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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Terrified i'm dying!!!!

697 replies

Lostmymind11 · 16/02/2024 16:37

Sorry if this is on the wrong thread but i'm not sure where to put it

Nearly 2yrs ago i had surgery to remove a sarcoma (no treatment afterwards as not needed). My 6 month scan was clear and i had another scan 4wks ago to check if it had come back. The hospital have rang today and told me they had booked me in next Friday to see a member of the surgery team. I am abaolutely terrified and beside myself with worry. I am a single parent to a very young child who has no contact with dad due to domestic abuse. I barely have any family/friend support. If the cancer is back i really don't know what i will do. I feel physically ill

OP posts:
Silvers11 · 28/03/2024 15:02

I hope you manage to enjoy your Easter break @Lostmymind11 and all goes well after the operation. Thinking of you

Shityshitybangbang · 29/03/2024 19:10

I know it’s scary, also trying to carry in being a mum. Like you I just want to run away or I wished I never went to my scan in the first place. Silly I know. I’m due to get an operation for a tumor in my chest in the next few months. Hopefully they can do it keyhole. This is my second major operation since August. I had colon cancer. This is unrelated. I feel sick thinking about it and panic a lot. Just to say I’m thinking of you and your in good hands. Xx

Shityshitybangbang · 29/03/2024 19:11

Oh and enjoy your wee break!

DyslexicPoster · 29/03/2024 19:43

@Shityshitybangbang so sorry to hear this. Life just seems so unfair sometimes. Do you have a date for your op?

Shityshitybangbang · 29/03/2024 21:26

DyslexicPoster · Today 19:43
Thank you. I saw the surgeon in January. He gave me the option, do nothing, and go on the watch and wait approach or come in for a complete resection of tumor. Since I’d just had major surgery and finished chemo for my colon I chose watch and wait for the time being. Had my last scan four weeks ago, with no change, next one end of may. But I’m not coping, the consultant thinks it’s a thymic cancer. Which has been there a long long time. These tumours are very slow growing. It was found at a routine scan after my colon cancer. I just keep telling myself if it was so bad, they would have me in theatre asap. But if there is no change in my next scan, I’m going to ask for the operation.

STST · 03/04/2024 14:05

Hi @Lostmymind11, just checking in, hope you had a nice trip away with your son and could take your mind off things a little.

Sending lots of hugs and a handhold for the pre-op tomorrow; hope it all goes well. Thinking of you every day.

poetryandwine · 03/04/2024 16:06

Best wishes tomorrow, OP

HazelBite · 03/04/2024 16:13

Hope all goes well tomorrow xx

PaintInColour · 03/04/2024 16:46

Sending hugs OP. Xxx

Acapulco12 · 03/04/2024 17:06

Wishing you all the best for tomorrow, OP. Will be thinking of you 🌺🌺❤️

Lostmymind11 · 03/04/2024 18:06

Thank you everyone! I'm glad things are moving but at the same time after tomorrow i will be waiting for my surgery date 😬

OP posts:
poetryandwine · 03/04/2024 19:19

Lostmymind11 · 03/04/2024 18:06

Thank you everyone! I'm glad things are moving but at the same time after tomorrow i will be waiting for my surgery date 😬

Hi, OP -

I know this is very scary but ultimately it is good news! Love and very best wishes

Needapadlockonmyfridge · 03/04/2024 20:23

I hope all goes well tomorrow, and that you get your op date very soon xx

mamabananaz · 03/04/2024 20:39

I wish you all the best for tomorrow and hope that surgery will follow very soon. Sending you good vibes. 🌹

Strugglebus · 03/04/2024 21:08

Sending loads of good thoughts your way x

Silvers11 · 03/04/2024 22:42

@Lostmymind11 - thinking about you tomorrow. Hope you get an actual surgery date very soon

Lostmymind11 · 04/04/2024 18:04

So i've had my pre op. Just a waiting game for an operation date now. But i am not having a good day today. I took my son to the fair earlier and went on the dodgems with him and now i've been having a meltdown all afternoon that i've spread the cancer around my body from the impact of the cars bumping

OP posts:
PaintInColour · 04/04/2024 18:10

Lostmymind11 · 04/04/2024 18:04

So i've had my pre op. Just a waiting game for an operation date now. But i am not having a good day today. I took my son to the fair earlier and went on the dodgems with him and now i've been having a meltdown all afternoon that i've spread the cancer around my body from the impact of the cars bumping

OP exercise is usually recommended in cancer. As it keeps the blood flowing to kill off tumour cells and boost your immune system. So having a few knocks to your body and muscles and that jerking your body around may have done you good!

Please don’t worry about that and focus on having given your son a great day. You are amazing x

Lostmymind11 · 04/04/2024 18:14

I hope you are right. I just feel so mad at myself, had to hide in the bathroom when we got home to have a little cry about it

OP posts:
CammyChameleon · 04/04/2024 18:14

I know it's so shit having cancer when you've got young kids and trying (and occasionally failing) to put the everything is fine mask on.

It's okay to hurt for you, rather than for your kids or your parents or your friends - whoever you're being brave for.

The bumper cars thing - I doubt it makes a difference. I have been trying to live my life as normally as possible, which may seem reckless to some, but "there's no guarantee on the treatment working even if you treat yourself like glass, so you might as well have fun" has been my view, though your mileage may vary.

poetryandwine · 04/04/2024 21:27

OP,

It is so easy for our minds to play tricks on us. Mine does it so easily. You have all my sympathy.

But whilst I know it may have been down to particulars, DH’s surgeon encouraged him to exercise as heavily as he could without feeling stressed, either in the sense of being gasping and red faced or in the sense of feeling burdened. So I began to read research articles about cancer and exercise.

The field is fairly new and you must be guided by your own doctors; everyone is unique. But a general principle seems to be that cancer cells don’t like oxygen, which exercise increases overall. There are numerous specific benefits of exercise for specific cancers. (You should not overdo exercise because cortisol release, from overdoing it, isn’t great).

You know the worry about the dodgems is intuition run amok, right? I would share it but it just doesn’t make sense. Much more likely that the lovely endorphins you released had some healing properties

STST · 05/04/2024 07:47

Well done OP, another difficult day got through, you did it.

Agree with PP’s; think that the dodgems are fine. Honestly if there were any issues at all with activity/bumps/exercise then the consultants would surely be very quick to tell their patients to avoid it at all costs (like they do with avoiding infections etc).

Can imagine the emotions/thoughts surrounding what you are going through every single day must be overwhelming at times. You are getting through it which is an awesome achievement; you’re stronger than you think. Sending courage.

anyolddinosaur · 05/04/2024 10:46

Getting outside in the fresh air, exercise, making memories with your son - these are all good for you but sometimes you just need to be irrational about something to stop other thoughts. A little cry is also good for you, we all need one sometimes. I hope you get the operation date soon.

Lostmymind11 · 11/04/2024 20:37

Hi everyone, i'm coming to the end of a lovely week away with my child but my god am i done in from all the walking haha still no news from the hospital regarding my op. I'm debating going back to work on Monday but really unsure

OP posts:
Silvers11 · 11/04/2024 21:06

Glad you had a good week away @Lostmymind11 with your child. I do hope you don't have to wait too long for the op. Still thinking about you