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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Am I overthinking these quirks/behaviours?

82 replies

caaamhs · 31/01/2023 11:04

My eldest DC (6) has recently been referred for suspected ASD. Before starting school, I didn't see her behaviour as anything other than on the more intense side of normal (high needs baby, sensitive toddler, rage-filled 4/5yo!). But now she's been referred it's making me question some things. My middle child (4) is completely different, very emotionally engaged, responsive, not as sensitive, not as obsessive... I actually find it quite hard parenting him sometimes as I'm so used to my eldest's quirks and have realised belatedly we perhaps didn't have a 'normal' early years experience with her. Youngest is still a baby and while less chill than my son, not as intense as my daughter was (although that's probably more to do with me than her!).

Anyway, I've had lots of chats with the school's SENCO and it's flagging up all kinds of things in our wider family, but also specifically for me.

I've always felt like an outsider. Have friends, but not many - and haven't made any new friends in the best part of 20 years, just acquaintances (not people I hang out with or see regularly). And yet I'm friendly and well liked - just not good at getting close to people beyond the superficial. I'm not sure of what the expectations are of 'being a friend' and have to remind myself to do things like check in (although I'm excellent at buying presents).

Everyone I knew as a teenager / young adult described me as 'not a hugger' - my family were not very tactile growing up, and mum has told me I 'stopped hugging her' when she was pregnant with my brother. I've grown more used to it over the years and now do sometimes hug people upon meeting / saying goodbye and so on, although am never quite sure when it's appropriate or not (and don't get me started on kissing cheeks, which I always mess up - one or two?!). But I'm very tactile with my kids and we all hug all the time, my DH a little less so and he complains that I'm cold and not touchy-feely enough. I do love a cuddle but have to be in the right frame of mind, otherwise I just feel awkward and sort of impatient?

I'm intelligent and did well at school/college/uni, read lots of books, but often feel like I don't actually understand the world and other people. I pretend an awful lot that I do and just hope that by gradual osmosis I'll pick up on what's going on. But often even the simplest things either feel inscrutable to me, or I just don't understand how other people know them. Kind of like I've missed a set of instructions somewhere along the line.

I'm very good at observing people from the outside and understanding their motivation etc - I have a very good 'gut instinct' for people and can give excellent advice to others on how to handle situations. But I'm not very good in actual interactions and often misread things or get them wrong. I don't understand how these two things can be true at the same time and feel I should be able to apply my objective appraisal to my everyday interactions, but don't seem to be able to!

I do enjoy being around people, love having a chat/gossip with the people I'm closest to at work, can be quite funny and sometimes even the centre of attention, and have got better at small talk over the years - I try to watch what other people do and copy what I see working. I chat to parents on the school run. But I have a tendency to massively overshare and will tell pretty much everyone all my business - I have to actively monitor what I'm saying but even then I'll often just keep running my mouth and then feel embarrassed afterwards. Ultimately I much prefer being by myself, and while I enjoy social occasions and can feel very mentally buoyed by them especially if I've been a bit low, they do often leave me feeling quite drained (before having kids, I had a limit of how many times I could see other people per week before feeling overwhelmed). I'll often leave places early or find an excuse not to go.

I'm obsessed with dates and can remember them easily, I never forget a birthday. When I meet someone I like to know how old they are so I know that they were x age when I was x age; when I'm watching something set in the past I immediately go through all the things I / my family were doing at that particular point in time. In the days before mobiles, I knew everyone's phone numbers.

I hate clothes and find so many things uncomfortable, to the point of anxiety e.g. if something has a tight neckline or sleeves. Don't wear jewellery except a wedding ring. I've had countless mornings where I've ended up crying hysterically because something doesn't feel right and I can't get ready for work, especially in my 20s and 30s (bit more chill now I'm in my 40s and probably a bit better at picking things I know will be comfy). If I find something I like, I'll wear it until it falls apart (or buy it in several colours). My step-dad used to joke about me getting excited by the same style of plain t shirt.

At work, I find it very hard to concentrate in meetings and will find my mind wandering all the time, so I can't follow what's been said, or remember it afterwards. Constantly doodling and have to be busy with my hands. I also struggle to grasp concepts which aren't very tangible - I used to work in customer service and was very good at that as serving customers and dealing with systems all come very naturally to me. But in an office role, I really struggle to stay focussed on what my actual job is, get sidetracked very easily by simple tasks, and even a few years into my current employment I feel like my grasp of what I'm actually meant to be doing is quite hazy; even after having helpful chats with my manager, I'll literally walk away from the meeting and be unable to articulate what my purpose is. I also struggle to get 'into' a piece of work - once I'm focussed I can keep going and going, but if I'm distracted that's it and I can't get back 'in' again. I'm not ambitious or career-driven, even though I'm the main breadwinner (just coming to the end of mat leave now) - I don't really understand the world of work, it often just feels like a mystery to me.

Often someone will be talking to me and I'll realise I've been thinking about something completely different. I can't listen to audiobooks for the same reason, and can only listen to podcasts when running with no other distractions. But I can concentrate easily on a book! And I love books of all kinds, fiction and non-fiction, poetry, graphic novels. I'm a bit obsessed with acquiring new books, recording what I've read, preparing little reading lists for myself, ensuring I 'tick' my own little reading boxes e.g. if I read a novel I should read some non-fiction afterwards, if I read something by a white male author I should follow it up with something by a diverse female author, and so on.

I love routine and do things in exactly the same way every day, and I plan everything meticulously - I sometimes joke to myself that if I could plan literally my entire life in advance I would do (although then I'd be miserable as I'd have nothing to plan and wouldn't know what to do with myself).

Most negatively, while I'm usually very calm and happy (on the outside at least!) I really struggle with my temper and when I'm feeling really anxious or tired or like things are out of my control I'll lash out in ways which are completely disproportionate to the situation (although I'm great in an emergency - go figure). I try hard to breathe, calm myself down etc but its like something takes over me and I can't rein it in. This is never in public, only ever with the people I'm closest to - so used to be my siblings (not my parents, as I was terrified of my step-dad and a little bit scared of my emotionally distant mum!) and is now my DH and kids.

Sorry this is SO long, but my AIBU is, am I reading too much into quirks which are totally normal and how loads of people feel (but just aren't saying)? I hate people self-diagnosing as much as the next person but feel like I can't get my head round what's 'normal' or not any more!

YABU - this is all totally normal
YANBU - sounds like there could be something else going on

OP posts:
HelpASisterOut999 · 31/01/2023 11:09

yanbu, autism runs in families and quite often parents realise they are ND once their children have a diagnosis (happened to me).
Have a look into diagnosis of women, as it often presents differently in women and we get a lot older before we realise we may also be autistic.
Sunshine Support on Facebook are running a webinar on this subject soon.

PaddyDingDong · 31/01/2023 11:09

Jesus Christ are you me? I haven't got the patience to type out a post like yours and it would never be as articulate as what you've written but yeah, you're me. Following with interest.

caaamhs · 31/01/2023 11:10

PaddyDingDong · 31/01/2023 11:09

Jesus Christ are you me? I haven't got the patience to type out a post like yours and it would never be as articulate as what you've written but yeah, you're me. Following with interest.

This took me weeks of writing and editing and thinking about posting! I'm shaking now having posted it... I hope there are some helpful replies for you too!

OP posts:
caaamhs · 31/01/2023 11:12

HelpASisterOut999 · 31/01/2023 11:09

yanbu, autism runs in families and quite often parents realise they are ND once their children have a diagnosis (happened to me).
Have a look into diagnosis of women, as it often presents differently in women and we get a lot older before we realise we may also be autistic.
Sunshine Support on Facebook are running a webinar on this subject soon.

thank you, I hear this a lot and it's been quite a shock after thinking for years that we're all NT that there could be any possibility any of us could not be. We do have autistic family members in the wider family - just never saw the similarities until recently.

OP posts:
HelpASisterOut999 · 31/01/2023 11:15

caaamhs · 31/01/2023 11:12

thank you, I hear this a lot and it's been quite a shock after thinking for years that we're all NT that there could be any possibility any of us could not be. We do have autistic family members in the wider family - just never saw the similarities until recently.

believe me, I totally get it! I haven't pursued an official diagnosis but I did mention it to my counsellor yesterday and felt quite validated.
I have so many friends who are all coming to the same realisation too, and most of these friends have autistic children. We've assumed we 'got' our children because we were just good mums (which we still are!) but it goes much deeper than that and so many things from our own childhood, things we still struggle with now have fallen into place once we started to consider we may also be autistic.

DilemmaDelilah · 31/01/2023 11:16

It's me too. I didn't realise until my grandchild was diagnosed, and then I mentioned it to my family and they all said that of course it was me as well. It does explain a lot!

DontWriteMeOffYouCunt · 31/01/2023 11:19

You're me and I'm autistic. You're clearly autistic if everything you've written is accurate. It's nothing to worry about, feel any shame or embarrassment about, it's not a negative. Join some autistic adult groups on facebook and copy and paste what you've posted here - you'll get the same response as from me. Plus there's such a huge level of support and inclusion - You're not alone and you're not alien.

touterustome · 31/01/2023 11:20

Yeah. Sounds like you and your DD are autistic, that's cool that you've finally found some understanding for yourself and will be able to get good support for your DD early on.

Barneythedinosaur · 31/01/2023 11:24

PaddyDingDong · 31/01/2023 11:09

Jesus Christ are you me? I haven't got the patience to type out a post like yours and it would never be as articulate as what you've written but yeah, you're me. Following with interest.

I feel like it could be about me too.
Watching the replies with interest currently.

caaamhs · 31/01/2023 11:24

DontWriteMeOffYouCunt · 31/01/2023 11:19

You're me and I'm autistic. You're clearly autistic if everything you've written is accurate. It's nothing to worry about, feel any shame or embarrassment about, it's not a negative. Join some autistic adult groups on facebook and copy and paste what you've posted here - you'll get the same response as from me. Plus there's such a huge level of support and inclusion - You're not alone and you're not alien.

thank you! 😊

OP posts:
caaamhs · 31/01/2023 11:25

touterustome · 31/01/2023 11:20

Yeah. Sounds like you and your DD are autistic, that's cool that you've finally found some understanding for yourself and will be able to get good support for your DD early on.

thanks, I'm glad it's been picked up for DD, it wouldn't have been at school but I mentioned some home behaviours and also her (anxiety) absences have been flagged, so things are falling into place. Looks like a loooong road to any kind of diagnosis (if there is one) but glad it's been picked up at least.

OP posts:
DeidreData · 31/01/2023 11:36

This is exactly like me. I could have written everything here. My DD has an ADHD diagnosis, but when I went for an autism assessment the (male) doctor told me I just had issues with anxiety (I’ve never had issues with anxiety). It’s really put me off investigating further or again, but I do a lot of reading around neurodiversity in women and girls and that awareness has really helped.

Whether or not you choose to go down a formal route, know that you aren’t alone, aren’t “weird”, and are part of the rich mix of people that make up life.

caaamhs · 31/01/2023 11:39

Another thing: eye contact. I vividly remember finding it very painful as a child and I read something about focussing instead on the centre of the bridge of the other person's nose, so I followed that for ages! Now I'm mostly comfortable with making 'appropriate' eye contact in work situations or meeting with friends, but do have to think about it. I thought everyone felt like this though as it was in a book therefore must have been a common thing!

OP posts:
caaamhs · 31/01/2023 11:43

DeidreData · 31/01/2023 11:36

This is exactly like me. I could have written everything here. My DD has an ADHD diagnosis, but when I went for an autism assessment the (male) doctor told me I just had issues with anxiety (I’ve never had issues with anxiety). It’s really put me off investigating further or again, but I do a lot of reading around neurodiversity in women and girls and that awareness has really helped.

Whether or not you choose to go down a formal route, know that you aren’t alone, aren’t “weird”, and are part of the rich mix of people that make up life.

I'm sorry you didn't have a good experience with your doctor, I had similar with DD when I called about her anxiety and was told all kids are anxious (it was during lockdown). Annoyed now as the referral process would have been quicker before school. But hey ho. Thank you for your kind words :-)

OP posts:
PicaK · 31/01/2023 11:45

Go get yourself tested. Expect to wait about 2 years for NHS.

RedHelenB · 31/01/2023 11:47

I can tick a lot of those boxes. Being NT doesn't mean you know everything and can do everything. You also have anxieties and difficulties about friendships, just look at all the posts on mumsnet about it.
However, if you feel that you have things in common with your dd that's a good thing that you can empathise and help her deal with them.

caaamhs · 31/01/2023 12:00

RedHelenB · 31/01/2023 11:47

I can tick a lot of those boxes. Being NT doesn't mean you know everything and can do everything. You also have anxieties and difficulties about friendships, just look at all the posts on mumsnet about it.
However, if you feel that you have things in common with your dd that's a good thing that you can empathise and help her deal with them.

thanks, this is exactly what I've always thought and why I'd have never considered myself as anything other than NT. I'm sort of happy just being more aware that we're all wired differently if that makes sense. But equally I'm the sort of person who likes having resolutions / answers to things which is why it's irking me.

OP posts:
cortisolqueen · 31/01/2023 12:05

I can relate to pretty much everything you've said too.

caaamhs · 31/01/2023 12:16

This is what I needed to hear, thank you all - sounds like a lot of this is just totally 'normal' (for want of a better word) but also I probably share some traits with DD - even if not enough to warrant any kind of diagnosis. But I'll definitely look into some of the ideas suggested and have signed up for the Sunshine Support seminar, thank you @HelpASisterOut999 for mentioning it!

OP posts:
inthehammock · 31/01/2023 12:22

Your OP has prompted me to reply as it was also uncannily like a description of me, from the friendships, the simmering anger, the routine, the clothes - the only difference being I was very driven at work to the point of being utterly inflexible and too rigid in my thinking. I also have a DC with an ASD and ADHD diagnosis plus I strongly suspect my other DC had ASD (though presents differently). I am mulling over whether to pursue a diagnosis - I think it would really help me view a lot of my life experiences through a new lens.

caaamhs · 31/01/2023 13:56

inthehammock · 31/01/2023 12:22

Your OP has prompted me to reply as it was also uncannily like a description of me, from the friendships, the simmering anger, the routine, the clothes - the only difference being I was very driven at work to the point of being utterly inflexible and too rigid in my thinking. I also have a DC with an ASD and ADHD diagnosis plus I strongly suspect my other DC had ASD (though presents differently). I am mulling over whether to pursue a diagnosis - I think it would really help me view a lot of my life experiences through a new lens.

Thank you, it seems there are a lot of us who are very alike! It makes me wonder generally about our experience as women (assuming all the posters have been women of course), ND or not, whether some of this is actually about societal expectations perhaps?

Even without thinking about diagnoses I've found it quite helpful recently to view things I've previously just thought of as 'I'm a bit shit at this' as actually, 'this is something it's okay for me not to be good at' or 'being good at this isn't the default'.

OP posts:
caaamhs · 31/01/2023 14:47

PicaK · 31/01/2023 11:45

Go get yourself tested. Expect to wait about 2 years for NHS.

thanks, I'm considering it!

OP posts:
caaamhs · 31/01/2023 15:13

HelpASisterOut999 · 31/01/2023 11:15

believe me, I totally get it! I haven't pursued an official diagnosis but I did mention it to my counsellor yesterday and felt quite validated.
I have so many friends who are all coming to the same realisation too, and most of these friends have autistic children. We've assumed we 'got' our children because we were just good mums (which we still are!) but it goes much deeper than that and so many things from our own childhood, things we still struggle with now have fallen into place once we started to consider we may also be autistic.

Can I ask, do you see a counsellor for something specific or as an ongoing general thing? I've been wanting to explore therapy for a while as I have some things I'd like to work through, but my only experience so far via the NHS has been that you have to define a very specific thing that you want to work on, then you work towards that and then get signed off. Whereas i guess I'm hoping for more of a talking therapy that's ongoing. Presumably that's something you can get privately?

OP posts:
Fromthefog · 31/01/2023 15:50

I have also recently realised that I am probably on the spectrum. I found it to be quite a lightbulb moment and following that it seemed to explain everything and even memories of past events have changed their significance a lot. It turns out a family friend who worked in MH had suggested to my parents that I was on the spectrum over 30 years ago. I am happy with my discovery and I am not bothering with a diagnosis. I did ask my Dr but she said there was probably little point for me unless I wanted to claim benefits. You certainly sound like you are as well from what you have written.

biscuitbadger · 31/01/2023 15:58

Some of what you've written sounded spookily like it came out of my brain!

I have one child who is diagnosed autistic, another child and a husband who are suspected, and I always wonder whether I am too.

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