@DelilahsHaven thanks for that. It's something I have a real beef about with schools.
I'm sick of being gaslighted by schools. They insinuate that it's lack of routine that causes anxiety and leads to school refusal. They also insinuate that it is therefore the fault of the parents.
I'm Autistic myself. I know how much routine means to me in everyday life. My daughter also needs routine and has OCD about it. Sadly, it's the school that doesn't give her that. Around every corner there is a 'surprise' in store. A new teacher or a substitute teacher who isn't aware of my DDs problems for example will throw my DD into a total spin. OK, some of this can't be helped, but it should be managed better.
I'd definitely argue that she has way more more routine at home. Sure as hell she has less noise and stress and isn't overwhelmed by people and voices everywhere.
A couple of months ago, they had an outside company come in to do a communication course with the kids. No advance warning to any of the kids or parents. The kids were made to stand up and give presentations. Total car crash. My DD has situational mutism and they bloody knew this.
At Christmas, the curriculum is all over the place. The school seem to think that the kids will love all these extra things they are doing. It will be fun for them. We'll not for my DD as it's all overwhelming and unknown. She went in one day expecting to do Computing and Music. Nope, it's been changed to an afternoon of crafts. Cue total meltdown once home. Because she was expecting her daily routine time-table.
I'm sure the schools think we parents are all feckless idiots that let them stay up till 3am for fun and have no meal times etc. I'm sick of the patronising communication and assumptions of it all.
They also try to get her to attend after school clubs. She can't as she's so overwhelmed by 5 days a week as it is. The last thing she can deal with is more expectation and more masking. I think they see me as holding her back. Creating an insular world for her. No, we've tried all the clubs, the parties and all the rest of it. It doesn't work for her and makes her ill.
They tried to make her attend the school swimming lessons (she can swim already I made sure of that with 1 to 1 lessons) but she had a bowel issue at the time. Severe constipation caused by sensory issues. She was having bad reactions with the movicol so she was scared she would shit herself in the pool, never mind the noise and 30 other kids on top of that worry. They just kept telling me she was missing out and I was stopping her mixing with other kids.
They give out attendance awards in assembly. She's never had one as shes disabled and has a load of health problems. It makes her feel like shit. They gave every kid in the class a certificate for walking or scooting to school one week. Except her. She didn't get one as shes disabled so it made her feel like shit. And then they tell you routine is good for kids. Mixing with other kids is the best thing for kids. These are SENCOs talking about disabled and Neurodivergent kids. They haven't got a fucking clue.
The lack of awareness never fails to amaze me. I'm the expert on my child, not them and one size doesn't fit all. Shaming and gaslighting parents just makes it all 100 times harder. But yeah, routine is good for kids.
Sorry for the rant. I've just made some notes for my next meeting with the school...