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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To not want to believe infertility is happening to me

103 replies

ivfregret · 18/06/2023 18:15

Just that really. 1% of women and I'm it.

I always thought I had been too lucky careerwise the last ten years something bad was going to happen and here it is. Right there.

I post a lot about this sorry for anyone whose bored but noone understands.

I'm not even bothered about having children but it's the fact the choice has been taken away when I even agonised over the choice years before deciding to do it.

No one understands at all and I feel like failure, outcast, weirdo, all rolled up in one.

No idea why I'm posting it's not even for sympathy but just getting it off my mind.

OP posts:
Needsomeadvice33 · 19/06/2023 21:53

I've had 3 miscarriages in a row for me it was immune issues. Hyperfertility- got pregnant first month trying eachtime and all stopped growing week 8 - this is common pattern in immunological miscarriage. didn't realise I had coeliac disease (common to cause recurrent miscarriage) and have mthfr c677t homozygous. I had loads immune testing everything else normal. Spent 1 year getting very healthy/strict gf. I'm like a new person. I had loads horrible symptoms for years fatigue, joint pain, psoriasis. Anyway everything is now in remission after 1 year extreme clean eating. I feel fantastic. I'm currently just pregnant again but feeling way better about it, like i said immune issues all now in remission and bloodwork all normal. I also took loads antioxidants for egg quality and husband sperm quality. I'm also on steroids, LDN, progesterone supps, high dose omegas and asprin. Early days but I'm hopeful this time. Its probably your immune system unless your much older then egg quality will be a big problem also. Have you had much immune testing? Reproductive immunologist are generally very helpful in recurrent miscarriage. I would recommend Dr Alan beer - is your body baby friendly. Also listen to Dr Sheehata podcast on recurrent miscarriage on Spotify.

Needsomeadvice33 · 19/06/2023 22:15

Sorry meant to add I was th1 /th17 dominant but I've balanced that now. I eat so strictly now. I also normalised homocysteine which was high (assossiated with mthfr). Through extreme amounts of methylated b vitamins., avoidance of any folic acid but very high dose active methylfolate and other active form b vits and cofactors.
My aims currently in this pregnancy are to upregulate tregs/keep t cells and cytokines balanced :
LDN
Prednisolone 20mg
Progesterone 400mg twice daily.
Anticoagulant:
Keep working to maintain normal homocysteine through clean diet methylated b vits and all the co factors
Aprin 75mg twice daily
Vit e 500iu
6grams omega daily
Maintain my now normal coeliac antibodies through extreme strict gluten free.
I had some gene testing and immunes thwse were normal:
Cytokines/ NK cells
Complement levels
ANA antibodies
Immunoglobulins serum levels
Antibodies DNA antibodies
Thyroid antibodies and full panel (optimum tsh - 1.8, should be below 2.5)
No diabetes
No uterine abnormalities and no infections.

For me it looks like it was dysregulated t cells/ coeliac antibodies and high homocysteine assossiated with the worst mthfr polymorphisms.
I've also lost 2 stone.

I also wanted to take a homeopathic approach not just western medicine approach. I highly recommend readinb dirty genes by Ben Lynch. My view was to throw everything at my immune dysregulation for a year and get into optimum health. I limit greatly environmental toxins.

Please learn /test mthfr too (there's a fb page relevant to pregnancy loss)
Please if you have immune issues already look into LDN (Philip boyle in Ireland fertility Dr uses it loads). I've been on it a year its fantastic and balances t cells. Reduces thyroid antibodies in hashimotos.

Hopefully I've cracked my issues but remains to be seen. I'm 30

Good luck!!

HeyMona · 19/06/2023 22:41

@LilyTuesday what a horrible, hurtful comment.
Years of infertility here and hearing crap like that spouted is just horrid.

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