Terrified i'm dying!!!!

[Lostmymind11]

Sorry if this is on the wrong thread but i'm not sure where to put it

Nearly 2yrs ago i had surgery to remove a sarcoma (no treatment afterwards as not needed). My 6 month scan was clear and i had another scan 4wks ago to check if it had come back. The hospital have rang today and told me they had booked me in next Friday to see a member of the surgery team. I am abaolutely terrified and beside myself with worry. I am a single parent to a very young child who has no contact with dad due to domestic abuse. I barely have any family/friend support. If the cancer is back i really don't know what i will do. I feel physically ill

That's good news. I hope you continue to improve.

It's good news that the drain is gone and the pain is more manageable.

I hope every day has you feeling better and improving.

Strength and healing thoughts, always.

Just want you to know...

You're strong, brave, incredible and you've got this 💪🏼

That's great news! Rest up 😀 x

How are you doing x

Update - i'm so much better than i was last week. I've been off pain meds a week today since they removed the drain that was causing me issues. I've even managed little trips out which have done me the world of good. Mentally though i am living in fear and i can't seem to shake it. My surgeon told me there is a 50% chance of it coming back within 2yrs 😭😭😭 which it did after the first time it was removed so i'm guessing it will be the same again

Glad to hear you feel better. Will you get counselling to help you with the emotional side of it all?

That's good news. I can understand the fear though ❤️

That’s so hard, OP. I am very sorry to hear it.

Do you have any coping strategies? Could your GP refer you, or your surgeon? As a single mum in this situation I see you as worthy of priority but I know the NHS may not share that view. However there may be other option - cancer survivor networks, etc?
Again, very best wishes

My cancer nurse has sent me some information on a cancer charity that offers counselling and therapies etc so i'm going to give them a call and see if they can help me

So glad to hear this. I will be sending best wishes your way. Xx

Your odds begin again, there’s nothing to say that a distal recurrence has more change of another recurrence. Infact, as far as I know, there is less chance second time round. DH is now 7 years past a distal recurrence after 11 years. You do just have to find a way to live around the fear. None of us know when something might come along. Glad to hear you’re doing better now x

Well done OP; sounds as though you are through the worst, glad you are finding some happiness in trips out.

Your thoughts sound totally natural; what you have been through is very gruelling mentally, there are bound to be frightening thoughts about the future. Agree with the other posters; being able to talk through your fears and worries would be a big help for you I’m sure. Hopefully the resources are out there for you.

Keep on keeping on brave lady.

This

I can imagine the horrible fear. But you've beaten this and come through well. Focus on the positives as much as you can. It may not come back and even if it does who says you can't kick its ass again.

It is good news. Remember having a newborn and thinking you will never sleep again? Your just in that exhausted fog which can o ly get better

How are you doing OP?

@Banrion i am a little better than i was. I have referrred myself to a cancer charity so i can have someone to talk to. I have planned some things to look forward to in the next 3 months before i go back to hospital so i have some things to look forward to.

This is good news, OP. It is great that you have plans. Are you getting your energy back yet?

I know that sometimes the post op fatigue can last a long time

That's good @Lostmymind11 that you are feeling a little better. Also, having things to look forward to will make the time go quicker. Was wondering how things were going for you. Tak care x

Some days i feel like i have more energy than others but i've noticed if i over do it one day then the next day i'm exhausted and my body aches. Just trying to do a bit then making sure i get plenty of rest

I think this is expectable. I hope things are improving overall, if slowly. Best wishes to you and DS

@Lostmymind11 Thank you for the update. I've been following your story and think about you every day when I get on MN. I love that you are doing things and planning things to look forward to in the coming months.

Cheering you on from across the pond!

I know it's so hard but i'm delighted you're doing a bit better. And things really do seem more positive than they did when you started this thread so that's great. Best wishes x

Well done OP; sounds like you are making very positive steps at a very difficult time. I, too, love having things to look forward to, so good to boost your mood to have nice things to think about.
Take it easy where you can; anything that can be put on a back burner, do it! Hope you have a nice weekend.