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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I’ve withdrawn from organ donation register

1000 replies

Purpledogcollar · 28/08/2023 22:04

I give blood and have always been very pro organ donation.

Sadly I have just withdrawn as protest against reproductive organ donation. I can’t support it and am very conflicted as would like to donate other organs.

What are your views and is it a hasty decision (although not sure I would change my mind).

OP posts:
Thread gallery
34
Username1107 · 29/08/2023 07:30

iloveeverykindofcat · 29/08/2023 07:25

YABU. I literally don't understand people who won't donate organs 'on principle'. Either you're a living donor in which case you fully and consciously consent, or you're dead, in which case.....you're not exactly using it????

I won't be using my uterus no. Not will anyone else.

Destiny123 · 29/08/2023 07:33

ratspeaker · 28/08/2023 22:12

Ummm
You can specify what organs you agree to be used.
One of my offspring is creeped out by use of eyes/cornea after death so has opted out on that score

Don't understand your stance on reproductive organ donation but that's your point of view and your choice but to deprive someone a kidney or heart/ lungs because of that seems odd

It's interesting. I'm a dr. I originally said take anything you want but not my eyes. Didn't like the idea. Got chatting to an organ donor nurse over coffee and you can apparently cure up to 4 people from total blindness from a single cornea so I changed my form to let them take it

PinkSparklyPussyCat · 29/08/2023 07:33

I would never tick all as I asked whether I would be notified if other organs were added at a later date and was told no, it was down to me to check. I'm happy to donate lungs, kidneys, heart etc. but not tissue and DH is aware of this. He is also aware of my feelings about transplants of reproductive organs, skin and limbs and would refuse.

One question, if I go back on the donor register and tick the organs I'm happy to donate, would they ask DH about the others, e.g. tissue, or only about those I've said I'll donate?

Heyheyitsanotherday · 29/08/2023 07:34

take it you’re the op?
You’re massively making a point and you know you are! Otherwise why post it on a forum?! That or you didn’t read my full post. If you don’t want to donate your reproductive organs (which I’ve said is extremely unlikely you’d be in the right hospital or be suitable!) you can opt out of that. Just tell your family. They make the decisions on what is donated.
Sincerely hope that if you need an organ you will decline. You are FAR more likely to be in the situation you’ll need an organ your self than be able to donate. But I’m sure if push comes to shove you’d be begging for some one else’s family to consent if you or a loved one needed one.

Epidote · 29/08/2023 07:34

I'm not an organ donor anyway.
That will be a last decision my family will do on my last day and it will depend of my death causes.

I can't plan ahead that kind of stuff and no I'm not thinking in dying young enough so thankfully my organs won't be of use to anybody.

Username1107 · 29/08/2023 07:35

what's with all the name calling here? Do you really think calling women with a different opinion ridiculous, pathetic, crass, transphobic, adds anything to the discussion, apart from provide an online outlet for your rage? Some people really need to step away from the keyboard and work on that anger management.

tuvamoodyson · 29/08/2023 07:36

foolishone · 28/08/2023 23:16

I don't believe they would refuse.

Or to refuse on behalf of their child because it would still be hypocritical…wouldn’t it?🤔

PurpleBugz · 29/08/2023 07:37

Tacocatgoatcheesepizza · 28/08/2023 22:26

Reproductive organs are not yet covered by the organ donation programme - they require specific and separate consent.

If my womb or uterus could go to a woman who was unable to have children I would be more than happy with that. I can understand the concern about transplants to men but we are nowhere near that, I can’t imagine a situation anytime soon where the NHS are going to be performing that kind of operation as if it was a kidney transplant. From what I’ve read it seems highly unlikely this will ever be a thing, let alone a big thing. Seriously, what do you think the chances are of you dying and a man getting your womb? And I genuinely don’t understand why anyone would have an issue with it going to a woman.

I can’t understand why anyone who was previously willing to save lives by donation organs would decide to take that away on this basis. And I do certainly hope that if you decide to leave the organ donation register that equally you would refuse to accept an organ if you needed it.

I have no doubt that should transplants involving reproductive organs ever become common place there will be a way to opt out of donating them just like there is now for other body parts.

You say you are happy for your uterus to go to a woman but the NHS goes by gender not biological sex. So biological males who say they are women are women. Saying not for a man won't stop it if things continue this way

Username1107 · 29/08/2023 07:39

Heyheyitsanotherday · 29/08/2023 07:34

take it you’re the op?
You’re massively making a point and you know you are! Otherwise why post it on a forum?! That or you didn’t read my full post. If you don’t want to donate your reproductive organs (which I’ve said is extremely unlikely you’d be in the right hospital or be suitable!) you can opt out of that. Just tell your family. They make the decisions on what is donated.
Sincerely hope that if you need an organ you will decline. You are FAR more likely to be in the situation you’ll need an organ your self than be able to donate. But I’m sure if push comes to shove you’d be begging for some one else’s family to consent if you or a loved one needed one.

I'm not the op. There's more than one person here with the same opinion as the op. I'm making a point just like you are. Obviously you haven't read my posts despite accusing me of not reading yours. Because I've already answered those questions.
Anyway I'm bowing out now. I don't want to spend my morning arguing with people about my uterus and what happens to it when I die. That decision has already been made.
Enjoy the rest of your day.

Heyheyitsanotherday · 29/08/2023 07:39

PinkSparklyPussyCat · 29/08/2023 07:33

I would never tick all as I asked whether I would be notified if other organs were added at a later date and was told no, it was down to me to check. I'm happy to donate lungs, kidneys, heart etc. but not tissue and DH is aware of this. He is also aware of my feelings about transplants of reproductive organs, skin and limbs and would refuse.

One question, if I go back on the donor register and tick the organs I'm happy to donate, would they ask DH about the others, e.g. tissue, or only about those I've said I'll donate?

So the specialist nurse in organ donation (Snod) has access to the organ donation register and can see what you chose. This would be discussed with your husband during consent but for example they would say “pinksparklypussycat” chose not to donate her eyes and skin etc therefore I will put decline. Just so it’s clear and your husband doesn’t go home worrying later that eyes weren’t mentioned and what if they’re taken. Information is very clear.
we go with the decision on the organ donation register unless nok can say otherwise.
I once took consent for a gorgeous family whose sister had opted out of heart donation. They’d never discussed it and he didn’t understand why. He really wanted his sister to donate her heart but as they’d never spoken about it we have to decline on her last known decision.
telling your next of kin exactly what you want is the most important thing to do. Even if you opt in for every organ and tissue family’s can override this and say no. Make your wish known 💕

SirWalterElliot · 29/08/2023 07:39

YANBU because your body, your choice.

YABU to whip up a storm over something which isn't even currently an issue. In the UK reproductive organs aren't featured on the organ donor list, and you can opt out of specific organs anyway. Seems that if someone is generally keen to donate organs then this would be the way to go.

Basically, you do you, but it feels like your method is using a sledgehammer to crack a nut.

BHRK · 29/08/2023 07:42

if my organs can help anyone at all, they can have them. What a wonderful world we live in to be able to save and enhance other people’s lives in this way.

Spendonsend · 29/08/2023 07:43

Its your body and you can do what you like but I dont agree with you.

First these arent routine yet so your current position is i dont want someone to have some lungs, kidneys, heart etc now because in the future someone else might get a womb, even though I could express my wishes to relatives and an opt out would be introduced if womb transplants were happening a lot anyway.

Second, when a person gives blood for instance, that blood could go to a person committing a violent crime who also got injured, or to a domestic violence perpetrator or anyone really. They dont just give it to people i approve of. Its sort of one of the principles of healthcare to treat who ever is there.

Goslowglowworm · 29/08/2023 07:50

I absolutely cannot get my head around all the "my body my choice" arguments on here. I mean sure, of course it's your choice but why? You don't need it any more because you're dead. And honestly I really hope all those saying they wouldn't donate wouldn't accept an organ from someone else either. I really bet you would though wouldn't you? How about for your child?
The selfishness is awful.

Desecratedcoconut · 29/08/2023 07:56

I do think this will be the inevitable outcome after a decade of watching the nhs erode their trust capital with women as they diminish their sex to parts - womb havers, chest feeders - and make invisible their specificity - pregnant people, etc. Telling women that they should avoid the evidence of their own eyes and accept men with dysphoria on their single sex ward when they are at their most vulnerable, that they should accept intimate care from a man who claims to be a woman having asked for single sex care, and a raft of other changes of a similar ilk has consequences.

The contempt for women is laid bare in a thousand different twists of language and policy. So of course those who feel betrayed expect that there will come another nudge or expansion of language to coerce or trick them into behaving in a way deemed correct and acceptable - even in death.

But of course, it's easier to lay the blame at the feet of women who insure themselves against this manipulation by withdrawing consent in a wholesale fashion. Much easier to do that than recognise that this mistrust was achieved in inches over years of gaslighting.

NCforthistooo · 29/08/2023 07:56

The scientists have done nothing but help infertile women.

But that simply isn’t true, is it @BillaBongGirl? If it were, then this thread wouldn’t have been created.

Vladandnikki · 29/08/2023 07:58

Uterine transplant is classed as “novel” and so is not covered by the UK organ donor register; a womb would not be removed for donation from a deceased woman without the explicit consent of her family.

Gothambutnotahamster · 29/08/2023 08:01

Desecratedcoconut · 29/08/2023 07:56

I do think this will be the inevitable outcome after a decade of watching the nhs erode their trust capital with women as they diminish their sex to parts - womb havers, chest feeders - and make invisible their specificity - pregnant people, etc. Telling women that they should avoid the evidence of their own eyes and accept men with dysphoria on their single sex ward when they are at their most vulnerable, that they should accept intimate care from a man who claims to be a woman having asked for single sex care, and a raft of other changes of a similar ilk has consequences.

The contempt for women is laid bare in a thousand different twists of language and policy. So of course those who feel betrayed expect that there will come another nudge or expansion of language to coerce or trick them into behaving in a way deemed correct and acceptable - even in death.

But of course, it's easier to lay the blame at the feet of women who insure themselves against this manipulation by withdrawing consent in a wholesale fashion. Much easier to do that than recognise that this mistrust was achieved in inches over years of gaslighting.

Thank you - you've articulated this much better than i could.

Notellinganyone · 29/08/2023 08:04

All this ridiculous hysteria has at least prompted me to opt in fully. OP you are being an idiot.

Parker231 · 29/08/2023 08:06

Username1107 · 29/08/2023 07:09

We're rapidly charging towards that point. And there has already been uterine transplants for women. I don't want any of my tissue / body parts to form any part of that experimentation / ultimate outcome.

My body, my choice. You / others don't get to decide that with the crass petty slurs and name calling.

If you want to donate, then you go ahead and make the choice for yourself, and yourself alone.

Would you decline an organ transplant if you required one?

DZbornak · 29/08/2023 08:08

@Desecratedcoconut
Absolutely perfect summary. Thank you.

Exasperatednow · 29/08/2023 08:10

I'm presuming all those that opt out on principle (especially those that changed when it became opt out rather than opt in) would also not receive any organs on principle.

saraclara · 29/08/2023 08:11

Username1107 · 29/08/2023 06:00

Once there is an option to specifically opt out of this, then I will go back on the register. Otherwise it won't be happening.

As has been said on this thread over and over again, you are already opted out of donating your uterus. Everyone is. It is not on the list of organs that can be donated through the scheme. It would require an entirely different permission protocol, along with other body parts.

SuperNewMe · 29/08/2023 08:13

Spendonsend · 29/08/2023 07:43

Its your body and you can do what you like but I dont agree with you.

First these arent routine yet so your current position is i dont want someone to have some lungs, kidneys, heart etc now because in the future someone else might get a womb, even though I could express my wishes to relatives and an opt out would be introduced if womb transplants were happening a lot anyway.

Second, when a person gives blood for instance, that blood could go to a person committing a violent crime who also got injured, or to a domestic violence perpetrator or anyone really. They dont just give it to people i approve of. Its sort of one of the principles of healthcare to treat who ever is there.

Well said, you've articulated how I feel about it too

cakeorwine · 29/08/2023 08:13

So to summarise:

The first womb transplant has been done enabling women who could benefit from a womb transplant the chance to give birth.

Some trans women have said that they would love to have this in the future - which is something trans women would say.

You can say what organs you can donate - and womb transplants aren't on that list at all yet because this is still at the experimental stage.

The NHS is a cash strapped and under resourced organisation.

Very few transwomen under go gender reassignment surgery in the UK.

You would need a womb transplant and then rounds of expensive IVF to get pregnant if you were a biological female. God knows how it would work on the NHS if you were a biological male.

Transplants save many lives in the UK

There are many people on the NHS waiting list for a transplant.

But people have taken themselves off the list because there is a theoretical chance that a cash strapped NHS will have the resources and also the clinical need to transplant your womb into a transwomen, most of whom don't have surgery anyway, then the transwoman has rounds of IVF, then the surgeon removes the womb after a few years anyway.

Is that a reasonable summary?

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