Heavy rectal bleeding and tummy pain - pics in comments (TMI)

[bleedingbum]

I have Crohn’s disease with previous bowel surgery

I’ve been in a flare up for months with high inflammation

this past week I’ve been bleeding every day quite heavily, dark blood

my stomach is really hurting, have taken pain killers but not helping

saw doctor today, I’ve been fobbed off by the hospital so many times and explained that to her. She said my heart rate is very high and that im ‘teetering on the edge’ of things becoming bad, but that i could wait to see how it goes over the weekend but if I feel myself getting any worse go to the hospital, she has done an urgent referral to gastro & IBD team

pain is horrible, can’t get myself to the hospital as toddler is asleep and don’t want to disturb him.

asked my mum for advice and she is telling me the hospital will do nothing I’m just in a flare, I’ll be sitting there ages and there’s no point (she’s made me feel like im being over the top)

I’ve attached pictures of what’s going on. Just wondering if there’s anyone on here with IBD that could advise? Or anyone who’s been in this situation?

don’t want to waste time & I am in a flare but this feels different

if you’re squeamish don’t look!

Do you have an appointment for the scopes?

If you cant manage your pain at home you'll have to go back, dont put your body under all that stress

Endoscopy would be within working hours from Monday anyway except for pts who need specific interventions/ are unstable

No they didn’t send me home with any pain relief nor give me a date, I was told to call on Monday morning

Did you self discharge OP?

No I asked if i could if they couldn’t do anything until the week, and he agreed on the basis we have a scope this coming week

Oh OP

I totally understand you wanting to go home btw but if you dont feel as though you can hold on until tomorrow morning then please go back in tonight

Bless you x

I think you should go back. I'd be worried about being pushed to the end of the queue for the scopes if you're not an inpatient.

And you clearly need pain relief.

And they can check for dehydration etx and put you on a drip if necessary.

Sorry OP, I know it's miserable in hospital (I've just escaped myself!) but I really don't think you should be at home.

I'd definitely go back so that you get seen quicker.

Sorry to hear that, really bad luck. Can they give you an appointment for the scopes?

Sorry, thought i had read all your updates OP.

Can you go no contact with your mum for a while? She doesn't sound like she has your back at all and that won't help your health.

Hi OP that's sounds fine, they would have made you sign against advice if they really weren't happy.
But if you feel more unwell go back to OOH/ 111 / AE
Have you got to call the ward or endoscopy unit?

Hi OP,

I posted a very similar post last week, even the photo was the same!

I was able to get hold of my IBD nurse. She's prescribed me a rectal steroid enema alongside my usual meds. Also had stool sample and bloods taken.

She said if you're bleeding heavily for more than a few days at a time then you do need further investigation which it sounds like you're getting. My bleeding lasts 2-4 days before it stops then starts again a few days later.

It's exhausting and worrying. You have my love, sympathy and best wishes.

This is what I'm dealing with. You are not alone!

If you are still in lots of pain @bleedingbum go back to A&E

Can you call the ward you were on whilst admitted and see if there is a bed? Or what the process would be to come back? Maybe they will suggest an alternative route besides A&E.

I'm dying to know what your mum thinks!? Is she eating her words now?

I was admitted again last night and am now on a gastro ward, consultants are coming to see me tomorrow morning to discuss investigations as I was moved to this ward too late in the day to see them but have got pain relief for now. At least I’m back in the system.

mum knows I’ve been in since yesterday. Partner has been in to see me. Haven’t heard from her & she hasn’t asked about me either

Glad you're back in hospital to get the level of help that you need. Dont leave now until you're diagnosed, have a care plan and pain under control. Take care and keep us posted

Hope you get some answers soon 💐

Just try to out all thoughts of your mother out of your mind now, and focus on you.

If you keep on thinking about her and wondering how she's reacting to this health crisis of yours, you're giving her headspace she doesn't deserve, and sucking energy you don't have for her.

Deal with her when all of this is over. Focus on what you do have - a DP who supports you and hopefully doctors who will get to the bottom of this.

I'm glad you are back in and being looked after. Try not to think about your mum and focus on yourself. I'm sorry you're going through this

Hi op.

I feel that hospital is the best place for you to be right now, until you get this sorted or at least investigated.
Don't feel under pressure to return home until you are ready, you have to look after yourself too.
Take care

Still in hospital investigations ongoing. My mum hasn’t bothered to ask how I am. Although she did text to tell me my DS was upset because she agreed to look after him for an hour while my partner visited (he had come to see me that morning with my DS) and DS didn’t want to go to her and wanted to be with DP. When I messaged back to say he was struggling that I wasn’t there and had been completely fine and happy when visiting me earlier, she proceeded to say he’s not happy, it’s nothing to do with me, he only wants my DP. Don’t know why I bother

Honestly, ignore her. She sounds an absolute nightmare. Concentrate on you and your family. Reduce your stress levels as much as you can.

Your mum is behaving like this because the doctors have proven her to be in the wrong, and she doesn't like it.

My dad was a hideous narc, and in the end I went totally nc with him. It was hard, but made life so much easier and pleasant at the same time.
So ignore everything she is saying and concentrate on yourself, your DP and DC, and use your energy to deal with your situation with your health.

Sending you healing thoughts and get well hugs my lovely.