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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Does it sound like DS is autistic?

83 replies

AnxietyIsMyShadow · 28/12/2022 07:35

Hi, probably wrong place to post but desperate for advice. I’m really worried about DS (3 next month) and would appreciate it if anyone could offer advice as to whether it sounds as though I need to be looking into an ASD referral for him please.

speech - he knows what everything around him is (if I ask him he will say “it’s a helicopter mum” for example) or if I ask him to point to the door etc he will. Most of his speech is repetitive phrases however, he will say the same things over and over again and when asked a question will answer in the same way each time “do you want a banana?” “I want a banana mum, I want a banana” no variation on this, never “yes please” or “yum a banana” etc

he knows his name, but I could say his name 100 times and he won’t respond.

if I ask him questions he often replies using the words I’ve used “let’s put your coat on” he will say “put coat on” sometimes says “ok mum” in response. eye contact is variable - sometimes he looks at me when interacting, or to see my reaction to something, whereas sometimes I feel like I’m desperately trying to get him to look at me.

socially - has a 6yr old sister who he loves and likes to play with, if we are at the playground etc with her and her friends he likes to join in chase games etc. has no fear of climbing things etc, not at nursery yet but take him to toddler classes where he varies between being very sweet with other children (doesn’t make a fuss if someone takes his ball etc) and if someone’s crying will comment to me “someone’s crying”, recognises emotions such as “daddy’s angry!” etc, not bothered by loud noises, to being totally uninterested and just doing his own thing running around, doesn’t talk to any of the kids there although to be fair I don’t see them all chatting away to each other either. With adults it’s totally different - he is massively overfamiliar with adult men he doesn’t know and will run up to them saying hello daddy (??? Even if they look nothing like his dad) and trying to cuddle them/tap them on the leg/rugby tackle them, doesn’t do this to women at all and actually got really upset when a female friend of mine he doesn’t know well picked him up recently to help him onto a bouncy castle.

Intelligent - can count past 100, knows the alphabet and colours/shapes, knows a few songs which he sings regularly.

doesn’t seem to have the fixation with spinning things I’ve read is common but does do things obsessively and repeatedly- lining up toys, puzzles, plays with things the same way every time. On TV will only want to watch the same programmes and has a routine of asking for one, waiting for me to put it on them asking for the next one, I can guarantee he will do this every time we we turn the TV on.
trying to encourage pretend play as this isn’t something he does without encouragement. So if I ask him “let’s put dolly to bed” he will do it and say “dolly’s in bed!” But he wouldn’t pretend to feed his toys by himself if you see what I mean.

sleep is a nightmare - almost 3 and never once slept through the night, wakes regularly, always up very early every single day (average is 4.30am), obsessive about being breastfed and any attempts to wean him are met with absolute fury.

my daughter unbelievably never tantrummed, so when DS has meltdowns I don’t know if it’s typical toddler unreasonable behaviour or if something else is going on, particularly as the meltdowns occur if you try to interrupt something he is doing or if something is unexpected- he loves to visit every aisle in order in the supermarket and if I try to skip an aisle he will literally be kicking and screaming because we have missed a number.

Does this sound like he is autistic? Any advice welcome, Thankyou xx

OP posts:
Jay2790 · 28/12/2022 07:40

I think there are a lot of things in your post that would indicate the need for a referral for assessment. You can do this via your health visitor - you could relay the content of your post to them. Look up echolalia if you are currently unfamiliar with the term. I can relate to sooo much in your post, including the struggles with weaning, repeating, being over familiar, plus lots more, and we have a diagnosis. Happy to chat further via PM.

lifeinthehills · 28/12/2022 07:44

I agree. There are some things that suggest that maybe your son is autistic. But it's so variable, you need a formal assessment.

Vinvertebrate · 28/12/2022 07:45

Sounds very like DS at that age and he is autistic. Enough signs that justify a referral
especially echolalia and not responding to his name.

DS was diagnosed at age 3.5. Many clinics don’t want to diagnose that young - we went to Lorna Wing who were. It meant he’s had EHCP and a 1:1 since pre-school so it’s worth doing.

good luck op.

lifeinthehills · 28/12/2022 07:47

If your son is autistic, please look carefully at your daughter. There are cases where the son is diagnosed but the daughter misses out because her manifestation of autism is so different. So much harder for girls to get diagnosed. If your son is autistic, also consider the genetic origins of it.

Nineteenton · 28/12/2022 07:49

Agree with everyone else. There's definitely enough going on there for a referral. Some of that is very familiar from my son.

Untitledsquatboulder · 28/12/2022 07:50

Yes it sounds as though he could be. Well done to you for spotting that there may be an issue. Next thing is to seek diagnosis, then you'll know one way or another.

MerryChristmasTree · 28/12/2022 07:51

There are a few things that would indicate yes, the repetitive behaviour, the behaviour around adults (some autistic children can appear to converse better with adults than children). The eye contact, well my autistic children do make eye contact so this can be variable.

Not all asd children spin, they do ‘stim’, hand flapping is common. Mine make noises or shriek. How is he with sensory things? Clothes, hair brushing, nails being cut, loud noises etc, food?

It’s worth keeping an eye on and maybe writing things down? It can be hard to be referred, and the waiting list is currently 2 years. We got supporting paperwork from school which showed his needs there, and luckily they were very supportive. Nursery didn’t pick up on anything!

Misspacorabanne · 28/12/2022 07:56

Yes op. My DS has autism and I recognize many if the traits you've written here. The first step is talk to gp or health visitor and get the ball rolling.
I think he definitely needs an assessment, it's along wait in many areas, but keep notes, and you can keep adding to it while you wait if you do notice other things.
I find having it all written down helped ensure I didn't forget anything! It's such an important first meeting, that I just wanted to get all my concerns about DS out.
Good luck with it. Your DS sounds lovely by the way, getting an diagnosis won't change that! But it will help him going forwards.

NoSun · 28/12/2022 07:58

Have a look into gestalt language processing, I work in Early Years and it has made a huge difference after making a few subtle changes in the way I communicate with children who are not analytic language processors.
Does your son attend a preschool or nursery ?
I would recommend contacting your health visitor if you have any concerns.

AnxietyIsMyShadow · 28/12/2022 07:59

Thankyou for your replies, as heartbreaking as it is to read everyone seems to agree there’s something wrong.
he doesn’t hand flap or spin, he does get into little rages if he doesn’t like something (if interrupted for example) sensory wise is variable - loves the bath, very affectionate and loves a cuddle, fine with nappy changes and having hair brushed but HATES having his hair cut, also hates having his nails trimmed so I do it when he’s asleep. Fine with loud noises. Doesn’t appear to have issues with textures etc, currently going through a phase of not wanting to wear jumpers.
Desperate for someone to tell me this is all very regular toddler behaviour and he will grow out of it/will get better when he starts nursery as maybe I’m just not providing enough stimulation for him and he’s acting up because he’s bored etc

OP posts:
lifeinthehills · 28/12/2022 08:03

AnxietyIsMyShadow · 28/12/2022 07:59

Thankyou for your replies, as heartbreaking as it is to read everyone seems to agree there’s something wrong.
he doesn’t hand flap or spin, he does get into little rages if he doesn’t like something (if interrupted for example) sensory wise is variable - loves the bath, very affectionate and loves a cuddle, fine with nappy changes and having hair brushed but HATES having his hair cut, also hates having his nails trimmed so I do it when he’s asleep. Fine with loud noises. Doesn’t appear to have issues with textures etc, currently going through a phase of not wanting to wear jumpers.
Desperate for someone to tell me this is all very regular toddler behaviour and he will grow out of it/will get better when he starts nursery as maybe I’m just not providing enough stimulation for him and he’s acting up because he’s bored etc

I prefer not to think of autism as something wrong, just a different way to relating to the world. There's so much diversity in autism. Some you can hardly tell, if you can even tell at all from casual encounters. Many also have incredible strengths. It does bring challenges but it's not all gloom.

TinselTinselTinsel · 28/12/2022 08:09

Sounds exactly like my DS who is also 3. And I'm exactly in the same confusion at you. My DS repeats phrases "this is awesome" "good morning to you" which everyone thinks is v amusing but I don't. Also he is v over familiar with adult men, he tried to kiss the plumber for example

Health visitor says she thinks he's a bit anxious and struggling with communication but I don't need to worry; GP says all normal; but pre school have real concerns and we have recently completed as ASD referral. Have a meeting in Jan with pre school manager to discuss next steps

Things I've found DS really likes: weighted blanket at night to help sleep, a small tent in the house (he likes small spaces), and printing pictures of what we are doing- so getting dressed is always a nightmare but now I show him a pic of a boy getting dressed and he seems happier to do it after seeing the pic.

Mindystryder · 28/12/2022 08:10

If you are concerned you need to sort a referral asap. My 3yo has much more severe traits than yours (non verbal for one and limited understanding) and we have been waiting over a year already. We had one appointment with a paediatrician who basically said "well he might be or he might not be" and referred us on to the autism team. Apparently wait time are around 18 months. The initial referal was made over a year ago and we were hoping to get a diagnosis before school which is looking very unlikely. Speech and language also have similarly long wait times. There is very little support and everything has waiting lists of potentially years. Get into the system now would be my advice!

CrabbyCat · 28/12/2022 08:14

Have you filled in any of the online questionnaires, for example you can get the Ages and Stages socio-emotional one for 36 months here www.google.com/url?sa=t&source=web&rct=j&url=www.socfc.org/SOHS/Disabilities%2520Mental%2520Health/ASQ/ASQ%2520SE%252036%2520Months.pdf&ved=2ahUKEwjV_8iU7Zv8AhWUQEEAHROVCjkQFnoECBEQAQ&usg=AOvVaw248JzMAsPOXmy86rarW_ka ? It's the same one as we did for 34 months with our HV, and give you something a bit more structured to take to a HV / GP.

For what it's worth, some of what you describe sounds regular toddler behaviour (e.g. not talking to peers at playgroups) other bits sound less common.

Minniem2020 · 28/12/2022 08:16

If you are concerned then I'd take steps now to get him on the pathway. Our initial referral was 15 months ago and still waiting for speech and language visits. I can understand you're worries but please don't think of autism as being something wrong. If your ds is happy and healthy then that's what's important, it may just be that he needs some extra support. People always comment that my DS is one of the happiest children they've ever met and this is what I concentrate on.

Minniem2020 · 28/12/2022 08:17

*your

Vinvertebrate · 28/12/2022 08:18

Yes, agree with pp’s - my DS is a ridiculously happy little (autistic) boy. Autistics get so much pleasure from their hyper-focused interests - it’s actually lovely to see.

joleyn · 28/12/2022 08:18

I would definitely consider getting referred for assessment as waiting lists are very long post covid, over 3 years locally. My son was diagnosed at 3, loves loud noises, no hand flapping etc but lots of repetitive speech, obsessive playat that age. He is absolutely the most social of my children, will talk to anyone. There are challenges and we have to continually adjust our parenting strategies but he's funny, caring and smart.

Lenald · 28/12/2022 08:22

I don’t think anyone will refer you yet. He’s to young and all of his symptoms can be explained with age. I would wait a while and see how he grows/develops.

you’ll need support from a nursery not just a doctor, if he was none verbal and flapping, a doctors referral maybe adequate but at this stage I don’t think ASD is overwhelming obvious.

my 5 year old presented very much like this at 3, he is now atypical and I remember because I was worried, his 11 year old brother has ASD.

Boystomenslowdanceatweddings · 28/12/2022 08:23

Have a look at the below. We assume autistic people to be disinterested in people but actually the opposite is true sometimes. My dd is overfamiliar, no boundaries in what she won't discuss or tell complete strangers. Whilst my friends DS won't talk to anyone! It's true that if you've met someone with autism, you've met one person with autism. My DD didn't spin or flap, she did stim (a brrrrr noise with her lips which she still does at 7)
The repeated phrases thing is quite common. It can be so natural that other people don't see it. It was only myself, my mum and nursery who picked up that she would say the same phrases over and over to fit different situations. Very common way of masking.

Does it sound like DS is autistic?
Rollingupahill · 28/12/2022 08:26

Agree with everyone else about getting the referral onto the pathway organised. It will take a long time.

You may be able to obtain melatonin to help with sleep.

Ilovechocolatetoomuch · 28/12/2022 08:39

My Ds was diagnosed at 8.
At 3 He didn’t flap, spin or Line things up. He had no sensory issues loved a cuddle and had a good friend at nursery.
Autism is a spectrum so although some autistic people might display the classic signs many won’t.
At 3 the signs were not responding to his name , he was very similar with his speech to your Ds. He never came and showed us anything like a new toy or said “look at me” that was about it.
I found it very scary when someone suggested he might be autistic. He is 9 now and yes he has his difficulties (mainly socially and anxiety) but I honestly wouldn’t change him for the world.

If you are worried ask for a referral the hardest bit for me was the 3 years of is he isn’t he?

AnxietyIsMyShadow · 28/12/2022 08:42

Thankyou for your replies. I have just called the health visitor advice line who said they will send me the initial questionnaires.
Do you think there’s any chance he could be bored and understumulated at home and is showing repetitive behaviour because he is bored? If I sign him up for more toddler classes and try to enrol him in some nursery sessions, would this help him?

OP posts:
Bananarama21 · 28/12/2022 08:46

My ds was referred as 3 and assessed aged 4 he was borderline and didn't get a diagnosis then. He's now 6 and it's very evident he has traits and sensory issues. He's under assessment again for asd and he's been accepted on the pathway. He's also been approved for an educational care plan. The Educational physiologist said she would be very surprised if he wasn't diagnosed as being asd by the MAAT. It possible he might be too young to get a true indication, this was the case with ds although he barely spoke and used to rip up carpets and smear faeces everywhere at that age.

NameIsBryceQuinlan · 28/12/2022 08:53

Yes it sounds like he is autistic.

Try not to say "something wrong" I don't think that's helpful.

My son was diagnosed at 2 so those saying 3.5 is too young to be referred, that's not accurate in my area.

If it was my son sending him to more session would make him very stressed. If he is happy with his repetitive games why change it?

Lots of good books on autism and tons of great advocates you can follow on social media.

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