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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if anyone has found anything that works for Reynauds?

93 replies

startingfromtomorrow · 06/10/2023 14:31

I have horrible Reynauds in my fingers and toes every winter and with the weather getting colder it's going to be back soon.
I have hand warmers and gloves and thick socks etc but hoping someone has come up with a miracle?
So if any fellow Reynauds sufferers have found a way to ease the symptoms I'd gladly hear them.

OP posts:
AWanderingMinstrel · 06/10/2023 14:36

Both my friend and I take a piriton tablet every night before bed- has massively reduced reaction for both of us.

Cookiecuttercatastrophe · 06/10/2023 14:36

No, not other than the things you have mentioned, but I can sympathise! I get it really badly sometimes to the point where I can't use my fingers because they are so numb. Someone once suggested Cypress essential oil and I tried it, but it didn't help massively, just stank! It's very annoying. No one else in my family has it.

Fiddlesticks25 · 06/10/2023 14:37

Putting on weight helped me.

YachtMistress · 06/10/2023 14:37

Friend found cold water swimming transformational, I know, counter-intuitive

Hoardasurass · 06/10/2023 14:38

Silk gloves and socks

Startyabastard · 06/10/2023 14:39

Mumsnet itself helped me with this very issue.
I have severe Raynauds and the prescribed drug 'nifedipine' is brilliant for me.
I have no side effects apart from the odd cold flash and even then they are not as bad as my 'natural' temperature.
It makes my life so much better!!

DuploTrain · 06/10/2023 14:40

I heard something on the radio a few weeks ago about blood pressure medications that can be prescribed that help. They work by opening up all the little blood vessels.

nauticant · 06/10/2023 14:41

One thing I've noticed on cold Winter walks is that if I'm bundled up to be toasty in my body this means that my body doesn't feel the need to shut down the bloodflow to the extremities quite so much and so my hands don't get as chill. They're still somewhat chilly mind you.

Startyabastard · 06/10/2023 14:41

'Raynauds association' have a page on facebook.
They were somewhat useful but, as I said Mumsnet recommended it and my GP gave me the medication after a few short questions.

Startyabastard · 06/10/2023 14:42

DuploTrain · 06/10/2023 14:40

I heard something on the radio a few weeks ago about blood pressure medications that can be prescribed that help. They work by opening up all the little blood vessels.

Nifedipine is one of these drugs.

startingfromtomorrow · 06/10/2023 14:58

I will ask my GP about nifedipine then.
I last went to my GP about it about 30 years ago and was told there's no medication but maybe times have changed.

OP posts:
CrashBangWallow · 06/10/2023 15:02

My teenage ds has this but only when we have been on the beach all day. Does it get worse with age?

DiDonk · 06/10/2023 15:03

Ditto silk gloves or those thin under-mit ski gloves, even when not really cold outside. Thick lambskin gloves on top in winter.

USB pocket hand warmers also good if sitting outside, thankfully I don't get it much in my toes but you can get chemical warmers you stick to your socks in Decathlon which are nice.

If my fingers get cold then there's no heating them up until back in the house unfortunately.

givemushypeasachance · 06/10/2023 15:04

Ditto on the nifedipine - it's a blood pressure medication but it relieves symptoms for Raynaud's. I've had it for three years now, just take it on an ad hoc basis if I'm cycling to work or going for an early run in the winter as that's the main time I find it problematic. I don't even need to wear gloves then it's magic! https://www.sruk.co.uk/raynauds/raynauds-treatments/nifedipine/

Nifedipine | SRUK

If your symptoms fail to improve, you may be prescribed nifedipine. This is the only medicine licensed to treat Raynaud's phenomenon in the UK.

https://www.sruk.co.uk/raynauds/raynauds-treatments/nifedipine

Anyoldfuckingusername · 06/10/2023 15:13

I was advised to cut out caffeine as it’s a vasoconstrictor, which I guess tallies with the suggestions about blood pressure medication.

Cupofteaandcrackers · 06/10/2023 15:15

Dc has nifedipine and antihistamines. Takes both at night September to April. Has been transformational. Is under rheumatology and they said this was the best combination for most.

ChocAuVin · 06/10/2023 15:18

Following with interest — since developing raynauds a few years ago I’ve become horribly phobic about cold weather Sad

Like a PP I find if my core stays warm, my fingers will too. Will check out piriton and nifedipine!

WetBandits · 06/10/2023 15:19

I’m dreading the turn of the weather! I’ve never tried any medication for mine but I’ve got my gloves, socks and ear warmers at the ready (my ears get the worst of it, I spend the winter feeling like I’m wearing earmuffs made of lava!)

Moltenpink · 06/10/2023 15:23

Fiddlesticks25 · 06/10/2023 14:37

Putting on weight helped me.

And me

Gothambutnotahamster · 06/10/2023 15:23

I always wear hats when its slightly colder. I find if i keep my head & my core warm, then the reynauds isn't too bad. Gloves & socks don't work without the hat too.

dankfarrik · 06/10/2023 15:32

Sheepskin boots (and slippers) and fingerless gloves/wrist warmers. Work getting me my own heater was life changing though.

I was offered drugs but they said the side effects might be bad. I just got checks for necrosis instead (I don't have any thank god, but I'm really careful).

startingfromtomorrow · 06/10/2023 15:37

CrashBangWallow · 06/10/2023 15:02

My teenage ds has this but only when we have been on the beach all day. Does it get worse with age?

Mine did, I had it since I was child but it went away after pregnancy for a couple of years but then came back after my second pregnancy.

OP posts:
startingfromtomorrow · 06/10/2023 15:38

I've just been reading up on nifedipine and its side effects include bloating and weight gain. Has anyone who's taken it experienced this?

OP posts:
TigerRag · 06/10/2023 15:41

Startyabastard · 06/10/2023 14:39

Mumsnet itself helped me with this very issue.
I have severe Raynauds and the prescribed drug 'nifedipine' is brilliant for me.
I have no side effects apart from the odd cold flash and even then they are not as bad as my 'natural' temperature.
It makes my life so much better!!

I'm on this. It generally works but I'm finding my hands are too warm and my feet are too cold!

Not had issues with side effects. I did feel dizzy at first but it's worn off.

Frencis · 06/10/2023 15:44

I found Ginko helpful as its good for circulation

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