that interested in branching out or making new friends instead preferring to stick with those he already has. School have noted this independently of us. They haven’t said it’s a concern but they did say they might put them in different classes next year

Can sometimes be a bit withdrawn/unsociable with some kids, especially those who are a bit full on. He has a hearing loss so noisy kids can be a bit too much for him at times. Which makes me laugh as he is so noisy and excitable himself but doesn’t embrace it in other kids. But when he’s with his best friend, he’s the loudest and silliest of the lot. So I think it’s a confidence thing, particularly considering the hearing issue

Occasionally he appears not to want make eye contact when someone is up close. I don’t think he has a problem with eye contact at all and think it’s normal for a 6 year old who is being told off and told to look at the person telling him off not to want to do so. I’d say as a general rule he makes great eye contact, even with people he doesn’t know all that well and with adults and kids. Sometimes I think he feels a bit uncomfortable when someone is in his face and asking him questions and he sometimes zones out a bit but I think that’s totally normal. DH disagrees

Please can someone help. I feel like it’s destroying our marriage and it’s damaging his relationship with our DS. He seems unable to relax and enjoy spending time with him without analyzing every little thing he does and attributing it to a self diagnosis of autism. I can’t seem to get through to him. He wants us to push for some kind of referral whereas I feel that would set a hare running that is completely unnecessary and potentially damaging to the well being of our happy and healthy child.

im planning to share the answers from this thread with him in an effort to help him
see things more clearly and in the hope it might encourage him to seek help for his overwhelming anxiety.

Everything I’ve written has been seen and agreed by him (apart from obviously my slant on it).

clinical psychologist specialising in autism here - it’s difficult - some of what you say could fit with dx but not necessarily and you have other things going on that may explain it. You clearly have insight into why your husband may be over identifying but often times parents can ignore clear signs because they aren’t at the point of contemplating autism. Other issue is that if your son has traits but it isn’t impacting on life unduly, you may decide an assessment isn’t the route for you. No one will be able to tell you definitively over the internet, but If you can afford it, I’d seek out a once off exploratory session with psychologist specialising it autism - either they will advise you to take it further and you have that info, or they will dismiss concerns in which case your husband will have had the opportunity to be heard, ask questions but have a definitive answer that he doesn’t need to worry more. If you can’t afford it, it could be worth ringing your local CAMHS if they have a telephone advice line? Get a 15 min chat to see their perspective and again you and your husband can agree to follow their advice (so it’s not you against him all the time!)

skipit8103 · 21/04/2024 15:51

Chewitzzz · 21/04/2024 15:50

You just sound a bit fixed re your husband being wrong and judgemental to the point of diagnosing him when you are criticising him diagnosing your ds.I wonder if your dh is ND.( anxiety, fixation) It is often hereditary. But both of you should calm down. It’s just a bunch of traits and learning more about it could be hugely helpful in the long run.

agreed

TipsyKoala · 21/04/2024 15:53

Your DS sounds a lot like my DS. He’s happy and funny, doing well at school. He plays happily with other children but no close friends and is sometimes happy playing alone. He’s an introvert who needs time to himself sometimes. The stimming is part of this I believe. My DS runs up and down staring at a stick, making noises. I think the world is made for extroverts and lots of people don’t understand the nature of introverts.