AIBU to be kicking up shit in the doctors?

[Lovelyjubbbly]

since 2021 I’ve been suffering stage 4 Endometriosis and a Endometrioma Cyst (chocolate cyst) last measured 6 months ago my cyst was sitting at 30CM.

I will include a couple of photos.
im on every medication that you could think of for pain relief.

This all started due to my section when I had my child the surgeon left tissue inside of my that was suppose to me taking away a trainee was also involved in this at this time.
( I didn’t sign anything for a trainee to be involved in my surgery) it was an emergency c section.

Now I am regularly at the doctors see my GP trying to have this sorted I know there is a waiting list but I am absolutely sick and tired of the NHS they are saying they are still working behind from covid patients in the gynaecology department for surgery.
now I’ve been on the waiting list for surgery since 2021 I called last week to the secretary of the surgeon that is doing the surgery and she told me I possible have another 76 WEEKS until surgery is due.

how can I possible deal with my life is turned up side down I no longer can do anything with my kids or have a life it’s completely destroyed me in every way.

Patient Advice And Liaison. They are the first point of contact for complaints and issues. You can start with a simple phone call asking about waiting times, and if your GP has already sent an 'expedite' letter (after your original referral) sometimes they can help with getting that actioned. They will talk you through the process, but stay calm with them.

@Catsonskis I was last seen 27th December 2022 with the gynaecologist in the hospital first proper appointment really.

I was seen around 6 weeks before that November 2022 that was at my local A&E for severe pain I popped up the see them they kept me in for few hours and wanted to give me a test for Pelvic inflammatory disease which the Swabs were taking in a&e but not sure why that was but they came back clear .

I am sorry op, this is awful. It doesn't sound right that you have to wait another 18 months after already waiting 3 years. Contacting PALS is definitely worth a try. I hope you find a resolution.

I genuinely would go to A&E and don't see how you have any other choice at this stage. You're a lot worse now than you were when last seen.

This is extraordinarily good advice

@Painalloverallthetime I’m at the GP about twice monthly at the moment sometimes 3 times depending how bad I am.

I just keep getting told the same thing from GP or they just up my dose of painkillers
at the moment I’m currently on:

Amitriptyline 40mg daily
ralvo patches 700mg every 12hrs
cocodomal 30/500 every 4 hrs
naproxen twice daily
sertraline depression due to this condition

its not even that no painkiller touches the edge of this I have no other choice the cocodomal can help the back and hip for couple hours but that’s about it

This is highly dangerous. The pain you must be in. I’d go and camp out in a and e - you can get ovarian torsion. Best wishes.

If it’s negligence - can you hire a solicitor.

Hi, I have endometriosis and have had two surgeries to remove it. My last surgery removed a chocolate cyst but I had no visible signs on the outside - I only had pain internally. My last surgery was back in 2014 and I’ve now been diagnosed with PCOS and am getting more endo pain - I take the mini pill continuously so I don’t have a period. Could you look at some options with the GP to manage your periods as this is the best way I find to help against the cramps and the pain. If I had periods I honestly don’t know how I would cope! I hope you manage to get a resolution soon!!

endometriosis is a horrible chronic condition with no cure the best we can do is manage the condition but without proper management the pain and impact this has on suffers is immense. You have my sympathies

@Moodicum i could get a lawyer yes.
but reading what some people have said about trainee can do surgery.

im pritty certain I didn’t sign anything for a trainee to do my surgery and my partner was there at all times he can remember like it was yesterday.

just don’t want to do it then turns out they are aloud to do it but I will look in to this with the lawyer.

when I went down my for my section there was around 7/8 nursery and surgeons there waiting

OP please do kick up shit, with the right channels (PALS / complaints team at the hospital - get a SAR in for your notes before doing this from both hospital and GP) it's totally unacceptable especially the wait time in Scotland for the endo centres of excellence. Fortunately I was able to be seen privately with DH medical insurance. I've got stage 4 endo and waiting to be operated on again as it's still on my bowel & bladder - previous consultant excised what he could to enable us to then have IVF but advised he would need a colorectal surgeon with him to deal with it fully which we would revisit around a year after birth of DD. I'm sure it'll end in a hysterectomy which I'm fine with as my pregnancy and post pregnancy have been horrible. Endo is horrendous and so debilitating. I am a shadow of my former self. 💖

@Mia5678 hi I hope your endo isn’t back as I know how you feel it really is horrific!

regarding the mini pill that was a option but due to my migraines that doctor couldn’t prescribe it he did prescribe me mefenamic acid though that did help for a short time.

the other option was the mirena coil but as explained they don’t want to insert it due to the swelling and bruises at the moment .

“This all started due to my section when I had my child the surgeon left tissue inside of my that was suppose to me taking away a trainee was also involved in this at this time.
( I didn’t sign anything for a trainee to be involved in my surgery) it was an emergency c section.”

I agree with everyone else that you need to speak with the hospital. Those who ask, do tend to get. Find out the name of the gynae consultants secretaries. Email them regularly asking about cancellations/waiting list times etc. It does look very painful and I really feel for you.

RE your c-section, what do you mean by they left tissue inside you, which then caused all of this?

It might be worth me pointing out that almost all doctors that are not consultants are considered ‘trainees’, even if they have been a Dr for years and years. There is no such thing as signing paperwork for a trainee to operate on you. The majority of c sections are done by so called trainees.

@Lotsie regarding you asking about what they left inside me that caused this .

well to start with it happened when they cut me open to perform the C-Section.

but as they were sewing me back up
my scar they sewed up tissue from when they opened me up it has been put in with the scar if that makes sense that’s why they diagnosed me with Scar Endometriosis.

im fairly sure when u have a section they cut through 6 layers of skin? And of course there’s tissue there.

I'd check again with GP re the POP mini pill as migraine isn't a contraindication for that like it is for the combined pill.

What is worse is how this varies from area to area . I know someone with very similar problems . And the option of hysterectomy could be happening very shortly .

I’ve suffered with migraines and that’s why I’m on the mini pill and not the combined pill. I was offered the coil after surgery but refused. I’m concerned the endo is back which is frustrating and I’m too on a waiting list for gynaecology.

I feel for you but I don’t understand why you’re having a go at your GPs surgery. What do you want them to do? Whip a scalpel out and do it in the waiting room???

I'm also reflecting on this. My DNiece has been experiencing pain since she had her DS 9 months ago. She was found to have 3 cysts & put on a list for surgical removal 3 months ago: her surgery was 4 weeks ago & has been very successful.

She's also Glasgow- albeit a few miles outside. Perhaps the 2 conditions are very different, but it just seems strange to be so nearby & have such different outcomes.

@HMW1906 if you have nothing nice to say then just don’t have anything to say at all!

have u read the full post? No ONE has had a go at any GP or anyone in that matter.

and no I don’t expect them to whip a scalpel out but I do expect them to be there for me when I go and see them regarding my mental health due to all this .

thanks for your input but it is invalid to me.

Yes I have and as I said I feel for you but what do you think you will achieve by ‘kicking up shit in the doctors’ (your exact words!)

So sorry to hear that you are having to go through this. I'm wondering too about going to a and e with your chronic pain. Your condition has deteriorated so much since you were last seen. I hope you get the help you need soon.

Gp is not at fault.
As this was a fault at the time of surgery they should have been quick to remedy the situation so you need to call the hospital and speaks to that conaultants secretary and say 76 weeks not gunna cut it when they are liable and it needs to be now.
Write a letter to PALS and CC Hospital Managment and departmental Management.

@Puffalicious was your neice waiting a long time to be seen? I’m just been taking the absolute pi*s out of I think

This is horrific. I wonder just how many men’s operations the NHS has prioritised over the OP’s.