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AIBU?

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To be done with autism

1000 replies

stargirl1701 · 11/07/2023 13:54

I'm done with it.

DD1 is autistic. She is nearly 11, diagnosed at 5. We have made numerous adjustments at home. School have made numerous adjustments. All to no avail.

She swore and kicked her little sister yesterday. Immediate consequence no screens for 24 hours and sent to her room. Of course, meltdown. 2 HOURS later after punching and kicking me she complies.

I'm done.

The needs of the many are now coming first. I'm on my sixth anti-depressant, DD2 is terrified in her own home, DH spends his life walking the dog trying to remain calm in the face is extreme provocation.

I'm done. No more. The 3 of us are coming first for the first time in more than a decade. I'm done.

No more empathy. No more trying to understand. Done.

No matter what we do, she has violent meltdowns. She thinks of no-one but herself. Modelling doesn't work. Talking incidents through doesn't work. She won't use any strategy she has been taught to avoid a meltdown.

I'm done. Time to live our lives.

OP posts:
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5
stargirl1701 · 11/07/2023 19:36

@dottieautie

Can you please point me in the direction of support we do not already have? I have covered it extensively in the thread.

OP posts:
CandlelightGlow · 11/07/2023 19:36

MostlyBlueberryFlavoured · 11/07/2023 19:30

No, people should be careful what they post about their non-consenting children. Asking for support is NOT the same as inviting people to spew hate.

You have blamed the OP for this though and not the posters; it's victim blaming the OP when she is already in a low state. I think a better approach would be to report the obviously ableist posts and challenge the more grey area ones if you have the time and resources to do so, but having a go at the OP for posting in the first place is extremely unkind and unfair.

WildUnchartedWaters · 11/07/2023 19:38

CandlelightGlow · 11/07/2023 19:36

You have blamed the OP for this though and not the posters; it's victim blaming the OP when she is already in a low state. I think a better approach would be to report the obviously ableist posts and challenge the more grey area ones if you have the time and resources to do so, but having a go at the OP for posting in the first place is extremely unkind and unfair.

I think Ops responses are getting backs up due to her level of anger. I agree shes well educated but I think it's all becoming muddy. I really feel for all involved.

stargirl1701 · 11/07/2023 19:40

@cansu

I've not seen her use screens as a calming influence. I think they help her have something to talk about with peers. A cultural literacy for her age group, you might say.

She 'uses' animals, nature and gross motor activities to co-regulate the most.

OP posts:
VitoCorleoneOfMNMafia · 11/07/2023 19:41

mintlily · 11/07/2023 19:30

Well, as autistic adults they struggle to function, they are very self absorbed and short tempered, but I think that's just because of their condition, not necessarily how they were raised. But I could be wrong.

I was disciplined, including physical punishment (aka physical abuse). I am perceived as short tempered. I prefer to frame it as having a low tolerance for idiots. I am perceived as self-absorbed because I prefer my own company. I am perceived as struggling to function when I don't cope well in social situations, despite an above-average salary STEM job, own house, own car, and hobbies.

It's a matter of cultural difference. The hermit in his cell, the anchoress in hers, the monks and nuns living under vows of silence, the artist or composer working alone in a studio, autistic people have always been here.

midnight90 · 11/07/2023 19:42

Can you put her in somewhere for at least a week and go on holiday and spoil your DD2 sounds like you need a break like you ALL need a break and a rest.

Goodfood1 · 11/07/2023 19:43

As hard as it is, go for it. You'll only know if you try. My son is asd and adhd so I'm not immune to supporting them. But as you say they are not the only family member that needs to be supported and protected. So give it a go. You've tried everything else advised so this is worth trying.
Either way she will improve I just can't say when.

Good luck

Verbena17 · 11/07/2023 19:43

midnight90 · 11/07/2023 19:42

Can you put her in somewhere for at least a week and go on holiday and spoil your DD2 sounds like you need a break like you ALL need a break and a rest.

“Put her in somewhere “ ?????

SkinnyMalinkyLankyLegs · 11/07/2023 19:43

Good luck OP. Keep us updated with how things are going.

Elisheva · 11/07/2023 19:45

I’m so sorry if this has already been suggested, but some fairly recent research has found that autistic children are often deficient in a number of key nutrients, including vitamin D and the B vitamins. Low levels of these nutrients can sometime impact on behaviour as they can cause things like depression, poor sleep and anxiety.
I don’t know if it might be worth her having a blood test to check her levels?

VitoCorleoneOfMNMafia · 11/07/2023 19:46

midnight90 · 11/07/2023 19:42

Can you put her in somewhere for at least a week and go on holiday and spoil your DD2 sounds like you need a break like you ALL need a break and a rest.

"Put her in somewhere"? She's not a cat you can put in kennels FFS!

Folioh · 11/07/2023 19:46

midnight90 · 11/07/2023 19:42

Can you put her in somewhere for at least a week and go on holiday and spoil your DD2 sounds like you need a break like you ALL need a break and a rest.

@midnight90 put her in somewhere? Where?! She isn’t a dog that can go into kennels!

Hollyppp · 11/07/2023 19:47

Just to say I feel for you and I can imagine being at the complete end of my tether in your shoes. It sounds like you’ve been such a caring, understanding, patient parent for years and years and years

FontSnob · 11/07/2023 19:47

Op, you sound like you’ve done everything in your power and beyond for her. I’m sorry that it is soo bloody hard and you’ll find no judgement here for whatever you decide to try now to help you all. as an extra thing to think about, Is there any chance that you might be perimenopausal and that might be adding to your own coping mechanisms being lower than they were?

Longtimelutker2019 · 11/07/2023 19:49

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Ovinnik · 11/07/2023 19:50

Another tiptoeing into this thread to express admiration for the OP - @stargirl1701 you are amazing in the ways you have supported both your daughters. I hope you find some answers and solutions soon. The lack of support from the wider services is shocking, as are some of the simplistic attitudes and perspectives of many of the posts on here.

StefanosHill · 11/07/2023 19:51

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This isn’t good.

You can’t whack children

IAmSalmaFuckingHayek · 11/07/2023 19:52

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Oh yes, because smacking the autism out of a child is a well known cure 🙄

Jesus wept.

stargirl1701 · 11/07/2023 19:53

@Thankgoodnessforabitofsun

I think when I look back, fundamentally, it just doesn't work. The same children lose GT every week. Primary aged children tend to want to behave and have a positive relationship with their teacher. There are extreme examples of children with serious attachment disorders who do not but that is vanishingly rare. I can only think of one child in all my years.

So, those children who lose GT every week are sent the signal that they are bad. And, each week that is reinforced. You get to the point where they cannot see a reason to even try. That in itself may lead to a breakdown in the relationship between teacher and child.

Ross Greene, who has been referenced on this thread, says it best. His Explosive Child book is good and the Facebook group of the same name is available for peer support for parents. It is very US based.

I understand where it came from. Schools were looking for a replacement to the tawse after '82 and Jenny Mosley was happy to sell her product. At the time, it fit into societal ideas of 'discipline' in schools. It wasn't corporal punishment but there was the idea of punishment through social shaming.

The social shaming of Scottish Calvinist Presbyterianism remains in Scotland today but it grows weaker with each generation.

OP posts:
Folioh · 11/07/2023 19:53

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So do you go around smacking people?

truthhurts23 · 11/07/2023 19:53

if you’ve taught her strategies , you need to also prompt her to use them
she’s not going to do it by herself
so for example if you taught her breathing techniques for anger,
you see her getting angry , you need to step in and remind her to do her breathing techniques
you can’t expect her to just do it spontaneously

with most ASD children alot of things that you teach them doesn’t “stick” so they need constant repetition , constant reminding and prompting and guiding
and the goal is that one day the repetition might sink in and they will do it by themselves , fingers crossed ..

I’ve been “teaching” my dd some things for 3 years , she still doesn’t do them unless I prompt her to do it
so just let go of the expectation that she will do this on her own , and you will be less angry about it

ASD children often do not connect events together , they will not connect the consequence, to their behaviour
they might know what they did was wrong depending on where on the spectrum they are but they will not connect what they did,to you punishing them
they just won’t connect the dots and will get upset and angry about being punished

do you know what her triggers are ? Do you notice any patterns that result in her having a meltdown or lashing out at others?
maybe she does this every time your having family movie night , maybe she does this every-time it’s bath time ..
inwould try to figure out next time she acts like this , check the environment and look for a pattern

sometimes it seems like someone with ASD just meltdowns “out of nowhere”
but actually no , there is usually a simmering before the boil

it could be several sensory things hitting her at once, a clock ticking , the washing machine starts rattling, the tv blaring, the dog starts barking , little sister playing with toys too loud , dad starts coughing
and slowly the ASD child starts getting wound up with all this sensory overload ,
so she tries to self regulate by stomping her feet or shouting over the noise and then mum thinks that shes misbehaving
so mum starts telling her off and then the result is a meltdown because she feels like she’s being told off for things she can’t control
I don’t think people realise how loud the world is for ASD children, it’s like someone turned the volume up to 100 and it can make them be on the edge all the time

she shouldn’t be allowed to bite or hit anyone but you could try redirecting her , buy her something she can hit like a pillow, or something to bite like a sensory toy and keep repeating that she is not allowed to bite or hit others

I find that my dd responds to visual rules over verbal ,
I bought laminated house rules that I refer to whenever she breaks a rule, I stuck it on the wall
and I get her to physically point to the rule she broke and then I tell her the consequence of that rule breaking which is time out, iPad taken away whatever punishment fits the crime

I think you and your husband should work as a team to give each other respite, you should have time to yourself to unwind and relax and so should he
and your youngest child should have time where you just spend the day with her too

please don’t exclude her at dinner times , she is your family, you love her and it’s not teaching her anything except that none of you like her , which will make her more angry and lead to more behaviour problems

stargirl1701 · 11/07/2023 19:54

@Longtimelutker2019

No. What would that teach? Might is right? Wouldn't that simply encourage her to hit smaller, weaker people?

OP posts:
BabbleBee · 11/07/2023 19:54

I’m done with being labelled as a resilient family and not getting any support at all. Apart from a brilliant SALT, we’re alone with the fight.

I agree with checking hearing - my DD is 15 and now has a hearing aid after years of being functionally deaf despite many appointments with audiology and ENT.

My suggestion would be to check her auditory processing - can she understand what she hears? We cannot use the word “don’t” with DD. For example, when crossing the road if we say “Don’t forget to stop”, she’ll only hear “Don’t stop”. We have to adjust our language and say “Remember to wait”. Remembering is an action and using that word tells her brain that she’s required to do something, and if she only hears wait then she’s still safe.

stargirl1701 · 11/07/2023 19:55

@FontSnob

Yes, I have thought of that. Still very regular periods at 28 days. No other symptoms either.

OP posts:
x2boys · 11/07/2023 19:55

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Should we try smacking the stupidity out of you🤔

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