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Share your dilemmas and get honest opinions from other Mumsnetters.

Terrified i'm dying!!!!

697 replies

Lostmymind11 · 16/02/2024 16:37

Sorry if this is on the wrong thread but i'm not sure where to put it

Nearly 2yrs ago i had surgery to remove a sarcoma (no treatment afterwards as not needed). My 6 month scan was clear and i had another scan 4wks ago to check if it had come back. The hospital have rang today and told me they had booked me in next Friday to see a member of the surgery team. I am abaolutely terrified and beside myself with worry. I am a single parent to a very young child who has no contact with dad due to domestic abuse. I barely have any family/friend support. If the cancer is back i really don't know what i will do. I feel physically ill

OP posts:
HesterRoon · 24/02/2024 08:16

I’m just a stranger on the internet but have read your very moving thread and wish to say please don’t give up hope. Chemo is really good these days and non surgical treatment can keep you going for longer than ever. We’ve got palliative patients who have been going years. All my very best wishes to you and your family. Treat yourself kindly. Buy that blanket. Go for that meal. Lean on your friends.xx

Rosscameasdoody · 24/02/2024 08:19

Barney16 · 16/02/2024 23:08

Ring your GP, they may well have had sight of the test results.

Sorry to say it, but the appointment next Friday will likely have come and gone by the time she gets to speak to her GP. Worth a try, although I don’t think hospital test results are routinely shared with GP’s unless they have ordered them. GP’s are usually contacted after the clinic appointment by letter, to advise outcomes and treatment plans.

Pacifybull · 24/02/2024 08:22

SofiaAmes · 24/02/2024 06:54

A friend of the family has a company that is doing clinical trials with a new treatment for liver cancer and they are having phenomenal results. I know there are trials ongoing in the USA. It may be worth looking into whether they have any in the uk. They are Eureka Therapeutics

But the OP doesn’t have liver cancer, though. She has cancer that has spread to her liver, which is very different.
OP, I’m so sorry to hear your news.

MrsPerfect12 · 24/02/2024 08:22

Wishing you all the best op. 💐

@5YearsLeft lovely post. Wishing you all the best too. 💐

Beanso · 24/02/2024 08:31

Sending hugs! Hopefully things will move quickly and there will be good treatment options. If you are feeling well then hopefully your little one will be a good distraction for you. Do you have any local charities or support groups that you can look into? I have one locally that has offered me mental health support, help with finances and signed me up to a support group for women in a similar situation

Lbet · 24/02/2024 08:45

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Some people just never stop to think what they are writing🙄

Goatymum · 24/02/2024 09:24

So sorry, OP. No advice, just sympathy. X

Betterbuckleupbarbara · 24/02/2024 09:27

Hi OP, sending you strength and calm.

Shityshitybangbang · 24/02/2024 09:27

This reply has been deleted

Quotes a deleted post.

SteamingTangerine · 24/02/2024 09:35

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

What a thing to say fgs.

Sending you strength and positivity OP. I wouldn't normally suggest alternative healing on threads as it's so divisive and controversial (for eg the problem with 'keep positive' being that people unable to see anything positive in their situation then blame themselves) but as you asked, I found the book Cured by Jeff Rediger really encouraging and helpful.

Totaldick · 24/02/2024 09:46

OP where in the country are you love, is there any practical support we can do for you, or even just meet up? The power of support from total strangers is immeasurable.

Munchyseeds2 · 24/02/2024 09:51

I'm so sorry you are going through this xx

fevertotell · 24/02/2024 09:55

I'm so very very sorry. This is awful. I don't have the words my lovely but know that we are all here for you. Sending unmumsnet love & hugs.

rainbowstardrops · 24/02/2024 09:57

I'm so sorry that it wasn't good news. Sending positive vibes @Lostmymind11** Flowers

PaintInColour · 24/02/2024 09:58

Lostmymind11 · 24/02/2024 07:53

@Roselilly36 do you know of any alternative wellness options?

OP look after yourself and stay as fit and healthy as you can. But please don’t spend lots of time and money on unevidenced ‘treatments’ which could have their own side effects and interactions with conventional medicines. Many companies and unscrupulous people prey on the vulnerable so do your own research. (Not suggesting anyone here is acting in bad faith).

Try and keep busy until you get the treatment plan. Would a call to a cancer/sarcoma charity be worthwhile?

Lassiata · 24/02/2024 09:58

It's so unfair that some people have to cope with stuff like this so young. I wish life was kinder.

Shityshitybangbang · 24/02/2024 10:04

Been thinking of you all night.sending you lots of caring and positive thoughts. Chemotherapy these days is fantastic and you’re in the best hands. Speaking as I’m dealing myself with cancer. The feeling of utter panic, anger, frustration. Iv been referred to a phycologist due to my fear of hospitals. Plus a word of warning, please don’t ask dr Google. Iv made this mistake myself. Sending you huge healing thoughts xx

anyolddinosaur · 24/02/2024 10:06

I'm so sorry, sometimes life sucks.

This is a charity that might help you achieve something of what you had planned for this year https://www.purpleheartwishes.org/request

Young children remember through the memories of those around them, through talking about pictures, through watching videos. You have time to make more memories. Record some messages now for later in life and maybe a letter for the summer after their 18th birthday about the domestic violence so they can know the full story when old enough to understand but not in the middle of exams. You hopefully feel well at present so lots of pictures and videos now of how mummy plays with your child, the songs you sing together. Write a letter about mummy's favourites things, your birth experience, what is was like to have a newborn. Talk about first milestones. If you have a daughter write your experiences of morning sickness, if you work about going back to work and finding childcare.

If you are told it is terminal look at information on benefits. You could look now as it may give you more feeling of being in control. https://www.nhs.uk/conditions/end-of-life-care/your-wellbeing/coping-financially/#:~:text=You%20may%20be%20able%20to,through%20the%20Turn2us%20grant%20search.

This is a support group for liver cancer https://britishlivertrust.org.uk/information-and-support/support-for-you/support-groups/ I know your cancer has spread to the liver but the treatment options are likely to be the same.

Complementary therapies can help you feel better. A healthy diet, maybe some massage, arnica if your treatment causes bruising - those can all help you cope with the treatment.

MzHz · 24/02/2024 10:52

Keep the faith @Lostmymind11 at least they know and they are planning out what they can do. We’re all thinking of you. Don’t lose hope.

SoSo99 · 24/02/2024 11:08

I'm so so sorry. No words, just wanted to send you a big, big hug xxxxx

Silvers11 · 24/02/2024 11:15

I am so, so sorry to read this OP. Thinking of you. The waiting is just awful and I feel for you ( I've been through the wait, although my results were eventually ok, but I remember feeling the way you do and it was dreadful).

Sending hugs

Silvers11 · 24/02/2024 11:16

@5YearsLeft So sorry to read your post too. Thinking of you also

Gaia2024 · 24/02/2024 11:35

So very sorry to read your post and thinking of you xx

SprinkleTheMunchiesDust · 24/02/2024 11:53

I'm so sorry to read your sad update OP.

I'm wishing you strength in facing this and I hope that surgery is possible for you xx

AgnesX · 24/02/2024 11:55

Apols, wrong thread